In this episode, Carrie opens up about the "professional paradox" of being an expert in child development while feeling like a failure as a parent. She shares the turning point that occurred when she stopped trying to "fix" behaviors and started understanding the unique architecture of the FASD brain.

Key Takeaways from the Conversation

• The Struggle for Diagnosis: Carrie discusses the two-and-a-half-year journey to secure an FASD diagnosis, which finally came when her twins were 10.5 years old.
• The 10 Brain Domains: Discover how learning about the brain domains was "gut-wrenching yet freeing," allowing Carrie to move from guilt to effective accommodation.
• Professional vs. Parent: Carrie explains why her twins would "shut down" at school while displaying acting-out behaviors at home, and why traditional parenting techniques often fail these children.
• The Power of Yet: A look at how Carrie manages the transition into adulthood and why she remains hopeful about the brain’s ability to grow and learn well into the 20s and beyond.
• Self-Care for the Solo Parent: How Carrie utilizes respite services, online grocery shopping, and "breathing breaks" to stay regulated as a single mother.

Resources and Links

Free FASD Workshop Registration Join our upcoming free workshops this February to learn a new brain-body approach to managing aggression and building stability. Register Here: https://www.fasdsuccess.com/fasd-workshop-2026

Connect with Carrie McCarter Carrie is a passionate educator and speaker available for training and advocacy sessions. 

Email: carriemccarterfasd@gmail.com 

Watch on YouTube See the full video version of this interview: https://www.youtube.com/watch?v=l7UJh3m9ZAA

The FASD Success Show Subscribe on Apple Podcasts or Spotify to never miss an episode.

Support the show

In this episode you’ll hear
 • What blocked care is and why it happens when stress stays too high for too long
 • How the stress response can shut down your social engagement system and make you feel emotionally flat
 • Why anxiety keeps pulling you into worst case futures and how to come back to the present moment
 • The difference between self regulation and auto regulation and why auto regulation is the real level up
 • A one minute grounding tool you can practice anywhere even when life is loud
 • How to use “the gap and the gain” to track real progress when it feels like nothing is changing
 • Why grief and ambiguous loss often hide underneath anger and resentment
 • How to avoid toxic positivity and build something steadier and more sustainable

Start here first
 Caregiver Kickstart Workshop (free): https://www.fasdsuccess.com/fasdworkshop2026

Watch the full episode on YouTube
 https://youtu.be/2jcTNnkMfR0

Listen on Apple Podcasts
 https://podcasts.apple.com/ca/podcast/the-fasd-success-show/id1492499195

Listen on Spotify
 https://open.spotify.com/show/6ntB51glqYnRPmXCh6lOGq

Resources mentioned
 FASD Elephant (Michael Harris): https://www.facebook.com/fasdelephant

Michael’s email: michael@fasdelephant.com

Michael’s writing hub: https://medium.com/@FASDElephant

Praise for Change: https://praiseforchange.com

Find FASD Success
 Website: https://www.fasdsuccess.com

Free Facebook group: https://www.facebook.com/groups/FASDforever

Instagram: https://www.instagram.com/FASDSuccess

Facebook page: https://www.facebook.com/FASDSuccess

YouTube: https://www.youtube.com/@FASDSUCCESS

Support the show

What if many of the struggles we see in FASD are not about behavior at all but about how the brain sends and receives messages?

In this episode of The FASD Success Show, Jeff Noble sits down with Dr. Raja Mukherjee, one of the world’s leading experts in FASD psychiatry and brain development, to explore what brain connectivity really means for individuals living with FASD across the lifespan.

Dr. Mukherjee explains how prenatal alcohol exposure affects the way different parts of the brain communicate with each other and why this can show up as inconsistency, fatigue, emotional overwhelm, and difficulty with daily life tasks even when someone appears capable on the surface.

Together, Jeff and Dr. Mukherjee unpack why independence is often the wrong goal, how interdependence supports regulation and mental health, and what caregivers can do differently when they understand the brain through a connectivity lens.

In This Episode You’ll Hear

• What brain connectivity is and why it matters more than IQ or motivation
 • How miscommunication between brain regions affects regulation, memory, and behavior
 • Why skills can look “there one day and gone the next”
 • How stress and overload disrupt already fragile brain networks
 • Why total independence is not a realistic or healthy end goal for many adults with FASD
 • How interdependence supports long term success and wellbeing
 • What caregivers and systems get wrong when they focus on compliance instead of connection

Why This Episode Matters

This conversation helps caregivers, professionals, and individuals with FASD move away from blame and toward understanding. When you see challenges as connectivity issues rather than character flaws, everything changes including expectations, support strategies, and outcomes.

Dr. Mukherjee brings decades of clinical experience and research insight to a topic that caregivers have been living for years. This episode offers clarity, validation, and a brain based framework you can actually use at home and in advocacy conversations.

Listen and Watch

Listen on Apple Podcasts
 https://podcasts.apple.com/ca/podcast/the-fasd-success-show/id1492499195

Listen on Spotify
 https://open.spotify.com/show/6ntB51glqYnRPmXCh6lOGq

Watch on YouTube
 https://www.youtube.com/@FASDSuccess

Resources and Links

Learn more about The FASD Success Show
 https://www.fasdsuccess.com/podcast

Join our free parent and caregiver community
 https://www.facebook.com/groups/FASDFOREVER

Follow Jeff Noble
 Instagram https://www.instagram.com/FASDSuccess

Facebook https://www.facebook.com/FASDSuccess

Subscribe to the YouTube Channel
 https://www.youtube.com/@FASDSuccess

You are not failing. You are responding to a brain that connects differently. And when we understand the brain, we can build better support, better days at home, and a better future.

Support the show

In this episode of The FASD Success Show, Jeff Noble sits down with Chris Fillion, an adult on the FASD spectrum, foster parent, and national advocate, to talk honestly about what adulthood with FASD really looks like when support is done right.

Chris shares his lived experience navigating mental health challenges, the justice system, social services, and burnout, and how everything changed when the focus shifted from doing life alone to building the right team around him. Today, Chris is the Vice President of the Manitoba FASD Coalition and the Executive Director of FASD Mentors of Change, helping reshape how systems understand success for adults with FASD.

This conversation challenges one of the most exhausting myths caregivers carry, the belief that success means total independence. Instead, Jeff and Chris explore why interdependence, regulation, and community support are the real foundations for long term stability and growth.

In This Episode You’ll Hear

• Why independence is often the wrong goal for adults with FASD
 • What adulthood with FASD actually looks like beyond the labels
 • How anxiety treatment and mental health support can unlock capacity
 • Why having a support team is a strategy, not a failure
 • How lived experience advocacy is changing systems from the inside
 • What caregivers can learn about planning for the long game

Why It Matters

So many caregivers lie awake worrying about the future, wondering if their loved one will ever be okay on their own. This episode offers a powerful reframe.

Success is not about doing everything alone. It is about building a life that works with the brain you have, supported by people who understand it.

Chris’s story is proof that progress is real, timelines are different, and with the right scaffolding, adults with FASD can build meaningful, connected lives.

Resources and Links

FASD Mentors of Change
 https://fasdmentorsofchange.ca

Chris Fillion
 https://chrisfillion.ca

Manitoba FASD Coalition
 https://www.fasdcoalition.ca

New Directions
 https://newdirections.mb.ca

Join our free FASD Success Facebook Group
 https://www.facebook.com/groups/fasdforever

Watch full episodes on YouTube
 https://www.youtube.com/@FASDSuccess

Follow Jeff on Instagram
 https://www.instagram.com/FASDSuccess

Full show notes and resources
 https://www.fasdsuccess.com/podcast

Support the show

In this powerful and compassionate conversation, Jeff Noble sits down with Dr. Carly McMorris — clinical psychologist, associate professor at the University of Calgary, and leading FASD researcher — to talk about one of the hardest and most important topics in the FASD community: mental health.

They break down how to recognize the signs of crisis, why individuals with FASD experience such high rates of anxiety, depression, and suicidality, and how caregivers can respond with calm, informed strategies instead of fear.

You’ll learn:
 • Why up to 90% of individuals with FASD experience mental health challenges
 • How to tell the difference between a bad day and a mental health crisis
 • Why “go low and go slow” works — for your loved one and for you
 • How to use the FASD Mental Health Toolkit in real life
 • What caregivers can do when the system doesn’t respond
 • The hope behind new research on mental health and suicidality in FASD

If you’ve ever felt scared, unsure, or alone in supporting your loved one’s mental health, this episode will give you knowledge, validation, and tools to move from fear to understanding.

Resources & Links
🔗 Mental Health Toolkit: canfasd.ca/mental-health-toolkit

🎧 Episode 141 with Emma Jewell: fasdsuccess.com/blog/141-discover-a-new-mental-health-tool-with-emma-jewell

🎧 Episode with Dr. Jacqueline Pei: fasdsuccess.com/blog/FetalAlcoholSyndromementalhealth

Join Our Community
Facebook Group: facebook.com/groups/FASDforever

Follow Jeff
Instagram: instagram.com/FASDSuccess

Facebook: facebook.com/FASDSuccess

YouTube: youtube.com/@FASDSuccess

Listen or Watch
Spotify | Apple Podcasts | YouTube

Support the show

What if success as a caregiver wasn’t about getting everything right, but about showing up again and again?

In this heartfelt episode of The FASD Success Show, Jeff Noble sits down with long time community leader and coach Laurie Anderson to talk about what it really means to keep going through the hardest seasons of caregiving with compassion, connection, and calm.

Laurie shares her journey from confusion to confidence, what she’s learned from years of moderating our 5,000 member FASD community, and how she’s redefining success after retirement and decades of advocacy.

In This Episode You’ll Hear
 • Why consistency and connection regulate the brain better than perfection
 • How Polyvagal Theory explains why community calms the nervous system
 • What success looks like when you measure by regulation, not results
 • Why rest and recovery are just as important as advocacy and action
 • How Laurie’s story can help you see your own progress even on the hard days

This conversation is part science, part story, and full of heart. A reminder that you don’t have to fix it all. You just have to keep showing up

 Watch on YouTube: https://www.youtube.com/@FASDSuccess

Join our Free Caregiver Group: https://www.facebook.com/groups/FASDFOREVER

Follow Jeff on Instagram: https://www.instagram.com/FASDSuccess

Full Show Notes: https://www.fasdsuccess.com/podcast

Support the show

In this episode of The FASD Success Show, Jeff Noble sits down with Dr. Valerie Temple to talk about brand-new Canadian research exploring how the FASD brain and body change with age — and what families, caregivers, and professionals need to know to support lifelong success.

Dr. Temple and her team analyzed data from over 400 adults across Canada to compare younger adults (18–24) with older adults (35+). What they found challenges a lot of assumptions about FASD, aging, and the brain.

In This Episode You’ll Learn
• Why older adults with FASD aren’t “less affected,” but show different patterns of strengths and challenges
• How executive function and attention improve for many adults, while memory and physical health issues increase
• Why substance use and mental health struggles remain high across adulthood — and what helps most
• How diagnosis and support systems can evolve to meet changing needs over time
• What this research means for caregivers, families, and self-advocates navigating adulthood

Why It Matters
For years, most FASD research has focused on children and youth. Dr. Temple’s 2025 study is one of the first to look closely at aging in FASD, providing real data on what support looks like across a lifetime.

The big takeaway: the FASD brain doesn’t stop changing. It adapts, learns, and keeps building new pathways. With the right support, growth and connection are possible at every age.

Watch the Full Interview
YouTube: https://www.youtube.com/watch?v=iZpjr6YGxH8

Listen to the Episode
Apple Podcasts: https://podcasts.apple.com/ca/podcast/the-fasd-success-show/id1492499195

Spotify: https://open.spotify.com/show/6ntB51glqYnRPmXCh6lOGq?si=f006bfa2966d4972

Resources & Links
• Read the full study: Fetal alcohol spectrum disorder (FASD): Comparing profiles of younger versus older adults

• Join our free Parent & Caregiver Group: https://www.facebook.com/groups/FASDFOREVER

• Follow Jeff on Instagram: https://www.instagram.com/FASDSuccess

• Subscribe to our YouTube Channel: https://www.youtube.com/@FASDSuccess

• Visit our website for show notes and articles: https://www.fasdsuccess.com/blog/new-research-on-fasd-and-aging-what-families-need-to-know

Support the show

In this episode of The FASD Success Show, Jeff Noble sits down with Joseph Munn, an adult with FASD who’s building a life that works, not one that’s defined by expectations.

Joseph opens up about what it felt like to finally understand his brain, how interdependence and technology help him stay regulated, and what community really means in adulthood. From gaming and advocacy to the one-dollar house that changed his life, Joseph’s story reminds us that success isn’t about doing it all, it’s about doing what works.

You’ll hear
 • What finally made sense after Joseph’s FASD diagnosis
 • How he manages overwhelm, anxiety, and independence
 • Why interdependence, not isolation, builds true stability
 • How gaming, technology, and VR became tools for connection
 • What parents can take away about hope, adaptation, and acceptance

Why It Matters

This episode is a real look at life after diagnosis, the challenges, the wins, and the ongoing process of building a future shaped by possibility, not perfection.

Resources and Links

Join our FASD Success Facebook Group: facebook.com/groups/FASDForever

Subscribe on YouTube: youtube.com/@FASDSuccess

Follow Jeff on Instagram: instagram.com/FASDSuccess

Full show notes: fasdsuccess.com/podcast

Support the show

Sophie is a mom, advocate, and birth parent who’s turned her personal story into national leadership. Together, Jeff and Sophie dig into the power of reframing guilt, setting boundaries, and parenting differently without apology.

They unpack how shame and expectations weigh on caregivers, and how understanding the brain  not just behavior  can lift that load for good.

In This Episode You’ll Learn

• Why the holidays feel so emotionally heavy — and how neuroscience explains it
• What happens in the brain when guilt turns chronic and how to stop the cycle
• The difference between connection and performance in caregiving
• Why “doing less” is not giving up — it’s giving your brain a chance to recover
• How Sophie’s journey from birth mom to CEO became a model of what advocacy can really look like

Why It Matters

Caregivers often measure success by what they do, not how they feel — but the brain science says the opposite.
 A regulated caregiver leads to a regulated child.
 When we stop apologizing for doing things differently, we stop surviving the holidays and start shaping them to work for us.

Watch or Listen to the Full Episode

YouTube: https://www.youtube.com/watch?v=sEko0ghA4iw

Apple Podcasts: https://podcasts.apple.com/ca/podcast/the-fasd-success-show/id1492499195

Spotify: https://open.spotify.com/show/6ntB51glqYnRPmXCh6lOGq?si=f006bfa2966d4972

Resources and Links

Join our Free Caregiver Community: https://www.facebook.com/groups/FASDFOREVER

Follow Jeff on Instagram: https://www.instagram.com/FASDSuccess

Subscribe to our YouTube Channel: https://www.youtube.com/@FASDSUCCESS

Full Show Notes and Resources: https://www.fasdsuccess.com/podcast

Support the show

That’s why all month long, The FASD Success Show is bringing you the Holiday Sanity Series — conversations that unpack the science, the stress, and the strategies that actually make life work for families like ours.

And to kick things off, I’m joined by Melissa Dobson, caregiver, mom of three teens, and Co-Chair of the Family Advisory Committee at CanFASD.

Melissa’s story is one that every caregiver will recognize. She’s been through the system fights, the school meetings, the sleepless nights, and the constant rebuilding that happens after everything falls apart.
But instead of letting it break her, she’s learned how to take the hard stuff, the setbacks, the overwhelm, the sh*t life throws at you, and turn it into rocket fuel.

In This Episode You’ll Hear

Why you can’t fight every battle and why that’s not weakness.
Chronic advocacy keeps your body in survival mode. The brain doesn’t know the difference between emotional stress and physical danger. It releases cortisol and adrenaline either way. Melissa shares how she learned to pause, recover, and fight from a place of regulation instead of burnout.

How rebuilding routines repairs the brain.
For individuals with FASD, predictability equals safety. Every time you rebuild after chaos, you’re helping the brain re-establish order, calm the amygdala, and bring the thinking brain back online.

Connection isn’t a luxury. It’s co-regulation.
When we connect with someone who feels safe, our brains release oxytocin, the chemical that quiets the stress response. Melissa explains how community and shared experience have helped her stay grounded and steady her kids through hard seasons.

Letting things fall apart isn’t failure. It’s flexibility.
Sometimes the bravest thing you can do is stop holding everything together. Letting go of old routines and traditions that don’t fit your child’s needs isn’t giving up. It’s creating space for the brain to adapt and grow in new ways.

Advocacy works best when you’re regulated.
When your nervous system is calm, your prefrontal cortex — the part responsible for reasoning, empathy, and problem-solving — stays engaged. Melissa shows how advocacy rooted in regulation creates real change instead of constant exhaustion.

Why It Matters

This season isn’t about perfection. It’s about protection.
When you build your holidays around regulation instead of expectation, your family’s nervous systems can actually handle the joy.

Regulated brains learn better, connect better, and recover faster.
And that includes yours.

Melissa’s story reminds us that you can’t control everything that comes your way, but you can decide what to do with it.

You can turn frustration into focus.
You can turn chaos into clarity.
And yes, you can turn sh*t into rocket fuel.

Because regulation isn’t the reward you get for surviving the season.
It’s the foundation that makes everything else possible.

That’s your one good thing this week.

Resources & Links

Connect with Melissa Dobson
Co-Chair, Family Advisory Committee — CanFASD.ca

Join Our Community
Free Caregiver Group: facebook.com/groups/FASDforever

Watch & Listen
YouTube: FASD Success Channel

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Support the show

Dr. Catherine Lebel, Canada’s leading FASD brain imaging researcher, joins Jeff Noble to share what MRI research reveals about how the brain develops after prenatal alcohol exposure and why the story is far more hopeful than most people think.

