Narcolepsy Navigators Podcast Tue, 09 Jun 2026 04:37:42 +0100 https://www.napsforlife.com/podcast en © 2026 Narcolepsy Navigators Podcast yes Support this Podcast e12d8a4a-bf23-55d2-a7aa-a69bfe84b35b narcolepsynavigators@gmail.com Kerly Bwoga episodic false Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome. 


Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss. 


Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story."


Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.

]]> Buzzsprout (https://www.buzzsprout.com) narcolepsy, chronic illness, mental health, podcast, sleep disorders, neurology, sleep, idiopathic hypersomnia, kleine-levin syndrome, stories Kerly Bwoga narcolepsynavigators@gmail.com https://storage.buzzsprout.com/6lko8z7elw4oj0urkf8yh4dxfeb5?.jpg Narcolepsy Navigators Podcast https://www.napsforlife.com/podcast Kerly Bwoga S1 E4 Medical Series: Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis with Dr. Caitlin Chasser S1 E4 Medical Series: Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis with Dr. Caitlin Chasser Leave a review!

Narcolepsy Navigators launches its Medical Series focused on the medical side of narcolepsy and common comorbidities. Host Fred (currently undiagnosed sleep disorder) and co-host Bernadette (narcolepsy type 1) interview Dr. Caitlin Chasser, a family doctor turned sleep and menopause specialist, who describes her own insomnia linked to premature menopause and the lack of sleep education in medical training. The discussion covers how menopause and perimenopause commonly disrupt sleep (estimated 60–80% experience sleep disturbance), and how sleep affects appetite, hormones, weight, repair, memory, mood, and daily functioning. Dr. Caitlin explains the role of stress and the sympathetic nervous system in blocking sleep, and emphasizes holistic and behavioral approaches including wind-down routines, meditation alternatives (coloring, knitting), breathwork, and body-scan techniques. She outlines practical sleep strategies for menopause-related insomnia: optimizing the sleep environment (darkness, quiet/white noise), regular exercise (with resistance training noted as beneficial with age), reducing alcohol, limiting naps (with a note that narcolepsy may require naps), and going to bed only when truly sleepy to build sleep pressure. Melatonin use is discussed as not a simple solution; it may help for jet lag, shift work, some children with ADHD/autism, and older adults, but should follow sleep basics and professional guidance, with caution about unregulated supplement dosing. Physical sleep disruptors are addressed, including hot flushes/night sweats, restless leg syndrome (often linked to iron deficiency from heavy periods), and obstructive sleep apnea (more common and underdiagnosed after menopause); she advises formal evaluation and targeted treatments, including iron supplementation when low. The episode also addresses libido changes during menopause, vaginal dryness and pain, topical estrogen or lubricants, the impact of poor sleep on desire and mood, and options such as HRT or testosterone therapy when appropriate, alongside emotional connection. Dr. Caitlin highlights cognitive behavioral therapy for insomnia (CBTI) as the gold-standard treatment, describes hyperarousal and normal sleep cycles, and notes significant improvements can be achieved. She introduces The Sleep Project, a group of clinicians formed after COVID to address rising sleep problems, offering online resources, consultations, and CBTI programs at www.thesleepproject.life. The episode closes with Narcolepsy Navigators announcements about Patreon, merch, Discord access, a shout-out to first patron Jane Powell, and information about Naps for Life CIC, ways to donate, and how to share stories via narcolepsynavigators@gmail.com.
About The Guest
Dr Caitlin Chasser is a GP and Sleep Consultant with a special interest in women’s health, particularly how sleep is affected by menopause.
She is a co-founder of The Sleep Project, a doctor-led organisation helping people of all ages improve their sleep through practical, science-backed programmes. Caitlin has over 20 years of experience supporting women to feel better, sleep better and take back control of their health.
She specialises in Cognitive Behavioural Therapy for Insomnia (CBT-I), the most effective treatment for long-term sleep difficulties, and takes a holistic, compassionate approach to sleep and wellbeing.
Caitlin is passionate about making good sleep accessible to all — especially during life stages like menopause when sleep can often suffer. 

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Narcolepsy Navigators launches its Medical Series focused on the medical side of narcolepsy and common comorbidities. Host Fred (currently undiagnosed sleep disorder) and co-host Bernadette (narcolepsy type 1) interview Dr. Caitlin Chasser, a family doctor turned sleep and menopause specialist, who describes her own insomnia linked to premature menopause and the lack of sleep education in medical training. The discussion covers how menopause and perimenopause commonly disrupt sleep (estimated 60–80% experience sleep disturbance), and how sleep affects appetite, hormones, weight, repair, memory, mood, and daily functioning. Dr. Caitlin explains the role of stress and the sympathetic nervous system in blocking sleep, and emphasizes holistic and behavioral approaches including wind-down routines, meditation alternatives (coloring, knitting), breathwork, and body-scan techniques. She outlines practical sleep strategies for menopause-related insomnia: optimizing the sleep environment (darkness, quiet/white noise), regular exercise (with resistance training noted as beneficial with age), reducing alcohol, limiting naps (with a note that narcolepsy may require naps), and going to bed only when truly sleepy to build sleep pressure. Melatonin use is discussed as not a simple solution; it may help for jet lag, shift work, some children with ADHD/autism, and older adults, but should follow sleep basics and professional guidance, with caution about unregulated supplement dosing. Physical sleep disruptors are addressed, including hot flushes/night sweats, restless leg syndrome (often linked to iron deficiency from heavy periods), and obstructive sleep apnea (more common and underdiagnosed after menopause); she advises formal evaluation and targeted treatments, including iron supplementation when low. The episode also addresses libido changes during menopause, vaginal dryness and pain, topical estrogen or lubricants, the impact of poor sleep on desire and mood, and options such as HRT or testosterone therapy when appropriate, alongside emotional connection. Dr. Caitlin highlights cognitive behavioral therapy for insomnia (CBTI) as the gold-standard treatment, describes hyperarousal and normal sleep cycles, and notes significant improvements can be achieved. She introduces The Sleep Project, a group of clinicians formed after COVID to address rising sleep problems, offering online resources, consultations, and CBTI programs at www.thesleepproject.life. The episode closes with Narcolepsy Navigators announcements about Patreon, merch, Discord access, a shout-out to first patron Jane Powell, and information about Naps for Life CIC, ways to donate, and how to share stories via narcolepsynavigators@gmail.com.
About The Guest
Dr Caitlin Chasser is a GP and Sleep Consultant with a special interest in women’s health, particularly how sleep is affected by menopause.
She is a co-founder of The Sleep Project, a doctor-led organisation helping people of all ages improve their sleep through practical, science-backed programmes. Caitlin has over 20 years of experience supporting women to feel better, sleep better and take back control of their health.
She specialises in Cognitive Behavioural Therapy for Insomnia (CBT-I), the most effective treatment for long-term sleep difficulties, and takes a holistic, compassionate approach to sleep and wellbeing.
Caitlin is passionate about making good sleep accessible to all — especially during life stages like menopause when sleep can often suffer. 

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-18971406 Tue, 09 Jun 2026 04:00:00 +0100 3145 menopause sleep problems, insomnia during menopause, menopause and sleep disorders, perimenopause insomnia, how menopause affects sleep, hot flashes at night sleep, menopause fatigue and sleep, sleep hygiene tips menopause, melatonin menopause sleep, cogn 4 4 full false S4E11: Blood Is Not Thicker: Boundaries, Trauma, and Narcolepsy S4E11: Blood Is Not Thicker: Boundaries, Trauma, and Narcolepsy Leave a review!

⚠️ Content note: This episode includes discussion of childhood sexual abuse, suicidal ideation, and mental health crisis. Please take care of yourself first.

🎙️ EPISODE GUEST: Alejandro Bruner Solas — Program Manager, PWN for PWN | Narcolepsy Type 1 Warrior | Psychedelic Health Advocate | Colorado

In one of our most powerful episodes to date, Kerly and Liz sit down with Alejandro Bruner Solas — a half Puerto Rican, Colorado-based program manager, Freemason, martial artist, and passionate narcolepsy advocate — who lived with undiagnosed narcolepsy type 1 from the age of five until he was 38.

Alejandro's story is raw, honest, and deeply human. He walks us through childhood sleep paralysis he couldn't name, a silent burden shaped by trauma and abuse that taught him to keep quiet, misdiagnosis as a learning disability throughout school, a high-pressure corporate career that pushed him to breaking point, a mental health crisis that led to a life-changing ER visit, and an unconventional treatment path including microdosing LSD that he says gave him his life back.

This episode also carries an important message for men in the narcolepsy community: your story matters, your voice is needed, and macho culture is not serving anyone.

WHAT YOU'LL HEAR IN THIS EPISODE

━━━━━━━━━━━━━━━━━━━━━━━━━━━━━

• How sleep paralysis started at age 5 and went unnamed for over 30 years

• The role childhood trauma played in Alejandro's silence around his symptoms

• Being placed in special education despite no learning disability

• The toxic workplace that drove him to sleep deprivation and crisis

• The medication journey: Adderall, Modafinil, Xyrem, and Xywav

• DMT, neuroplasticity, and the new frontier of psychedelic medicine

• The power of mentors, small wins, and setting core values as anchors

• His message to men in the narcolepsy and sleep disorder community

CONNECT WITH ALEJANDRO & PWN FOR PWN

📧 alejandro@pwnforpwn.org

🌐 pwnforpwn.org

💬 Join the PWN for PWN digital community via the website

RESOURCES MENTIONED

If Alejandro's story resonated with you and you're navigating your own chronic illness journey, CareTrack was built for moments exactly like this — when you need to track what's happening in your body, document your path to diagnosis, and advocate for yourself in a system that doesn't always listen.

Built by a spoonie, for spoonies.Free to use at steadycaretrack.com

If you or someone you know has a sleep disorder and would like to share your story, please reach out — we'd love to have you on the show.<

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

⚠️ Content note: This episode includes discussion of childhood sexual abuse, suicidal ideation, and mental health crisis. Please take care of yourself first.

🎙️ EPISODE GUEST: Alejandro Bruner Solas — Program Manager, PWN for PWN | Narcolepsy Type 1 Warrior | Psychedelic Health Advocate | Colorado

In one of our most powerful episodes to date, Kerly and Liz sit down with Alejandro Bruner Solas — a half Puerto Rican, Colorado-based program manager, Freemason, martial artist, and passionate narcolepsy advocate — who lived with undiagnosed narcolepsy type 1 from the age of five until he was 38.

Alejandro's story is raw, honest, and deeply human. He walks us through childhood sleep paralysis he couldn't name, a silent burden shaped by trauma and abuse that taught him to keep quiet, misdiagnosis as a learning disability throughout school, a high-pressure corporate career that pushed him to breaking point, a mental health crisis that led to a life-changing ER visit, and an unconventional treatment path including microdosing LSD that he says gave him his life back.

This episode also carries an important message for men in the narcolepsy community: your story matters, your voice is needed, and macho culture is not serving anyone.

WHAT YOU'LL HEAR IN THIS EPISODE

━━━━━━━━━━━━━━━━━━━━━━━━━━━━━

• How sleep paralysis started at age 5 and went unnamed for over 30 years

• The role childhood trauma played in Alejandro's silence around his symptoms

• Being placed in special education despite no learning disability

• The toxic workplace that drove him to sleep deprivation and crisis

• The medication journey: Adderall, Modafinil, Xyrem, and Xywav

• DMT, neuroplasticity, and the new frontier of psychedelic medicine

• The power of mentors, small wins, and setting core values as anchors

• His message to men in the narcolepsy and sleep disorder community

CONNECT WITH ALEJANDRO & PWN FOR PWN

📧 alejandro@pwnforpwn.org

🌐 pwnforpwn.org

💬 Join the PWN for PWN digital community via the website

RESOURCES MENTIONED

If Alejandro's story resonated with you and you're navigating your own chronic illness journey, CareTrack was built for moments exactly like this — when you need to track what's happening in your body, document your path to diagnosis, and advocate for yourself in a system that doesn't always listen.

Built by a spoonie, for spoonies.Free to use at steadycaretrack.com

If you or someone you know has a sleep disorder and would like to share your story, please reach out — we'd love to have you on the show.<

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-19178631 Thu, 14 May 2026 22:00:00 +0100 3748 narcolepsy, narcolepsy type 1, sleep paralysis, excessive daytime sleepiness, cataplexy, sleep disorder podcast, narcolepsy diagnosis, MSLT test, Xywav, microdosing LSD, psychedelic medicine for sleep, invisible illness, chronic illness podcast, narcoleps 4 11 full true Advocacy Series S1E4: The App Built From a Father's Love: Nabu AI's Origin Story Advocacy Series S1E4: The App Built From a Father's Love: Nabu AI's Origin Story Leave a review!

Episode Summary:

What happens when a brand strategist — someone who's built campaigns for Aerosmith, Lenny Kravitz, Samsung, and Levi's — suddenly finds himself standing in front of a wall of machines keeping his newborn daughter alive? For Steve Lewis, it became the beginning of the most important work of his life.

In this episode of the Narcolepsy Navigators Advocacy Series, hosts Kerly and Iris sit down with Steve Lewis, founder of Nabu AI and director of Emotions.org, to talk about how a single sentence from his daughter Bowie — "Dad, I want to go to my own appointments" — sparked a mission to put patients back in control of their own health story.

What We Cover:

  • How Steve's career in entertainment and brand strategy came to a screeching halt when his daughter Bowie was born with complex, lifelong health challenges
  • The painful reality of transitioning from pediatric to adult care — and why retelling your medical story over and over is a form of trauma
  • What Nabu AI actually is (hint: it's not a tracker — it's an advocate) and how it works as a single source of truth for your entire health journey
  • The "Three Columns" framework Steve uses to understand human, social, and cultural needs in healthcare
  • Why Steve believes the patient is the biggest unsolved problem in health — and how to fix it with the right information at the right time
  • The safety, encryption, and compliance features built into Nabu AI, including background checks for support workers
  • What the UAE's "Al Nor Center" gets right that most of us don't — referring to disabled people as "determined people"
  • Why invisible and rare conditions are superpowers — and how society loses when it excludes difference from the conversation
  • What gives Steve hope: the passionate frontline workers he keeps meeting all over the world

About Steve Lewis: Steve Lewis is a seasoned brand strategist and product designer with 30+ years across music, film, fashion, and food. In 2007, the birth of his daughter Bowie changed everything. Now the founder of Nabu AI and Director of Emotions.org, Steve is on a mission to ensure patients are better informed, better supported, and achieve better outcomes. Find out more at [nabu.ai] (coming soon to iOS & Android).

Resources & Links Mentioned:

Quote of the Episode: "Your true calling is where your great gladness and the world's deepest needs meet." — Frederick Buchner, shared by Steve Lewis

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Episode Summary:

What happens when a brand strategist — someone who's built campaigns for Aerosmith, Lenny Kravitz, Samsung, and Levi's — suddenly finds himself standing in front of a wall of machines keeping his newborn daughter alive? For Steve Lewis, it became the beginning of the most important work of his life.

In this episode of the Narcolepsy Navigators Advocacy Series, hosts Kerly and Iris sit down with Steve Lewis, founder of Nabu AI and director of Emotions.org, to talk about how a single sentence from his daughter Bowie — "Dad, I want to go to my own appointments" — sparked a mission to put patients back in control of their own health story.

What We Cover:

  • How Steve's career in entertainment and brand strategy came to a screeching halt when his daughter Bowie was born with complex, lifelong health challenges
  • The painful reality of transitioning from pediatric to adult care — and why retelling your medical story over and over is a form of trauma
  • What Nabu AI actually is (hint: it's not a tracker — it's an advocate) and how it works as a single source of truth for your entire health journey
  • The "Three Columns" framework Steve uses to understand human, social, and cultural needs in healthcare
  • Why Steve believes the patient is the biggest unsolved problem in health — and how to fix it with the right information at the right time
  • The safety, encryption, and compliance features built into Nabu AI, including background checks for support workers
  • What the UAE's "Al Nor Center" gets right that most of us don't — referring to disabled people as "determined people"
  • Why invisible and rare conditions are superpowers — and how society loses when it excludes difference from the conversation
  • What gives Steve hope: the passionate frontline workers he keeps meeting all over the world

About Steve Lewis: Steve Lewis is a seasoned brand strategist and product designer with 30+ years across music, film, fashion, and food. In 2007, the birth of his daughter Bowie changed everything. Now the founder of Nabu AI and Director of Emotions.org, Steve is on a mission to ensure patients are better informed, better supported, and achieve better outcomes. Find out more at [nabu.ai] (coming soon to iOS & Android).

