The Roadmap to Rare Wed, 20 May 2026 14:28:01 -0400 en-us © 2026 The Roadmap to Rare yes 303a6f3c-b198-5f4c-ba0c-ef276911e757 podcast@csnk2a1foundation.org CSNK2A1 Foundation Podcast episodic false This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research. This is our rare disease roadmap.


Every rare disease journey is different, but no family should have to navigate it alone.


On Roadmap to Rare, Eric sits down with parents, advocates, clinicians, researchers, and leaders in the rare disease community to talk about what the path really looks like—from diagnosis to advocacy, research breakthroughs, and everything in between.


Together, these conversations shine a light on the experiences that unite the rare disease community: resilience, determination, and hope for the future.

]]> Buzzsprout (https://www.buzzsprout.com) CSNK2A1 Foundation Podcast podcast@csnk2a1foundation.org https://storage.buzzsprout.com/ctetk81esruzydwe1yfksdtql81z?.jpg The Roadmap to Rare Eric Finn Trailer: Roadmap to Rare Trailer: Roadmap to Rare This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research.

On Roadmap to Rare, Eric sits down with parents, advocates, clinicians, researchers, and leaders in the rare disease community to talk about what the path really looks like—from diagnosis to advocacy, research breakthroughs, and everything in between.

Subscribe so you can stay updated for new episodes!

Your ideas help shape the conversations that matter most to the rare disease community. Feel free to submit us questions and topics of interest us at podcast@csnk2a1foundation.org. 

Or on our webpage https://www.csnk2a1foundation.org/roadmap-to-rare-podcast!

Follow us on Instagram: @csnk2a1_foundation

Follow us on Facebook: CSNK2A1 Foundation

Follow us on LinkedIn: CSNK2A1 Foundation

]]> This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research.

On Roadmap to Rare, Eric sits down with parents, advocates, clinicians, researchers, and leaders in the rare disease community to talk about what the path really looks like—from diagnosis to advocacy, research breakthroughs, and everything in between.

Subscribe so you can stay updated for new episodes!

Your ideas help shape the conversations that matter most to the rare disease community. Feel free to submit us questions and topics of interest us at podcast@csnk2a1foundation.org. 

Or on our webpage https://www.csnk2a1foundation.org/roadmap-to-rare-podcast!

Follow us on Instagram: @csnk2a1_foundation

Follow us on Facebook: CSNK2A1 Foundation

Follow us on LinkedIn: CSNK2A1 Foundation

]]> CSNK2A1 Foundation Podcast Buzzsprout-19038997 Sun, 19 Apr 2026 10:00:00 -0400 55 trailer false