Through years of ground breaking studies, Dr. Lebel and her team have shown that the FASD brain doesn’t stop growing. It just grows differently and on its own timeline. Her work connects science and lived experience, giving caregivers something we all need more of: evidence-based hope.

In this conversation, Jeff and Dr. Lebel talk about:
 • How brain development continues well into adulthood
 • Why stable, loving environments can support brain growth
 • What slower development really means in everyday life
 • Why interventions are never wasted, even when progress feels slow
 • How families can join the PEACH Study to help move FASD research forward

Dr. Lebel’s message is simple but powerful. The brain is still growing, still learning, and still capable of change. Different doesn’t mean broken. It means still developing.

Watch the full episode
YouTube: https://www.youtube.com/@FASDSuccess

Listen on
Apple Podcasts: https://podcasts.apple.com/ca/podcast/the-fasd-success-show/id1492499195

Spotify: https://open.spotify.com/show/6ntB51glqYnRPmXCh6lOGq?si=f006bfa2966d4972

Connect with Jeff
Facebook Group: facebook.com/groups/FASDforever
YouTube: @FASDSuccess
Instagram: @FASDSuccess
Full show notes: fasdsuccess.com/podcast

Support the show

In this powerful episode, Jeff sits down with Dr. Long from the University of Calgary’s Developmental Neuroimaging Lab, one of the key researchers on Dr. Catherine Lebel’s team, to uncover what really happens inside the brain after prenatal alcohol exposure.

Dr. Long explains how the brain’s network — the system that keeps messages moving between regions — changes after prenatal alcohol exposure, and what that means for learning, behavior, and everyday regulation. Together, they unpack how the brain adapts, reroutes, and finds new ways to communicate, even when signals get jammed.

In This Episode You’ll Hear

• Why FASD is less about “broken” wiring and more about “busy” messaging systems
 • How even low levels of prenatal alcohol exposure can alter brain development
 • What “compensation” means — and how the brain finds detours to keep working
 • Why fatigue, frustration, and “I won’t” moments are signs of overload, not defiance
 • How supportive environments and calm routines help the brain stabilize and grow
 • The resilience behind the science — and why hope is more than just a feeling

Why It Matters

This episode is a reminder that behaviors aren’t failures  they’re feedback. Dr. Long’s work helps caregivers, teachers, and professionals see FASD through a brain-based lens, turning frustration into understanding and burnout into compassion.

Different doesn’t mean broken  it means we need to look deeper, respond smarter, and keep believing that change is possible.

Resources & Links

Join our FASD Success Facebook Group: facebook.com/groups/FASDforever
Subscribe to our YouTube Channel: youtube.com/@FASDSuccess
Follow Jeff on Instagram: instagram.com/FASDSuccess
Full show notes: fasdsuccess.com/podcast

Support the show

Dr. Bodnar studies the gut–brain axis — the constant communication between our digestive system and our brain — and how prenatal alcohol exposure can disrupt that balance for life. Her groundbreaking research reveals how gut health, inflammation, and stress all shape behavior, mood, and regulation in ways caregivers see every day.

Together, Jeff and Dr. Bodnar explore how small, realistic shifts like balanced meals, hydration, and consistent routines can support both body and brain. They also talk about what’s next in FASD science, including probiotics, personalized medicine, and new collaborations that bring caregivers and researchers together.

In this episode you’ll learn how prenatal alcohol exposure affects gut health and stress regulation, why inflammation can amplify mood and behavior, and how to make simple, guilt-free choices that help create calm from the inside out.

This episode reminds us that behavior isn’t just communication — it’s biology. When we understand how the body and brain talk to each other, we can replace frustration with compassion and find hope in small, steady changes. Dr. Bodnar’s work validates what families have always known in their gut: small steps matter, and progress starts from the inside out.

You’re not alone. You’re doing better than you think.

Resources and Links

Join our FASD Success Facebook Group: facebook.com/groups/FASDforever

Subscribe to our YouTube Channel: @FASDSuccess

Listen on Spotify or Apple Podcasts
Follow Jeff on Instagram: @FASDSuccess

Full show notes: fasdsuccess.com/podcast

Support the show

What if everything you thought you knew about mental health and behavior was flipped on its head? In this powerful conversation, Jeff sits down with Dr. Jacqueline Pei, psychologist, professor at the University of Alberta, and senior research lead with CanFASD, to explore how mental health really shows up for individuals with FASD and how reframing what we see changes everything about how we respond.

Dr. Pei explains why up to 90% of individuals with FASD experience mental-health challenges, how anxiety and depression often hide behind behavior, and why understanding the brain through a “nervous-system-first” lens can completely transform care.

Together, Jeff and Dr. Pei talk about what it means to “sit in the frustration,” the danger of misunderstanding in schools and systems, and the power of empathy to calm chaos and restore hope.

In This Episode You’ll Hear

• Why mental health challenges are so common in FASD — and what’s really driving them
•  How anxiety and depression often disguise themselves as “defiance” or “bad   behavior”
•  Why traditional definitions of depression and anxiety don’t always fit
•  How to use the “Pause and Reframe” tool to see behavior through a nervous-   system lens
•  The emotional toll of systemic misunderstanding on caregivers and families
•  Guidance for recognizing mental-health signs and supporting emotional stability
•  A compassionate, science-backed discussion about suicidality and safety   planning

 • Why connection, purpose, and relationships are the strongest protective factors
 • The future of FASD research — and how collaboration between families and scientists is changing everything

Why It Matters

This episode is a reminder that behavior is communication, not defiance — and that healing starts with understanding. Through Dr. Pei’s research and Jeff’s lived experience, you’ll walk away with tools to replace judgment with curiosity, fear with empathy, and burnout with hope.

Dr. Pei’s message is clear: we can’t fix everything, but through connection, compassion, and collaboration, we can help individuals with FASD — and their families — thrive.

👉 You’re not alone. You’re doing better than you think. 

Resources & Links

📘 Join our FASD Success Facebook Group: facebook.com/groups/FASDforever

▶️ Subscribe to our YouTube Channel: @FASDSuccess

🎧 Listen on Spotify or Apple Podcasts
📸 Follow Jeff on Instagram: @FASDSuccess

📝 Full show notes: fasdsuccess.com/podcast

Support the show

Through sober momentum, the right school fit, and daily co-regulation, the Freemans moved from surviving to thriving. Ruby’s attendance shot up to 97%, she jumped three grade levels in math, and even won a science award. Elias found the right adult in his corner, became a student leader, and learned to love sports again. And Angela — now nearing four years sober — reframed advocacy, focusing on training the teacher in front of her child and protecting routines that bring safety and connection home.

In This Episode You’ll Hear
• What the Freeman family’s “before” looked and felt like when everything was on fire
• How one year of steady sobriety and co-regulation changed the tone of their home
• The power of placement as intervention and why “fit” matters more than label
• How one trusted adult at school can be the difference between crisis and confidence
• Angela’s advocacy reframe: stop fighting systems, start training people
• Real numbers that prove change — better attendance, higher grades, stronger bonds
• Practical home language to keep everyone safe: “cut this, not that”

Why It Matters
The Freeman story proves you don’t need perfect conditions to change a trajectory — just the right fit, one person who gets it, and small daily moves that protect safety and connection. It’s a story of resilience, recovery, and real-world success that reminds every caregiver: you’re not alone, and small changes stack up fast.

👉 You are stronger than you think. Progress starts with fit, relationship, and routine.

Resources and Links
🌐 Angela’s First Appearance (Episode 137): https://www.fasdsuccess.com/blog/podcast-episode-137

📘 Join our FASD Success Facebook Group: https://www.facebook.com/groups/fasdsuccess

 ▶️ Subscribe to the FASD Success YouTube Channel: https://www.youtube.com/@FASDSuccess

 📸 Follow Jeff on Instagram: https://www.instagram.com/fasdsuccess

📝 Get full show notes and all episodes here: https://www.fasdsuccess.com/podcast

Support the show

What happens when language that works at home starts changing classrooms and systems. What if a one minute demo with an umbrella could stop symptom punishment faster than another meeting. What if a parent advocate was invited to help shape an international conference.

About This Episode

In this Part 2 of The FASD Success Show, I bring Malgorzata back from Poland to share what happened next. Invitations to schools and trainings took off. A new film for students was produced for nationwide use. She ran small room foster trainings that created big shifts. She was asked to moderate in Krakow and evaluate research abstracts. And at home her family kept doing the brave work of healing as her son began building real connections with his birth siblings.

Meet the Guest: Malgorzata

Malgorzata is the founder of FASmisja. What started as one mom searching for answers has grown into a national movement focused on prevention, practical education, and hope for families and professionals.

In This Episode You Will Hear

• How advocacy scaled from kitchen table to schools, conferences, and national prevention efforts

 • The student film project, which will Premiere 10.20.2025,  and why short, clear education can move a whole system

 • Simple teaching tools to borrow now including the umbrella activity and the  chin and cheek demo

 • Why modeling matters for adults and how kids copy what we do more than what we say

 • Choosing school fit over labels and the reality of integration settings in Poland

 • What changed most in a two day foster caregiver training with a small group

 • A powerful home story of grief and connection as her son visited his birth mother’s grave and chose to meet siblings

 • How she moved past imposter feelings by speaking from the heart and letting results do the talking

Why It Matters

Part 1 showed pain turning into purpose. Part 2 shows purpose turning into progress you can feel in classrooms and communities. You will get tools you can show, not just tell. You will see proof that systems can listen. You will leave steadier for hard conversations at home and clearer about small wins you can create this week.

👉 You are not alone. You have words that work. Small rooms change fast. Your modeling sets the tone.

Resources and Links

Learn more about Malgorzata’s work at FASmisja

Join our FASD Success Facebook Group

See Jeff Live in Edmonton Calgary and Toronto: fasdsuccess.com/thefasdsuccessshowlive

Subscribe to the FASD Success YouTube Channel

Follow us on Instagram

Get full show notes here: fasdsuccess.com/podcast

Support the show

What if the child you were promised was “healthy” — and the real story didn’t show up until years later? What if the diagnosis you fought so hard to get didn’t open doors but instead left you standing in another long hallway?

In this episode of The FASD Success Show, I sit down with Malgorzata from Poland. Her journey takes us through judgment, grief, and exhaustion, but also resilience and advocacy. From being told by her pediatrician sister that she was a “bad mom” to realizing a diagnosis doesn’t guarantee support, her story is one caregivers around the world will recognize.

Malgorzata turned pain into purpose by founding FASmisja, a national organization that is shifting awareness across Poland. She speaks in schools, prisons, and communities, using relatable tools like the flu analogy and diamond activity to reframe FASD and build self-esteem for kids. And in one of the most moving moments, she shares how her son once dismissed as “angry and difficult” saved a stranger’s life.

Meet the Guest: Malgorzata

Malgorzata is the founder of FASmisja, an advocacy and training initiative that grew out of her personal journey as a parent. What began as searching for answers in isolation has grown into a national mission that is opening eyes, training professionals, and giving families hope.

In this episode you’ll hear

• The grief of false expectations when adoption and reality don’t match
 • How judgment from family, teachers, and professionals adds to the pain
 • Why a diagnosis doesn’t always open doors and what actually makes the difference
 • Simple teaching tools — like the flu analogy and diamond story — that shift understanding and self-esteem
 • How personal advocacy grew into FASDmisja and a national movement
 • A powerful story of hope: Malgorzata’s son saving a stranger’s life
 • Breaking News: The U.S. Senate has passed the SUPPORT for Patients and Communities Reauthorization Act of 2025, which includes the FASD Respect Act. This legislation authorizes $12.5 million annually through 2030 for FASD prevention, awareness, diagnosis, and services.

Why It Matters

Malgorzata’s story is one of courage and purpose. She reminds us that grief and judgment are real, but so is hope. Knowledge reframes behaviors, advocacy ripples out beyond our own homes, and kids with FASD can shine in ways nobody expects.

👉 You are not alone. What you’re doing matters. And there is hope — for change, for connection, and for more good days.

Resources and Links

🌐 Learn more about Malgorzata’s work at FASmisja

📘 Join our FASD Success Facebook Group

🎟️ See Jeff Live in Edmonton Calgary and Toronto: fasdsuccess.com/thefasdsuccessshowlive

▶️ Subscribe to the FASD Success YouTube Channel

📸 Follow us on Instagram

📝 Get full show notes here: fasdsuccess.com/podcast

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What does love look like when FASD is part of the story? And how do you play the long game when milestones come later than expected?

In this episode of The FASD Success Show, I sit down with my friends Reinier deSmit and Kate Kristiansen for a real and vulnerable conversation about partnership, conflict, and resilience.

Reinier was diagnosed with FASD at 56. Now in his 60s, he describes that diagnosis as a gift  finally giving him language to replace a lifetime of confusion. Kate, his partner, brings two decades of communications and marketing experience, plus a heart for boundaries, structure, and connection. Together, they model what it means to live and love interdependently.

Meet the Guests: Reinier & Kate

Reinier is a photographer, life counsellor, and lived-experience advocate with Fetal Alcohol Nova Scotia, where he helps create clearer language and kinder systems.

Kate has led national campaigns for Cirque du Soleil and DreamWorks Live, teaches marketing at St. Lawrence College, and runs Hummingbird Studios, a creative retreat space in Ontario. In their relationship, she brings the communication chops and the perspective of being a partner, not a caregiver.

In this episode, you’ll hear:

• Why Kate’s line “I don’t want to be his caregiver, I want to be his partner” is a game-changer for caregivers thinking about their kids’ futures.
• The simple but powerful conflict strategy they use when things get heated (and why it’s transferable to parenting).
• How Reinier describes transitions as “motion sickness” — and why sameness and structure afterward help stabilize life.
• What interdependence really looks like in adulthood, and why it’s healthier than chasing complete independence.
• Why their relationship itself offers hope and a “sneak peek” of what’s possible for individuals with FASD.

Why It Matters

Milestones are milestones no matter the age. Whether it’s buying a house at 65, learning to ride a bike at 25, or mastering a new daily living skill later in life — late wins still count. This episode shows that progress looks different, takes longer, but always matters.

👉 You are not alone. What you’re doing matters. And there is hope — for connection, for resilience, and for more good days.

Resources and Links

🎧 Understanding Life With FASD Podcast (with Reinier & FANS Nova Scotia)
🌐 Fetal Alcohol Nova Scotia
 

Join our FASD Success Facebook Group
https://www.facebook.com/groups/FASDFOREVER

See Jeff Live in Edmonton Calgary and Toronto
https://www.fasdsuccess.com/thefasdsuccessshowlive

Subscribe to the FASD Success YouTube Channel
https://www.youtube.com/@FASDSUCCESS

Follow us on Instagram
https://www.instagram.com/fasdsuccess/
Get full show notes here: www.fasdsuccess.com/podcast

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Awareness isn’t just hashtags or red shoes. It’s what we do with that awareness that counts.

In this special episode of The FASD Success Show, I sit down with Kathy Unsworth (the new Executive Director of CanFASD) and Audrey McFarlane (who has been a champion of mine since day one).

We talk about the new Canadian Academy of Health Sciences (CAHS) report, the leadership transition at CanFASD, the National FASD Framework Bill, and the 2025 National Conference in Toronto. Plus — I share some brand-new stats that put FASD in perspective globally, not just in Canada.

And if that wasn’t enough  I’m taking the FASD Success Show LIVE this fall in Edmonton, Calgary, and Toronto.

Meet the Guests: Kathy & Audrey

Kathy and Audrey need no introduction if you’re in the FASD community. But what makes this episode special is hearing both of them together  the new boss and the former boss talking openly about transition, challenges, and what it takes to keep pushing this movement forward.

Audrey reflects on the CAHS report and why having everything consolidated matters. Kathy shares honestly about stepping into a big, overwhelming new role something caregivers know all too well.

In this episode, you’ll hear:

• Why the CAHS report isn’t about surprises, but about validation and leverage.
• The seven big stats that show how massive FASD really is, in Canada and worldwide.
• How Kathy relates her new leadership role to the reality of caregivers becoming the “CEO” at home.
• Updates on the National FASD Framework Bill — and why advocacy can’t stop now.
• A preview of the 2025 Toronto National FASD Conference: where science meets the street.
• Details on the FASD Success Show Live in Edmonton, Calgary, and Toronto.

Why It Matters

Awareness isn’t confetti it’s clarity. This episode is about naming what’s real, telling the truth, and pairing it with solutions. From global stats to personal stories, from research reports to lived experience, the message is the same:

👉 You are not alone. What you’re doing matters. And together, we can keep pushing for more good days.

Resources and Links

• Read the full CAHS Report on FASD
  
  
• Join our FASD Success Facebook Group
  
  
• See Jeff Live – Edmonton, Calgary, Toronto (Oct 2025)
  
  
• Subscribe to the FASD Success YouTube Channel
  
  
• Follow us on Instagram

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When we first spoke, Barb had just gotten the news, and she shared the raw relief and validation of finally having a name for her lifelong struggles. Now, with time to process, she reflects on what has actually changed in her daily life, her work, and her relationships.

Barb opens up about the accommodations she’s put in place, the reactions she’s received from family, friends, and colleagues, and how her diagnosis continues to shape the way she coaches and trains caregivers. She’s not grieving — she’s integrating.

Here’s what you’ll take away from this episode:

• What living with a diagnosis looks like three months in — day-to-day insights and strategies.
• Why boundaries and accommodations aren’t avoidance, but brain-based supports.
• How Barb’s experience as both an adult with FASD and a parent of kids on the spectrum gives her a unique perspective.
• The reactions she’s gotten from people in her life curiosity, disbelief, and support.
• Why diagnosis isn’t defeat  it’s direction.

We also dig into:

• Barb’s professional shift toward focusing full-time on FASD training and advocacy.
• How she uses her own experience to build bridges of understanding with caregivers.
• The message of hope she wants parents to hear: the struggles now don’t mean there’s no future.