Resources & Links Mentioned:

Quote of the Episode: "Your true calling is where your great gladness and the world's deepest needs meet." — Frederick Buchner, shared by Steve Lewis

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-19134205 Wed, 06 May 2026 12:00:00 +0100 3215 narcolepsy, narcolepsy podcast, patient advocacy, Nabu AI, health tech, chronic illness, rare disease, invisible illness, sleep disorders, brain fog, cataplexy, pediatric to adult care transition, AI in healthcare, digital health, patient empowerment, hea 1 4 bonus false S4E10:Brain Fog and Blurry Words: The Invisible Symptoms Nobody Talks About S4E10:Brain Fog and Blurry Words: The Invisible Symptoms Nobody Talks About Leave a review!

In this powerful episode of Narcolepsy Navigators Season 4, we sit down with Amelia, a 28-year-old from London who discovered she had narcolepsy while playing cards on a skiing holiday. What started as uncontrollable laughter turned into a life-changing realization when her hands and neck kept dropping—classic cataplexy symptoms.
Amelia shares her raw and honest journey from being dismissed by doctors who told her "you exercise and eat meat, so nothing will show up" to finally receiving her diagnosis on New Year's Eve 2020. Her story takes us through the struggles of sixth form, the relief of university's flexible schedule, and the grueling challenge of completing a PhD while battling extreme fatigue.
What You'll Learn:
How narcolepsy symptoms can be dismissed as "normal tiredness" for years
The relief and validation that comes with a diagnosis
Why spoon theory and battery theory help loved ones understand your limits
The hidden symptoms beyond the "big four"—brain fog, concentration issues, and memory problems
How work environments can make or break narcolepsy management
The complicated relationship between family skepticism and chronic illness
Why self-compassion is a work in progress, even after diagnosis
Standout Moments:
Amelia's creative napping solutions—from under-desk nests to prison classroom floors
The unexpected benefit of working in high-energy environments
How moving from PhD research to prison rehabilitation work improved her symptoms
The bittersweet reality of avoiding conversations about narcolepsy with family members
Why she'd press the red button (and why that answer deserves grace)
Amelia's candid discussion about the mental health impact, the ongoing medication trials, and learning to advocate for herself in work environments makes this episode essential listening for anyone navigating life with narcolepsy or supporting someone who is.

Episode Highlights:
00:00 - Welcome and Introductions 
00:55 - Amelia's Weekend and Choir 
06:11 - Early Symptoms and Medical Dismissal 
09:25 - Coping Through School and University 
12:46 - Would Early Diagnosis Have Changed Choices? 
13:55 - Relief and Accommodations After Diagnosis 
17:05 - Naps and Medication Journey 
19:42 - Managing Symptoms Without Strong Medication 
22:04 - Self-Compassion: A Work in Progress 
23:32 - Friends, Family, and Hidden Pressure
 25:15 - Speaking Up and Setting Boundaries 
27:44 - Advocating at Work 
29:32 - Dating and Cataplexy
31:02 - Family Skepticism and Hurt 
33:08 - Coping with Unsupportive Family
 36:38 - Beyond the Main Symptoms
 39:22 - Mental Health and Low Mood
 41:29 - Finding Joy and Balance 
43:58 - The Red Button Question
 45:23 - What Narcolepsy Has Taught Me

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this powerful episode of Narcolepsy Navigators Season 4, we sit down with Amelia, a 28-year-old from London who discovered she had narcolepsy while playing cards on a skiing holiday. What started as uncontrollable laughter turned into a life-changing realization when her hands and neck kept dropping—classic cataplexy symptoms.
Amelia shares her raw and honest journey from being dismissed by doctors who told her "you exercise and eat meat, so nothing will show up" to finally receiving her diagnosis on New Year's Eve 2020. Her story takes us through the struggles of sixth form, the relief of university's flexible schedule, and the grueling challenge of completing a PhD while battling extreme fatigue.
What You'll Learn:
How narcolepsy symptoms can be dismissed as "normal tiredness" for years
The relief and validation that comes with a diagnosis
Why spoon theory and battery theory help loved ones understand your limits
The hidden symptoms beyond the "big four"—brain fog, concentration issues, and memory problems
How work environments can make or break narcolepsy management
The complicated relationship between family skepticism and chronic illness
Why self-compassion is a work in progress, even after diagnosis
Standout Moments:
Amelia's creative napping solutions—from under-desk nests to prison classroom floors
The unexpected benefit of working in high-energy environments
How moving from PhD research to prison rehabilitation work improved her symptoms
The bittersweet reality of avoiding conversations about narcolepsy with family members
Why she'd press the red button (and why that answer deserves grace)
Amelia's candid discussion about the mental health impact, the ongoing medication trials, and learning to advocate for herself in work environments makes this episode essential listening for anyone navigating life with narcolepsy or supporting someone who is.

Episode Highlights:
00:00 - Welcome and Introductions 
00:55 - Amelia's Weekend and Choir 
06:11 - Early Symptoms and Medical Dismissal 
09:25 - Coping Through School and University 
12:46 - Would Early Diagnosis Have Changed Choices? 
13:55 - Relief and Accommodations After Diagnosis 
17:05 - Naps and Medication Journey 
19:42 - Managing Symptoms Without Strong Medication 
22:04 - Self-Compassion: A Work in Progress 
23:32 - Friends, Family, and Hidden Pressure
 25:15 - Speaking Up and Setting Boundaries 
27:44 - Advocating at Work 
29:32 - Dating and Cataplexy
31:02 - Family Skepticism and Hurt 
33:08 - Coping with Unsupportive Family
 36:38 - Beyond the Main Symptoms
 39:22 - Mental Health and Low Mood
 41:29 - Finding Joy and Balance 
43:58 - The Red Button Question
 45:23 - What Narcolepsy Has Taught Me

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-18907979 Wed, 01 Apr 2026 18:00:00 +0100 2977 4 10 full false S4E9:Full Speed Ahead: How Narcolepsy Can't Stop This Race Car Driver S4E9:Full Speed Ahead: How Narcolepsy Can't Stop This Race Car Driver Leave a review!

Meet Vincent Arthur - a 21-year-old race car driver from Charlotte, North Carolina, who's proving that narcolepsy type 2 doesn't have to slow you down.

In this inspiring episode of Narcolepsy Navigators, Vincent shares his powerful journey from struggling with undiagnosed brain fog and excessive daytime sleepiness in 2019 to becoming the first race car driver sponsored by Wake Up Narcolepsy in 2023.

Discover how Vincent turned his diagnosis into a platform for advocacy, why he feels MORE comfortable behind the wheel than most people, and how he's using motorsports to shatter stereotypes about sleep disorders. From sim racing victories to real-world tracks, Vincent's story will challenge everything you think you know about living with narcolepsy.

Key Topics Discussed:

  • Vincent's 4-year journey to diagnosis and the relief of finally understanding his symptoms
  • Managing brain fog, excessive daytime sleepiness, and ADHD-like symptoms during college
  • Why driving actually helps some people with narcolepsy stay alert (and the science behind it)
  • Partnering with Wake Up Narcolepsy as the first sponsored race car driver
  • Breaking barriers and proving that narcolepsy isn't a limiting factor
  • Practical advice for anyone who thinks their condition will hold them back

Guest Bio: Vincent Arthur is a 21-year-old professional race car driver and narcolepsy advocate based in Charlotte, North Carolina. Diagnosed with narcolepsy type 2 in early 2023, Vincent quickly became a voice for the sleep disorder community by partnering with Wake Up Narcolepsy as their first-ever sponsored race car driver. When he's not on the track, Vincent studies mechanical engineering and competes in sim racing, where he's achieved multiple victories. Follow his journey at @VincentA55 on all social platforms.

Episode Highlights:

  • [00:03:42] - Vincent's diagnosis journey from 2019 to 2023
  • [00:13:00] - Navigating college with undiagnosed narcolepsy
  • [00:23:00] - Why driving helps Vincent stay alert (the alertness factor)
  • [00:25:32] - Partnership with Wake Up Narcolepsy and raising awareness
  • [00:28:41] - Vincent's powerful message: "Narcolepsy is not a limiting factor"

Connect with Vincent: Instagram/Twitter: @VincentA55

Resources Mentioned:

  • Wake Up Narcolepsy
  • Charlotte Motor Speedway area

Support the Show: Support Narcolepsy Navigators on Patreon for bonus content, Discord access, and exclusive merch! Visit www.napsforlife.com

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Meet Vincent Arthur - a 21-year-old race car driver from Charlotte, North Carolina, who's proving that narcolepsy type 2 doesn't have to slow you down.

In this inspiring episode of Narcolepsy Navigators, Vincent shares his powerful journey from struggling with undiagnosed brain fog and excessive daytime sleepiness in 2019 to becoming the first race car driver sponsored by Wake Up Narcolepsy in 2023.

Discover how Vincent turned his diagnosis into a platform for advocacy, why he feels MORE comfortable behind the wheel than most people, and how he's using motorsports to shatter stereotypes about sleep disorders. From sim racing victories to real-world tracks, Vincent's story will challenge everything you think you know about living with narcolepsy.

Key Topics Discussed:

  • Vincent's 4-year journey to diagnosis and the relief of finally understanding his symptoms
  • Managing brain fog, excessive daytime sleepiness, and ADHD-like symptoms during college
  • Why driving actually helps some people with narcolepsy stay alert (and the science behind it)
  • Partnering with Wake Up Narcolepsy as the first sponsored race car driver
  • Breaking barriers and proving that narcolepsy isn't a limiting factor
  • Practical advice for anyone who thinks their condition will hold them back

Guest Bio: Vincent Arthur is a 21-year-old professional race car driver and narcolepsy advocate based in Charlotte, North Carolina. Diagnosed with narcolepsy type 2 in early 2023, Vincent quickly became a voice for the sleep disorder community by partnering with Wake Up Narcolepsy as their first-ever sponsored race car driver. When he's not on the track, Vincent studies mechanical engineering and competes in sim racing, where he's achieved multiple victories. Follow his journey at @VincentA55 on all social platforms.

Episode Highlights:

  • [00:03:42] - Vincent's diagnosis journey from 2019 to 2023
  • [00:13:00] - Navigating college with undiagnosed narcolepsy
  • [00:23:00] - Why driving helps Vincent stay alert (the alertness factor)
  • [00:25:32] - Partnership with Wake Up Narcolepsy and raising awareness
  • [00:28:41] - Vincent's powerful message: "Narcolepsy is not a limiting factor"

Connect with Vincent: Instagram/Twitter: @VincentA55

Resources Mentioned:

  • Wake Up Narcolepsy
  • Charlotte Motor Speedway area

Support the Show: Support Narcolepsy Navigators on Patreon for bonus content, Discord access, and exclusive merch! Visit www.napsforlife.com

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-18907811 Sat, 28 Mar 2026 16:00:00 +0000 1958 narcolepsy type 2, race car driver with narcolepsy, narcolepsy awareness, sleep disorders, excessive daytime sleepiness, brain fog narcolepsy, Wake Up Narcolepsy, chronic illness advocacy, disability and motorsports, narcolepsy diagnosis journey, young na 4 9 full false S4E8:Motherhood, Pregnancy & Narcolepsy with Ashley Blankenship S4E8:Motherhood, Pregnancy & Narcolepsy with Ashley Blankenship Leave a review!

Can you have a successful pregnancy and thrive as a parent while living with Narcolepsy? This week on Narcolepsy Navigators, Kerly and Liz sit down with Ashley from North Carolina to answer this very question. Diagnosed in 2019 after over a decade of symptoms, Ashley shares her incredible journey through pregnancy and the first 20 months of motherhood. She opens up about the surprising relief from symptoms she experienced while pregnant, the difficult decision to come off life-changing medication, and the reality of navigating the "fourth trimester" with a chronic illness. From the importance of a supportive partner to managing postpartum anxiety and the chaos of a toddler, this episode is a must-listen for anyone in the Narcolepsy community considering parenthood. Tune in for an honest, hopeful, and inspiring conversation about building the family you want, even when your body has other plans.

Key Topics Discussed:

  • Ashley's journey to a Narcolepsy Type 1 diagnosis in 2019.
  • The difficult decision to stop medication while trying to conceive and during pregnancy.
  • The surprising improvement of Narcolepsy symptoms during pregnancy.
  • The reality of labor, delivery, and the immediate postpartum period with a sleep disorder.
  • The difference between "normal" sleep deprivation and Narcolepsy fatigue.
  • Strategies for managing a toddler, a career, and a chronic condition.
  • The vital role of a supportive partner and a "village."
  • Navigating postpartum anxiety and finding tools for mental health.
  • Advice for anyone with Narcolepsy who is considering parenthood.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Can you have a successful pregnancy and thrive as a parent while living with Narcolepsy? This week on Narcolepsy Navigators, Kerly and Liz sit down with Ashley from North Carolina to answer this very question. Diagnosed in 2019 after over a decade of symptoms, Ashley shares her incredible journey through pregnancy and the first 20 months of motherhood. She opens up about the surprising relief from symptoms she experienced while pregnant, the difficult decision to come off life-changing medication, and the reality of navigating the "fourth trimester" with a chronic illness. From the importance of a supportive partner to managing postpartum anxiety and the chaos of a toddler, this episode is a must-listen for anyone in the Narcolepsy community considering parenthood. Tune in for an honest, hopeful, and inspiring conversation about building the family you want, even when your body has other plans.

Key Topics Discussed:

  • Ashley's journey to a Narcolepsy Type 1 diagnosis in 2019.
  • The difficult decision to stop medication while trying to conceive and during pregnancy.
  • The surprising improvement of Narcolepsy symptoms during pregnancy.
  • The reality of labor, delivery, and the immediate postpartum period with a sleep disorder.
  • The difference between "normal" sleep deprivation and Narcolepsy fatigue.
  • Strategies for managing a toddler, a career, and a chronic condition.
  • The vital role of a supportive partner and a "village."
  • Navigating postpartum anxiety and finding tools for mental health.
  • Advice for anyone with Narcolepsy who is considering parenthood.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-18877993 Fri, 20 Mar 2026 17:00:00 +0000 2447 Narcolepsy and pregnancy, motherhood with chronic illness, having a baby with narcolepsy, narcolepsy type 1, pregnancy symptoms and narcolepsy, postpartum with a sleep disorder, managing narcolepsy without medication, sleep deprivation vs narcolepsy 4 8 full false S4E7: Redefining Strength: Javiera's story of Resilience with IH S4E7: Redefining Strength: Javiera's story of Resilience with IH Leave a review!


In this powerful and emotional episode of Narcolepsy Navigators, we travel to South America for the very first time to share the story of Javiera Santamaría, a 28-year-old nurse from Santiago, Chile, living with Idiopathic Hypersomnia (IH).

Javiera opens up about her early symptoms, dangerous sleep attacks while driving, years of self-doubt, and the life-changing moment she finally received a diagnosis. Through laughter, tears, grief, and growth, she reveals how IH reshaped her relationships, her career, and her self-perception — and why she now feels proud of the person she has become.

This episode shines a light on the challenges of living with IH in a country with no formal narcolepsy or IH organization, the high costs of medication, and the stigma that often follows invisible illnesses.

Her story is raw, relatable, deeply human — and a reminder that you’re never alone in your journey.


What You’ll Hear in This Episode

  • Javiera’s earliest symptoms and why she blamed herself for years
  • Two alarming car accidents that finally pushed her toward medical answers
  • Misunderstandings from family vs the strong support she received from friends
  • Brain fog, irritability, emotional exhaustion, and the unseen sides of IH
  • Navigating grief after the loss of her father
  • Medication struggles and the financial burden of treatment in Chile
  • How exercise unexpectedly became one of her biggest tools
  • What she wishes the world understood about IH
  • Why she wouldn’t press the “red button” to remove her condition
  • A heartfelt conversation about resilience, identity, and hope

Why This Episode Matters

Millions live with undiagnosed sleep disorders — especially in regions without awareness or support. Javiera’s story may be the sign someone else desperately needs.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!


In this powerful and emotional episode of Narcolepsy Navigators, we travel to South America for the very first time to share the story of Javiera Santamaría, a 28-year-old nurse from Santiago, Chile, living with Idiopathic Hypersomnia (IH).

Javiera opens up about her early symptoms, dangerous sleep attacks while driving, years of self-doubt, and the life-changing moment she finally received a diagnosis. Through laughter, tears, grief, and growth, she reveals how IH reshaped her relationships, her career, and her self-perception — and why she now feels proud of the person she has become.

This episode shines a light on the challenges of living with IH in a country with no formal narcolepsy or IH organization, the high costs of medication, and the stigma that often follows invisible illnesses.

Her story is raw, relatable, deeply human — and a reminder that you’re never alone in your journey.


