Research to Reality in Rare Syndromes Wed, 05 Aug 2026 10:59:42 +0100 https://cerebranetworkpodcast.buzzsprout.com en-gb © 2026 Research to Reality in Rare Syndromes yes b999c316-3685-5881-8a96-646854c4b509 networkcerebra@gmail.com Cerebra Network episodic false  The Cerebra Network are excited to launch Research to Reality in Rare Syndromes. This new podcast series brings researchers, professionals and parent carers together to discuss the challenges, evidence, and practical solutions that can make a real difference to families' lives. 

]]> Buzzsprout (https://www.buzzsprout.com) Cerebra Network networkcerebra@gmail.com https://storage.buzzsprout.com/714qkse20u9mad1qh6vjspzb4ngv?.jpg Research to Reality in Rare Syndromes https://cerebranetworkpodcast.buzzsprout.com Episode 2: Sleep Challenges in Children with Rare Syndromes: A Family Perspective Episode 2: Sleep Challenges in Children with Rare Syndromes: A Family Perspective In our second episode, we return to the University of Birmingham’s sleep research to explore the sleep issues experienced by children with rare genetic syndromes and their families.

Dr Marie Dunnion is joined by Dr Rory O’Sullivan and parent carer, Leeann Stevenson. Leeann is a parent carer of a child with Smith-Magenis Syndrome (SMS) and also Executive Director of the Smith Magenis Syndrome Foundation. She shares what it can be like when a child has severe sleep difficulties and the strategies that helped her family manage these challenges.

See below for links to resources, charities, support services, and related research:

Resources

 

Charities and Support Services

 

Facebook Pages

Research

For any enquiries, please complete the contact form on our website: CONTACT | Cerebra Network

]]> In our second episode, we return to the University of Birmingham’s sleep research to explore the sleep issues experienced by children with rare genetic syndromes and their families.

Dr Marie Dunnion is joined by Dr Rory O’Sullivan and parent carer, Leeann Stevenson. Leeann is a parent carer of a child with Smith-Magenis Syndrome (SMS) and also Executive Director of the Smith Magenis Syndrome Foundation. She shares what it can be like when a child has severe sleep difficulties and the strategies that helped her family manage these challenges.

See below for links to resources, charities, support services, and related research:

Resources

 

Charities and Support Services

 

Facebook Pages

Research

For any enquiries, please complete the contact form on our website: CONTACT | Cerebra Network

]]> Cerebra Network Buzzsprout-19526531 Mon, 27 Jul 2026 10:00:00 +0100 2442 full false Episode 1: When Sleep Doesn’t Come Easily: Supporting your Child’s Sleep Episode 1: When Sleep Doesn’t Come Easily: Supporting your Child’s Sleep Welcome to the first episode of Research to Reality in Rare Syndromes, a podcast for families caring for children with rare genetic syndromes and neurodivergent children.

In this episode, Dr Marie Dunnion is joined by Professor Caroline Richards and Dr Rory O’Sullivan from the University of Birmingham to talk about their sleep research and share practical insights to help support your child’s sleep. Caroline has published extensively on sleep in children with rare syndromes such as Angelman syndrome, Smith-Magenis syndrome, and tuberous sclerosis complex, while Rory’s PhD explored how sleep affects children’s cognition and daytime behaviours.

See below for links to resources, charities, support services, and related research:

Resources

Charities and Support Services 

Research

Related Article

For any enquiries, please complete the contact form on our website: CONTACT | Cerebra Network

]]> Welcome to the first episode of Research to Reality in Rare Syndromes, a podcast for families caring for children with rare genetic syndromes and neurodivergent children.

In this episode, Dr Marie Dunnion is joined by Professor Caroline Richards and Dr Rory O’Sullivan from the University of Birmingham to talk about their sleep research and share practical insights to help support your child’s sleep. Caroline has published extensively on sleep in children with rare syndromes such as Angelman syndrome, Smith-Magenis syndrome, and tuberous sclerosis complex, while Rory’s PhD explored how sleep affects children’s cognition and daytime behaviours.

See below for links to resources, charities, support services, and related research:

Resources

Charities and Support Services 

Research

Related Article

For any enquiries, please complete the contact form on our website: CONTACT | Cerebra Network

]]> CerebraNetwork Buzzsprout-19485534 Mon, 13 Jul 2026 11:00:00 +0100 1692 full false