Barb’s honesty, humor, and insight make this a must-listen. Whether you’re a caregiver, a professional, or even wondering about diagnosis for yourself, her story is proof that naming it isn’t doom — it’s clarity, hope, and a path forward.

Show Notes: Stay Connected and Empowered

• Join our Facebook community: FASD Caregiver Success Group
  
  
• Follow us on Facebook: FASD Success
  
  
• Subscribe to the YouTube Channel: @fasdsuccess
  
  
• Get all show notes and resources here: www.fasdsuccess.com/podcast
  
  

Connect with Barb Clark

• 📖 Raising Kids and Teens with FASD: Advice and Strategies to Help Your Family to Thrive! (October 21, 2025)
• 🌐 Website: FASDmosaic.com
  
  
• 📧 Email: barbclarkfasd@gmail.com

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Barb has coached, trained, and supported caregivers for years, but this time she’s on the other side of the story  talking openly about what it feels like to finally have confirmation of something she always suspected.

She shares the shock, the relief, and the validation of putting a name to her lifelong struggles — and how her neuropsych report revealed both surprising strengths and challenging weaknesses.

Here’s what you’ll take away from this episode:

• Why diagnosis brings relief, not doom  even in adulthood.
• What a neuropsychological report actually looks at and why it matters.
• The reality of a “scattered profile” and why uneven abilities can make FASD so hard to spot.
• How harmful character labels (“lazy,” “defiant”) get replaced with accurate ones through diagnosis.
• Why naming FASD changes the conversation  at home, in schools, and in relationships.

We also dig into:

• Barb’s reflections on her mom, and why we need more compassion and less judgment for birth moms.
• The hope a diagnosis brings for individuals and their caregivers.
• How making it official has already changed the way Barb understands herself and the families she works with.

Barb’s story is brave, real, and exactly the kind of conversation caregivers need to hear. Whether you’ve wondered about diagnosis for your child, or even yourself, this episode will show you why naming it matters  and why it’s never too late.

So whether you’re deep in the struggle or standing at a crossroads, this episode is packed with relatable moments and real-world insight you can carry into your own journey.

Show Notes: Stay Connected and Empowered

Connect with Barb!

PRE OREDER HERE: 

• 📖 Raising Kids and Teens with FASD: Advice and Strategies to Help Your Family to Thrive! (October 21, 2025)
  
  
• 🌐 Website: FASDmosaic.com
  
  
• 📧 Email: barbclarkfasd@gmail.com
  
  
• Join our Facebook community: FASD Caregiver Success Group
  
  
• Follow us on Facebook: FASD Success
  
  
• Subscribe to the YouTube Channel: @fasdsuccess
  
  
• Get all show notes and resources here: www.fasdsuccess.com/podcast
  
  

Support the show

Cornelia opens up about the whirlwind journey of raising her daughter Dana, who came into her home at just five weeks old. Despite being a trained social worker and early childhood educator, Cornelia quickly discovered that parenting a child with FASD meant learning a whole new playbook. From chaotic daycare days to total school refusal and aggressive behaviors, she shares what life was like before they knew what they were really dealing with.

After years of misdiagnosis and confusion, Cornelia and her husband pushed for clarity and finally received an FASD diagnosis. But even then, support was hard to come by. So, like many caregivers, Cornelia rolled up her sleeves and built the resources she wished existed.

Here’s what you’ll take away from this episode:

• The real story of Dana’s early red flags, and how they were misunderstood for years.
• How Cornelia handled aggressive behaviors at home and what finally helped things shift.
• The importance of finding the right school environment, and how one change gave Dana purpose and pride.
• Cornelia’s tips for regulating your child (and yourself!) when things get hard.
• How she used coaching and training to move from reactive to proactive parenting.
• Why Cornelia created "Flausen im Kopf," a business focused on changing the conversation around FASD in Germany.

We also dig into:

• What FASD advocacy looks like in a country with limited diagnosis centers.
• The growing grassroots movement in Germany and Cornelia's major role in it.
• Her upcoming event bringing together 15+ orgs and advocates for a day of training, networking, and community.

Cornelia’s story is raw, inspiring, and full of those lightbulb moments that help you feel less alone. Her honesty about the burnout, the frustration, and the eventual breakthroughs is exactly what so many caregivers need to hear.

So whether you’re deep in the struggle or trying to find your next right step, this episode is packed with relatable moments and real-world strategies.

Tune in and get ready to feel seen, supported, and maybe even a little fired up.

Show Notes: Stay Connected and Empowered

• Join our Facebook community: FASD Caregiver Success Group
• Follow us on Facebook: FASD Success
• Subscribe to the @FASDSUCCESS YouTube Channel

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Crystal shares how she was on the verge of running away, feeling overwhelmed and without support. But through education and connection, they found the tools to change their family dynamics. Now, their home feels calmer, and they have the confidence to tackle even the toughest days.

Tune in to learn about:

• The Breaking Point: Crystal’s raw honesty about feeling like she might leave it all behind—and how she turned things around.
• Creating Peace in the Chaos: How Mike and Crystal learned to manage behaviors and meltdowns without letting their home spiral out of control.
• From Survival to Thriving: Discover how understanding FASD on a deeper level allowed them to parent with compassion and less stress.
• The Power of Community: Why finding others who get what you’re going through can be a game-changer for caregivers.

This episode is packed with hope, real-life strategies, and inspiration. If you’re feeling burnt out or stuck, Mike and Crystal’s story will show you that change is possible.

Show Notes:

• Register for the Free Caregiver Kickstart Workshop: Our free, once-a-year workshop is happening on September 14th, 15th, and 17th! Gain the confidence and tools you need to create more peace and structure for your loved one with FASD. Register here.

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Ryan opens up about her toughest moments—like dealing with explosive behaviors and feeling completely overwhelmed. However, she also shares how she shifted her mindset through training and community support and found new ways to navigate the challenges. Her journey proves that, no matter how tough things get, there’s always hope.

Tune in to learn about:

• The Turning Point: How a chance encounter at a foster care training changed everything for Ryan and her family, leading to an FASD diagnosis.
• Managing Explosive Behaviors: Ryan shares her strategies for handling the unpredictable and overwhelming moments with her kids and how she learned to stop feeling alone in the fight.
• Building a Support Network: Discover how connecting with a community of FASD caregivers helped Ryan shift from isolation to empowerment.
• Shifting the Mindset: How Ryan went from seeing her kids’ actions as defiance to understanding them as symptoms of FASD—and how that changed her whole approach.

Whether you’re feeling isolated, exhausted, or in need of encouragement, Ryan’s story will inspire you and offer practical advice to help you on your FASD journey.

Show Notes:

• Register for the Free Caregiver Kickstart Workshop: Our free, once-a-year workshop is happening on September 14th, 15th, and 17th! Gain the confidence and tools you need to create more peace and structure for your loved one with FASD. Register here.

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Ray and Jen share their honest and inspiring journey from being stuck in survival mode to finally getting on the same page as a parenting team. If you’ve ever felt like you’re on the brink, this episode will give you the hope and practical tools to help you take back control.

Tune in to learn about:

• Turning Conflict into Calm: How Ray and Jen learned to stop blowups before spiraling out of control and found more peace in their daily lives.
• Working as a Team: Discover how getting on the same page as caregivers transformed their ability to parent effectively, even when emotions run high.
• Understanding FASD Behaviors: Hear how they shifted from seeing their kids' actions as defiance to recognizing the brain-based challenges of FASD—and how that changed everything.
• Finding Community and Support: Learn how connecting with others on the same journey brought them the understanding and validation they needed to thrive.

Whether you’re feeling burnt out or just looking for new strategies, this episode will give you actionable tips and a renewed sense of hope for your FASD journey.

Show Notes:

• Register for the Free Caregiver Kickstart Workshop: Our free, once-a-year workshop is happening on September 14th, 15th, and 17th! Gain the confidence and tools you need to create more peace and structure for your loved one with FASD. Register here: www.fasdsuccess.com/fasdworkshop

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In this episode, I’m pulling back the curtain on what’s been happening behind the scenes, and I’m spilling the tea on some big changes, powerful lessons, and exciting plans that you won’t want to miss. This isn’t just my story—it’s about how we keep pushing forward, even when life throws us some wild curveballs.

Tune in to learn about:

• Navigating Loss and Resilience: Hear my personal journey through grief and how it’s reshaped my perspective on life and work.
• Lessons in Acceptance: Discover how letting go of control can actually empower you in your caregiving journey.
• What’s Next for You: Get the inside scoop on the exciting new resources and events we’ve been working on, including the return of the Caregiver Kick Start Workshop.

Whether you’re a seasoned caregiver or new to the journey, this episode offers heartfelt reflections, practical advice, and a renewed focus on supporting you through the ups and downs of FASD caregiving.

Show Notes:

• Download the Understanding Me Guide: If you’re dealing with school anxiety or feeling like nobody understands your loved one with FASD, get our free, fillable PDF guide to help educators and others understand your child’s unique needs. Download Here: https://www.fasdsuccess.com/understandingme
• Register for the Caregiver Kick Start Workshop: Don’t miss our free, once-a-year workshop happening on September 14th, 15th, and 17th. This is your chance to gain the confidence and tools you need to create stability and success for your loved one with FASD. Register Here: https://www.fasdsuccess.com/fasdworkshop
• Join Our Online Community: Connect with other caregivers and find support in our FASD Forever Facebook Group. Join Here: https://www.facebook.com/groups/FASDFOREVER

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From maintaining structure and handling behavioral challenges to managing sibling dynamics and sneaking in some self-sanity, we've got it all covered. Tune in to hear practical tips, relatable stories, and a healthy dose of humor to get you through the summer chaos.

Tune in to learn about:

• Maintaining Structure and Routine: Discover how to keep your child's day structured even without the school routine, reducing anxiety and behavioral issues.
• Engaging Activities: Get ideas for activities that keep kids occupied and stimulated, from camps to at-home projects.
• Managing Sibling Dynamics: Learn tips for balancing the needs of multiple children and minimizing conflicts.
• Self-Sanity for Caregivers: Hear essential strategies for taking care of yourself amidst the summer chaos, ensuring you have the energy to support your family.

Whether you're a seasoned caregiver or new to the journey, this episode offers practical advice, relatable stories, and a supportive community to help you navigate the summer months.

Show Notes:

• Join Our Online Community: Connect with other caregivers and find support at FASD Forever Facebook Group.

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Well, I'm here to say it is, and in this episode, I'm bringing you Exhibit (A) in the case for hope: Demi Forsyth – a young woman who embodies resilience. With heartfelt candor, Demi shares her day-to-day triumphs and trials, offering a dose of reality mixed with a surge of optimism for caregivers and individuals alike.

Here's what you'll uncover:

• How Demi carved out her path to independence and what this means for your loved ones with FASD.
• Real talk on navigating life's curveballs, from shifting living situations to personal loss, and finding stability amidst it all.
• The ins and outs of managing finances when the numbers just don't add up, and strategies that actually stick.
• Cracking the code on workplace accommodations – because thriving in a job with FASD is more than possible.

Plus, we dabble in:

• Demi's real-life success, serving as a beacon of what's possible with the right support and a dash of courage.
• Building your tribe: the significance of community and how it's a game-changer for the journey ahead.
• Everyday life tips that you can bank on – from the nitty-gritty of budgeting to the self-care routines that keep the ship sailing smoothly.
• Finding joy and purpose in hobbies and interests that go beyond just filling time – they're about enriching life.

In the face of so many challenges, it's hard not to lose sight of hope. The path isn't always clear, and the stakes are high – not just for us, but for our kids. It can feel like a relentless uphill battle, with every step forward met with two steps back. But take heart. This episode isn't just about sharing a story; it's about reaffirming that you're not alone on this voyage and every effort you make counts. It's about real experiences that shed light on the possibilities that lie ahead, even when the night seems darkest.

Don't miss out on this episode. Hit play, get comfortable, and let's reinforce that sense of purpose and focus. Because here at The FASD Success Show, we're not just talking about the difficulties; we're actively turning them into stepping stones for success. Join us, and let's keep the hope alive – together.

Stay Connected with The FASD Success Show:

- Connect with fellow caregivers in our Facebook community https://www.facebook.com/groups/fasdforever, where shared experiences forge a path to understanding and support.

- Follow [FASD Caregiver Success on Facebook](https://www.facebook.com/fasdsuccess) for continuous insights and resources tailored for the FASD journey.

Jeff Noble on [Instagram](https://www.instagram.com/fasdsuccess)

- Visit [The FASD Success Show website](https://www.fasdsuccess.com/podcast) for comprehensive episode breakdowns and a treasure trove of FASD resources.

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In this heartfelt conversation, Dr. Howlett opens up about:

The Real Struggles of FASD Dads: Explore the emotional and practical challenges      dads  encounter in a caregiving role that is traditionally viewed as maternal. Discover how societal expectations shape their responses and strategies for more effective involvement.

Balancing Acts: Learn how Mike juggles his professional responsibilities with his family's needs, providing insights into the emotional resilience required to manage such a dual-demanding role.

Championing Advocacy: Dr. Howlett provides practical tips for other dads to effectively advocate for their children within their home and school systems.

This episode isn't just a conversation; it’s a guide for fathers and families striving for success in the challenging journey of FASD caregiving. Tune in to gain valuable strategies that can help your family navigate the challenging waters of FASD with greater success and less stress.

Stay Connected with The FASD Success Show:

Join Our Community: Connect with fellow caregivers in our Facebook community at FASD Forever, where we share experiences and support each other on this unique journey.

Follow Us for More Insights: Keep up with ongoing FASD insights and resources at FASD Caregiver Success on Facebook.

Instagram Updates: Follow Jeff Noble on Instagram for more updates and inspiration.

Dig Deeper: Visit The FASD Success Show website for comprehensive episode breakdowns and access to a wealth of FASD resources.

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Join Jeff Noble and Aaron in a conversation that delves into the trenches of living with FASD. Aaron articulates the journey from initial confusion and struggle to the empowering realization of the importance of support and self-advocacy. 

This episode offers an authentic and hopeful perspective on how receiving and accepting help can pave the way for personal development and a wider impact on the FASD community.

• A deep dive into Aaron’s personal struggles and achievements, offering a mirror to many of our own experiences with FASD.
  
  
• Insightful discussions on the transformative role of support and acceptance in navigating FASD.
  
  
• Practical advice and strategies drawn from Aaron’s life, providing guidance for those in similar situations.
  
  
• A dose of inspiration from Aaron’s journey to advocacy, proving that individuals with FASD can drive awareness and positive change.

Stay Connected with The FASD Success Show:

- Join our dedicated Facebook group, https://www.facebook.com/groups/fasdforever, to connect with a community that gets it.

- Check out our Instagram https://www.instagram.com/fasdsuccess for inspiring stories and tips.

- Visit https://www.fasdsuccess.com/podcast for comprehensive resources and in-depth episode breakdowns.

Tune in for an episode that’s not just about facing the challenges of FASD but transforming them into stepping stones for advocacy and awareness. Be part of Aaron's journey and get inspired to make a difference in the FASD community.

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What We’re Talking About:

• Laugh It Off: Alex had this killer sense of humor that could make the rough patches feel a bit smoother. Find out how his laughter became our best medicine.
• Stronger Together: Alex was all about pulling us closer, making sure everyone felt part of this big, sometimes messy FASD family.
• Leaving Marks on Hearts: Get ready for some stories that’ll make you smile and maybe tear up a bit, as folks from our gang share how Alex made life a little brighter for all of us.

Why You Gotta Listen:

It’s more than a tribute; it’s a reminder of the power of sticking together, sharing a good laugh, and spreading a little kindness, just like Alex showed us. His way of rolling with life’s punches, always with a joke at the ready, is something we could all learn from.

To keep Alex’s laughter echoing and support his family, swing by the GoFundMe we’ve set up: https://www.gofundme.com/f/alex-duthie. Every bit helps.

And don’t miss out on the “Virtual Celebration of Alex's Life.” It’s a chance for us to come together, swap stories, and honor the legend that Alex was.

Sign up here: https://bit.ly/3wLtnzc

This episode's for you, buddy. Let’s do Alex proud by keeping the laughs loud, the support strong, and the community closer than ever.

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Join us as we dive into the nitty-gritty of finding a lawyer who doesn't just see another case but sees the person behind it – someone who's ready to learn about FASD and fight the good fight. We're unpacking everything you need to know to be the best advocate for your loved one, from the importance of getting the right evaluations to understanding how the legal process works.

Listeners will walk away with real-world advice on:

• Finding Your Legal Champion: How to scout for a lawyer who's not only willing to take on your case but eager to understand the unique challenges of FASD.
• Educating to Advocate: We're talking about the game-changing power of making sure everyone, from the judge to the prosecutor, gets FASD. It's about building a team that's on your side.
• The Importance of the Right Tests: Why getting comprehensive evaluations can make or break your case and how to go about securing them for your loved one.
• Fighting for a Fair Shot: Kyle shares why we should push for treatment and understanding over punishment, and how this approach can lead to better outcomes for everyone involved.

This episode isn't just a talk; it's a toolbox for anyone facing the daunting world of legal challenges with FASD. With Kyle White's expert insights and Jeff's passion for the cause, you're in for an empowering listen that'll leave you ready to take on the world, or at least the courtroom.

Show Notes:

So, whether you're knee-deep in legal battles or just want to be prepared, Episode #147 is your go-to guide for navigating the justice system with FASD by your side. Let's get informed, get inspired, and get going! 

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This episode is a masterclass in determination, uniting the quiet strength of Rochelle, a mother on a mission, with the enduring passion of Allan, a teacher-turned-advocate. Together, they've harnessed their collective fire to create an FASD conference that's not just an event, but a beacon of hope, learning, and connection.

As Allan and Rochelle share their blueprint for sparking change in your city, they'll reveal the steps, the stumbles, and the unwavering spirit required to elevate FASD into the public consciousness. From rallying community support to engaging policymakers, their story is one of unrelenting advocacy that's rewriting the narrative of FASD in their province – and beyond.