What You’ll Hear in This Episode

  • Javiera’s earliest symptoms and why she blamed herself for years
  • Two alarming car accidents that finally pushed her toward medical answers
  • Misunderstandings from family vs the strong support she received from friends
  • Brain fog, irritability, emotional exhaustion, and the unseen sides of IH
  • Navigating grief after the loss of her father
  • Medication struggles and the financial burden of treatment in Chile
  • How exercise unexpectedly became one of her biggest tools
  • What she wishes the world understood about IH
  • Why she wouldn’t press the “red button” to remove her condition
  • A heartfelt conversation about resilience, identity, and hope

Why This Episode Matters

Millions live with undiagnosed sleep disorders — especially in regions without awareness or support. Javiera’s story may be the sign someone else desperately needs.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-18871734 Thu, 19 Mar 2026 03:00:00 +0000 4580 narcolepsy awareness, idiopathic hypersomnia, sleep disorder symptoms, excessive daytime sleepiness, narcolepsy diagnosis journey, living with hypersomnia, sleep health education, narcolepsy support community, brain fog and fatigue, sleep disorder treatme 4 7 full true S4E6:Building a Life That Works With Your Energy: Cloud’s Journey S4E6:Building a Life That Works With Your Energy: Cloud’s Journey Leave a review!

In this episode of Narcolepsy Navigators, we sit down with Cloud, a narcolepsy advocate from San Diego living with Narcolepsy Type 1 with cataplexy.

After years of struggling with unexplained exhaustion and symptoms that began in adolescence, Cloud was finally diagnosed at age 30. But diagnosis wasn’t the end of the journey — it was just the beginning.

For nearly a decade, Cloud intentionally stepped away from traditional schedules to learn how their body actually functions with narcolepsy. That meant building a life around energy levels, sleep cycles, and personal boundaries rather than society’s expectations.

Now, ten years later, Cloud has reentered the workforce and is navigating what it means to balance work, health, relationships, and identity with a neurological sleep disorder.

This conversation is honest, thoughtful, and deeply relatable for anyone learning how to build a life around chronic illness rather than fighting against it.

Topics Covered

• Recognizing narcolepsy symptoms as a teenager
 • Receiving a diagnosis at age 30
 • Why Cloud stepped away from traditional work for years
 • Learning to live on your body’s schedule
 • Reentering the workforce after a decade
 • Balancing friendships, family, and fatigue
 • The mental load of narcolepsy
 • Adjusting medication and nap schedules
 • Why understanding your body is essential


Why This Episode Matters

Narcolepsy isn’t just about sleep attacks. It affects careers, identity, relationships, and how people move through the world.

Cloud’s story highlights the importance of self-awareness, boundaries, and designing a life that works with your condition instead of against it.


About the Guest

Cloud lives in San Diego and was diagnosed with narcolepsy with cataplexy at age 30 after experiencing symptoms since adolescence. Over the past decade, they have focused on understanding how to live well with narcolepsy and are now exploring new ways to reconnect with work, community, and purpose.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this episode of Narcolepsy Navigators, we sit down with Cloud, a narcolepsy advocate from San Diego living with Narcolepsy Type 1 with cataplexy.

After years of struggling with unexplained exhaustion and symptoms that began in adolescence, Cloud was finally diagnosed at age 30. But diagnosis wasn’t the end of the journey — it was just the beginning.

For nearly a decade, Cloud intentionally stepped away from traditional schedules to learn how their body actually functions with narcolepsy. That meant building a life around energy levels, sleep cycles, and personal boundaries rather than society’s expectations.

Now, ten years later, Cloud has reentered the workforce and is navigating what it means to balance work, health, relationships, and identity with a neurological sleep disorder.

This conversation is honest, thoughtful, and deeply relatable for anyone learning how to build a life around chronic illness rather than fighting against it.

Topics Covered

• Recognizing narcolepsy symptoms as a teenager
 • Receiving a diagnosis at age 30
 • Why Cloud stepped away from traditional work for years
 • Learning to live on your body’s schedule
 • Reentering the workforce after a decade
 • Balancing friendships, family, and fatigue
 • The mental load of narcolepsy
 • Adjusting medication and nap schedules
 • Why understanding your body is essential


Why This Episode Matters

Narcolepsy isn’t just about sleep attacks. It affects careers, identity, relationships, and how people move through the world.

Cloud’s story highlights the importance of self-awareness, boundaries, and designing a life that works with your condition instead of against it.


About the Guest

Cloud lives in San Diego and was diagnosed with narcolepsy with cataplexy at age 30 after experiencing symptoms since adolescence. Over the past decade, they have focused on understanding how to live well with narcolepsy and are now exploring new ways to reconnect with work, community, and purpose.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-18806164 Sat, 07 Mar 2026 21:00:00 +0000 2969 narcolepsy with cataplexy, living with narcolepsy, narcolepsy patient story, returning to work with chronic illness, sleep disorders awareness, narcolepsy diagnosis journey, managing narcolepsy symptoms, narcolepsy lifestyle adjustments, chronic illness 4 6 full false Medical Series S1E4:Hot Flashes, Anxiety, Insomnia-The Menopause Sleep Crisis: Insights with Dr. Caitlin Chasser Medical Series S1E4:Hot Flashes, Anxiety, Insomnia-The Menopause Sleep Crisis: Insights with Dr. Caitlin Chasser Leave a review!

Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis: Insights with Dr. Caitlin Chasser 


Narcolepsy Navigators launches its Medical Series on narcolepsy and overlooked comorbidities, with host Fred (undiagnosed sleep disorder), co-host Bernadette (narcolepsy type 1), and guest Dr. Caitlin Chasser, a family doctor specializing in sleep and menopause. Dr. Caitlin shares how her own insomnia and premature menopause led her to focus on sleep, emphasizing holistic tools (meditation, breath work, body scans), exercise (especially resistance training), and personalized sleep environments to reduce hyperarousal. She discusses common menopause-related sleep problems (poor sleep quality, insomnia, obstructive sleep apnea, restless leg syndrome linked to iron deficiency), the impact of alcohol, naps, and bedtime routines, and notes CBT-I as the gold-standard insomnia treatment. The episode also covers melatonin’s limited indications, hot flushes and temperature regulation, libido changes, and resources from The Sleep Project, plus podcast Patreon/merch announcements.

About The Guest
Dr Caitlin Chasser is a GP and Sleep Consultant with a special interest in women’s health, particularly how sleep is affected by menopause.She is a co-founder of The Sleep Project, a doctor-led organisation helping people of all ages improve their sleep through practical, science-backed programmes. Caitlin has over 20 years of experience supporting women to feel better, sleep better and take back control of their health.She specialises in Cognitive Behavioural Therapy for Insomnia (CBT-I), the most effective treatment for long-term sleep difficulties, and takes a holistic, compassionate approach to sleep and wellbeing. Caitlin is passionate about making good sleep accessible to all — especially during life stages like menopause when sleep can often suffer. 


00:00 Medical Series Kickoff
01:18 Meet the Hosts and Guest
02:43 Dr Caitlin Origin Story
04:26 Holistic Sleep Foundations
06:54 Exercise and Sleep Quality
09:05 Menopause Sleep Changes
10:28 Melatonin Myths and Uses
14:54 Menopause Sleep Changes
15:56 Menopause Insomnia Playbook
21:28 Sleep Safety and Hyperarousal
25:28 Wind Down and Mind Quieting
27:49 Breathwork Sleep Hack
28:45 Tools for 2AM Wakeups
29:52 Sports Body Scan Story
31:35 Military Body Scan Explained
32:28 Menopause Sleep Disruptors
34:24 Hot Flashes and Temperature
36:52 Libido Sleep Connection
38:32 Comfort and Hormone Options
40:51 Menopause Surprise and Support
44:25 CBTI Works and Next Steps
46:58 Why the Sleep Project Started
49:15 Wrap Up and Resources
50:21 Patreon and Community Outro

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis: Insights with Dr. Caitlin Chasser 


Narcolepsy Navigators launches its Medical Series on narcolepsy and overlooked comorbidities, with host Fred (undiagnosed sleep disorder), co-host Bernadette (narcolepsy type 1), and guest Dr. Caitlin Chasser, a family doctor specializing in sleep and menopause. Dr. Caitlin shares how her own insomnia and premature menopause led her to focus on sleep, emphasizing holistic tools (meditation, breath work, body scans), exercise (especially resistance training), and personalized sleep environments to reduce hyperarousal. She discusses common menopause-related sleep problems (poor sleep quality, insomnia, obstructive sleep apnea, restless leg syndrome linked to iron deficiency), the impact of alcohol, naps, and bedtime routines, and notes CBT-I as the gold-standard insomnia treatment. The episode also covers melatonin’s limited indications, hot flushes and temperature regulation, libido changes, and resources from The Sleep Project, plus podcast Patreon/merch announcements.

About The Guest
Dr Caitlin Chasser is a GP and Sleep Consultant with a special interest in women’s health, particularly how sleep is affected by menopause.She is a co-founder of The Sleep Project, a doctor-led organisation helping people of all ages improve their sleep through practical, science-backed programmes. Caitlin has over 20 years of experience supporting women to feel better, sleep better and take back control of their health.She specialises in Cognitive Behavioural Therapy for Insomnia (CBT-I), the most effective treatment for long-term sleep difficulties, and takes a holistic, compassionate approach to sleep and wellbeing. Caitlin is passionate about making good sleep accessible to all — especially during life stages like menopause when sleep can often suffer. 


00:00 Medical Series Kickoff
01:18 Meet the Hosts and Guest
02:43 Dr Caitlin Origin Story
04:26 Holistic Sleep Foundations
06:54 Exercise and Sleep Quality
09:05 Menopause Sleep Changes
10:28 Melatonin Myths and Uses
14:54 Menopause Sleep Changes
15:56 Menopause Insomnia Playbook
21:28 Sleep Safety and Hyperarousal
25:28 Wind Down and Mind Quieting
27:49 Breathwork Sleep Hack
28:45 Tools for 2AM Wakeups
29:52 Sports Body Scan Story
31:35 Military Body Scan Explained
32:28 Menopause Sleep Disruptors
34:24 Hot Flashes and Temperature
36:52 Libido Sleep Connection
38:32 Comfort and Hormone Options
40:51 Menopause Surprise and Support
44:25 CBTI Works and Next Steps
46:58 Why the Sleep Project Started
49:15 Wrap Up and Resources
50:21 Patreon and Community Outro

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-18763400 Sun, 01 Mar 2026 06:00:00 +0000 3145 menopause insomnia, perimenopause sleep problems, menopause night sweats, hot flashes at night, CBT-I therapy, cognitive behavioral therapy for insomnia, hyperarousal sleep, restless leg syndrome menopause, sleep apnea after menopause, hormone replacement 1 4 bonus false Medical Series S1E3 : Sleep Affects Everything: A Neurologist Breaks It Down” Medical Series S1E3 : Sleep Affects Everything: A Neurologist Breaks It Down” Leave a review!

This Bonus Episode is now available to everyone in celebration of Black History Month!!

In our latest episode of Narcolepsy Navigators’ Medical Series, we sit down with Dr. Chris Allen, board-certified pediatric neurologist and sleep medicine specialist, founder of Quality Sleep and Neurology PC in Michigan.

Dr. Allen brings both medical expertise and lived experience to the conversation, sharing his own 21-year journey living with obstructive sleep apnea while breaking down why sleep disorders are among the most misunderstood and underdiagnosed medical conditions today.

We cover everything from narcolepsy misdiagnosis and pediatric sleep disorders to the dangerous myth that snoring is “normal,” the real connection between sleep and heart health, and why CPAP is not the only treatment option for sleep apnea.

This episode is a must-listen for patients, parents, clinicians, and anyone who has ever been told, “You’re just tired.”


Topics Covered

  • Why sleep medicine is still under-taught in medical schools
  • Dr. Allen’s personal experience with sleep apnea
  • Why snoring is a medical red flag, not a joke
  • Narcolepsy vs depression vs hypersomnia
  • Pediatric sleep disorders and missed diagnoses
  • ADHD-like symptoms caused by poor sleep in children
  • Restless legs, ferritin levels, and iron deficiency
  • The link between sleep, heart disease, and blood pressure
  • CPAP alternatives and emerging treatments
  • Hustle culture and why sleep deprivation hurts productivity
  • Representation and trust in healthcare


Why This Episode Matters

Sleep disorders don’t just affect energy — they affect memory, mood, heart health, development, and lifespan. Dr. Allen explains why untreated sleep conditions quietly damage the body over time and why awareness can literally save lives.


About the Guest

Dr. Christopher J. Allen, MD is a board-certified pediatric neurologist and sleep medicine specialist, founder of Quality Sleep and Neurology PC. Known online as Sleep Dr. Chris, he is a leading voice in accessible sleep education and a strong advocate for patient-centered care. Above all, Dr. Allen is a devoted family man, proud husband, and father of two—bringing the same passion he holds for his patients to his home and loved ones.

Every child deserves a good night's sleep... Purchase Your Copy of Sweet Dreams Today:  https://www.sleepdrchris.com/

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

This Bonus Episode is now available to everyone in celebration of Black History Month!!

In our latest episode of Narcolepsy Navigators’ Medical Series, we sit down with Dr. Chris Allen, board-certified pediatric neurologist and sleep medicine specialist, founder of Quality Sleep and Neurology PC in Michigan.

Dr. Allen brings both medical expertise and lived experience to the conversation, sharing his own 21-year journey living with obstructive sleep apnea while breaking down why sleep disorders are among the most misunderstood and underdiagnosed medical conditions today.

We cover everything from narcolepsy misdiagnosis and pediatric sleep disorders to the dangerous myth that snoring is “normal,” the real connection between sleep and heart health, and why CPAP is not the only treatment option for sleep apnea.

This episode is a must-listen for patients, parents, clinicians, and anyone who has ever been told, “You’re just tired.”


Topics Covered

  • Why sleep medicine is still under-taught in medical schools
  • Dr. Allen’s personal experience with sleep apnea
  • Why snoring is a medical red flag, not a joke
  • Narcolepsy vs depression vs hypersomnia
  • Pediatric sleep disorders and missed diagnoses
  • ADHD-like symptoms caused by poor sleep in children
  • Restless legs, ferritin levels, and iron deficiency
  • The link between sleep, heart disease, and blood pressure
  • CPAP alternatives and emerging treatments
  • Hustle culture and why sleep deprivation hurts productivity
  • Representation and trust in healthcare


Why This Episode Matters

Sleep disorders don’t just affect energy — they affect memory, mood, heart health, development, and lifespan. Dr. Allen explains why untreated sleep conditions quietly damage the body over time and why awareness can literally save lives.


About the Guest

Dr. Christopher J. Allen, MD is a board-certified pediatric neurologist and sleep medicine specialist, founder of Quality Sleep and Neurology PC. Known online as Sleep Dr. Chris, he is a leading voice in accessible sleep education and a strong advocate for patient-centered care. Above all, Dr. Allen is a devoted family man, proud husband, and father of two—bringing the same passion he holds for his patients to his home and loved ones.

Every child deserves a good night's sleep... Purchase Your Copy of Sweet Dreams Today:  https://www.sleepdrchris.com/

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Buzzsprout-18646383 Mon, 09 Feb 2026 03:00:00 +0000 2756 1 3 full false Advocacy Series S1E1: Why Narcolepsy Is a Family Diagnosis, Not Just an Individual One Advocacy Series S1E1: Why Narcolepsy Is a Family Diagnosis, Not Just an Individual One Leave a review!

Narcolepsy is often misunderstood, dismissed, and dangerously underdiagnosed — especially in women. In this powerful Advocacy Series episode, we sit down with Dr. Anne-Marie Morse, a neurologist with specialized training in child neurology and sleep medicine, to talk about what real advocacy looks like, why diagnosis delays can stretch nearly two decades, and how patients can reclaim power in the healthcare system.

Dr. Morse breaks down one of the most important truths in sleep medicine: language matters. Words like tired, fatigue, and sleepiness are not interchangeable — and using the wrong one can lead to missed diagnosis and years of suffering.

We also discuss the emotional reality of narcolepsy: grief, identity, guilt, family dynamics, and why peer support and global community are essential. From workplace wellness myths to school system failures, this conversation is both validating and activating.

If you’ve ever felt unheard, minimized, or reduced to a score on a scale — this episode is for you.

In This Episode, We Cover:

  • Why narcolepsy impacts an entire ecosystem (family, friends, school, work)


  • The average delay to diagnosis — and why women face longer delays


  • The difference between sleepiness vs tiredness vs fatigue


  • Why you are NOT your Epworth Sleepiness Scale score


  • The best question a doctor can ask: “What can’t you do?”