In this episode, you'll discover:

• The power of collaboration in creating impactful FASD conferences and events.
• How to sustain momentum and learn from past advocacy efforts to build a stronger future.
• Insights into mobilizing community support and engaging government stakeholders.
• Allan and Rochelle's inspiring journey, demonstrating that with resilience, even setbacks can be springboards to greater achievements.

This episode is a call to action for anyone dreaming of making a difference in the world of FASD advocacy. It's proof that no voice is too quiet, no effort too small, and no dream too big. Subscribe, tune in, and let's embark on this inspiring journey of advocacy together.

Show Notes:

Don't forget to subscribe to The FASD Success Show for more stories of courage, connection, and community in the world of FASD.

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Emma lends her expertise and insights, illuminating the path for caregivers and mental health professionals alike. As we delve into the depths of FASD care, we illuminate the often-unseen challenges and triumphs encountered by those who navigate this complex landscape. Our conversation explores the delicate balance of managing mental health within the FASD community and the critical importance of dismantling implicit biases that can hinder progress.

By the end of this episode, you'll be armed with newfound understanding and practical tools designed to elevate the support provided to individuals with FASD. This episode is a clarion call to foster a more informed and empathetic approach to mental health care, highlighting the strength found in knowledge and advocacy.

If you're set on a course to deepen your impact and harness the collective wisdom of experts and caregivers, this episode is your beacon. Don't miss out on these insights:

• A deep dive into the Mental Health Toolkit for FASD, a pioneering resource by CanFASD.
• Understanding and overcoming implicit biases in the realm of FASD caregiving and mental health support.
• Strategies to empower mental health professionals and caregivers in their roles as advocates and allies for those with FASD.

Tune in for an episode that promises to not only inform but also transform your approach to FASD caregiving. Hit subscribe, join our heartfelt conversation, and become part of a movement towards a brighter, more understanding future for the FASD community.

Show Notes:
Click for Mental Health Toolkit

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As we navigate the complexities and celebrate the triumphs of FASD caregiving, each coach offers a piece of their story, shedding light on the power of connection, understanding, and resilience. Their shared experiences are a beacon for those navigating similar waters, providing solace and solidarity.

By the close of our chat, you'll be loaded with strategies, bolstered by expert insights, and touched by stories that echo your own. If you're ready for a surge of motivation and community, don't hesitate to hit subscribe.

Key Takeaways:

• Unveiling the transformative journey of FASD caregiving through the lens of experienced coaches
• Harnessing the collective strength of a community that truly understands the FASD journey
• Real-life stories from caregivers that inspire and educate

Show Notes:

🌟 Special Feature: Breaking Through Burnout Workshop 🌟

Battling caregiver burnout? Step into the light with us. The unrelenting pace, the high-intensity moments, and the quest for effective strategies can overshadow even the brightest days.

If this rings true, then our FREE 3-day workshop, "Breaking Through Burnout," is your sanctuary. It's time to shift from survival mode to a thriving life.

This workshop isn't just about coping – it's about thriving. We're ready to equip you with the tools to manage challenging behaviors, simplify complex decisions about medications, and refine your therapeutic tactics. With live, interactive coaching, evidence-based methods, and a community that embraces your struggles and victories alike, you'll emerge from burnout with a fresh perspective and renewed vigor.

👉 Don't miss out! Registration for the Breaking Through Burnout Workshop is LIVE: Click here to REGISTER!

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So, if Angela's rollercoaster feels a lot like your own, hit that subscribe button for more 'aha' moments. And hey, listen up because we've got an exciting announcement about a free workshop that might just be your FASD game-changer. Seriously, you won't want to miss this.

Show Notes:

Follow our Facebook Page for daily tips and inspiration: FASD Success

If you are a parent or caregiver and need some virtual support,  join us in our: FASD Caregiver Support Facebook Group.

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Don't forget to subscribe to the FASD Success Show for more insightful episodes that will help you navigate the FASD journey with knowledge, compassion, and actionable strategies. Your subscription helps us reach more caregivers like you, spreading awareness and fostering success in the FASD community.

Show notes

FASD Caregiver Support Facebook Group: www.facebook.com/groups/fasdforever

FASD Definition: www.canfasd.ca 

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Check out our blog for all the links at FASD Success

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In this episode, I delve into the complicated and emotional process of moving forward after the loss of my sister.  As we navigate the loss of my sister's passing, I reflect on the ups and downs of grieving and how it has changed me. Join me as I share my experiences and the eulogy I never got to say. 

 In this episode it is you helping me cope with grief and honor the memory of my sister Jennifer.  

I also give an update on the future of the show. Despite this difficult time, I am still passionate about sharing my story and connecting with others. I talk about the new topics I plan to cover and the ways I will be evolving the show moving forward.

This is was really hard to do so I appreciate you taking the time to listen. 

We'll be back soon...better than ever! 

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How are you holding up? Many of the caregivers in our Facebook Group and Coaching Course are feeling the strain. You may be burnt out but so are our kids. Even my daughter, who is neurotypical. Add in the disability, seasonal depression, or trauma (for you or your kids) and we have an assault on our nervous systems. Tune in to hear the collective wisdom from my team and the families I work with on how to navigate this season. I dig deep and share:

• questions to ask and prompts to center yourself if you are struggling
• quick suggestions to help ease transitions and changes
• a new way to respond to the negative voices when you or others think our kids are missing out

I also share how my family shifted to create new traditions that reduced anxiety and pressure on everyone in our celebrations. Some of our kids can manage the season (and that’s great), and some only require minor tweaks to traditions and routines (fantastic) … but for others, to survive this season, you really need to ask yourself some tough questions. Because can we ask our kids to extend their functioning beyond their current ability and expect traditional outcomes?  I don’t have all the answers, but I do have ideas and questions you can ask yourself to find answers that work for your family.

Oh, and about the Show and where it’s going? I will give you all the details on that, so you are going to want to tune in!

From all of us at FASD Success, whatever you are or are not celebrating during this time of year, I hope you find more good days and success. Thank you for tuning in this year and making The FASD Success Show one of the top 5% most shared globally (according to Spotify)! That is all down to you, the listener! Thank you for sharing your time with us and The Show with others!

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Eventually, things escalated to the point where there was involvement with the juvenile justice system, placement in a therapeutic day school, and residential treatment. We talk about how that left her feeling like she failed as a mom and a professional. She shares what led her to make a significant shift that helped her son, her family, and herself, and how she has gone from not wanting to share her story for fear of judgment to advocating with various systems and even having her Congresswoman phoning her to talk about FASD!

While each journey is unique, I hope hearing others helps you not feel alone, understand that success comes in many forms, and be inspired for your future!

Show Notes:

FASD Workshop: Learn what’s working now from Jeff and other FASD parents and caregivers with 800+ years of experience. Click: Free Virtual Workshop. Once you register, you will get support, encouragement, strategies, and tips to deal with everyday challenges at home or school.

Check out our website: FASD Success

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In this episode, you will find out where they went, what they discovered, what changes they made, and what results they have seen in themselves and in their kids. They also talk about their proudest moment when the school went from not listening to Anne to inviting her to train their special education staff!

They still have challenges, but they are better equipped to manage them. And you can find that balance too. Check out this episode for details.

Show Notes:

FASD Workshop: Learn what’s working now from Jeff and other FASD parents and caregivers with 800+ years of experience. Click: Free Virtual Workshop. Once you register, you will get support, encouragement, strategies, and tips to deal with everyday challenges at home or school.

Check out our blog at FASD Success

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In the beginning, it was like walking on eggshells every day. They expected their niece and nephew to function like their 5 bio kids, including their 3 and 5-year-olds, and respond to the same parenting strategies, but they did nor could not.

If you are like Sara was, yelling to be heard, and Brad thinking discipline is all you need, then check out their story and find out what they did to turn things around and you can learn what’s working now from Jeff and other FASD parents and caregivers with 800+ years experience. For more information, click: Free Virtual Workshop. Once you register, you will get support, encouragement, strategies, and tips to deal with everyday challenges at home or school.

Show Notes:
Check out our blog for all the links at FASD Success

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Show Notes:
Check out our blog for all the links at FASD Success

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Please note: I am not a doctor, lawyer or social worker. I do have lived experience, education and have interviewed many individuals with FASD, researchers, professionals in the field and coached hundreds of families. I like to say, I’m an advisor. You are the expert on your child.

In this episode you will get answers to questions about: responding to judgement about parenting choices with respect to accommodating symptoms or preparing our kids for ‘real’ life, is the wool being pulled over my eyes when they can do one thing but not another, do all kids exhibit big behaviour, will delays be permanent or limit his future, and how to provide supervision to teens.

So grab whatever you need to take notes, get comfy and get ready to get some answers. Thank you to everyone who sent in these very personal questions.

If listening to this episode, created a question in your mind, feel free to reach out and you just may get it answered in the next round.

Show Notes:
Check out our blog for all the links at FASD Success

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Heather Vickers received her diagnosis seven years ago when she was 44. She has been married since 2005, has a stepson with Autism, and is a cat mom and self-advocate. She candidly shares her before and after journey. The before is filled with difficult challenges trying to make it on her own without a diagnosis, understanding, and support. But she has an incredible story of transformation that occurred through sheer determination. She now shares her journey and insights to help other individuals with FASD and those that support them.

Show Notes: Check out our blog for all the links at FASD Success

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We talk about her beginnings in work with trauma and resilience, the sensory system and why our kids get big feelings, how Riley the Brave came to be, and why stories are effective as teaching tools.

While this book isn’t about kids with FASD, it is a book that will help kids with FASD and their parents and caregivers. I think you will find Jessica has taken a subject that many adults don’t understand and put it in a format that will reach kids and their parents. Be sure to check out the Show Notes for a link to our blog to order a copy and follow Jessica.

Show Notes:
Check out our blog for all the links at FASD Success

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I am talking to Joanne Garofalo from Voice in a Million & FASD Hub Scotland and Darren Day, an actor and singer from the UK, about the release of a new song – You Are My Song – written by James Hawkins.

The cool part is that while this version is launched today - FASDay - a bigger project is in the works that anyone can participate in. You will get all those details, plus:

• Why Joanne wanted to broaden the Voice In A Million to include this song
• Why Darren became involved and how he will navigate any negative pushback
• Their hope for this song and for those who listen and share

An incredible opportunity we have when we work in this field is to witness the realization people have about how prenatal alcohol exposure may have touched their lives. I went into this interview thinking it would be a 5-minute video promo about a song and soon realized it was much more. Especially for Darren, who is now a champion for FASD. As he said, he is “eager like an athlete on the starting line.”

Check out the links below. I hope whatever you do today has meaning for you.  Together we will bring awareness to light about prenatal alcohol exposure, the strengths and brilliance of people with fetal alcohol spectrum disorder and the amazing support and advocacy of parents and caregivers.

Show Notes:

“You Are My Song”. Written by James Hawkins, performed by Darren Day, and supported by a choir of children with FASD and other neurodevelopmental conditions and their families. Download the song here: https://www.adoptionuk.org/fasd-month-22 

Previous Podcast with Jo:#082 Jo Garofalo: FASD The Hidden Disability

History Notes of FASDay: Day 50 OF 99 Days: The Birth of FASDay

Check out our website: FASD Success

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Danna is the Director of the Foothills Fetal Alcohol Society and an FASD Instructional Coach with the Wrap2FASD program. We know back-to-school season is a tough transition for everyone. You are thinking about last year and wondering how this year is going to go. Danna shares her insights using an easy-to-remember analogy: T.I.P.S.

In addition, she reflects on her work in the early days of the growth of the Autism Community and offers her thoughts on how to get out of our “stinking thinking.” She leaves us with an invitation to get in touch with the person we are underneath the advocate. Let me know if you use any of these T.I.P.S. and how they worked! I would also love to hear from the teachers – what are your tips?

Check out our website: FASD Success

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Tune in to find out details about how you can get involved in a caregiver survey, and FASD Month, as well as announcements on a national FASD strategy, an international prevention series, as well as details about projects on substance use, housing, and mentoring new researchers.

If you want to know about some exciting new developments and projects and how to get involved, be sure to tune in and check out our blog for all the links.

Show Notes:
Check out our blog for all the links at FASD Success

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We talk about her experiences as a caregiver, thoughts on why adults are uncomfortable with the topic, when to talk about it and five tips on how to talk to children with FASD about it. She also gives suggestions for parents on how to balance their own grief while trying to support their child(ren).

Be sure to check out the link in the Show Notes to find resources to help as well as to Marj’s podcast.

Show Notes:
Check out our blog for all the links at FASD Success

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Miranda is an Educational Psychologist in Scotland responsible for neurodevelopmental assessment pathways with health services in areas of FASD and Intellectual Disabilities. She has worked in education systems for the last 20 years and has guest lectured on the Scottish Masters in Educational Psychology courses. Currently, she is working on a Ph.D. at the University of Edinburgh on the value and impact of an FASD diagnosis.

This project asked individuals with FASD to photograph their lives. Through these photographs, they shared what is essential in their lives at home, and school and what the diagnosis and disability of FASD mean to them.

Miranda also tells us about the next two research projects she will be undertaking with health and then educational professionals. This project certainly unearthed some fascinating research. While some of the themes and words that emerged confirm what prior research tells us, there are some interesting opposites. Make sure you stay tuned until the end when Miranda lets us know about an emotional response from an individual with FASD after he saw the results. Check the Show Notes for a link to the Project.

Show Notes:
Check out our blog for all the links at FASD Success.

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We talk about how Mark met Savanna, his partner who has FASD, how they became involved with the Hamilton Parents and Caregivers Support group that he co-chair, and how his interest in the education sector developed.

This episode is full of insight on how to work collaboratively with teachers and the school board. Mark is just as comfortable talking to the Minister of Children and Community Services as he is too overwhelmed by caregivers or children with FASD. You will find out why he thinks 99% of IEPs are not worth the paper they are written and gives you some concrete steps to follow from being confused and not sure how to proceed to become the confident advocate for your child. He provides some suggested rebuttals to resistance and gives you a gauge to know if the plan is working. You are going to find out why his workshops are one of the most popular in our CKS program.

Be sure to check out the show notes for a link to our blog where you can find his awesome support group website.

Show Notes:
Check out our blog for all the links at FASD Success.

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This unique episode has some critical information about how systemic barriers and failures can result in adverse outcomes for individuals with FASD. We will leave the detail for the episode, but we want to give you a general idea about the content. 

First up, I want to thank Shawn for being brave and vulnerable in sharing his story. Rhonda also has my deep respect for supporting and loving him through this process, while also recognizing the impact and harm on the victim.  

Rhonda has worked in the child welfare system for 30 years. She was first introduced to FASD in her personal life when she provided respite for Debbie and Bill Michaud (both former podcast guests). Eventually, she raised 8 individuals (most with FASD) and supported a variety of their friends and family along the way, which is how she came to know Shawn. 

My hope in sharing Rhonda and Shawn’s story is that caregivers will gain valuable tips for supporting vulnerable individuals. I also hope it shines a light for professionals on what can happen where there is no diagnosis and no access to informed services. When we assume a person “looks normal and talks normal”, we put them into situations where they can fail. When they fail, someone gets hurt. They get charged and the charges can be serious.  Now we are left with families in ruins where the failure was in fact not the individual, but systemic from years and years ago.  

There have been some hard lessons in Shawn's story but there have been some silver linings. No matter what happens in Court, we hope that Shawn and his victim find healing. 

Show Notes: 

Check out our blog for all the links at FASD Success 

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Stephanie also talks about the reality of having kids and the effect not being in good health can have on caregiving. She gives ideas on incorporating all this with a busy household and kids with neurodiverse needs. She also gives you a five-point plan to follow and a piece of wise advice on what to say when you are in the trenches and might be hard on yourself.  

 I know she is good at what she does because Tara and I are in her program. And because she has been in the trenches, I wanted her to share her knowledge with you.  

Show Notes: 

Check out our blog for all the links at FASD Success

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Tara does much of the behind-the-scenes work - with our daughter and our business - but she had a long career working with individuals with FASD, was a foster parent with me, and has worked with a variety of populations who have intensive housing support needs.  

In this episode you will hear her perspective on our marriage, time as foster parents and on how incredibly lucky we are to share what we know with other caregivers. She is also going to share her insight how caregivers can support each other, how to survive in the moment and what individuals with FASD need for successful interdependent living. 

I want to acknowledge that Tara is a big part of our community. Without her, there would be no business and no Show. In fact, she will be taking on a bigger role come September and I can’t wait for more awesomeness she will bring to help caregivers.  I hope you enjoy getting to know her a bit more and enjoy our banter back and forth! 

Show Notes: 

Check out our blog for all the links at FASD Success 

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You will also learn about their partnership with the Hidden Disabilities Sunflower, the barriers to starting a new venture in a culture of alcohol acceptance, Scott’s involvement with the Adoption and Fostering Podcast, and a recent serious health condition that changed their perceptions on life and created an unexpected change in one of their sons. 

This was a fun interview as well as an enlightening one. I love to hear what is going on in different parts of the world. Despite cultural differences caregivers around the world have so much in common. While you may not be able to start your own organization, I hope you will be inspired by Scott and Tristan and find something you can take into your everyday caregiving that helps you meet with more success. Be sure to check out the Show Notes for a link to our blog if you want to give them a follow or get in touch. 

Show Notes: 

Check out our blog for all the links at FASD Success

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Joel Sheagren is the Director with Jodee Kulp and Justen Overlander co-producing. Joel has a 30-year background in advertising and is a parent to a young man on the Spectrum. Jodee is an author, advocate, both an individual with and parent of a loved one with FASD, co-founder of the Red Shoes Rock movement, and returning guest. Justen is a former teacher who also works in the film industry.