  • The grief that comes with diagnosis — for patients AND families


  • Why mental health support should be standard in chronic illness care


  • How peer support can prevent isolation and long-term disability


  • Why sleep should be treated like water — essential, non-negotiable


  • How advocacy needs to become global to create real change


Key Takeaway

“We need to create treatment regimens that fit people’s lives — not lives that fit treatment regimens.” 

Dr Ann Marie Morse

Resources Mentioned

Project Sleep

Hypersomnia Foundation

Wake Up Narcolepsy

Faces of Narcolepsy

Julie Flygare’s book: Wide Awake and Dreaming

Listen + Subscribe

🎧 Listen now and share this episode with someone who needs to hear it.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Narcolepsy is often misunderstood, dismissed, and dangerously underdiagnosed — especially in women. In this powerful Advocacy Series episode, we sit down with Dr. Anne-Marie Morse, a neurologist with specialized training in child neurology and sleep medicine, to talk about what real advocacy looks like, why diagnosis delays can stretch nearly two decades, and how patients can reclaim power in the healthcare system.

Dr. Morse breaks down one of the most important truths in sleep medicine: language matters. Words like tired, fatigue, and sleepiness are not interchangeable — and using the wrong one can lead to missed diagnosis and years of suffering.

We also discuss the emotional reality of narcolepsy: grief, identity, guilt, family dynamics, and why peer support and global community are essential. From workplace wellness myths to school system failures, this conversation is both validating and activating.

If you’ve ever felt unheard, minimized, or reduced to a score on a scale — this episode is for you.

In This Episode, We Cover:

  • Why narcolepsy impacts an entire ecosystem (family, friends, school, work)


  • The average delay to diagnosis — and why women face longer delays


  • The difference between sleepiness vs tiredness vs fatigue


  • Why you are NOT your Epworth Sleepiness Scale score


  • The best question a doctor can ask: “What can’t you do?”


  • The grief that comes with diagnosis — for patients AND families


  • Why mental health support should be standard in chronic illness care


  • How peer support can prevent isolation and long-term disability


  • Why sleep should be treated like water — essential, non-negotiable


  • How advocacy needs to become global to create real change


Key Takeaway

“We need to create treatment regimens that fit people’s lives — not lives that fit treatment regimens.” 

Dr Ann Marie Morse

Resources Mentioned

Project Sleep

Hypersomnia Foundation

Wake Up Narcolepsy

Faces of Narcolepsy

Julie Flygare’s book: Wide Awake and Dreaming

Listen + Subscribe

🎧 Listen now and share this episode with someone who needs to hear it.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-18627059 Thu, 05 Feb 2026 00:00:00 +0000 4071 narcolepsy advocacy, patient advocacy, sleep medicine, narcolepsy diagnosis delay, women and narcolepsy, cataplexy symptoms, excessive daytime sleepiness, sleepiness vs fatigue, hypersomnia disorders, idiopathic hypersomnia, pediatric narcolepsy, chronic 1 1 full false Medical Series S1E2: Breaking the Silence with Dr. Jill McGarry: Mental Health Support for Chronic Sleep Disorders Medical Series S1E2: Breaking the Silence with Dr. Jill McGarry: Mental Health Support for Chronic Sleep Disorders Leave a review!

In this episode of Narcolepsy Navigators, hosts Kerly and Sakhara, both living with narcolepsy type one, are joined by Dr. Jill McGarry, a clinical psychologist with 28 years of NHS experience. They delve into the importance of holistic health and mental health for managing narcolepsy. Dr. McGarry discusses strategies like energy level management, routines anchored by consistent wake times, and mindfulness. The conversation highlights the profound effects of psychological support, the importance of timing and sleep hygiene, and the benefits of a balanced diet. The episode underscores the need for a multidisciplinary approach in supporting individuals with narcolepsy and the potential benefits of community support.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this episode of Narcolepsy Navigators, hosts Kerly and Sakhara, both living with narcolepsy type one, are joined by Dr. Jill McGarry, a clinical psychologist with 28 years of NHS experience. They delve into the importance of holistic health and mental health for managing narcolepsy. Dr. McGarry discusses strategies like energy level management, routines anchored by consistent wake times, and mindfulness. The conversation highlights the profound effects of psychological support, the importance of timing and sleep hygiene, and the benefits of a balanced diet. The episode underscores the need for a multidisciplinary approach in supporting individuals with narcolepsy and the potential benefits of community support.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-18517753 Fri, 16 Jan 2026 06:00:00 +0000 2624 narcolepsy, sleep health, mental health, mindfulness, holistic healing, circadian rhythm, sleep hygiene, cognitive behavioral therapy, narcolepsy awareness, chronic illness, sleep psychology, narcolepsy support, energy cycles, sleep wellness 1 2 full false S1E3:Advocacy Series: Advocacy in Action: A Discussion with Matt Hornsnell on Narcolepsy S1E3:Advocacy Series: Advocacy in Action: A Discussion with Matt Hornsnell on Narcolepsy Leave a review!

In this episode of the Narcolepsy Navigators Podcast, hosts Kerly and Iris introduce their new Advocacy Series aimed at spotlighting changemakers, advocates, and everyday heroes in the field of narcolepsy. They welcome Matt Hornsnell, a sleep advocate diagnosed with narcolepsy type one and obstructive sleep apnea, who shares his extensive experiences in advocacy, public speaking, and research. Matt discusses the importance of community support, the challenges of male representation in advocacy, and the delicate balance between personal life and advocacy work. The conversation delves into topics like the impact of narcolepsy on relationships and mental health, and the necessity of setting boundaries. This episode is an inspiring exploration of how personal stories and lived experiences can drive awareness and change.

Bio:

Matt Horsnell is a husband, father of three, and sleep advocate living with NT1 (narcolepsy with cataplexy) and obstructive sleep apnea. As an author-advocate, he has published research on lived experience with sleep disorders. Matt also works as a consultant for the pharmaceutical industry and on behavioral sleep projects.

Matt has presented in national conferences at SLEEP and the Society of Behavioral Sleep Medicine (SBSM). Additionally, Matt is the Co-Host of Hypersomnia Foundation’s UNIGHT.

Matt was recognized as Project Sleep’s Inaugural Sleep Advocacy Champion in 2023. In 2025, he was recognized with Hypersomnia Foundation’s Patient Advocate Award. Matt presented on Sleep Health Equity to The White House (2023) and was featured in a CNN article about life with narcolepsy (2024).

Highlights:

[03:09] The Importance of Social Support

[07:13] Challenges and Rewards of Advocacy

[14:03] Male Representation in Narcolepsy Advocacy

[22:02] Parenthood and Advocacy Balance

[23:02] Setting Boundaries in Advocacy


OFFICIAL WEBSITE
www.napsforlife.com 

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this episode of the Narcolepsy Navigators Podcast, hosts Kerly and Iris introduce their new Advocacy Series aimed at spotlighting changemakers, advocates, and everyday heroes in the field of narcolepsy. They welcome Matt Hornsnell, a sleep advocate diagnosed with narcolepsy type one and obstructive sleep apnea, who shares his extensive experiences in advocacy, public speaking, and research. Matt discusses the importance of community support, the challenges of male representation in advocacy, and the delicate balance between personal life and advocacy work. The conversation delves into topics like the impact of narcolepsy on relationships and mental health, and the necessity of setting boundaries. This episode is an inspiring exploration of how personal stories and lived experiences can drive awareness and change.

Bio:

Matt Horsnell is a husband, father of three, and sleep advocate living with NT1 (narcolepsy with cataplexy) and obstructive sleep apnea. As an author-advocate, he has published research on lived experience with sleep disorders. Matt also works as a consultant for the pharmaceutical industry and on behavioral sleep projects.

Matt has presented in national conferences at SLEEP and the Society of Behavioral Sleep Medicine (SBSM). Additionally, Matt is the Co-Host of Hypersomnia Foundation’s UNIGHT.

Matt was recognized as Project Sleep’s Inaugural Sleep Advocacy Champion in 2023. In 2025, he was recognized with Hypersomnia Foundation’s Patient Advocate Award. Matt presented on Sleep Health Equity to The White House (2023) and was featured in a CNN article about life with narcolepsy (2024).

Highlights:

[03:09] The Importance of Social Support

[07:13] Challenges and Rewards of Advocacy

[14:03] Male Representation in Narcolepsy Advocacy

[22:02] Parenthood and Advocacy Balance

[23:02] Setting Boundaries in Advocacy


OFFICIAL WEBSITE
www.napsforlife.com 

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-18517611 Fri, 16 Jan 2026 05:00:00 +0000 2059 1 3 full false S4E5: Running Half Marathons With Narcolepsy: Jayson’s Story From Taiwan S4E5: Running Half Marathons With Narcolepsy: Jayson’s Story From Taiwan Leave a review!

In this powerful international episode of Narcolepsy Navigators, we sit down with Jayson, a PE teacher, endurance runner, and advocate living with Narcolepsy Type 1 with cataplexy in Taiwan.

Diagnosed as a teenager after repeatedly falling asleep in class, Jayson grew up navigating stigma, academic pressure, and deep misunderstandings — especially within a culture where performance and discipline are highly valued. Despite this, he has built a life centered around movement, self-awareness, and intentional boundaries, even running half marathons while managing narcolepsy.

Jayson shares how suppressing emotions to avoid cataplexy affected his identity, why journaling and therapy changed his life, and how he re-designed his career to protect his health. He also gives rare insight into Taiwan’s healthcare system, cultural nap norms, military service exemptions, and what true balance looks like when energy is limited.

This episode is honest, reflective, and deeply human — especially for anyone who has ever been told they “don’t look sick.”


What You’ll Learn in This Episode

  • What it’s like being diagnosed with narcolepsy as a teen in Taiwan
  • How teachers misread symptoms as laziness or lack of motivation
  • The emotional cost of suppressing joy to avoid cataplexy
  • Why Jayson chose flexible work over traditional career paths
  • How exercise dramatically improves his sleep quality
  • The role of journaling and therapy in emotional survival
  • Cultural differences around naps and productivity
  • How plant-based eating helps him manage daytime sleepiness
  • Why narcolepsy is still not classified as a disability in Taiwan
  • His honest answer to the “red button” question


Why This Episode Matters


Narcolepsy doesn’t look the same in every country — and Jayson’s story highlights how culture, healthcare systems, and expectations shape the lived experience of sleep disorders. This conversation challenges stereotypes and proves that strength doesn’t always look like pushing harder — sometimes it looks like resting smarter.

New Episode Out Now: https://www.napsforlife.com/podcast/episode/7f587a5c/s4e5-running-half-marathons-with-narcolepsy-jaysons-story-from-taiwan

About the Guest

Jayson is a PE teacher, endurance runner, and advocate from Taipei, Taiwan, living with Narcolepsy Type 1 with cataplexy. He uses movement, structure, and self-reflection to manage his condition and raise awareness across cultures.


Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this powerful international episode of Narcolepsy Navigators, we sit down with Jayson, a PE teacher, endurance runner, and advocate living with Narcolepsy Type 1 with cataplexy in Taiwan.

Diagnosed as a teenager after repeatedly falling asleep in class, Jayson grew up navigating stigma, academic pressure, and deep misunderstandings — especially within a culture where performance and discipline are highly valued. Despite this, he has built a life centered around movement, self-awareness, and intentional boundaries, even running half marathons while managing narcolepsy.

Jayson shares how suppressing emotions to avoid cataplexy affected his identity, why journaling and therapy changed his life, and how he re-designed his career to protect his health. He also gives rare insight into Taiwan’s healthcare system, cultural nap norms, military service exemptions, and what true balance looks like when energy is limited.

This episode is honest, reflective, and deeply human — especially for anyone who has ever been told they “don’t look sick.”


What You’ll Learn in This Episode

  • What it’s like being diagnosed with narcolepsy as a teen in Taiwan
  • How teachers misread symptoms as laziness or lack of motivation
  • The emotional cost of suppressing joy to avoid cataplexy
  • Why Jayson chose flexible work over traditional career paths
  • How exercise dramatically improves his sleep quality
  • The role of journaling and therapy in emotional survival
  • Cultural differences around naps and productivity
  • How plant-based eating helps him manage daytime sleepiness
  • Why narcolepsy is still not classified as a disability in Taiwan
  • His honest answer to the “red button” question


Why This Episode Matters


Narcolepsy doesn’t look the same in every country — and Jayson’s story highlights how culture, healthcare systems, and expectations shape the lived experience of sleep disorders. This conversation challenges stereotypes and proves that strength doesn’t always look like pushing harder — sometimes it looks like resting smarter.

New Episode Out Now: https://www.napsforlife.com/podcast/episode/7f587a5c/s4e5-running-half-marathons-with-narcolepsy-jaysons-story-from-taiwan

About the Guest

Jayson is a PE teacher, endurance runner, and advocate from Taipei, Taiwan, living with Narcolepsy Type 1 with cataplexy. He uses movement, structure, and self-reflection to manage his condition and raise awareness across cultures.


Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-18448475 Wed, 07 Jan 2026 00:00:00 +0000 2090 narcolepsy type 1, cataplexy, narcolepsy awareness, narcolepsy in Asia, Taiwan narcolepsy, sleep disorders, invisible illness, chronic illness stories, living with narcolepsy, narcolepsy podcast, exercise and narcolepsy, plant-based diet narcolepsy 4 5 full false S1E2: Advocacy Series: Lifting the Silence: Sleep Disorders Advocacy with Claire Wylds-Wright S1E2: Advocacy Series: Lifting the Silence: Sleep Disorders Advocacy with Claire Wylds-Wright Leave a review!

In this powerful episode of the Narcolepsy Navigators Podcast, hosts Kerly and Liz kick off a new advocacy-focused series spotlighting changemakers in the sleep disorder community.

They’re joined by Claire Wylds Wright, a UK-based advocate whose journey into advocacy began when her daughter was diagnosed with narcolepsy at a young age. What started as a search for answers quickly evolved into a mission to create change—leading Claire to become an author, mentor, and co-founder of the Sleep Consortium.

Claire shares what it really takes to advocate within healthcare systems, why listening is one of the most powerful tools in medicine, and how collaboration is shaping the future of sleep disorder research and treatment. The conversation also tackles misconceptions, healthcare disparities, and what upcoming treatments could mean for families worldwide.

This episode is a must-listen for advocates, caregivers, clinicians, and anyone passionate about better sleep health outcomes.

What You’ll Learn in This Episode:

  • How advocacy often begins at the diagnosis stage
  • Why patient voices matter in healthcare decision-making
  • The mission behind the Sleep Consortium
  • Differences between UK and US healthcare systems
  • Racial disparities in sleep disorder diagnosis and care
  • The future of narcolepsy and hypersomnia treatments
  • Advice for new advocates entering the space

🎧 Listen now and join the movement shaping the future of sleep health.

Bio: 

Claire is an award-winning author and patient advocate for people living with sleep disorders. After her daughter Mathilda developed Type1 Narcolepsy in 2010, her family moved from England to California to secure treatment and expert care for Mathilda under Professor Emmanuel Mignot at Stanford. Her book Waking Mathilda—A Memoir of Childhood Narcolepsy was published in 2017 and tells the story of parenting a young child with Narcolepsy and the impact of Mathilda’s diagnosis on her life and her family. She lives in Los Angeles with her son, daughter, and cat Mochi.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this powerful episode of the Narcolepsy Navigators Podcast, hosts Kerly and Liz kick off a new advocacy-focused series spotlighting changemakers in the sleep disorder community.

They’re joined by Claire Wylds Wright, a UK-based advocate whose journey into advocacy began when her daughter was diagnosed with narcolepsy at a young age. What started as a search for answers quickly evolved into a mission to create change—leading Claire to become an author, mentor, and co-founder of the Sleep Consortium.

Claire shares what it really takes to advocate within healthcare systems, why listening is one of the most powerful tools in medicine, and how collaboration is shaping the future of sleep disorder research and treatment. The conversation also tackles misconceptions, healthcare disparities, and what upcoming treatments could mean for families worldwide.

This episode is a must-listen for advocates, caregivers, clinicians, and anyone passionate about better sleep health outcomes.

What You’ll Learn in This Episode:

  • How advocacy often begins at the diagnosis stage
  • Why patient voices matter in healthcare decision-making
  • The mission behind the Sleep Consortium
  • Differences between UK and US healthcare systems
  • Racial disparities in sleep disorder diagnosis and care
  • The future of narcolepsy and hypersomnia treatments
  • Advice for new advocates entering the space

🎧 Listen now and join the movement shaping the future of sleep health.

Bio: 

Claire is an award-winning author and patient advocate for people living with sleep disorders. After her daughter Mathilda developed Type1 Narcolepsy in 2010, her family moved from England to California to secure treatment and expert care for Mathilda under Professor Emmanuel Mignot at Stanford. Her book Waking Mathilda—A Memoir of Childhood Narcolepsy was published in 2017 and tells the story of parenting a young child with Narcolepsy and the impact of Mathilda’s diagnosis on her life and her family. She lives in Los Angeles with her son, daughter, and cat Mochi.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-18417907 Sat, 27 Dec 2025 13:00:00 +0000 3343 narcolepsy advocacy, sleep disorder awareness, hypersomnia advocacy, patient advocacy healthcare, sleep health podcast, narcolepsy support, sleep medicine innovation, healthcare listening, sleep disorder disparities, advocacy storytelling, caregiver advoc 1 2 full false S4E4: Microsleeps, Hallucinations & Homework: Wendy’s Daily Fight S4E4: Microsleeps, Hallucinations & Homework: Wendy’s Daily Fight Leave a review!

In this powerful and eye-opening conversation, 18-year-old Wendy shares what life is really like growing up with narcolepsy type 1 with cataplexy. Diagnosed at just 13 years old, Wendy opens up about sleep attacks in class, cataplexy triggered by laughter, hallucinations vivid enough to call the police, and the emotional toll of being a teenager who never gets to “just be a teenager.”

Through humor, honesty, and incredible resilience, Wendy talks about friendships, family, school accommodations, dating with narcolepsy, and what it means to walk into adulthood with a chronic sleep disorder — completely unmedicated.

Her story will break your heart, make you laugh, and leave you inspired.

In This Episode, We Discuss:

  • Early symptoms and Wendy’s shockingly fast drop into REM (1.5 minutes!)
  • Managing 10+ cataplexy episodes a day
  • Being a teen with a hidden disability that classmates don’t understand
  • The fear and reality of hallucinations
  • Microsleeps, automatic behavior & writing dreams in school notes
  • Why Wendy chose to stay unmedicated
  • Accommodations in school and the struggle to be believed
  • Navigating friendship, dating & self-worth
  • Her dream of creating films that portray chronic illness accurately
  • Advice for teens with narcolepsy who feel alone

New Episode Out Now 

Link: https://www.napsforlife.com/podcast/episode/7e049ba0/s4e4-microsleeps-hallucinations-and-homework-wendys-daily-fight 

Wendy is a passionate teen advocate and the creator of the narcolepsy awareness page @undyingnoir, where she designs educational infographics and shares her journey. She is beginning her college path in Film Production and hopes to create media that reflects real, misunderstood conditions like narcolepsy.

Follow Wendy:

Instagram: @undyingnoir

Support the Podcast

Join our Patreon for bonus episodes, behind-the-scenes content, Discord access, and exclusive merch.
 Visit: napsforlife.com

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this powerful and eye-opening conversation, 18-year-old Wendy shares what life is really like growing up with narcolepsy type 1 with cataplexy. Diagnosed at just 13 years old, Wendy opens up about sleep attacks in class, cataplexy triggered by laughter, hallucinations vivid enough to call the police, and the emotional toll of being a teenager who never gets to “just be a teenager.”

Through humor, honesty, and incredible resilience, Wendy talks about friendships, family, school accommodations, dating with narcolepsy, and what it means to walk into adulthood with a chronic sleep disorder — completely unmedicated.

Her story will break your heart, make you laugh, and leave you inspired.

In This Episode, We Discuss:

  • Early symptoms and Wendy’s shockingly fast drop into REM (1.5 minutes!)
  • Managing 10+ cataplexy episodes a day
  • Being a teen with a hidden disability that classmates don’t understand
  • The fear and reality of hallucinations
  • Microsleeps, automatic behavior & writing dreams in school notes
  • Why Wendy chose to stay unmedicated
  • Accommodations in school and the struggle to be believed
  • Navigating friendship, dating & self-worth
  • Her dream of creating films that portray chronic illness accurately
  • Advice for teens with narcolepsy who feel alone

New Episode Out Now 

Link: https://www.napsforlife.com/podcast/episode/7e049ba0/s4e4-microsleeps-hallucinations-and-homework-wendys-daily-fight 

Wendy is a passionate teen advocate and the creator of the narcolepsy awareness page @undyingnoir, where she designs educational infographics and shares her journey. She is beginning her college path in Film Production and hopes to create media that reflects real, misunderstood conditions like narcolepsy.

Follow Wendy:

Instagram: @undyingnoir

Support the Podcast

Join our Patreon for bonus episodes, behind-the-scenes content, Discord access, and exclusive merch.
 Visit: napsforlife.com

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-18279172 Wed, 10 Dec 2025 00:00:00 +0000 3531 narcolepsy, narcolepsy type 1, cataplexy, teen narcolepsy, sleep attacks, microsleeps, vivid hallucinations, automatic behavior, chronic illness in teens, hidden disability, narcolepsy symptoms, narcolepsy diagnosis, narcolepsy awareness, teen health, 4 full false S4 E3: Beyond Narcolepsy: A Journey of Consciousness and Healing S4 E3: Beyond Narcolepsy: A Journey of Consciousness and Healing Leave a review!

Trigger Content Notice:

 This episode discusses psychedelics, substance use, religious/spiritual themes, and past trauma. Listener discretion advised.

Leave a review!

In this powerful and vulnerable episode of Narcolepsy Navigators, we sit down with Alexander, a 28-year-old from Pennsylvania who shares one of the most unique and spiritually profound narcolepsy journeys we’ve heard yet. Diagnosed at 17, his story moves through misdiagnosis, heavy stimulants, sleep paralysis, terrifying hallucinations, dopamine-seeking behaviors, pre-workout amphetamines, and how he rebuilt his life by shifting his mindset — spiritually, psychologically, and physically.

TOPICS COVERED:

  • Narcolepsy diagnosis experience
  • Sleep paralysis + hallucinations
  • Dopamine regulation & reward cycles
  • Pre-workout supplements & hidden stimulants
  • Trauma + head injuries
  • Spiritual awakenings
  • Mushrooms as spiritual tools
  • Self-healing mindset
  • Cataplexy experiences
  • Redefining narcolepsy as “adaptation” instead of “disease.

CONNECT WITH ALEXANDER
IG: @sleepy.b.woke

New Episode Out Now: https://www.napsforlife.com/podcast/episode/7efd5676/s4-e3-beyond-narcolepsy-a-journey-of-consciousness-and-healing


Support the Podcast

Join our Patreon for bonus episodes, behind-the-scenes content, Discord access, and exclusive merch.
 Visit: napsforlife.com


Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast

***If you find these symptoms relatable, please seek medical advice.***

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Trigger Content Notice:

 This episode discusses psychedelics, substance use, religious/spiritual themes, and past trauma. Listener discretion advised.

Leave a review!

In this powerful and vulnerable episode of Narcolepsy Navigators, we sit down with Alexander, a 28-year-old from Pennsylvania who shares one of the most unique and spiritually profound narcolepsy journeys we’ve heard yet. Diagnosed at 17, his story moves through misdiagnosis, heavy stimulants, sleep paralysis, terrifying hallucinations, dopamine-seeking behaviors, pre-workout amphetamines, and how he rebuilt his life by shifting his mindset — spiritually, psychologically, and physically.

TOPICS COVERED:

  • Narcolepsy diagnosis experience
  • Sleep paralysis + hallucinations
  • Dopamine regulation & reward cycles
  • Pre-workout supplements & hidden stimulants
  • Trauma + head injuries
  • Spiritual awakenings
  • Mushrooms as spiritual tools
  • Self-healing mindset
  • Cataplexy experiences
  • Redefining narcolepsy as “adaptation” instead of “disease.

CONNECT WITH ALEXANDER
IG: @sleepy.b.woke

New Episode Out Now: https://www.napsforlife.com/podcast/episode/7efd5676/s4-e3-beyond-narcolepsy-a-journey-of-consciousness-and-healing


Support the Podcast

Join our Patreon for bonus episodes, behind-the-scenes content, Discord access, and exclusive merch.
 Visit: napsforlife.com


Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast

***If you find these symptoms relatable, please seek medical advice.***

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-18315887 Tue, 09 Dec 2025 23:00:00 +0000 2911 narcolepsy stories, sleep paralysis experience, spiritual awakening narcolepsy, narcolepsy symptoms, cataplexy episodes, dopamine and sleep, pre-workout stimulants, healing mindset, chronic illness journey, trauma and sleep disorders, deep rest techniques 4 3 full false S4E2: Firefighter, EMT, Advocate: Tara O'Connor Redefines What’s Possible with Narcolepsy S4E2: Firefighter, EMT, Advocate: Tara O'Connor Redefines What’s Possible with Narcolepsy Leave a review!

In this episode of NAR Lipsey Navigators, hosted by Kerly and Liz, the spotlight is on Tara, a 27-year-old woman from Maine who has been living with narcolepsy type 1. Tara shares her story, from being misdiagnosed with ADHD and ODD as a child to finally receiving the correct diagnosis at 22. She discusses her struggles with maintaining jobs, her journey through various treatments, and the significant lifestyle changes she implemented after her diagnosis. Tara's advocacy work, including her role as a patient ambassador for WSG and her social media presence, underscores her commitment to raising awareness about narcolepsy. The episode also delves into the challenges and triumphs of living with a chronic sleep disorder, offering a poignant look at resilience and self-advocacy.

Episode Out Now! 

Link: https://www.napsforlife.com/podcast/episode/81863df7/s4e2-firefighter-emt-advocate-tara-oconnor-redefines-whats-possible-with-narcolepsy

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this episode of NAR Lipsey Navigators, hosted by Kerly and Liz, the spotlight is on Tara, a 27-year-old woman from Maine who has been living with narcolepsy type 1. Tara shares her story, from being misdiagnosed with ADHD and ODD as a child to finally receiving the correct diagnosis at 22. She discusses her struggles with maintaining jobs, her journey through various treatments, and the significant lifestyle changes she implemented after her diagnosis. Tara's advocacy work, including her role as a patient ambassador for WSG and her social media presence, underscores her commitment to raising awareness about narcolepsy. The episode also delves into the challenges and triumphs of living with a chronic sleep disorder, offering a poignant look at resilience and self-advocacy.

Episode Out Now! 

Link: https://www.napsforlife.com/podcast/episode/81863df7/s4e2-firefighter-emt-advocate-tara-oconnor-redefines-whats-possible-with-narcolepsy

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-17979256 Thu, 09 Oct 2025 06:00:00 +0100 2557 #NarcolepsyAwareness, #SleepHealth , #ChronicIllness , #NarcolepsyNavigators, #InvisibleIllness, #NarcolepsyCommunity, #Lumryz , #SodiumOxybate, #NarcolepsyType1, #SleepDisorders, #PatientAdvocate, #WomenWithNarcolepsy, #HealthPodcast, #NarcolepsyJourne 4 2 full false S4E1: Kleine Levin Syndrome: Parenting Through The Challenges S4E1: Kleine Levin Syndrome: Parenting Through The Challenges Leave a review!

In this heartfelt episode of Narcolepsy Navigators, Gabrielle and Paul share their family’s journey of raising a child with Kleine Levin Syndrome (KLS), also known as “Sleeping Beauty Syndrome.” Speaking openly about the uncertainty, the emotional toll, and the small victories, they offer listeners an inside look at how KLS impacts their son’s daily life — from sleeping 16–20 hours a day during episodes to rediscovering joy when awake.

The conversation touches on:

  • The challenges of finding a diagnosis in rural Maine.
  • Navigating school, healthcare, and family life with a rare sleep disorder.
  • What support systems truly mean for children and parents.
  • Why raising awareness of KLS is critical to changing perceptions.

This episode is not only a story of resilience and advocacy, but also a reminder of the importance of community for families facing rare conditions.

Listen in and be inspired by their courage, honesty, and determination to give their son the best life possible.

Episode Out Now

Link: https://www.napsforlife.com/podcast/episode/80bdf6b0/s4e1-klein-levin-syndrome-parenting-through-the-challenges 


#KleineLevinSyndrome #KLSAwareness #RareSleepDisorder #NarcolepsyPodcast #ParentingRareDisease #SleepHealthAdvocacy #ChildhoodSleepDisorder #InvisibleIllness #RareDiseasePodcast #KLSParentsPerspective #RareNeurologicalDisorder #IdiopathicHypersomnia #LivingWithKLS #RareDiseaseAwareness #SleepDisordersCommunity

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this heartfelt episode of Narcolepsy Navigators, Gabrielle and Paul share their family’s journey of raising a child with Kleine Levin Syndrome (KLS), also known as “Sleeping Beauty Syndrome.” Speaking openly about the uncertainty, the emotional toll, and the small victories, they offer listeners an inside look at how KLS impacts their son’s daily life — from sleeping 16–20 hours a day during episodes to rediscovering joy when awake.

The conversation touches on:

  • The challenges of finding a diagnosis in rural Maine.
  • Navigating school, healthcare, and family life with a rare sleep disorder.
  • What support systems truly mean for children and parents.
  • Why raising awareness of KLS is critical to changing perceptions.

This episode is not only a story of resilience and advocacy, but also a reminder of the importance of community for families facing rare conditions.

Listen in and be inspired by their courage, honesty, and determination to give their son the best life possible.

Episode Out Now

Link: https://www.napsforlife.com/podcast/episode/80bdf6b0/s4e1-klein-levin-syndrome-parenting-through-the-challenges 


#KleineLevinSyndrome #KLSAwareness #RareSleepDisorder #NarcolepsyPodcast #ParentingRareDisease #SleepHealthAdvocacy #ChildhoodSleepDisorder #InvisibleIllness #RareDiseasePodcast #KLSParentsPerspective #RareNeurologicalDisorder #IdiopathicHypersomnia #LivingWithKLS #RareDiseaseAwareness #SleepDisordersCommunity

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-17924778 Wed, 01 Oct 2025 12:00:00 +0100 4649 Klein Levin Syndrome, KLS awareness, rare sleep disorder, narcolepsy podcast, parenting rare disease, sleep health advocacy, childhood sleep disorder, invisible illness, rare disease podcast, KLS parents perspective, rare neurological disorder, idiopathic 4 1 full false S3E12 Navigating Narcolepsy with Lucas and Kathy: Insights from Canada S3E12 Navigating Narcolepsy with Lucas and Kathy: Insights from Canada Leave a review!

In this episode of Narcolepsy Navigators, hosted by Kerry Bwoga, the founder of Naps for Life, CIC, we sit down with 11-year-old Lucas and his mother Kathy from Toronto, Canada. Lucas shares his experiences living with Type 1 narcolepsy, detailing his daily struggles with sleepiness, cataplexy, and how he manages to stay active. Kathy provides insights into the challenges of navigating the Canadian healthcare system, advocating for better support and understanding for pediatric narcolepsy. The episode also highlights the importance of community support and awareness in managing sleep disorders. Additionally, Kerry announces the launch of their new Patreon and merch store to help support their advocacy efforts.

Highlights:

02:45 Lucas's Narcolepsy Journey

09:06 Sleep Tests and Diagnosis

12:04 Support Systems and Coping Strategies

19:37 Parental Perspective on Narcolepsy

29:01 Challenges with Medical Support

32:15 Iron Deficiency and Its Impact

48:30 Raising Awareness and Seeking Support



Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this episode of Narcolepsy Navigators, hosted by Kerry Bwoga, the founder of Naps for Life, CIC, we sit down with 11-year-old Lucas and his mother Kathy from Toronto, Canada. Lucas shares his experiences living with Type 1 narcolepsy, detailing his daily struggles with sleepiness, cataplexy, and how he manages to stay active. Kathy provides insights into the challenges of navigating the Canadian healthcare system, advocating for better support and understanding for pediatric narcolepsy. The episode also highlights the importance of community support and awareness in managing sleep disorders. Additionally, Kerry announces the launch of their new Patreon and merch store to help support their advocacy efforts.

Highlights:

02:45 Lucas's Narcolepsy Journey

09:06 Sleep Tests and Diagnosis

12:04 Support Systems and Coping Strategies

19:37 Parental Perspective on Narcolepsy

29:01 Challenges with Medical Support

32:15 Iron Deficiency and Its Impact

48:30 Raising Awareness and Seeking Support



Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-17883477 Mon, 22 Sep 2025 12:00:00 +0100 3434 3 12 full false S3E11 Navigating Narcolepsy in Namibia Josephine's Journey S3E11 Navigating Narcolepsy in Namibia Josephine's Journey Leave a review!

In this episode of Narcolepsy Navigators, hosts Kerly Bwoga and Liz are joined by Josephine Niipinge from Namibia, who shares her experience of living with narcolepsy with cataplexy. Diagnosed at the young age of 13, Josephine discusses the challenges she faced due to perceptions of witchcraft and lack of awareness about her condition in her community. She talks about her struggle to get appropriate medical treatment and how it impacted her education and social life. Josephine recounts her journey from being misdiagnosed and taken off medication to eventually finding effective treatment and resuming her studies. She highlights the need for increased awareness about narcolepsy in Namibia and reflects on how her condition has made her more resilient.