You will find out what the project is all about, how it will be different from other films about FASD and how you can help support Embraced. And if you stay until the end of the Show, you will find out what challenge Jeff issues to Joel! 

You can find all the links on our blog. Link in the Show Notes below.

Show Notes: 

Check out our blog for all the links at FASD Success 

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It’s important to recognize I am not a doctor, lawyer, or social worker. I have lived experience, and education, and have interviewed many individuals with FASD, researchers, and professionals in the field, and coached hundreds of families. I like to say, you are the expert on your child, I’m an advisor.  

In this episode you will find out more information on the importance of a diagnosis, neurofeedback, my top 2 takeaways from interviewing adults on the Spectrum and why understanding FASD as a Spectrum is important, toileting, swearing, plans for workshops or gatherings, survivor guilt for siblings, and regression in young adults. 

So grab a pen and paper, get comfy, and get some answers. Thank you to everyone who sent in the questions. Let me know if you like this format. Cause if you do, we will definitely do it again. 

Show Notes: 

Check out our blog for all the links at FASD Success 

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In this episode, Jillana reflects on her journey to fostering, and what she learned along the way, including the difference between how children are presented in the foster system versus the reality and how shifting their expectations allowed them to thrive, survive and grow as a family.   

We wrap up talking about the critical conversations and shift in mindset she feels needs to happen in the foster care system to better prepare foster and adoptive parents, along with her best advice for prospective and adoptive parents. We also touch on how she self-regulates and why she stays off social media. 

Jillana has crafted a collection of personal stories that will serve as a guidepost for caregivers who need to navigate the often-tumultuous terrain of fostering, adoption, and raising a neurodiverse child in a world that doesn’t quite understand.  

Show Notes: 

Check out our blog for all the links at FASD Success 

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It is such a concern that researchers have noticed and are now looking at it in more detail. In this episode, I talk to Dr. Jacqueline Pei, Dr. Mansfield Mela, and Jessica Joseph about their recently published paper: Aggressive behavior and violence in children and adolescents with FASD: A synthesizing review. 

Behaviour, including aggression, is communication. This paper will give you some starting points to look at what might be driving that behavior. Kids are not getting up in the morning saying they want to be an a**hole. Our job is to figure out what is going on and how we can respond with more understanding and bring professionals on board to help. 

For more information and a link to the Review, check out our blog post (link in Show Notes). 

Show Notes: 

Check out our website: FASD Success 

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We first met Olga and Serhii Bolshova, a family I interviewed days after Russia invaded Ukraine in Episode 97:  Olga and Serhii: An FASD Family on the Front Lines in Ukraine. Olga is an alumnus of our CKS! Caregiver Kick-start Coaching Program and was beginning her journey to help build an FASD community in her homeland when war was declared. You may remember on the night they were to flee from their home, Olga had Serhii and the girls waiting in the car as she wrapped up an FASD training session on Zoom!  

It’s been a few months and their adventures continue. Many of you wondered how they are, so once I found out they were in Ontario, I knew I had to take a drive down to see them.  

Check out the episode to find out about life in a refugee camp in Poland, how they have been welcomed into Canada and what their next steps are. 

Show Notes: 

Check out our blog for all the links at FASD Success 

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In Part 2 we cover: 

• interdependence, impulsivity, emotional regulation, expectations 
• struggles to be taken seriously as an advocate and be accommodated 
• importance of a diagnosis and consequences of not getting one 

I want to thank Jessica for her honesty and openness in sharing her story. I hope that by listening to this episode, your learning curve will be lessened, you can build deeper relationships with your kids and see a hopeful future. But more importantly, understand that FASD doesn’t define a person.  

With individuals like Jessica speaking up, and those who support and advocate alongside us, we are raising the voices and awareness. Change is coming. 

Show Notes: 

Check out our blog for all the links at FASD Success 

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If you have ever wished your child could tell you how they feel, then this is the episode for you. If you are an individual with FASD needing to hear from others with FASD, this is the episode for you. There is so much to Jessica’s story I wanted to give it the space it deserved to be shared, so we are splitting it into two Parts.  

In Part One, we explore what it was like growing up undiagnosed. Despite having a supportive mom, she shares what life was like without a diagnosis, as a child, and teen and what happened when she tried to make it on her own.  

This may be a difficult episode to listen to because of the intensity. But I think it offers inspiration because we know that with the diagnosis, support, knowledge and understanding, Jessica is thriving. And that is what we will talk about in Part 2.

Show Notes: 

Check out our blog for all the links at FASD Success 

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Judy was a pediatric head nurse in Whitehorse (Yukon, Canada), a founding member of the FAS Society of Yukon, and served as its Executive Director for 12 years. She is also a mom to Matthew, an adult with FASD. 

In this episode, I talk to Judy about the journey she and Matthew have been on, her thoughts on where FASD is now, where it should be and we do a step by step review of a poster she and Matthew just created called: Reminders for Parents/Caregivers and People with FASD and other Neuro Development Disabilities. 

Make sure to check out our blog (link in the Show Notes) to hear the podcast I did with Matthew and download a copy of their poster. 

Show Notes: 

Check out our blog for all the links at FASD Success 

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You will hear their journey to getting a diagnosis and the roadblocks they encountered before and after from their unique perspective as mom and daughter. We also find out how they used those blocks as stepping stones to help others. 

What started as home-based advocacy has turned into a charity and a Center to help other families in Scotland with programs and supports. 

Make sure you stay tuned to the end you to hear my surprise and delight that we share a favourite activity, which not only provides bonding time for them as a family, but also provides regulation for both kids and adults!  

Don’t forget to visit our blog (link in Show Notes) for links to connect with Oshay’s. 

Show Notes: 

Check out our blog for all the links at FASD Success 

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My guest today, Dr. Catherine Lebel, is going to talk about a recently released study that examined altered brain structure and function in children with low levels of PAE. And don't worry, we break it all down so you can understand the information to use in your advocacy. We have the who, what, where  why and how:

• Who and how many the study involved?
• Why this study is needed.
• What the study examined and what the results were.
• Where this will lead us.
• How you can use this information in your advocacy.

Dr. Lebel also updates us on her FASD and Mental Health research project. You can check out a previous podcast we did on this: MRIs and the FASD Brain with Dr. Catherine Lebel. They still need participants, so check out the Show Notes for a link to our blog.

This is really exciting and groundbreaking research. We now have some science to back up what we are saying. I also asked Dr. Lebel what motivates her to keep going – and one of the things is YOU , the CAREGIVERS! So, keep advocating and keep involved. You are part of the change we are seeing.

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Jeremy is a martial arts champion and owns United Family Marshal Arts in Niagara Falls (Ontario, Canada). He is also a pro wrestler. In fact, Pro Wrestling Insider has listed him as one of the Top 500.  

We talk about Jeremy’s journey growing up with a single mom who inspired him to follow his dreams and in turn help others. We talk about his success in and outside of the ring, including how he has advocated and supported William throughout the years and his new focus: to raise broader FASD awareness using red wrestling boots and launching the Embrace our Journey campaign.   

William shares his perspective on growing up with FASD and how sports have helped him. Just as Jeremy was inspired by the Karate Kid, William has his own inspiration for finding his first passion (football) after a chance meeting with Jamal Campbell. He told him, “I’m going to be a lineman-like you.”  

This is a great story of overcoming odds and dedication to passion. To how finding and nurturing strengths can help individuals with FASD grow and thrive. This is a journey of understanding, compassion, resilience, and embracing the journey. I can’t wait to see where these two go next. I may not be on the road with them, but I will be getting the t-shirt. If you want to follow them, or get the t-shirt, check out the Show Notes for a link to our blog. 

Show Notes: 

Check out our blog for all the links at FASD Success 

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Bryan is a child behavior expert and founder of the Post Institute for Family-Centered Therapy. The Post Institute works with adults, children, and families struggling with early life trauma and the impact on the development of the mind/body system. A renowned clinician, lecturer, and author, Bryan has traveled throughout the world providing expert treatment and consultation.  

While we discuss topics we have covered many times before, such as why the connection is more important than correction, how we need to be regulated before we can expect our kids to be, and how trauma and attachment express themselves, In this episode, you are going to likely learn some new and different ways to look at your kids and your caregiving experience.  

It was cool to finally connect with Bryan. I love hearing different stories, and finding out how we are the same and different. In fact, in this episode, we collaborate and move from looking at prenatal alcohol exposure as a triple to a quadruple “threat.”   

No matter the approach or path, we ultimately have the same desire and goal: to help you – the caregiver - achieve more success so you can have better days and relationships with your kids.  

Be sure to check out the Show Notes to find a link to our Blog where you can find links to more information on this episode and The Post Institute. 

Show Notes: 

Check out our website: FASD Success 

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Sandy and her husband are parents to two young people, one with an FASD diagnosis. We talk about that early journey for her son, how she came from the States to head up the National FASD organization, the events leading up to the National Institute for Health and Care Excellence (NICE) Quality Standard, and the recently released Time is Now publication. 

Not sure about you, but I was exhausted hearing all that was going on. And that isn’t all, in between all that, we squeeze in discussions around the pub culture, media portrayal and stigma, cost of FASD, and educating professionals. 

As Sandy says, there are people of goodwill all over the place who realize how important it is that we haven’t yet as Society fully addressed what is going on. But they just need to know how to connect with each other.  

Big shout out to everyone in the UK (past and present) that has been a part of this process to get the UK to where it is today. For more information on the items we discussed, be sure to check out the Show Notes below.  

Show Notes: 

Check out our blog for all the links at FASD Success 

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Donna is a social worker and translated 30 years working in Child Protection into becoming an outspoken advocate for individuals with prenatal alcohol exposure. In her role as an FASD Specialist, Donna challenges the Systems to develop and implement prevention, intervention, and management strategies so that families and communities can successfully cope and plan for meaningful futures for these individuals with complex needs. The critical message emerging from her work is the need to establish sound FASD Informed Practice to support the often-complex needs of children, adolescents, and adults with FASD. Donna believes that most innovative programs are created through collaboration and through sharing experiences and skills we will create improved outcomes for individuals and their families. 

I can’t begin to tell you what an honour it was to have Donna agree to come on the Show. Although she is a fantastic presenter, she shies away from interviews. I think you will agree there was no better person to be my number 100 than Donna.  

For more information, you can check out the Blog on our website. 

Show Notes: 

Check out our blog for all the links at FASD Success 

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Mike says: The goal of Insight is to provide personal access to world-renowned experts who can give you practical insight into your child's trauma and how it affects their life and behaviors. You will also walk away with the tools to transform your parenting journey. 

If you’ve seen the conference advertised but haven’t decided, you need to do that soon, as it takes place on March 23 and 24. It’s all online so you don’t have to worry about hotels or travel costs. To sweeten the deal, even more, we have an exclusive offer just for our listeners. 

The more educated you become, the better you’ll become at understanding why your kids act the way they do, and then you will be better equipped to respond and accommodate. The Insight Conference will help you become an even better parent. And I’ll be there - welcoming you like an old friend. 

So, what are you waiting for? Listen to this special podcast right to the end, for the offer, and then head over to this special Insight Conference link to register.  

Show Notes: 

Check out our blog for all the links at FASD Success 

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In this episode of The FASD Success Show Dr. I talk with Dr.  Katy Flannigan (Research Associate at CanFASD) and Dorothy Reid (Co-Chair of the Family Advisory Committee) about two recent projects: a narrative review of the literature on the strengths of individuals with FASD and a survey seeking the experiences of caregivers. 

This was a fascinating discussion. Not going to lie - like the researchers, some of my beliefs were challenged and changed. This study provides a few reflective statements that might just change the way you view and support individuals with FASD.  

You will also learn about the Caregiver Survey CanFASD launched on September 9 (FASDay) 2021. It is still open for caregivers (no country limits) to participate. Check below for a link to our blog.

Show Notes:

Check out our website:  FASD Success

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We realize we are living in very significant times. Today we’ve been invaded by our northern barbarian neighbours. Kyiv is being bombed. Soldiers are dying. They are invading from all sides. That’s the stage we are going through. Ukrainians are tough and we are going to resist. We are Ukraine. We are strong and we will protect ourselves. 

Who has not been transfixed by what is happening in Ukraine? Olga Bolshova, an alumnus of my CKS Coaching Program has been very active in setting up FASD programs in Ukraine. So much so, that last night when they knew they could wait no longer, they put their safety plan in place to leave their home. Serhii reported they had to wait though until Olga finished an FASD diagnostic webinar she had organized for doctors. How surreal is that?  

With so many of our Facebook community members reaching out to ask how she and her family are, I wanted to do a check-in. It isn’t often I’m speechless, but the resolve and the calm, even some of the laughter, I’m sure must mask an incredible amount of anxiety. In fact, we talk about that, as well as: 

• How she and her husband prepared their 7-year-old daughter Stepha, who has FASD, for the upcoming war, including the new routine she has created after the move. 
• The perception from the West, versus what is really happening on the ground. 
• What it is like right now for them, their friends and their country. 

Today there is no clarity. It’s chaos. Nobody knows what is going on. It’s important not to panic. I just said goodbye to my apartment. It’s just stuff. What is important is our family. Protect your children. Love your children. Be kind. 

It doesn’t get more real than this folks. Not that any experience isn’t valid, but it sure does put things into perspective when you learn how to use a gun, create a survival kit, give up everything that won’t fit in a car, leave everything behind and teach your child how to increase survival in case a plane drops a bomb.

If you want to help, Serhii and Olga tell us what practical things we can do to help people in Ukraine. Let’s honour and support them and the people of Ukraine by doing what they ask.

Show Notes:

Check out our website:  FASD Success

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Alex and his wife Sylvia have 6 bio children between them and fostered 2 boys with FASD. We talk about how they arrived at the fostering journey, their lightbulb moments after receiving FASD training as well as what Alex gives to and receives from the group. 

Alex has certainly become an integral part of the group and I think after this podcast you will agree he has a knack for engaging people and making them laugh. So much so it’s part of the culture of the group and what sets it apart from others. 

Make sure to check out the Show Notes for a link to our blog where you can access our Facebook Group and Redbubble Shop. 

Show Notes: 

Check out our website: FASD Success 

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DiG FASD stands for “Dissecting the Genetic Contributions to Fetal Alcohol Spectrum Disorders.” FASD is a Spectrum. The research team hopes by understanding how genes are affected, improvements can be made for treatments and interventions. If you might be confused about genetics, don’t worry, I got you covered. We break it down for you and give you all the details on how individuals can participate. And if done before June 2022, you will be paid for your time. 

Be sure to visit our website listed in the Show Notes for all the details and links. 

Show Notes: 

Check out our website: FASD Success 

Support the show

Jeff’s guest today is Pascal Gagné, the FASD Team Lead at Health Nexus (Ontario, Canada). He oversees the provincial FASD initiatives.  

Pascal and Jeff talk about what research is available on this topic and how the trauma of FASD and root causes of behavior translate into vulnerability for individuals. They discuss how you can set your family up for success and give tips, ideas, and strategies to help guide individuals. 

So much of FASD support are crisis-led. People don’t get the diagnosis they need, the support they need and there is stigma, so they don’t reach out. By mentioning sexuality in your everyday life, and making it part of your routine, just like talking about hygiene, mental health, employment, housing, etc. you plan.  

I know this may have been an uncomfortable topic for many. I hope after listening to the podcast we have given you tools and ideas to help make it easier. There is also website suggestions you can access by visiting our Blog, listed in the Show Notes below, to help guide you.  

Show Notes: 

Check out our website: FASD Success 

Support the show

We also get some details on a new research project looking at the factors that predispose individuals with FASD to encounters in the criminal justice system and how individuals in the U.K. can get involved. I found this a fascinating look behind the curtain of research. In fact, many did, as the journal it was published in indicated it was the most widely shared article from the second half of last year. 

Show Notes: 

Check out our website: FASD Success 

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We talk about his journey raising his son Bill, his unique perspective as a professional and a parent (and why that sometimes worked and sometimes didn’t), where we still have gaps for FASD, best tips for advocacy and self-care. We also spend time on grief and loss. We talk about what it is, why it is important to understand it, and what you can do to move through it. And Dan tells us what he feels is the most important thing he did and those other caregivers can convey to their child.  

One of the themes that keeps threading through these last few episodes is about values clashes and learning to throw away everything you thought you knew. That’s why I bring you these experts to help you learn from their experiences so you can continue to build success in your lives.  

Show Notes: 

Check out our website: FASD Success 

Support the show

In this episode. we find out what the WRaP program is, but more importantly for caregivers and those working with or around students, we find out what capacity building is and the steps you can take to start building partnerships for the success of students, teachers, and caregivers. 

Danna also tells us about a unique new program she is introducing that combines students, herself, a guidance counselor, and drums, the difference between having two teachers who “get you” versus two who don’t, and her favorite part of her new role. 

And while the tips she gives can be applied anywhere, Danna gives you an elevator pitch on how to get this program in your school if you are in Alberta. From our conversation, we learn just how passionate she is about success. If you want more information check out our website link in the Show Notes. 

Show Notes: 

Check out our website: FASD Success 

Support the show

Peter’s areas of research focus on child protection practice. He has been engaged in clinical private counseling and assessment practice with an emphasis on addictions, domestic violence, and child protection matters. 

This episode has everything. There were so many rabbit holes we went down: FASD prevention, stigma, judgment, trauma, addiction, exclusion, inclusion, epigenetics, harm reduction. It is hard to believe we fit it all in an hour – but we did 

I know when you are amid your own struggles and challenges it feels like no one is out there trying to change the system. But I hope the guests we bring to you on The FASD Success Show, like Dr. Peter Choate, help you understand that there are people out there and we are getting there.  

Check it out. And don’t forget to visit our website (in the Show Notes) for all the links.

Show Notes: 

Check out our website: FASD Success 

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In this podcast, Laurie and I touch on her involvement in the FASD community in her hometown, lessons learned from raising two children on the Spectrum, being vulnerable, grief, loss and shame, and judgment. Oh, and we chat about an awesome video she shared on Twitter on International FASDay: People with FASD talk about FASD. 

Laurie has some incredible insight and I want to thank her for being so open and vulnerable. This isn’t an easy journey but reaching out, sharing, and supporting each other is vital. Check it out and let me know what you think! 

Show Notes: 

Check out our website: FASD Success 

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Combining what she learned in the CKS Coaching Program with her research background, she set goals and applied a scientific analysis to measure progress. 

Her unrealistic expectations have been shelved and they are celebrating a year of no physical aggression, thanks to the education, coaching and support she has received in the CKS.  

Show Notes:  

Want to learn more about FASD, find support and expert advice?
Registration closes Friday, October 29, 2021: The CKS Coaching Program
or catch up in the free: CKS Workshop  

Check out our blog for all the links at FASD Success 

Support the show

Show Notes: 

Want to learn more about FASD? Sign up for our free CKS Workshop 

Check out our blog for all the links at FASD Success 

Support the show

Chandra and Jordan are parents to 6 children – two with an FASD diagnosis and one suspected. Like Angelene Bruce, our conversation was not intended to be a podcast. It was for a case study for our upcoming CKS workshop. Like Angelene, their story is filled with great lessons that will benefit many.

Chandra and Jordan are always a favourite on our Coaching Calls. I am excited for you to listen to what they have learned. You can try us out with the Caregiver Kickstart Workshop next week. The link is in the Show Notes.

I do not doubt that with knowledge, understanding and support you too can achieve great things for yourself, your family, and your kids.

Visit our blog for more information: The FASD Success Show

Want to learn more about FASD? Sign up for our free CKS Workshop 

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Check out our blog for all the links at FASD Success 

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Angela Geddes refers to it as a guide to understanding the effects of prenatal exposure to alcohol (PAE) and what Fetal Alcohol Spectrum Disorder (FASD) looks like across the lifespan. It is a resource manual filled with not only general information on FASD but provides insights into building a more inclusive service delivery system.  

We talk about her book, her journey, how and what she thinks the system needs to do to be more responsive as well as giving some quick tips for caregivers on accommodations that can be implemented right now and what you can say if professionals are not aware of PAE/FASD. 

She is currently in private practice providing education, advocacy and direct support for individuals and families experiencing complex issues including the impact of PAE/FASD. 

Show Notes: 

Check out our blog for all the links at FASD Success 

To sign up for the CKS Workshop: The Caregiver Kick Start Workshop! 

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In this episode, we learn about that journey and the unique opportunities she has had to bring not only her adoption story and advocate for change through their Voice in a Million project, but also the recently released documentary FASD The Hidden Disability.  

Jo used the resources she had and the skills she learned to build a support team and secure a new school placement for her daughter. Whether you are looking to be inspired for advocacy for your family or community, this podcast explores the power of facts, knowledge, community, and telling stories that can create change and success for ourselves and our loved ones with FASD.  

Check out our website in the Show Notes for more information and links. 

Show Notes: 

Check out our website: FASD Success

Check out our Facebook Page: FASD Caregiver Success

Join our Facebook Group: FASD Caregiver Success Group

Follow me on Twitter: @JeffjNoble

Support the show: Buy Me A Coffee

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Natalie Vecchione and Cindy LaJoy are both homeschool moms, who realized their teens, with FASD, needed alternative homeschool paths for meaningful futures. Through entrepreneurship and apprenticeship, these moms prepared their teens with Fetal Alcohol Spectrum Disorder (FASD) to move forward with confidence, hope and a set of practical life and job skills.

We talk about the mind shift required, their mistakes (so you don’t have to make the same ones), what they’d do differently, practical tips and strategies, how their adults are doing now, and much more. They believe so strongly in homeschooling and setting their kids up for success they wrote a book about it: Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities.

For many caregivers, homeschooling is an option and one that brings success. But even if you don’t homeschool there are still practical tips and advice in this episode about how our kids learn and how to find the strengths that will help them throughout their life. This episode is not about our kids graduating, it’s about developing a good human being and getting them ready for life.

Have a listen and let me know what you think. Do you homeschool? Do you want to? Will you after listening to this episode? Or do your kids do well in traditional school?


Show Notes:
 
Check out our blog for all the links at FASD Success

Website: Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities

Natalie Vecchione

Email: natalie@fasdhope.com

Website: FASD Hope

Facebook- @fasdhope1

Cindy LaJoy

Email: CyndiLJ@aol.com

Website: Blue Collar Home School

Facebook: Blue Collar Home School Group

Check out our Facebook Page: FASD Caregiver Success

Join our Facebook Group: FASD Caregiver Success Group

Follow me on Twitter: @JeffjNoble

Support the show: Buy Me A Coffee

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Show Notes: 

Check out our blog for all the links at FASD Success 

Support the show

Show Notes: 

Check out our blog for all the links at FASD Success 

Support the show

Check out our blog for all the links at FASD Success

Support the show

Today you will find out why they joined the group, who they support, what role and skills they bring to the group and their thoughts on the importance of building our community for caregivers. I think you will agree we benefit from their knowledge and skills. They donate their time and experience to make the group a safe haven for you – so I hope you enjoy taking some of your time to learn a little bit about them. 

Show Notes: 

Check out our blog at FASD Success 

Support the show

Christine Bofenkamp is a freelance graphic designer and writer. She and her husband are raising Angelina who was adopted through kinship care. When not working or supporting her daughter with online studies, Christine is pushing to get her new home state of Kansas FASD informed. She is building a non-profit to bring FASD awareness and education to the forefront. Angelina is busy as well, maintaining a 4.2 GPA, writing, reading, playing the flute, piano, and piccolo, and excels at rolling her eyes at her parents.  

You know I always like to get the origin stories of my guests and we start off with the story of how they became a family – which like so many of our caregivers is never a straight line. It’s a path filled with twists and turns. This one is no different. We talk about their road to a diagnosis, the difference FASD informed professionals can make and how they ‘got real’ about FASD.

We also discuss aha moments, working as a team, the importance of community and Christine and Angelina’s involvement with the FASD Respect Act Bill in their state, hear what Angelina said that sealed the deal, what their plans for the future are, as well as advice Christine has for other moms and Angelina has for individuals on the Spectrum. 

The road wasn’t easy for the Bofenkamps. But they have emerged the other side. I hope this episode gives you hope, that while everything is not sunshine and rainbows, there can be success and growth. 

Show Notes: 

Kansas FASD Website: Welcome - Kansas FASD 

Email Christine: cb@kansasfasd.org 

For more information on the FASD Respect Act check out this video on our Facebook Page

If your family is divided and you want more success, then consider taking our next Caregiver Kickstart Coaching Program. Click here: CKS WAITLIST

Check out our blog at FASD Success

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• Some people need a special occasion to have wine. I just needed to have a kid.  
• What wine pairs well with my kids driving me absolutely insane? 
• Mom tip: When they start to whine, open the bottle of wine. 

Since FAS was first named in 1973 there have been ongoing efforts directed at prevention. While turning to alcohol to celebrate or cope is not new, over the last 10 years or so a new segment of the population is emerging: wine moms. If you search the hashtag #winemom or variations of it, on Instagram you will get over 84,000 hits. Should this be a concern? Our two guests today – Dr. Kelly Harding and Lisa Whittingham wondered about it, so did some research. 

Dr. Kelly Harding received her Ph.D. in Interdisciplinary Rural and Northern Health from Laurentian University in Sudbury, Ontario, Canada. Dr. Harding is a Research Associate with the Canada Fetal Alcohol Spectrum Disorder Research Network (CanFASD). 

Lisa Whittingham is a Ph.D. Candidate in the Department of Child and Youth Studies. She completed both her undergraduate degree in Psychology and her M.A. in Applied Disability Studies from Brock University. 

A wine mom is someone who likes to take the edge off parenting. A new culture of humour has developed around it. Lisa, Kelly and I talk about what their research discovered, such as: 

• The types of #winemom posts, what they portray and the difference between pictures portrayed and descriptions.
• Who in general the wine mom culture is, why they organized and what that means for those not part of it. 
• Beyond humour and connection, what are the consequences and darker side of wine mom culture? 

Kelly and Lisa provide their thoughts on the “supermom” culture, the normalization and commodification of alcohol and how the pandemic has led to an increase in the #winemom culture and rise in alcohol consumption. We know women of childbearing age are drinking. They also give tips on how to respond when you see a friend or family member posting a #winemom meme. 

All is not bleak. In the same hashtag, we see people celebrating sobriety. Former wine moms are vocal about the culture, which has seen the rise of social influencers who refer to themselves as “winepreneurs” and wine experts. There are no easy answers. But as Lisa and Kelly point out, bringing this to the light means it can be addressed.  

One thing we do know though, no matter if someone is a #winemom or drinking for another reason, women need information and support, not judgement. 

Check out our blog The FASD Success Show for more information and links to resources.

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Patti is the adoptive mother of three children.  When she can, she hosts the "The Denial Bus" podcast, where she shares real and raw talk and interviews from parents and professionals that have a touch with adoption, trauma, and different needs kids. 

Today we talk about Patti’s journey to becoming a mom, a stand-up comedian and hosting a podcast. As well as: 

• Delving into why she turned to comedy and how it helped her out of a dark place. 
• All about her podcast: The Denial Bus and the importance of creating community. 
• How she came to meet Rob Lowe and if his eyes are really that blue. 
• Aha moments that helped her stay off the denial bus and lessons learned over the years. 

You know when you think you know someone, then you find out you really don’t know them or find a piece of their personality you didn’t know was there? I found that out with Patti today. I knew she was funny, but I didn’t realize how deep and reflective that comedic side can be. I think you are going to find her story relatable and quotable.

Check out our website for more information: The FASD Success Show

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Dr. Aamena Kapasi is a postdoctoral fellow at the University of Alberta and is working on the Substance Use and Addictions in FASD Populations study for her postdoctoral research in partnership with CanFASD. She has a passion for both research and clinical work and children, youth, and families.  

We have a lot of anecdotal accounts about what therapy and interventions work for individuals on the Spectrum – particularly with emotional regulation and substance use. But what does the research tell us? Aamena and I talk about Mindset Theory and if individuals with FASD have a fixed or growth mindset, the most important success factor for any therapy and the role of caregivers when it comes to therapy for their loved ones.

She also provides details on her current research on substance use treatment programs for individuals with FASD.  Like any program, adaptations must be made for individuals with FASD. This research is going to provide best practices to make substance use treatment programs better. And bonus if you are Canadian, you can participate.

Take Note: individuals with FASD who have been in substance use treatment programs, and their caregivers, participate separately. Even as a caregiver if you want to provide your experience you do not need to have your loved one participate. This is an important way you can contribute to making systems better. Details are on our website. 

Another great episode. I do not doubt that Dr. Kapasi’s work will achieve its goals for individuals with FASD to create meaningful and healthy lives.  

Check out our webpage The FASD Success Show for more information and the show notes.

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Christie Petrenko, Ph.D. is a clinical psychologist and researcher who has been conducting research with individuals with FASD since 2003. She completed her graduate training in San Diego in 2009 and is currently a faculty member at Mt. Hope Family Center, University of Rochester. Her research focuses on developing and evaluating interventions for people with FASD, including the use of mobile health technology to increase access to care. Dr. Petrenko also runs a multidisciplinary FASD clinic providing diagnostic, intervention, and family support services.  

Many of you may know of her and the work of her team through the Families Moving Forward program and FMF Connect App that is under testing - we talk about that and pack in a wide range of topics, including why the increase in diagnostics at her clinic, myth-busting, stigma and advice on best practices for approaching professionals and service provider

 We also get details on some exciting projects she is working on, including a documentary, plans for an app for adults and mental health professionals. 

For more information and links check out our FASD Success Show blog.

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Miranda Eodanable is an Educational Psychologist in Scotland with responsibility for neurodevelopmental assessment pathways with health services in areas of FASD and Intellectual Disabilities. Miranda has worked in education systems for the last 20 years and has guest lectured on the Scottish Masters in Educational Psychology courses. Currently, she is working on a Ph.D. at the University of Edinburgh on the value and impact of an FASD diagnosis.  

“Lots of research talks about professional views about diagnosis and I was like, where is the balance here? What about parents? Young people with FASD? Where is their research?” 

Miranda’s research project is to understand the experiences and identity of young people with FASD. Scottish youth (ages 12 – 19) with FASD are invited to talk with Miranda and participate in a PhotoVoice Project to take photos of their daily experiences. Her goal is to clarify what an FASD diagnosis means to them and what kind of support they value. 

In addition, we talk about Miranda’s background, her FASD journey and her role in the Scottish education system.

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Jess McBeath is an online safety specialist in Scotland, who believes everyone should be empowered to live a good life online. She has trained thousands of people, including teachers, social workers, foster carers, and police across the UK, to keep children, vulnerable adults and themselves safe online.  

“Online safety is so fascinating because we have completely transformed our understanding of what we need to do to be safe online.” 

This episode, like the presentations Jess makes, is about deconstructing and reconstructing our online presence and thinking about digital safety and citizenship. You likely have some expectations or ideas, but I bet many of you are going to leave with different ones. We cover mental health and screen time, pornography, cyberbullying, gaming, sexting, live streaming, FB lives, fake news, examining through a specific set of lenses: 

• Why understanding technology and using technology to fix online safety does not fix online safety. 
• What questions to ask yourself when planning for online use and safety, including examining your own relationship with technology. 
• The motivation for our kids to be online and specific steps you can take to create an online safety plan for your family. 
• What digital resilience is, how we build it and as “digital parents” what types of online skills we should be teaching our kids. 

“If you really want to understand the world, then you want to try and get a wider perspective on it. The problem at the moment is that we are not informed because the technology decides our information for us and that’s what we need to change.” 

Now I get it, this episode might trigger some values clashes and long-held beliefs. But the fact is we live in a digital world. Unless you are living in the woods without access then you really do need a planned and mindful approach. I think Jess provides excellent advice. Let me know what you do to keep your kids safe and if you are going to do anything different after listening to today’s show. 

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Bill is a husband (to previous podcast guest Debbie Michaud), a foster and adoptive dad, works in the developmental services sector, and as he reveals on the show today, suspects he is also on the Spectrum. This guy gets it. 

“We don't take on what's going on internally for (our kids) and apply it to what's going on externally, because we don't know and they don't have the ability to tell us. So, everyone is going around assuming...we need to stop making judgements.” 

I suspect if you are a dad or in a role like Bill, you may not give yourself enough credit for helping to create the environment and be the support that your child/teen/adult needs. If so, I invite you (and anyone who wants a unique perspective) to spend some time with Bill and me. 

This is an interesting episode that goes full circle from Bill not having a clue about FASD, to becoming a foster/adoptive dad, to learning about FASD through his kids and clients to contemplating he just may be on the Spectrum.  

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Dr. Federici is a Clinical Psychologist and the Owner of The Centre for Psychology and Emotion Regulation. She holds an Adjunct Faculty position at York University and is a distinguished Fellow of the Academy for Eating Disorders.  

“You have to be able to combine what you know to be true about working with people who have FASD and what you know to be true about eating disorders and emotion regulation – and that’s what I love to do in my career. Adapting and fine-tuning treatment for people who are often missed.”  

We know FASD is a whole-body disorder. We know there are over 420 co-occurring conditions. What I did not know was how interconnected FASD and Eating Disorders are. Dr. Federici and I explore this as well as:  

• Types of eating disorders, common myths and general signs and symptoms.  
• How emotional regulation, impulsivity, anxiety, and depression are tied to eating disorders.  
• Why the diet culture and social media can be so toxic for individuals.  
• What caregivers can do if they suspect their child/teen/adult has an eating disorder and the importance of a professional assessment.  
• Dialectical Behaviour Therapy, what it is and how it can be helpful for individuals with FASD.  

“Eating disorders are not chosen.”   

FASD is a complex disorder – just like eating disorders. And just like we talk about behaviour as a symptom of FASD, an eating disorder is a symptom or manifestation of something else. It is not about the food. It is what is below the surface that needs to be addressed.   

And just like many doctors do not receive appropriate training and education on FASD, many are not informed enough on recognizing eating disorders. Dr. Federici provides accessible resources on her website. 

I think this may just have to be added to the 10x listen list.   

Let me know what your biggest aha moment was.   

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“I am here for a reason. It’s to help kids with FASD who can’t speak like I speak.” 

Amanda candidly shares some of her struggles, achievements, philosophy and lets us know what is new, including: 

• Sharing the difference between school experiences from those when supported, understood, and accommodated, to those when supports were not provided, and how she advocates for herself. 
• Providing tips and tricks that helped her cope with her disability, including a highly creative PITA and PANDA method. 
• Giving suggestions for how caregivers can support their kids/teens/adults and coping strategies and mantras for individuals on the Spectrum 

Amanda says whenever someone has doubted her, that makes her try even harder to prove them wrong. Whenever she doubts herself, she remembers her reasons for being and the goals she has set that keep her going. She is sweet, enthusiastic and has proven me and others wrong on her road to getting to where she is today. I believe you will be inspired by her journey and her words. 

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While this research is valuable, and while the information is interesting, it doesn't necessarily mean it will change practice by itself. But it can be a building block and I felt that people would be interested in finding out what is going on in the research field.

And that is why I wanted to bring this information to you.

Research Paper:

White matter alterations in young children with prenatal alcohol exposure

 
Research Study:

Brain Development in Children and Youth with Prenatal Alcohol Exposure (PAE)

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Today I’m talking to Sharron Richards, Mary Hutchings and Mary Ann Bunkowsky about social work, advocating for system change, building support teams and The Parents Helping Parents Project, a phone support resource provided by parent Mentors for parents and caregivers of individuals with FASD in Ontario. 