Episode Highlights

03:51 Josephine's Diagnosis Journey

04:47 Challenges and Misunderstandings

07:12 Life with Narcolepsy: School and University

21:27 Teaching Career and Managing Narcolepsy

28:01 Living with Narcolepsy

29:43 Challenges in Social Life and Teaching

34:31 Raising Awareness in Namibia


Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this episode of Narcolepsy Navigators, hosts Kerly Bwoga and Liz are joined by Josephine Niipinge from Namibia, who shares her experience of living with narcolepsy with cataplexy. Diagnosed at the young age of 13, Josephine discusses the challenges she faced due to perceptions of witchcraft and lack of awareness about her condition in her community. She talks about her struggle to get appropriate medical treatment and how it impacted her education and social life. Josephine recounts her journey from being misdiagnosed and taken off medication to eventually finding effective treatment and resuming her studies. She highlights the need for increased awareness about narcolepsy in Namibia and reflects on how her condition has made her more resilient.


Episode Highlights

03:51 Josephine's Diagnosis Journey

04:47 Challenges and Misunderstandings

07:12 Life with Narcolepsy: School and University

21:27 Teaching Career and Managing Narcolepsy

28:01 Living with Narcolepsy

29:43 Challenges in Social Life and Teaching

34:31 Raising Awareness in Namibia


Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-17848848 Mon, 15 Sep 2025 20:00:00 +0100 3088 narcolepsy awareness, narcolepsy podcast, life with narcolepsy, sleep disorder advocacy, invisible illness stories, narcolepsy stigma, international, chronic illness acceptance, living with narcolepsy, narcolepsy diagnosis journey, 3 11 full true S3E10: Fred: Finding Freedom & Life on the Road with Narcolepsy S3E10: Fred: Finding Freedom & Life on the Road with Narcolepsy Leave a review!

This week on Narcolepsy Navigators, Kerly sits down with Fred to explore what it truly means to live with narcolepsy while navigating identity, stigma, and self-acceptance. Fred opens up about the diagnosis journey, the challenges of being misunderstood, and how to balance vulnerability with strength.

From redefining what “disabled” means to them personally, to highlighting the importance of visibility and representation, Fred’s story is a powerful reminder that life with narcolepsy is not defined by limitations—but by resilience, courage, and the choice to live authentically.

This episode is about breaking silence, reclaiming identity, and inspiring others in the sleep disorder community to embrace their truth. Whether you live with narcolepsy, support someone who does, or simply want to learn more, Fred’s voice will move you.

Chapters

  • 00:00 Introduction & Meet Fred
  • 05:20 Early Experiences with Narcolepsy
  • 14:45 The Emotional Weight of Diagnosis
  • 23:10 Identity, Stigma, and Representation
  • 34:00 Finding Hope and Resilience

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

This week on Narcolepsy Navigators, Kerly sits down with Fred to explore what it truly means to live with narcolepsy while navigating identity, stigma, and self-acceptance. Fred opens up about the diagnosis journey, the challenges of being misunderstood, and how to balance vulnerability with strength.

From redefining what “disabled” means to them personally, to highlighting the importance of visibility and representation, Fred’s story is a powerful reminder that life with narcolepsy is not defined by limitations—but by resilience, courage, and the choice to live authentically.

This episode is about breaking silence, reclaiming identity, and inspiring others in the sleep disorder community to embrace their truth. Whether you live with narcolepsy, support someone who does, or simply want to learn more, Fred’s voice will move you.

Chapters

  • 00:00 Introduction & Meet Fred
  • 05:20 Early Experiences with Narcolepsy
  • 14:45 The Emotional Weight of Diagnosis
  • 23:10 Identity, Stigma, and Representation
  • 34:00 Finding Hope and Resilience

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-17762500 Sun, 31 Aug 2025 19:00:00 +0100 3726 narcolepsy awareness, narcolepsy podcast, life with narcolepsy, sleep disorder advocacy, invisible illness stories, narcolepsy stigma, disability identity, chronic illness acceptance, living with narcolepsy, narcolepsy diagnosis journey, breaking disabil 3 10 full false S3E9 Soheila’s Story: Breaking the Narcolepsy Silence in France S3E9 Soheila’s Story: Breaking the Narcolepsy Silence in France Leave a review!

In this inspiring episode of Narcolepsy Navigators, we sit down with Soheila, a 22-year-old from the north of France, to explore what it’s like growing up with narcolepsy. Diagnosed after years of symptoms and medical misunderstandings, Soheila shares her journey from confusion and isolation to self-acceptance and advocacy.

She opens up about navigating school, work, and friendships while managing sleep attacks, memory issues, and the stigma surrounding narcolepsy in France. From unsupportive managers to incredibly understanding friends, Soheila’s story is a powerful example of resilience, self-advocacy, and finding community.

We discuss cultural attitudes toward chronic illness, the importance of supportive healthcare providers, and how Soheila is now using her voice to raise awareness through her new French podcast on sleep disorders. In one of the most moving moments, she shares why she wouldn’t press the “red button” to cure her narcolepsy—and how it has shaped her into the strong, determined person she is today.


Episode Highlights: 

00:00 – Introduction
 05:00 – Navigating Work with Narcolepsy
 09:15 – The Long Road to Diagnosis
 14:00 – Finding Acceptance Through Support
 17:00 – Family Reactions and Challenges
 23:00 – Friends, Loss, and True Support
 27:20 – Misconceptions About Narcolepsy in France
 31:10 – What Needs to Change in Society
 35:20 – Managing Symptoms and Daily Life
 39:30 – Social Life, Dating, and Boundaries
 44:14 – Advocacy and Launching Her Podcast
 48:58 – Why She Wouldn’t Cure Her Narcolepsy



Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this inspiring episode of Narcolepsy Navigators, we sit down with Soheila, a 22-year-old from the north of France, to explore what it’s like growing up with narcolepsy. Diagnosed after years of symptoms and medical misunderstandings, Soheila shares her journey from confusion and isolation to self-acceptance and advocacy.

She opens up about navigating school, work, and friendships while managing sleep attacks, memory issues, and the stigma surrounding narcolepsy in France. From unsupportive managers to incredibly understanding friends, Soheila’s story is a powerful example of resilience, self-advocacy, and finding community.

We discuss cultural attitudes toward chronic illness, the importance of supportive healthcare providers, and how Soheila is now using her voice to raise awareness through her new French podcast on sleep disorders. In one of the most moving moments, she shares why she wouldn’t press the “red button” to cure her narcolepsy—and how it has shaped her into the strong, determined person she is today.


Episode Highlights: 

00:00 – Introduction
 05:00 – Navigating Work with Narcolepsy
 09:15 – The Long Road to Diagnosis
 14:00 – Finding Acceptance Through Support
 17:00 – Family Reactions and Challenges
 23:00 – Friends, Loss, and True Support
 27:20 – Misconceptions About Narcolepsy in France
 31:10 – What Needs to Change in Society
 35:20 – Managing Symptoms and Daily Life
 39:30 – Social Life, Dating, and Boundaries
 44:14 – Advocacy and Launching Her Podcast
 48:58 – Why She Wouldn’t Cure Her Narcolepsy



Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-17676290 Sat, 16 Aug 2025 13:00:00 +0100 3100 narcolepsy stories, narcolepsy awareness, living with narcolepsy, narcolepsy in France, chronic illness advocacy, sleep disorders, idiopathic hypersomnia, kleine levin syndrome, sleep attack, narcolepsy diagnosis, narcolepsy support, chronic illness resi 3 9 full false S3E8 Gina: Narcolepsy Through a Parent’s Eyes S3E8 Gina: Narcolepsy Through a Parent’s Eyes Leave a review!

When Gina’s six-year-old son began showing unusual sleepiness, tantrums, and sudden collapses, she never imagined it would lead to a diagnosis of narcolepsy with cataplexy. In this heartfelt and insightful conversation, Gina shares the highs and lows of navigating a rare sleep disorder as a parent and caregiver.

From the emotional rollercoaster of seeking answers to the relief of finally having a diagnosis, Gina offers an unfiltered look at the realities of raising a child with narcolepsy—balancing treatment trials, advocating in the school system, managing emotional well-being, and holding the family together through it all.

She discusses the transformative moments that shifted her perspective, the importance of trusting maternal instincts, and why building the right medical team is vital. Gina’s story is more than a caregiver’s account—it’s a testament to resilience, advocacy, and love.

Whether you’re a parent, a person living with narcolepsy, or simply curious about the human side of chronic illness, this episode offers both practical wisdom and heartfelt inspiration.

Key moments:

  • 03:13 – First symptoms and the long road to diagnosis
  • 06:03 – Receiving the narcolepsy diagnosis
  • 12:02 – Learning to trust maternal instincts
  • 15:14 – Puberty’s impact on symptoms
  • 22:15 – Caregiver grief and acceptance
  • 36:46 – Navigating school accommodations
  • 39:35 – Final reflections and words of encouragement

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

When Gina’s six-year-old son began showing unusual sleepiness, tantrums, and sudden collapses, she never imagined it would lead to a diagnosis of narcolepsy with cataplexy. In this heartfelt and insightful conversation, Gina shares the highs and lows of navigating a rare sleep disorder as a parent and caregiver.

From the emotional rollercoaster of seeking answers to the relief of finally having a diagnosis, Gina offers an unfiltered look at the realities of raising a child with narcolepsy—balancing treatment trials, advocating in the school system, managing emotional well-being, and holding the family together through it all.

She discusses the transformative moments that shifted her perspective, the importance of trusting maternal instincts, and why building the right medical team is vital. Gina’s story is more than a caregiver’s account—it’s a testament to resilience, advocacy, and love.

Whether you’re a parent, a person living with narcolepsy, or simply curious about the human side of chronic illness, this episode offers both practical wisdom and heartfelt inspiration.

Key moments:

  • 03:13 – First symptoms and the long road to diagnosis
  • 06:03 – Receiving the narcolepsy diagnosis
  • 12:02 – Learning to trust maternal instincts
  • 15:14 – Puberty’s impact on symptoms
  • 22:15 – Caregiver grief and acceptance
  • 36:46 – Navigating school accommodations
  • 39:35 – Final reflections and words of encouragement

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-17617698 Sat, 09 Aug 2025 20:00:00 +0100 2604 narcolepsy caregiver, parenting with narcolepsy, childhood narcolepsy, rare sleep disorders, cataplexy, narcolepsy awareness, parenting chronic illness, sleep disorder advocacy, school accommodations narcolepsy, caregiver mental health, narcolepsy in chil 3 8 full true S3E7 Hustling with Narcolepsy: Hugh’s Freelance Path S3E7 Hustling with Narcolepsy: Hugh’s Freelance Path Leave a review!

What if managing a condition could open new doors and redefine your career path? Meet Hugh, a talented video technologist from Plymouth, UK who has navigated the unpredictable waters of narcolepsy while making waves in the live entertainment industry. From working on big rock concerts to contributing to cutting-edge virtual productions like “The Mandalorian,” Hugh shares his unique insights into balancing a demanding career with the challenges of a condition that began during his university years. Join us as we explore how his journey has led him to embrace self-employment, offering the flexibility he needs to manage his symptoms while pursuing his passion for entertainment and technology.

You'll learn how community support plays a vital role in living with narcolepsy, and the hurdles one might face due to medication restrictions across different regions. With candid discussions around symptoms like sleep paralysis and vivid hypnagogic hallucinations, Hugh opens up about the emotional and practical realities of living with this condition. Discover how he has adjusted his life and career, the importance of accommodating work environments, and the ways in which cultural perceptions of narcolepsy can influence opportunities in unexpected ways.

Throughout this episode, we also touch upon the significance of managing narcolepsy symptoms without medication, the impact of new treatments like Wackix, and the role of naps in maintaining productivity. Hugh's reflections extend to gender-specific challenges and the need for more research on hormonal changes affecting those with narcolepsy. This conversation is not just about living with a condition; it's a testament to resilience, adaptability, and the power of advocacy, offering invaluable insights for anyone affected by or interested in narcolepsy.

Chapters

(00:13) Narcolepsy Navigators Intro
(11:12) Living With Narcolepsy
(24:10) Navigating Life With Narcolepsy
(28:26) Empowering Narcolepsy Advocacy Through Self-Employment
(35:59) Managing Narcolepsy Symptoms Without Medication
(40:38) Navigating Narcolepsy and Gender Roles



Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

What if managing a condition could open new doors and redefine your career path? Meet Hugh, a talented video technologist from Plymouth, UK who has navigated the unpredictable waters of narcolepsy while making waves in the live entertainment industry. From working on big rock concerts to contributing to cutting-edge virtual productions like “The Mandalorian,” Hugh shares his unique insights into balancing a demanding career with the challenges of a condition that began during his university years. Join us as we explore how his journey has led him to embrace self-employment, offering the flexibility he needs to manage his symptoms while pursuing his passion for entertainment and technology.

You'll learn how community support plays a vital role in living with narcolepsy, and the hurdles one might face due to medication restrictions across different regions. With candid discussions around symptoms like sleep paralysis and vivid hypnagogic hallucinations, Hugh opens up about the emotional and practical realities of living with this condition. Discover how he has adjusted his life and career, the importance of accommodating work environments, and the ways in which cultural perceptions of narcolepsy can influence opportunities in unexpected ways.

Throughout this episode, we also touch upon the significance of managing narcolepsy symptoms without medication, the impact of new treatments like Wackix, and the role of naps in maintaining productivity. Hugh's reflections extend to gender-specific challenges and the need for more research on hormonal changes affecting those with narcolepsy. This conversation is not just about living with a condition; it's a testament to resilience, adaptability, and the power of advocacy, offering invaluable insights for anyone affected by or interested in narcolepsy.

Chapters

(00:13) Narcolepsy Navigators Intro
(11:12) Living With Narcolepsy
(24:10) Navigating Life With Narcolepsy
(28:26) Empowering Narcolepsy Advocacy Through Self-Employment
(35:59) Managing Narcolepsy Symptoms Without Medication
(40:38) Navigating Narcolepsy and Gender Roles



Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-17521227 Mon, 21 Jul 2025 17:00:00 +0100 3192 cataplexy, narcolepsy, Sleep disorder awareness, health, chronic conditions, UK, Disability, Mental health, storytelling, stories, real life stories, podcast true story, health podcast, episode, narcolepsy navigators 3 7 full false S3E6 - Rebecca's Resilience: Navigating Life with Narcolepsy and ADHD S3E6 - Rebecca's Resilience: Navigating Life with Narcolepsy and ADHD Leave a review!

In this eye-opening episode, we meet Rebecca from North Carolina, who shares her deeply personal and powerful experience living with narcolepsy type 1, cataplexy, ADHD, and a rare condition called gluten ataxia.

From the moment she describes sleep attacks hitting like an unstoppable sneeze to navigating misunderstood conditions while holding down jobs, attending interviews, and trying to maintain a “normal” social life—Rebecca paints a raw and relatable picture of life with multiple overlapping diagnoses.

She also opens up about:

Why she quit her stressful job to protect her health

The physical and emotional toll of food sensitivities

How her boyfriend and even her dog can spot sleep attacks before she can

The struggle between being social and simply surviving an outing

Using Luvox, an anti-anxiety medication, to manage cataplexy

Why she wouldn’t trade her narcolepsy for her ADHD


From hilarious analogies (sugar cravings as “fake diabetes attacks”) to heartbreaking amnesia moments, this episode is a masterclass in self-awareness, boundaries, and advocacy.

🔗 Plus: learn about her Facebook community for navigating gluten and dairy-free living with autoimmune disorders.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this eye-opening episode, we meet Rebecca from North Carolina, who shares her deeply personal and powerful experience living with narcolepsy type 1, cataplexy, ADHD, and a rare condition called gluten ataxia.

From the moment she describes sleep attacks hitting like an unstoppable sneeze to navigating misunderstood conditions while holding down jobs, attending interviews, and trying to maintain a “normal” social life—Rebecca paints a raw and relatable picture of life with multiple overlapping diagnoses.

She also opens up about:

Why she quit her stressful job to protect her health

The physical and emotional toll of food sensitivities

How her boyfriend and even her dog can spot sleep attacks before she can

The struggle between being social and simply surviving an outing

Using Luvox, an anti-anxiety medication, to manage cataplexy

Why she wouldn’t trade her narcolepsy for her ADHD


From hilarious analogies (sugar cravings as “fake diabetes attacks”) to heartbreaking amnesia moments, this episode is a masterclass in self-awareness, boundaries, and advocacy.