Sharron Richards received her Master of Social Work degree from Carleton University and worked in child welfare for close to 40 years, primarily as a community development worker. She chairs the Toronto FASD Network and is committed to bringing her knowledge, experience, resources, and social privilege to ensuring that individuals and families affected by FASD have access to the resources and supports they require. 

Mary Hutchings has a Master of Social Work degree from the University of Toronto. She spent 38 years with the Children’s Aid Society of Toronto on the front line and as a Manager. She Co-Chairs the Toronto FASD Leadership Team and is a member of the Toronto FASD Network. She is motivated by the resilience and courage of parents/caregivers as well as an understanding that unresolved grief impacts lives in significant and often overlooked ways.  

Mary Ann Bunkowsky participates in many community activities and FASD-related projects, but most notably is the co-founder of the Halton FASD Parent/Caregiver and Adult Support Groups. She also serves on the Halton FASD Steering Committee and served on the Family Advisory Committee with CanFASD. Mary Ann and her husband Brad have two sons. She often states that her children are her teachers, and they remind her often of the important role we all play in each others’ lives. 

In each podcast, the aim is to not only let you know you are not on this journey alone, provide interesting stories about what is going on around the world but also give you inside tips and knowledge to help you advocate for services to make your life as a caregiver and for your children/teens and adults that much better. Today we talk about: 

• The disconnect with social work and knowledge about fetal alcohol and how caregivers and professionals can help each other to build better-informed teams of support. 

and 

• How the Parents Helping Parents Project (Ontario) came about, how it works, who it serves and how it's evolving to meet the need. 

"You have to be a champion for families and kids. It isn’t bad kids or bad parents. It is they have a lot of diagnoses. They have a list of labels. When we realized that those labels really didn’t fit them, when you realized what the disability was and you learned about the disability those labels just went out the window. If you put in the right supports, give them the right opportunities a lot of that behaviour stops.” 

It is so important to keep talking and connecting. Not only as caregivers but also as professionals. You just never know what you are going to learn – and I learned about some resources that are in Ontario that I wasn’t aware of and some interesting projects the Toronto FASD Network is undertaking.  

Even if you are not in Ontario, there are some great discussions about social work and social workers in this episode that I think are helpful for anyone. We know that when caregivers feel supported, they feel less overwhelmed, less isolated and more hopeful. I hope listening to these podcasts provides that. 

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Imagine living five decades thinking you didn’t fit in, but not quite sure why? Despite having a high IQ, you feel like you are a ‘problem child’ because of your behaviours. Today I talk to an adult on the spectrum:  a storyteller. He weaves stories through his words, music, and photography. He is a super cool dude, and I can’t wait for you to hear about him and his outlook. 

As much as I’m an absolute advocate for being who you are, I still in my deep gut and heart know that we all have to modify a bit to relate to each other. It doesn’t make it wrong. To be authentic. (I moved) from being a victim to it’s a choice how I interact. 

Reinier has led an interesting life and has a unique perspective. We talk about his journey of self-reflection. How his high IQ masked his disability and the lengths he went to trying to figure himself out - and how it all changed when he found out late in his life that he was on the Fetal Alcohol Spectrum. This interview has a lot of metaphors and contemplation, including:  

• How a DEVO song led him to the realization of the mask he was wearing. 
• Why he explains he is like a car with a 5-speed transmission – missing third gear. 
• Where he was when he had his aha moment that changed his life. 
• What he discovered when he changed the lens on his view of himself. 

“Why can’t I be normal, was my universal mantra for 5 decades. Now it is, I don’t want to be normal. My job (now) is to re-inspire people that you are dealing with a conscious being and their brain is not a signifier of their ability of consciousness. Neurotypicals don’t know how hard someone with FASD is working.” 

This episode is full of stories. Stories about changing his name, conversations with his mom about alcohol use during pregnancy, how getting a diagnosis cleared up wasted life energy and what his philosophy of below the neck and above the waist living means. He has advice for caregivers and explains how he views his role in advocating for and supporting other individuals with FASD. 

There are so many metaphors and wonderful stories in this episode that I am sure you will find something that fits with your philosophy not only as a human being but as a caregiver or an individual on the Spectrum. Let me know what your favourite quote, story or piece of advice is. 

Show Notes: 

Home Page - AwesomeAwareness.com 

HOME - brillianteye.ca 

Home - C3inc 

Email: reinier@brillianteye.ca 

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Nancy is the Director of the Centre of Excellence for Women’s Health, a research and knowledge exchange centre hosted by BC Women’s Hospital + Health Centre in Vancouver and is the Prevention Lead for the CanFASD Research Network. She has published over 125 academic papers, book chapters and technical reports over the past decade, and co-edited five books. She has a doctorate in education and recently was awarded a Doctor of Laws (honoris causa) by the Justice Institute of BC in recognition of her contributions to women’s health, including trauma-informed practice and the treatment of substance use and addiction. 

Guests are rare where you are not going to hear much of me. But this is one. The stories and knowledge that Dr. Poole weaves in this interview about why the current one-step method of prevention is just not working speaks for itself. There is a lot here, but it is user-friendly so that you can apply it in conversations or advocacy with family, friends, professionals, and others.  

When I started in this field, I realized most people thought if you just made a pamphlet or a poster, that if you just make people aware of the problem, then they would just change. That is only a very small piece of the story. I felt if we could map out all the pieces that are needed and if we could get all the people that are needed interested in those pieces to see how they could synchronize their efforts, we would have such a better chance in preventing FASD.  

We talk about that history of awareness, the transformation from those “poor children and bad moms” to how intertwining Nancy’s research on addictions with FASD resulted in the 4 Step FASD Prevention Model, as well as:  

• How women may not feel safe to discuss alcohol use. How bringing evidence-based information to service providers empowers them to talk to the women they serve.  
• The deep-rooted and sometimes generational trauma histories for women, mommy-wine culture, and the collective responsibility partners and the community have in supporting pregnancy wellness pre and post nine months.  
• The importance of eliminating as many stressors as possible but starting where women are at and not where we what them to be.  
• Why working with allied professionals and moving into supporting diagnosis and intervention will do more than just a prevention-based model.  

I think the idea of wrapping care around women who have these more complex needs makes a lot of sense. It makes it less like you have a lot of problems to we just want to support you and your baby to be as healthy as possible. Come at it with kindness and compassion, rather than bad or willful behaviours.  

We all know how difficult it is to change behaviour but adding addiction complicates things even more. That is why a multi-level approach works. We need to provide wrap-around services to moms and families as much as we do to children. Nancy also speaks to her admiration and work with birth moms and the importance for them to be free to “move forward without feeling for the rest of their lives they have to hide in the corner, but instead be part of the story with us."

What an incredible conversation. Dr. Poole’s work impacted my own life with the pregnancy for Tara and me. I hope it empowers you as caregivers, advocates, and birth moms. Let me know if you are as moved by Dr. Poole and her work as I have been and continue to be.  

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Dr. Kaitlyn McLachlan, MA, PhD. is an Assistant Professor in the Clinical Psychology program at the University of Guelph, holds an adjunct faculty affiliation the Department of Psychiatry and Behavioural Neurosciences at McMaster University, and is a member of the Peter Boris Centre for Addictions Research at St. Joseph’s Healthcare Hamilton.  

Katherine Flannigan, PhD, R. Psych. is a Registered Psychologist in Alberta and British Columbia and is a Research Associate with the Canada FASD Research Network.  

Even if your child or the person you support is not involved in the justice system, it is still good to know the latest information and research. Drs. McLachlan and Flannigan recently completed a study: Difficulties in Daily Living Experienced by Adolescents, Transition Aged Youth and Adults with Fetal Alcohol Spectrum Disorder. We discuss their research, the Study, if individuals with FASD are more likely to get in trouble or stay in trouble, and so much more: 

“The folks who end up in the criminal justice system have so many needs and such complexities it’s so important that we use evidence-based decision making and policy applications to help improve outcomes for them, for their families, for communities, for Society, and this felt like a major vacuum and gap that needed to be addressed.”   

• What exactly is Forensic Psychology and what it can tell us.  
• Reasons for their study and reasons why 30 – 60% of individuals with FASD have some form of contact with the Justice system.  
• Risk factors affecting individuals' involvement and possible solutions that can make things fair for individuals within the criminal justice process.  

“We don’t have great data that lets us say, if ‘a’ happens, then ‘b’ happens, then ‘c’ is going to happen. But we do have good tools and approaches for understanding if all of these things are happening, we need to address them so that we can improve the outcomes and reduce risk in different areas.”  

This is a “heavy” topic. Probably one of the most technical of my podcasts so far. I do my best to break down the language, but you are going to need to reduce your distractions for this one. There is a lot of information to absorb, but the passion Kaitlyn and Katy have is clear. They are working to improve outcomes for individuals, caregivers and communities.   

They have some interesting thoughts on assessments throughout the lifespan and give us a sneak peek at a new study they are conducting right now looking at factors that contribute to the understanding of not only individuals with FASD within the justice system but also judges, lawyers and others. I even appoint the Doctors as Minister and Deputy Minister of Justice to get their thoughts on what they think needs to shift within the system.  

I talk a lot about looking for individual’s strengths when supporting individuals with FASD. Kaitlyn and Katy echo a paradigm shift is required from a medical model of FASD to a strength-based perspective. Going from what is wrong to what is right and then determine where we want to go.  

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Once I realized that it was probably the PAE, I started to feel like OK, I can start to work with this, and I can help everyone around me work with this too. 

Debbie Michaud is a Social Worker with a BSW and MSW – she is currently working on a Ph.D. in Educational Sustainability. She has worked for 24 years in the child welfare field in both front-line and supervisory roles. She is teaching at Confederation College in the Social Service Worker Program and at Sault College in the FASD Certificate Program. 

Debbie shares a very candid and intimate retelling of her journey and how she came to realize she was prenatally exposed to alcohol. She is a great example of how unique individuals with FASD can be because of what’s called “scattered profiles”. She tells us that despite being on her way to getting a Ph.D., FASD does affect her in some unique ways, as well we: 

• Deep dive into diagnosis: What she was told when she took her daughter for a diagnosis, her daughter’s reaction to the diagnosis, and how she is doing now as a mom herself. 
• An interesting insight of being sensory sensitive and how that hijacked her thinking to the point where it was difficult for her to have relationships. 
• Why you should consider forgetting societal expectations and love and meet your children where they are at. 

I have had the advantage of raising so many kids that I got to try different ways of raising them. I wanted that normal too. I fought with my kids to go to school, to do this, to do that, to be in girl guides and cub scouts and hockey and all of that stuff. And at the end of the day, some of that stuff ruined my relationship with them. 

There is so much in this episode. We touch on how systems need to respond to the unique needs of caregivers as well as individuals with FASD. She shares how a PhotoVoice Project created by caregivers of children with FASD came about and shares what the future holds for her. 

This is an episode about weaving the stories, tapestries, and intersections of our lives together and the importance of relationships. Be sure to check out the incredible and moving Photo Voice Project (link below) and let me know what you think.  

Show Notes: 

Picture This: Life as a Parent of Children with FASD 

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When you think of media coverage for FASD what stories immediately come to your mind? Is it a respectful and honest piece or is it stereotypical and sensationalized? Do you know how feature stories are pitched, decided, and developed?  

In April 2018, an in-depth feature on FASD appeared in one of our National newspapers. A year later three more features. Last month, a fourth appeared by the same reporter. I decided it was time to dig behind the scenes to find out who this reporter was and how and why she become such a champion for FASD. 

Vanessa Hrvatin is a multimedia journalist, science writer, and science communications specialist currently working as a freelance journalist and writer. She is also a part-time Communications Coordinator for the DjavadMowafaghian Centre for Brain Health at the University of British Columbia. She holds a Master of Journalism from the University of British Columbia and a BSc. in biology and environmental science from Queen's University. 

She was the 2017/2018 recipient of the Michelle Lang Fellowship and spent a year working at the National Post and Calgary Herald on a special series about Fetal Alcohol Spectrum Disorder (FASD).  

Her work has also appeared in the Globe and Mail, Maclean's, Reader's Digest, the Canadian Medical Association Journal News, the Toronto Star, and Canadian Geographic, and she spent time at Global News BC as a broadcast writer. 

Her goal is to tell important stories and she has a special passion for science and health reporting. She also happens to be the first journalist I have interviewed for the podcast. And to say I was a little nervous is an understatement. 

When Ontario released their first FASD strategy I was hearing from people that it was a great start, but we have so much more work to do. When developing my pitch for the feature, I was asking people, what do you not like about FASD coverage in the media. What do you think we haven’t covered? 

I love how she found a way to combine both her passion for science and writing for the benefit of the FASD. Join me as we go undercover and behind the scenes in the making of an FASD feature and a champion. You will hear: 

• How caregivers and individuals with FASD were the inspiration for the feature and how the opportunity to write it came about. 
• The reasoning behind and focus of each of the initial three features, her biggest worry and her aha moments. 
• The reactions to those initial feature pieces and the who, why and what behind the most recent feature three years later.  

Not much has changed. We still don’t know how to properly support people who are transitioning into adulthood. Despite knowing about this (FASD) for a long time, we still have a gap in research and data. We need to move faster.  

I am so thankful that we have Vanessa on our team who continues to identify the gaps and tell the stories. She told me because she has spent so much time with the FASD community she has many more story ideas. I can’t wait to see them!  

Do me a favour and check out the pieces she has written (links in the show notes), leave a comment on the stories and let Vanessa and the newspapers know the importance of sharing personal, research and science-backed stories about Fetal Alcohol Spectrum Disorder. 

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Shana has trained hundreds of professionals, caregivers, and individuals with intellectual disabilities about the complexities of FASD. Through her experiences, she has developed an intimate understanding of the services available for individuals with FASD. Shana believes in the need for more research to fill the gaps in these services and to increase the accessibility for individuals with FASD and their caregivers. Shana is also a member of the Family Advisory Committee with CanFASD. 

“Starting my journey, I googled FASD.  Google tells you everything that is terrible and negative about FASD and nothing good, so I was pretty scared about it. But that’s when I reached out and connected to other caregivers. Then I shifted my focus and decided: We are not going to live scared anymore. We are going to get educated.” 

While Shana does not always talk about her origin story, we are honoured she shared with us the background behind the letter. We talk about how her daughter motivates her and is her most important teacher in the complex world of FASD, as well as: 

• Where she thought her daughter would be at 12 versus where she actually is. 
• Tips on how to advocate and why she says we make stuff worse before it gets better. 
• Her advice to her daughter and the hopes and dreams she has for her daughter. 

“A lot of the stress that comes as a caregiver to a child with FASD doesn’t actually come from our kids. It comes from systems – systems that are not set up to work for our kiddos. If I didn’t have to advocate so hard in systems, my stress level as a caregiver would be a whole lot different.” 

We also touch on systems, stigma and what she has learned from her membership on the CanFASD Family Advisory Committee. Shana has a natural ability to connect with people, and having seen her present, don’t miss the opportunity to attend one of her trainings if you can. If you cannot, then check out this podcast. Be sure to stay to the end, and try not to get emotional, as she reads the powerful letter from her daughter.  

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Nancy has been living and working in the FASD world for a lot more than eight years however – it has been over 25 years. Her interest in the field was sparked while supporting loved ones with FASD, and then grew through her role as an educator supporting individuals with special needs including brain-based disabilities.  

“I became aware of how my actions and reactions were influencing people (with FASD) and if I could stay really calm and patient and listen, that they were giving that back to me.”  

From 2015 until recently, Nancy was Manager of the Fetal Alcohol Resource Program (FARP) at ABLE2, formerly Citizen Advocacy Ottawa, a program she helped to design and launch in 2015 in collaboration with Kids Brain Health Network, CHEO and the Children’s Aid Society of Ottawa. 

We talk about her roles and responsibilities with ABLE2, which I know will inspire you as to what can be accomplished by a dedicated group of advocates, as well as: 

• Practical tools and tips she has learned over the years – some may be familiar and to others it may be the first time hearing them. 
• Advice and best practices for moving beyond volunteer advocacy to building an organization in your community. 
• COVID and its impact on her organization, how it pivoted and impacts on families; she shares four key results of a recent research study.  

Nancy’s passion is bringing together collaborative partners to develop innovative ways to support people with FASD and their caregivers. She also shares with us how she arrived at her decision to move on in her career to become an independent FASD Consultant. 

“A key thing that worked for us – bringing together partners. You can’t do it alone.”  

I think after listening to this episode you will understand how Nancy can build teams and moved FASD to the forefront in her community of Ottawa and beyond. She is well-spoken, knowledgeable, friendly, and passionate. All key ingredients for success. I hope you will find something to spark you in this podcast and join me in wishing Nancy well in her new endeavour and welcoming Manon Kelso to her new role. 

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I am “geeking out” big time with one of our most popular FASD Success Show guests, Dr. Mansfield Mela about his new book: Prenatal Alcohol Exposure: A Clinician’s Guide. 

Dr. Mela is a Professor of Psychiatry at the University of Saskatchewan. His clinical practice is out of the Forensic Outpatient Clinic at the University of Saskatchewan and the Forensic Inpatients Services at Regional Psychiatric Center. He is one of the international team of experts that created the world’s first psychotropic medication algorithm for FASD/Prenatal Alcohol Exposure. And now a published author. 

His interest in FASD began with a desire to better understand and assist his clients. After discussing his frustration with a colleague, he realized it was the manifestation of symptoms of Fetal Alcohol - which led him on a path of greater understanding. 

“There are a lot of myths about FASD that discourage clinicians from engaging with it.” 

Dr. Mela starts today’s podcast with a simple, but powerful statement: “I knew I had to write the book.”  He says this is the book that he wished he had in his possession when he was starting out. He shares how he was led to put pen to paper after a comment made by a clinician: about how knowing about FASD was a “waste of time”, as well as: 

• Why clinicians are not comfortable with prenatal alcohol exposure and FASD. 
• History of DSM and inclusion/exclusion of PAE over the years and why despite being 2.5x more common than autism, PAE appears in the back of the book, instead of "leading the parade". 
• The importance of ruling out FASD first, rather than including it last, as a diagnosis. 