🔗 Plus: learn about her Facebook community for navigating gluten and dairy-free living with autoimmune disorders.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> https://narcolepsynavigators.buzzsprout.com/2470276/episodes/17450263-s3e6-rebecca-s-resilience-navigating-life-with-narcolepsy-and-adhd Kerly Bwoga Buzzsprout-17450263 Fri, 04 Jul 2025 18:00:00 +0100 2557 Narcolepsy, support group, invisible illness, podcast, sleep, ADHD, rare conditions, neurodiversity, 3 6 full false S3E5 Lisa's Story: From Falling Asleep at Work to Entrepreneur S3E5 Lisa's Story: From Falling Asleep at Work to Entrepreneur Leave a review!

In this heartfelt episode of Narcolepsy Navigators, Kerly sits down with Lisa Isaac, an inspiring woman living with narcolepsy type 1 and cataplexy in New Zealand. From her days as a sporty teenager needing frequent naps, to being misdiagnosed with epilepsy, Lisa shares her winding journey to an accurate diagnosis — and how she finally found community and support.

Lisa opens up about:

  • Her move from the UK to New Zealand
  • Being dismissed by doctors and labeled "lazy"
  • Her struggle with cataplexy triggered by laughter
  • The challenges of living in a country with few specialists
  • How creativity became her unexpected lifeline

Lisa’s story is a testament to resilience, advocacy, and the power of finding community. Her laughter is infectious, her honesty is refreshing, and her advice for others is invaluable.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this heartfelt episode of Narcolepsy Navigators, Kerly sits down with Lisa Isaac, an inspiring woman living with narcolepsy type 1 and cataplexy in New Zealand. From her days as a sporty teenager needing frequent naps, to being misdiagnosed with epilepsy, Lisa shares her winding journey to an accurate diagnosis — and how she finally found community and support.

Lisa opens up about:

  • Her move from the UK to New Zealand
  • Being dismissed by doctors and labeled "lazy"
  • Her struggle with cataplexy triggered by laughter
  • The challenges of living in a country with few specialists
  • How creativity became her unexpected lifeline

Lisa’s story is a testament to resilience, advocacy, and the power of finding community. Her laughter is infectious, her honesty is refreshing, and her advice for others is invaluable.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-17304516 Mon, 09 Jun 2025 16:00:00 +0100 2877 Narcolepsy, cataplexy, sleep health, chronic illness, mental health 3 5 full false S3E4 Taya’s Tale: How IH Stole My Energy— But Not My Life S3E4 Taya’s Tale: How IH Stole My Energy— But Not My Life Leave a review!

In this episode of Narcolepsy Navigators, we meet the radiant and resilient Taya Austin, a federal employee, nonprofit leader, and auntie-turned-parent, living with Idiopathic Hypersomnia (IH).

After years of being dismissed, misdiagnosed, and told to “just sleep better,” Taya finally received her diagnosis two years ago. From childhood naps and overwhelming exhaustion in college, to hiding her symptoms while earning her master's and serving her community, her story is one of silent suffering turned self-advocacy.

Taya talks candidly about:

  • [06:12] How doctors ignored her fatigue for years
  • [13:17] The moment she refused to be dismissed again
  • [18:03] Learning boundaries and unlearning hustle culture
  • [21:02] How IH impacts dating, friendships, and self-worth
  • [30:01] Her experience with medication, including Xywav
  • [34:19] Why she'd hit the red button to erase IH

💡 Taya’s voice is powerful, full of laughter and light—and rooted in the truth that rest isn’t a luxury, it’s survival.

🎧 Listen now for a deeply relatable episode about learning to slow down, speak up, and take your life back—nap by nap.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this episode of Narcolepsy Navigators, we meet the radiant and resilient Taya Austin, a federal employee, nonprofit leader, and auntie-turned-parent, living with Idiopathic Hypersomnia (IH).

After years of being dismissed, misdiagnosed, and told to “just sleep better,” Taya finally received her diagnosis two years ago. From childhood naps and overwhelming exhaustion in college, to hiding her symptoms while earning her master's and serving her community, her story is one of silent suffering turned self-advocacy.

Taya talks candidly about:

  • [06:12] How doctors ignored her fatigue for years
  • [13:17] The moment she refused to be dismissed again
  • [18:03] Learning boundaries and unlearning hustle culture
  • [21:02] How IH impacts dating, friendships, and self-worth
  • [30:01] Her experience with medication, including Xywav
  • [34:19] Why she'd hit the red button to erase IH

💡 Taya’s voice is powerful, full of laughter and light—and rooted in the truth that rest isn’t a luxury, it’s survival.

🎧 Listen now for a deeply relatable episode about learning to slow down, speak up, and take your life back—nap by nap.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-17182294 Sun, 18 May 2025 19:00:00 +0100 2277 Idiopathic Hypersomnia,IH Awareness,Sleep disorders in women,Misdiagnosed fatigue,Black women with chronic illness,Narcolepsy Navigators podcast,Sleep medication,Living with hypersomnia,Fatigue and brain fog,Workplace accommodations,Sleep inertia stories, 3 4 full false S3E3 Crashing Into a Diagnosis: Meg’s Story S3E3 Crashing Into a Diagnosis: Meg’s Story Leave a review!

In this raw and deeply moving episode of Narcolepsy Navigators, we meet Meg—a 36-year-old adoptee, student, and mental health advocate navigating life with narcolepsy type 1, CBID, Behçet’s syndrome, and bipolar disorder. Meg shares the emotional rollercoaster that led to her diagnosis after a devastating car crash, including the haunting vivid dreams, overwhelming fatigue, and misunderstood cataplexy that shaped her early adulthood.

From managing multiple chronic conditions to challenging cultural expectations as a Korean-American adoptee raised in a "tiger mom" household, Meg reflects on identity, resilience, and finding connection through vulnerability. Her candid reflections on depression, dating with chronic illness, and the harsh realities of invisible disabilities will resonate with anyone who’s ever felt like their body betrayed them.

🔹 Chapters:
00:00 – Introduction & Background
04:00 – The Car Crash That Changed Everything
08:00 – Diagnosis: Relief Meets Devastation
12:00 – Comorbidities: Bipolar, CBID, Behçet’s
21:00 – Sleep Struggles, Advocacy & Academic Life
37:00 – Parenting, Future Plans, and Honest Reflections
53:00 – “Would You Press the Red Button?”

This is a powerful reminder that even when life reroutes us, it doesn’t have to end the journey

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this raw and deeply moving episode of Narcolepsy Navigators, we meet Meg—a 36-year-old adoptee, student, and mental health advocate navigating life with narcolepsy type 1, CBID, Behçet’s syndrome, and bipolar disorder. Meg shares the emotional rollercoaster that led to her diagnosis after a devastating car crash, including the haunting vivid dreams, overwhelming fatigue, and misunderstood cataplexy that shaped her early adulthood.

From managing multiple chronic conditions to challenging cultural expectations as a Korean-American adoptee raised in a "tiger mom" household, Meg reflects on identity, resilience, and finding connection through vulnerability. Her candid reflections on depression, dating with chronic illness, and the harsh realities of invisible disabilities will resonate with anyone who’s ever felt like their body betrayed them.

🔹 Chapters:
00:00 – Introduction & Background
04:00 – The Car Crash That Changed Everything
08:00 – Diagnosis: Relief Meets Devastation
12:00 – Comorbidities: Bipolar, CBID, Behçet’s
21:00 – Sleep Struggles, Advocacy & Academic Life
37:00 – Parenting, Future Plans, and Honest Reflections
53:00 – “Would You Press the Red Button?”

This is a powerful reminder that even when life reroutes us, it doesn’t have to end the journey

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-17108890 Tue, 06 May 2025 15:00:00 +0100 3539 3 3 full false S3E2 Cooking, Collapsing, and Cristina’s Cataplexy Life S3E2 Cooking, Collapsing, and Cristina’s Cataplexy Life Leave a review!

🎙️ Ever dropped mid-conversation and had to explain it wasn’t drugs?

In this deeply personal and unexpectedly hilarious episode of Narcolepsy Navigators, we sit down with Cristina, the creator of Gourmet Recovery, to explore how she navigates life with Narcolepsy Type 1, cataplexy, and a solid sense of humor.

Cristina opens up about the frustrating path to diagnosis, being dismissed with chronic fatigue and fibromyalgia, and how her sleep attacks affected school, work, relationships—and even public spaces. From falling asleep in church to hallucinating on public transport, Cristina shares it all: the scary, the silly, and the soul-shifting.

We also talk:

  • [05:44] Misdiagnosis and finding the right doctor
  • [08:51] The emotional impact of being finally diagnosed
  • [11:05] Medication side effects, sleepwalking, and the helmet joke
  • [17:44] Her healing journey through intuitive eating & cooking
  • [23:00] How humor helps her reclaim control
  • [27:44] Why she wears a bracelet in public
  • [34:32] The truth about naps and real-life memory struggles
  • [45:48] Would she press the button to remove narcolepsy?

Cristina reminds us that there’s no right way to live with narcolepsy—only your way.

📲 Follow her at @GourmetRecovery on IG & FB.




Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

🎙️ Ever dropped mid-conversation and had to explain it wasn’t drugs?

In this deeply personal and unexpectedly hilarious episode of Narcolepsy Navigators, we sit down with Cristina, the creator of Gourmet Recovery, to explore how she navigates life with Narcolepsy Type 1, cataplexy, and a solid sense of humor.

Cristina opens up about the frustrating path to diagnosis, being dismissed with chronic fatigue and fibromyalgia, and how her sleep attacks affected school, work, relationships—and even public spaces. From falling asleep in church to hallucinating on public transport, Cristina shares it all: the scary, the silly, and the soul-shifting.

We also talk:

  • [05:44] Misdiagnosis and finding the right doctor
  • [08:51] The emotional impact of being finally diagnosed
  • [11:05] Medication side effects, sleepwalking, and the helmet joke
  • [17:44] Her healing journey through intuitive eating & cooking
  • [23:00] How humor helps her reclaim control
  • [27:44] Why she wears a bracelet in public
  • [34:32] The truth about naps and real-life memory struggles
  • [45:48] Would she press the button to remove narcolepsy?

Cristina reminds us that there’s no right way to live with narcolepsy—only your way.

📲 Follow her at @GourmetRecovery on IG & FB.




Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga Buzzsprout-17037148 Fri, 25 Apr 2025 18:00:00 +0100 3038 cataplexy, narcolepsy, 3 2 full false Medical Series S1E1: Let’s Face It: Emma’s Truth About Sleep Apnea Medical Series S1E1: Let’s Face It: Emma’s Truth About Sleep Apnea Leave a review!

What happens when exhaustion is brushed off as “just stress” or “just pregnancy”?

In this moving episode of Narcolepsy Navigators, Emma Cooksey—host, author, and now Sleep Apnea Program Manager at Project Sleep—shares her long, harrowing journey with undiagnosed obstructive sleep apnea (OSA). After years of misdiagnosis, Emma’s wake-up call came behind the wheel—when she fell asleep while driving pregnant.

Emma dives into her diagnosis story, the daily challenges of adapting to CPAP therapy, and her mission to reshape how sleep apnea is seen and treated—especially for women, younger adults, and people who don’t fit the “classic” profile.

Now leading the Sleep Apnea Squad, Emma is on a mission to raise awareness with Project Sleep’s bold campaign, “Sleep Apnea: Let’s Face It”—a movement designed to highlight real people living with sleep apnea and crush outdated stereotypes.

Highlights:

[08:52] Falling asleep while driving: Emma’s turning point
[16:20] What CPAP therapy doesn’t tell you
[24:50] “Let’s Face It” and sleep apnea stereotypes
[35:47] The deadly risks of going untreated


Bio:

Emma Cooksey is an award-winning patient advocate. She was diagnosed with obstructive sleep apnea at the age of 30, after more than a decade of unexplained health issues. In 2020, Emma launched a weekly podcast, “Sleep Apnea Stories”  to break down stereotypes of sleep apnea while also raising awareness of symptoms and treatment options.

In her current role, as Sleep Apnea Program Manager, Emma runs Project Sleep’s Sleep Apnea Education and Awareness Program. Through this program, she develops new awareness and educational initiatives, to empower people with sleep apnea to seek diagnosis, support, and care. Emma was born and raised in Scotland, holds a Law degree from Aberdeen University, and now lives in Florida with her husband Jason and their two girls.

Tune in for a conversation that’s educational, emotional—and necessary.

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Emma:

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

What happens when exhaustion is brushed off as “just stress” or “just pregnancy”?

In this moving episode of Narcolepsy Navigators, Emma Cooksey—host, author, and now Sleep Apnea Program Manager at Project Sleep—shares her long, harrowing journey with undiagnosed obstructive sleep apnea (OSA). After years of misdiagnosis, Emma’s wake-up call came behind the wheel—when she fell asleep while driving pregnant.

Emma dives into her diagnosis story, the daily challenges of adapting to CPAP therapy, and her mission to reshape how sleep apnea is seen and treated—especially for women, younger adults, and people who don’t fit the “classic” profile.

Now leading the Sleep Apnea Squad, Emma is on a mission to raise awareness with Project Sleep’s bold campaign, “Sleep Apnea: Let’s Face It”—a movement designed to highlight real people living with sleep apnea and crush outdated stereotypes.

Highlights:

[08:52] Falling asleep while driving: Emma’s turning point
[16:20] What CPAP therapy doesn’t tell you
[24:50] “Let’s Face It” and sleep apnea stereotypes
[35:47] The deadly risks of going untreated


Bio:

Emma Cooksey is an award-winning patient advocate. She was diagnosed with obstructive sleep apnea at the age of 30, after more than a decade of unexplained health issues. In 2020, Emma launched a weekly podcast, “Sleep Apnea Stories”  to break down stereotypes of sleep apnea while also raising awareness of symptoms and treatment options.

In her current role, as Sleep Apnea Program Manager, Emma runs Project Sleep’s Sleep Apnea Education and Awareness Program. Through this program, she develops new awareness and educational initiatives, to empower people with sleep apnea to seek diagnosis, support, and care. Emma was born and raised in Scotland, holds a Law degree from Aberdeen University, and now lives in Florida with her husband Jason and their two girls.

Tune in for a conversation that’s educational, emotional—and necessary.

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Emma:

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/2015671 Fri, 18 Apr 2025 19:58:00 +0100 2242 full false S3E1 Sarah: Owning Narcolepsy - The Power of Laughing Back S3E1 Sarah: Owning Narcolepsy - The Power of Laughing Back Leave a review!

In this unmissable Season 3 premiere of Narcolepsy Navigators, we curl up for a heartfelt and hilarious deep dive with comedian and podcaster Sarah Albritton, who opens up about living with narcolepsy type 1 and cataplexy—plus a rare twist: sexsomnia.

From being misdiagnosed as a teenager in Kentucky to becoming an advocate on stage and behind the mic, Sarah’s journey is one of resilience, radical acceptance, and redefining what thriving looks like. She breaks down everything from navigating sleep paralysis and medication barriers to the emotional weight of invisible illnesses—and how comedy helped her heal.

You’ll hear about her solo show Awake: A Narcoleptic, her podcast Sleeping With Sarah, and why she says, “I wouldn’t push a red button to remove narcolepsy. It made me who I am.”

Episode Highlights:

[02:24] Daily life with narcolepsy and cataplexy
[05:36] Living with sexsomnia and the power of communication
[14:19] Sarah’s diagnosis journey and hidden seizures
[33:51] Creating the solo show and raising awareness
[53:04] Cataplexy at Disneyland and emotional triggers
[57:28] How comedy changed her relationship with narcolepsy

Join us for a raw, hilarious, and powerful episode that normalizes sleep disorders and champions authenticity.

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Sarah:
Linktree: https://linktr.ee/sarahalbritton?utm_source=linktree_profile_share&ltsid=724d9c5f-787e-4d16-abbd-19cc2b1a7751
Instagram: https://www.instagram.com/sarahalbritton/
Website: https://sarahalbritton.com/

Follow and support Narcolepsy Navigators:
Website: www.napsforlife.com
Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***

Chapters

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this unmissable Season 3 premiere of Narcolepsy Navigators, we curl up for a heartfelt and hilarious deep dive with comedian and podcaster Sarah Albritton, who opens up about living with narcolepsy type 1 and cataplexy—plus a rare twist: sexsomnia.

From being misdiagnosed as a teenager in Kentucky to becoming an advocate on stage and behind the mic, Sarah’s journey is one of resilience, radical acceptance, and redefining what thriving looks like. She breaks down everything from navigating sleep paralysis and medication barriers to the emotional weight of invisible illnesses—and how comedy helped her heal.

You’ll hear about her solo show Awake: A Narcoleptic, her podcast Sleeping With Sarah, and why she says, “I wouldn’t push a red button to remove narcolepsy. It made me who I am.”