“We asked individuals: Can you tell us your experience in the mental health system? Just mentioning the word FASD and the system will tell them: ‘Well we don’t deal with that here.’ You’re seen as being adequate enough to look after yourself, when you cannot, but not ill enough for a system to take you. Where do you belong?” 

Always a humble man, Dr. Mela gives a shoutout to caregivers, parents and individuals on the Spectrum for their role and inspiration for the book. We also touch on some of the exciting research on bio barkers and neuroimaging techniques. I know you are going to leave this podcast agreeing with Dr. Mela, that there are significant advances in FASD.  

If you want to get your own copy, while it is a hefty read, Dr. Mela does a fantastic job of breaking down each chapter. We also detail how you can present this book to your doctor or clinician - to get them on board with what they can do as a person with the clinical power and clinical skills to help individuals with FASD. 

Lastly, I will leave you with another simple, but powerful statement which you should pin to your bulletin board or make your screensaver, for when you are feeling discouraged about recognition of FASD/PAE in the clinical world: 

“Don’t despair. We started this journey. We are not going back.” 

Grab your own copy: Prenatal Alcohol Exposure: A Clinician's Guide

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Chris Fillion was diagnosed with Fetal Alcohol Spectrum Disorder and Attention Deficit Hyperactivity Disorder at the age of 9. He grew up in the Child and Family Services system. He has some experience in the justice system, and currently is head of a non-profit organization called WEAREYOU Services for at-risk individuals with a disability. WEAREYOU exists to assist individuals who may become involved with the law. Chris is also an advocate within the FASD community worldwide. His main goal in life is to help others and to provide education on FASD to help break the stigma against people who have been diagnosed with it. 

“I owned it (my FASD). I live with FASD. I can’t see myself exist without FASD.” 

We delve right into Chris' early life and talk about how he came to be placed into the foster care system. Despite being diagnosed with FASD and ADHD, he was never told about his disability. This lack of understanding likely led to his involvement in the justice system. There are some interesting themes woven throughout Chris’ life so far, including the importance of: 

• Tethering to good people: how success can be tied to having people believe in you, understand the disability, and provide appropriate accommodations. 
• Reframing: how being “in the hole” in jail was a better place than the general population and how after attending a workshop he realized that caregivers were struggling just like him. 
• Acceptance: after many years of denial, he got curious about his disability and started to learn who he was, what his strengths were and discovered his passion in life. 

“I see the world differently than others. I see things in patterns. I see people do the same thing everyday…and then I can do a little bit of this and a little bit of that and now I become a better person.” 

Chris has devoted himself to helping people with FASD not only navigate the justice system but also people in the community understand the disability through his advocacy work and the creation of his non-profit.

Our vision is to help Youth, Teen and Adults with special needs (unofficial diagnosis) stay out of the justice system and find them the right program within the community. Help the community understand avenge is not the answer. Provide the tools to support staff and families to understand the differences in the way these individuals may perceive and react to varying situations, thereby helping to solve problems before they get out of control. 

I have had the fortune to meet and talk with many individuals on the Spectrum who are doing incredible things and are finding meaning to their lives – whether that be as parents, working in a field they enjoy or pursuing something that speaks to their soul. It does not matter if one develops this vision early or late in life: what matters is they have come to a point where Chris says, they accept their disability, accept support from others and have the courage to go after their dreams. Chris ends our discussion with a quote that has kept him going.  

Let me know what you think of this cool dude and his story. Chris has great insight and thanks to the people who provided lifelines to him, he is now providing hope and lifelines for others. 

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Over the last year, we have interviewed caregivers, birth moms, advocates, individuals on the Spectrum, as well as professionals like my guest today: Dr. Valerie Temple. I reached out to her after seeing a recent research paper she shared on Twitter. I knew she would have some knowledge bombs – and having discovered she has published over 25 research papers and book chapters about FASD, I think you will agree! 

Dr. Valerie Temple, Ph.D. C. Psych. is a Clinical Psychologist and the Professional Practice Leader for Psychology at Surrey Place, an agency supporting children and adults with developmental disabilities in Toronto, Ontario.  She is also Clinical Lead for the Surrey Place Adult FASD Diagnostic Clinic. She works with Canada FASD Network and FASD-ONE an Ontario advocacy group. Along with family members, researchers, and clinicians from across Canada Dr. Temple helped to create the 2016 Canadian Guidelines for Diagnosis of FASD across the Lifespan.   

"When I first started my practice, FASD wasn’t on my radar. Attending the International FASD Conference in Vancouver changed everything. Change is happening (in the field), but change is slow. "

 We talk about her experience and growth in the field of FASD as well as the important work she assisted with on those Canadian Diagnostic Guidelines, including:  

• How a scattered profile and a good “cocktail speech” is responsible for so much misunderstanding, missed and misdiagnosis in individuals with FASD.  
• The importance of getting a diagnosis at any age and how it can be transformative for individuals, their families and birth moms.  
• A deep dive into two of the 10 brain domains used in a diagnosis: executive function and affect regulation and some thoughts and ideas on how to support individuals.  

"Once you have a framework to think about FASD and once you understand what you’re looking at, you have a much clearer path on what to do next and what you can do to support. "

We also talk about the recent studies she was involved in looking at Autism & FASD and FASD & Substance Use. There are some surprising statistics and interesting observations Dr. Temple shares from these studies as well as, interdependence, diagnostic services, and the upside of COVID for her Centre and clients. We also do some myth-busting about behaviour therapy that you aren’t going to want to miss.  

So many nuggets of information and knowledge bombs that you will just have to dive in. Make sure you have a pen and paper or your notes app open. There is so much here, that this is one of those “10 timer” episodes you will be going back to.  

Be sure to keep up to date by following Dr. Temple on Twitter and Surrey Place. Also, do me a favour... let me know if you had any aha moments during this podcast!  

Show Notes: 

Dr. Valerie Temple on Twitter

Surrey Place – Living Your Potential All Your Life 

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Simon Laplante has a master’s degree in education and did his thesis on the impact of children with FASD on parents’ relationships with the school, community and each other. Simon has been working in the Manitoba public school system for 30 years as a teacher, vice-principal, principal and assistant superintendent. He is presently a professor at the Université de St-Boniface in the Faculty of Education. Simon’s areas of interest are educational leadership, second language learning, Aboriginal education and FASD. Fully bilingual, he has been involved in public speaking engagements on FASD for the last 10 years both in educational settings and provincial conferences. 

“Inclusion is about a system that meets the needs of every kid, whatever the needs are. Most of our systems tend to integrate kids. We give them support but, in the end, they want them to fit the system. Whereas inclusion requires the system to change.  It’s very difficult to achieve.” 

Simon also serves on the Canada FASD Research Network (CanFASD) Family Advisory Committee. We talk about his role on the Committee, inclusion, and: 

• Advice for both teachers and caregivers on working as a team; 
• Why tough love doesn’t work for our kids and what does; and  
• The importance of getting a diagnosis and how to build your support system. 

“The biggest danger is you become socially isolated. You will not be successful by yourself. You cannot do this by yourself.” 

Talking to Simon was just like hanging out at a coffee shop with a good friend, shooting the breeze. But since many of us still can’t do that right now, you can have the second-best thing – this podcast. I think you will enjoy his laid-back style combined with the years of experience. So, let me know what you think and maybe even wish Happy Anniversary to Simon and his wife who celebrated 35 years together on December 28, 2020! 

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In this episode, I talk to Louise Gray, the Executive Officer of NOFASD Australia. She is an experienced leader in the not-for-profit field. She holds a Master of Sociology degree from Murdoch University awarded for a research project centred on community knowledge and awareness of alcohol in pregnancy and has travelled to Canada to observe approaches to therapeutic prison environments, FASD awareness and education, and employment programs. She has been the EO for the last seven years, however, has been part of the FASD community for much longer. 

“Too often FASD globally suffers from ‘Let’s do an FASD alcohol and awareness project, and let’s solve the problem in 10 months and let’s solve the problem short term.’ Short-termism is deadly for FASD'.” 

Louise and I talk about what led to her involvement with NOFASD and how Australia came to surpass Canada as the global leader in FASD awareness and support. Including: 

• The similarities and differences between Canada and Australia, the turning point that triggered change at their government level and the need to break down silos in the FASD world. 
• What NOFASD Australia is and is not, the programs and services they offer, partnerships they’ve created or nurtured and the role of the EO. 
• Observations about facial features, the global alcohol industry, and an interesting take and comparison about awareness of COVID and FASD. 

“The term FASD describes a very specific disability that has a very broad range of symptoms that cause a lot of impact on individual's lives.”  

We also talk about Louise’s thoughts on the global awareness campaign: Red Shoes Rock and why she feels that it is an excellent tool for awareness. And if you stay with us until the end, I ask and Louise answers: “Wouldn’t it be nice if…” I think as caregivers you will be interested in her first response. So have a listen. Let me know what you think and if you are inspired by what NOFASD Australia has achieved and some of the ideas presented.  

Show Notes:  

Website: NOFASD Australia - National Organisation for Fetal Alcohol Spectrum Disorder 

Podcast: Pregnancy and Alcohol: The Surprising Reality: What is FASD? - NOFASD Australia  A five-part podcast series.

Report: The hidden harm: Alcohol's impact on children and families | FARE 

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Tracy Mastrangelo has focused her career on the social work and education field in both Alberta and the Yukon Territory. Her work has focused mainly on supporting families and children/youth with complex needs, including as the Provincial Coordinator of Wellness, Resiliency and Partnerships (WRaP) an education-based initiative for students with FASD. Tracy has a master’s degree in interdisciplinary studies with a focus on psychosocial interventions in school communities. 

“How do we provide integrated services into schools for students to reduce the barriers to learning? The business of school is to teach students and deliver curriculum. But we know for multiple different reasons some students have barriers to learning or things getting in the way of learning. “ 

In this podcast, we define and discuss her role in helping educators and students with both academic and non-academic barriers to learning. Our discussion also touches on her motto for teaching students and: 

• The importance of and how parents and educators can develop a shared understanding of FASD. 
• The complex and specific barriers to learning for students with FASD and why a “bottom-up intervention” model is more successful. 
• Tips, strategies and targeted approaches she has incorporated for not only students she has worked with but her own children. 

We also delve into some studies and the three overarching themes that define her work, what she does for self-care and what she is doing now. We have had guests on previous podcasts that provided caregiver specific advice – this episode will not only validate what we heard and already know – caregivers are the experts when it comes to their kids and what they need – but it will also let you know about some of the unique ways people are working to incorporate FASD into classroom settings.  

“I keep looking for opportunities to integrate research into practice because any way that I can take research and help be someone that integrates it into actual lessons and daily activities that can change practice and hopefully influence policy, it is those kinds of things that jam me and get me up in the morning.” 

Even if you don’t have kids in school, I think you will still gain some insight into ideas about self-regulation and FASD. Check it out and let me know what you think or if you have any interesting programs in your school district. 

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I have known my guest for many years, having attended conferences as presenters and worked with Megan in my CKS program. She is the Training Coordinator, as well as a Prevention Conversation Facilitator at the Lakeland Centre for FASD (Alberta). She studied Humanities at the University of Alberta. Megan has worked at the Lakeland Centre for almost 10 years in multiple capacities.  She created and implemented the Transition to Adulthood Program currently in place at the Centre and was also Children’s Coordinator as a part of the Centre’s Post Diagnostic Services. She provides FASD training in the Lakeland region as well as at conferences outside of the region. 

If you haven’t heard of harm reduction or harm minimization, it refers to policies or programs designed to lessen the negative social and/or physical consequences associated with both legal and illegal human behaviour.  This is a model that is now being adopted to help people who support people with FASD.  

So do you need to implement harm reduction? You might if you feel you have tried “everything” and “nothing” has worked, and you view your child's or client's behaviours as purposeful and willful. Are you constantly frustrated and mad? If so, it is unlikely you are providing the supports they need and harm reduction might be what you need.  

“We get so angry at the behaviour and we misinterpret it and then we disconnect and that’s when our child (teen, adult) goes to look for connection elsewhere. What does the brain need? Connection. We all need a connection. We need to be cared about. We need to know that we are good and valuable people."

Megan and I explore what we need to understand about individuals with FASD, as well as: 

• What the root of harm reduction is (and isn’t). 
• The brain domains and inconsistencies that make individuals vulnerable.
• Two keys to the harm reduction model. 

Harm reduction is unorthodox, as it goes against what we were taught or how we are used to parenting. It can feel like it won’t work, or you are giving in.  You need to ask yourself, what part are you playing in the behaviour? And you need to understand the brain basis behind the behaviour. But the more you can make sense of it, the better off everyone will be.

This is a difficult topic for many caregivers. There is no judgement here and like with anything about FASD, you don’t know what you don’t know. So, we offer different ways to provide support to ensure success for caregivers and individuals on the Spectrum. Harm reduction is peeling back the layers to find the disconnect. Figuring out how we can reconnect and show up for our kids, to let them know they are good and valuable, so they don’t find that connection somewhere else. 

If you want to learn more about Megan’s work, and the Lakeland Centre for FASD, she is hosting monthly Lunch and Chats on Facebook (link in Show Notes) to explore different topics. 

Let me know what you think about this topic. Is it something you've heard of? Use? Found success with? 

Show Notes:

Lakeland Centre for FASD

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Linda and her husband Robin moved to Canada from the United States during a time of political upheaval. Unable to have biological children, they first adopted Michael in 1987 and later Sara. Linda did not know about fetal alcohol upon adopting Michael and this podcast is her journey from then to now. Linda shares: 

• The clues that led her to suspect Michael was not a “typical” baby and how she felt when despite her insistence medical professionals told her he was fine, that she was just a nervous mom. 
• Insights into his educational journey and the difference between when he was supported versus when he was not, and why it felt like she was being punished when he was expelled and the toll it took on her professional career – not because he was so much work – but because there was so much work and advocacy involved to support him. 
• How recognizing Michael’s interests and using a strength-based approach and accommodations has led to the discovery of Michael’s passion. 

All these years where people had told me I was a bad mother …. Maybe I wasn’t a bad mother. It reinforced that I knew my child better than anyone else did, which I think is an important message for parents out there – that nobody knows your child the way you do.  

We also delve into the sibling relationship, how they supported Sara and the grief and loss the family has gone through. We get an update on where both her children are today and how both are thriving in their thirties. Oh yeah, and that intersection of FASD journeys? Stay tuned to the very end when she gets a surprise entry for her “Couldn’t Put It Down Folder.”  

Check it out, let me know what you think!   

Show Notes:

Not Exactly As Planned: A Memoir of Adoption, Secrets and Abiding

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Katie Adliff came into the child welfare system at six years old. My wife Tara and I met her when she arrived at a Group Home run by an Agency we worked for at the time. Despite a rough beginning and some challenging years, Katie used all of her experiences as stepping stones to land her where she is today – working full time, living on her own and dreaming of returning to College to help others.  We talk about all this as well as: 

“I have nothing to be ashamed about being on the Spectrum.” 

• How she knew she was “different”, her desire to “fit in” and relief at getting a diagnosis that fit. 
• Life as a student, “carnie” and how a job as a deli clerk led to learning and working the meat cutting trade. 
• Strategies she uses to help her live independently, as well as reduce her hyperactivity, increase focus and deal with depression. 

“My own thoughts are my worst enemy, but the hustle and bustle (of work) helps me.” 

I have shared Katie’s story in some of my trainings and it was a real pleasure to catch up with her and allow her to share her story with you. We know each individual with FASD is different, and not all will achieve independent living. And that’s okay. But I want caregivers to know what could be possible.  

I have learned never to say never. Especially when it comes to our guys. Individuals on the Spectrum have hopes and dreams and it is our job to help them achieve them. Katie started with one dream, ended up doing something else and has plans for a different career. I’ve no doubt she will achieve whatever she sets her mind to. Our kids will get to where they want with the right support, accommodations, understanding and time.  

Let me know what you think of the episode and Katie as well as any dreams and goals your kids, teens or adults have. 

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Patricia Morgan is a therapeutic counsellor, author, motivational speaker, coach and caregiver for her now 52-year-old daughter on the Spectrum. She is past president of the Canadian Association of Professional Speakers, Calgary and has won both the Spirit of CAPS award and the YWCA Woman of Vision award.  
 
Usually, when I talk to a caregiver, we talk about advice on raising an individual with FASD. Today’s conversation is a little different. While we do talk about her role as a caregiver, and how that journey led her to where she is, we spend most of our time talking about resilience and how you can develop that muscle. 

“Resilience says I have the capacity to stay steady in the face of adversity, challenge, change, the behaviour of others and myself. It is also the ability to rebound after falling and reach out for help.” 

Our lives as caregivers require resilience. Patricia gives us insight into the lessons she learned and what she did to build her resilience, as well as: 

• The importance of discovering your “I am” statements; 
• One thing you should never withhold from your children; 
• A habit you can start tonight to build your resilience; and  
• An exercise to begin healing from your past. 

“If you put all your self-esteem and your self-concept into being a caregiver, you are going to make yourself vulnerable for exactly that – make me look like a good caregiver. That is a risky road.” 

I am telling you this episode is filled with aha moments. You know I am big on self-care (so is Patricia) but part of self-care is self-compassion and that is built through resilience. So much of you gets lost in parenting a child with FASD and it is time to reclaim yourself.  

Have a listen. Check out the links and be sure to watch Patricia’s video Holidays 2020: We Can Still Have Fun and if you care to share, let me know what your “I am statements” are!  

Show Notes:  

Website: https://solutionsforresilience.com 

YouTube Channel: Solutions For Resilience - YouTube 

Facebook: https://www.facebook.com/SolutionsForResilience 

Holidays 2020 video special: https://youtu.be/FVWF98SNgjI 

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