Episode Highlights:

[02:24] Daily life with narcolepsy and cataplexy
[05:36] Living with sexsomnia and the power of communication
[14:19] Sarah’s diagnosis journey and hidden seizures
[33:51] Creating the solo show and raising awareness
[53:04] Cataplexy at Disneyland and emotional triggers
[57:28] How comedy changed her relationship with narcolepsy

Join us for a raw, hilarious, and powerful episode that normalizes sleep disorders and champions authenticity.

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Sarah:
Linktree: https://linktr.ee/sarahalbritton?utm_source=linktree_profile_share&ltsid=724d9c5f-787e-4d16-abbd-19cc2b1a7751
Instagram: https://www.instagram.com/sarahalbritton/
Website: https://sarahalbritton.com/

Follow and support Narcolepsy Navigators:
Website: www.napsforlife.com
Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***

Chapters

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/2007824 Mon, 07 Apr 2025 20:00:00 +0100 4258 3 1 false S2E12 Jacquie & IH: The Reality Beyond Just ‘Tired’ S2E12 Jacquie & IH: The Reality Beyond Just ‘Tired’ Leave a review!

Summary

️ What if it took a decade to get answers?

In this episode of Narcolepsy Navigators, we sit down with Jacquie, a 25-year-old scientist from Texas, to discuss her journey with Idiopathic Hypersomnia (IH)—a sleep disorder that took 10 years to diagnose. From struggling through high school exhaustion to navigating university, lab work, and daily life, Jacquie shares how she advocates for herself and others while juggling a demanding scientific career.

Key Takeaways:
 ✔️ The challenges of getting diagnosed with a rare sleep disorder
 ✔️ What it’s like managing IH in a high-pressure work environment
 ✔️ The mental toll of constantly feeling exhausted
 ✔️ Why raising awareness is crucial for funding future research

For Jacquie, science and advocacy go hand in hand. She refuses to let her condition define her future and is using her voice to create change.

Listen now!

Chapters

(00:00) Navigating Life With Sleep Disorders
(12:58) Navigating Life With Invisible Disabilities
(19:41) Accidental Journey Into Science
(22:43) Navigating Career Aspirations With IH
(26:26) Advocating for Research on Sleep Disorders
(31:41) Navigating and Advocating for Invisible Disabilities
(39:45) Navigating Hope in Adversity

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Jacquie:

Instagram: https://www.instagram.com/thesleepiestscientist/ 

Follow and support Narcolepsy Navigators:

OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com 

 Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Na

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Summary

️ What if it took a decade to get answers?

In this episode of Narcolepsy Navigators, we sit down with Jacquie, a 25-year-old scientist from Texas, to discuss her journey with Idiopathic Hypersomnia (IH)—a sleep disorder that took 10 years to diagnose. From struggling through high school exhaustion to navigating university, lab work, and daily life, Jacquie shares how she advocates for herself and others while juggling a demanding scientific career.

Key Takeaways:
 ✔️ The challenges of getting diagnosed with a rare sleep disorder
 ✔️ What it’s like managing IH in a high-pressure work environment
 ✔️ The mental toll of constantly feeling exhausted
 ✔️ Why raising awareness is crucial for funding future research

For Jacquie, science and advocacy go hand in hand. She refuses to let her condition define her future and is using her voice to create change.

Listen now!

Chapters

(00:00) Navigating Life With Sleep Disorders
(12:58) Navigating Life With Invisible Disabilities
(19:41) Accidental Journey Into Science
(22:43) Navigating Career Aspirations With IH
(26:26) Advocating for Research on Sleep Disorders
(31:41) Navigating and Advocating for Invisible Disabilities
(39:45) Navigating Hope in Adversity

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Jacquie:

Instagram: https://www.instagram.com/thesleepiestscientist/ 

Follow and support Narcolepsy Navigators:

OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com 

 Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Na

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1996595 Thu, 20 Mar 2025 14:20:00 +0000 2842 2 12 false S2E11 Narcolepsy, Mental Health, and Self-Love: A Conversation with Dawn S2E11 Narcolepsy, Mental Health, and Self-Love: A Conversation with Dawn Leave a review!

Summary

What does it mean to truly thrive with narcolepsy?

In this powerful episode of Narcolepsy Navigators, we sit down with Dawn Super, a passionate advocate who has lived with Narcolepsy Type 1 for over 40 years. From childhood isolation to self-acceptance, Dawn takes us through the challenges of growing up misunderstood, learning to manage symptoms, and the mental health struggles that come with living with a chronic illness.

Dawn shares hard-earned wisdom on resilience, self-love, and why finding community is crucial for people with narcolepsy. She also discusses how positivity isn’t about ignoring reality but embracing it with strength and grace.

Whether you have narcolepsy, struggle with mental health, or are looking for inspiration, Dawn’s journey is one you won’t want to miss.

Listen now!

________________________________________________

Chapters

(00:10) Narcolepsy and Mental Health
(07:53) Navigating Social Interactions and Self-Acceptance
(22:04) Personal Growth and Self-Acceptance
(33:15) Resilience and Self-Discovery in Narcolepsy

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Dawn Super:

Website: https://naturalhealing.coach/
Instagram: https://www.instagram.com/healcoach/
LinkedIn: https://www.linkedin.com/in/healcoach/ 
Youtube: https://www.youtube.com/@DawnSuper 

Follow and support Narcolepsy Navigators:

OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com 

 Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@nar

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Summary

What does it mean to truly thrive with narcolepsy?

In this powerful episode of Narcolepsy Navigators, we sit down with Dawn Super, a passionate advocate who has lived with Narcolepsy Type 1 for over 40 years. From childhood isolation to self-acceptance, Dawn takes us through the challenges of growing up misunderstood, learning to manage symptoms, and the mental health struggles that come with living with a chronic illness.

Dawn shares hard-earned wisdom on resilience, self-love, and why finding community is crucial for people with narcolepsy. She also discusses how positivity isn’t about ignoring reality but embracing it with strength and grace.

Whether you have narcolepsy, struggle with mental health, or are looking for inspiration, Dawn’s journey is one you won’t want to miss.

Listen now!

________________________________________________

Chapters

(00:10) Narcolepsy and Mental Health
(07:53) Navigating Social Interactions and Self-Acceptance
(22:04) Personal Growth and Self-Acceptance
(33:15) Resilience and Self-Discovery in Narcolepsy

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Dawn Super:

Website: https://naturalhealing.coach/
Instagram: https://www.instagram.com/healcoach/
LinkedIn: https://www.linkedin.com/in/healcoach/ 
Youtube: https://www.youtube.com/@DawnSuper 

Follow and support Narcolepsy Navigators:

OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com 

 Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@nar

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1984636 Mon, 10 Mar 2025 15:00:00 +0000 2564 2 11 false S2E10 Storytelling with a Purpose: How Tre Burge is Making Waves S2E10 Storytelling with a Purpose: How Tre Burge is Making Waves Leave a review!

Summary

️ What if the world saw narcolepsy for what it truly is?

Meet Tre Burge, an educator, designer, and fierce narcolepsy advocate, as he takes us through his journey of living with Narcolepsy Type 1. Diagnosed at 18, Tre quickly realized the lack of awareness, representation, and resources surrounding sleep disorders—especially in Black and Brown communities.

In this episode, Tre shares how he turned his experience into a mission: from launching Wake Up Entertainment, a creative hub for sleep disorder advocacy, to using social media, fashion, and media storytelling to reshape public perceptions. His passion for authentic representation in film, TV, and online spaces is breaking barriers and sparking conversations worldwide.

Join us for a raw, powerful conversation about creativity, resilience, and the urgent need for accurate narcolepsy awareness.

Listen now!

Chapters

(00:10) Narcolepsy Advocacy Through Personal Journey
(10:51) Creative Representation in Media for Narcolepsy
(24:54) Narcolepsy Advocacy and Representation in Media
(34:01) Building Awareness Through Creativity

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Tre Burges:

Website: https://rb.gy/bq70mr
Instagram: https://www.instagram.com/hefallsasleepshop/
TikTok: https://www.tiktok.com/@hefallsasleep?lang=en 

Follow and support Narcolepsy Navigators:

OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com 

 Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Summary

️ What if the world saw narcolepsy for what it truly is?

Meet Tre Burge, an educator, designer, and fierce narcolepsy advocate, as he takes us through his journey of living with Narcolepsy Type 1. Diagnosed at 18, Tre quickly realized the lack of awareness, representation, and resources surrounding sleep disorders—especially in Black and Brown communities.

In this episode, Tre shares how he turned his experience into a mission: from launching Wake Up Entertainment, a creative hub for sleep disorder advocacy, to using social media, fashion, and media storytelling to reshape public perceptions. His passion for authentic representation in film, TV, and online spaces is breaking barriers and sparking conversations worldwide.

Join us for a raw, powerful conversation about creativity, resilience, and the urgent need for accurate narcolepsy awareness.

Listen now!

Chapters

(00:10) Narcolepsy Advocacy Through Personal Journey
(10:51) Creative Representation in Media for Narcolepsy
(24:54) Narcolepsy Advocacy and Representation in Media
(34:01) Building Awareness Through Creativity

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Tre Burges:

Website: https://rb.gy/bq70mr
Instagram: https://www.instagram.com/hefallsasleepshop/
TikTok: https://www.tiktok.com/@hefallsasleep?lang=en 

Follow and support Narcolepsy Navigators:

OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com 

 Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1983191 Thu, 27 Feb 2025 17:42:06 +0000 2495 2 10 false S2E9 Jamie Nicole: Turning Diagnosis into Purpose S2E9 Jamie Nicole: Turning Diagnosis into Purpose Leave a review!

In this inspiring episode of Narcolepsy Navigators, we meet Jamie Nicole, a certified Holistic Health Coach, Autoimmune Strategist, and unstoppable advocate. Diagnosed with narcolepsy type 2 at 39, Jamie shares her journey of battling years of exhaustion, misdiagnoses, and systemic barriers—all while juggling life as a student, mother, and professional.

Jamie dives deep into her experience with autoimmune diseases, the emotional toll of undiagnosed narcolepsy, and how holistic health practices helped her regain control. From reversing Hashimoto's symptoms to managing narcolepsy through nutrition, movement, and mindset shifts, Jamie’s story is a masterclass in resilience.

Join us as Jamie uncovers the power of self-advocacy, the importance of community support, and why living fully with chronic illness is not just possible—it’s revolutionary.

Chapters

(00:14) Living With Narcolepsy
12:52) Autoimmune Diseases and Narcolepsy Relationships
(22:40) The Struggle With Narcolepsy Diagnosis
(27:59) Narcolepsy and Autoimmune Lifestyle Changes
(41:24) Community Support for Chronic Illness
(46:49) Autoimmune Protocol and Nutrition Strategies
(53:06) Living Optimally With Chronic Illness

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Jamie Nicole:

Website: https://naturalhealing.coach/
Instagram: https://www.instagram.com/healcoach/
LinkedIn: https://www.linkedin.com/in/healcoach/ 

Follow and support Narcolepsy Navigators:

OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com 

 Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube:

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this inspiring episode of Narcolepsy Navigators, we meet Jamie Nicole, a certified Holistic Health Coach, Autoimmune Strategist, and unstoppable advocate. Diagnosed with narcolepsy type 2 at 39, Jamie shares her journey of battling years of exhaustion, misdiagnoses, and systemic barriers—all while juggling life as a student, mother, and professional.

Jamie dives deep into her experience with autoimmune diseases, the emotional toll of undiagnosed narcolepsy, and how holistic health practices helped her regain control. From reversing Hashimoto's symptoms to managing narcolepsy through nutrition, movement, and mindset shifts, Jamie’s story is a masterclass in resilience.

Join us as Jamie uncovers the power of self-advocacy, the importance of community support, and why living fully with chronic illness is not just possible—it’s revolutionary.

Chapters

(00:14) Living With Narcolepsy
12:52) Autoimmune Diseases and Narcolepsy Relationships
(22:40) The Struggle With Narcolepsy Diagnosis
(27:59) Narcolepsy and Autoimmune Lifestyle Changes
(41:24) Community Support for Chronic Illness
(46:49) Autoimmune Protocol and Nutrition Strategies
(53:06) Living Optimally With Chronic Illness

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Jamie Nicole:

Website: https://naturalhealing.coach/
Instagram: https://www.instagram.com/healcoach/
LinkedIn: https://www.linkedin.com/in/healcoach/ 

Follow and support Narcolepsy Navigators:

OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com 

 Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube:

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1971091 Thu, 13 Feb 2025 00:50:00 +0000 3505 2 9 false S2E8 Sleeping for Weeks: Imaarl’s Story with KLS S2E8 Sleeping for Weeks: Imaarl’s Story with KLS Leave a review!

London’s rush never stops—but for Imaarl Duprey, time did.

At 18, what should have been a typical New Year’s Eve turned into the beginning of a mystery illness that would steal weeks, even months, of her life at a time. Diagnosed with Kleine-Levin Syndrome (KLS), or Sleeping Beauty Syndrome, Imaarl found herself trapped in a cycle of disbelief, misdiagnosis, and isolation, waking up to a world that had moved on without her.

In this episode of Narcolepsy Navigators, Imaarl shares what it’s like to lose time, battle stigma, and fight to be believed. She dives into the emotional toll on her family, the frustration of an untreatable condition, and the resilience it takes to rebuild a life interrupted by sleep. Now a mental health advocate and researcher, she’s turning her story into awareness, challenging misconceptions, and proving that rare disorders deserve recognition.

Listen now for a powerful conversation on resilience, advocacy, and reclaiming time.

Chapters

(00:10) Living With Klein-Levin Syndrome
(10:50) Uncontrollable Sleep Episodes and Diagnosis
(14:41) Navigating Life With KLS Diagnosis
(21:44) Impact of KLS Episodes on Life
(27:53) Living With KLS
(36:51) Navigating Stigma Around KLS
(44:48) Navigating Uncertainty With KLS
(50:29) Navigating Life With KLS Challenges

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com 

 Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

London’s rush never stops—but for Imaarl Duprey, time did.

At 18, what should have been a typical New Year’s Eve turned into the beginning of a mystery illness that would steal weeks, even months, of her life at a time. Diagnosed with Kleine-Levin Syndrome (KLS), or Sleeping Beauty Syndrome, Imaarl found herself trapped in a cycle of disbelief, misdiagnosis, and isolation, waking up to a world that had moved on without her.

In this episode of Narcolepsy Navigators, Imaarl shares what it’s like to lose time, battle stigma, and fight to be believed. She dives into the emotional toll on her family, the frustration of an untreatable condition, and the resilience it takes to rebuild a life interrupted by sleep. Now a mental health advocate and researcher, she’s turning her story into awareness, challenging misconceptions, and proving that rare disorders deserve recognition.

Listen now for a powerful conversation on resilience, advocacy, and reclaiming time.

Chapters

(00:10) Living With Klein-Levin Syndrome
(10:50) Uncontrollable Sleep Episodes and Diagnosis
(14:41) Navigating Life With KLS Diagnosis
(21:44) Impact of KLS Episodes on Life
(27:53) Living With KLS
(36:51) Navigating Stigma Around KLS
(44:48) Navigating Uncertainty With KLS
(50:29) Navigating Life With KLS Challenges

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com 

 Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1955419 Tue, 04 Feb 2025 13:22:00 +0000 3393 2 8 false S2E7 Dreams, Hallucinations, and Chloe's Life with Narcolepsy S2E7 Dreams, Hallucinations, and Chloe's Life with Narcolepsy Leave a review!

In this episode, we are joined by Chloe, who shares her compelling journey of balancing narcolepsy type 1 and obstructive sleep apnea while pursuing a career in optometry. From the thrill of quad biking to the challenges of everyday tasks like getting a haircut, this episode uncovers the rollercoaster ride of managing sleep disorders. From the comical to the challenging, we explore how everyday tasks like getting a haircut can become monumental experiences.

Our conversation ventures into the nuanced aspects of narcolepsy, such as vivid dreams, hallucinations, and the comforting role pets can play during uncertain times. 

We share strategies for staying awake during important moments, like lectures, and the unique ways our pets help us navigate these challenges. Listen in as we tackle misconceptions head-on and reveal how narcolepsy has not only shaped our relationships and social interactions but has also become a significant part of who we are.

Chapters

(15:55) The Emotional Impact of Diagnosis
(23:13) Managing Narcolepsy: Medication and Daily Life
(28:22) Coping Mechanisms for Narcolepsy
(30:23) Experiencing Hallucinations
(36:11) The Impact of Trauma on Hallucinations
(39:44) Auditory Hallucinations and Their Comfort
(44:53) Navigating Relationships with Hallucinations
(52:29) Social Challenges in University Life

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com 

 Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***

 

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this episode, we are joined by Chloe, who shares her compelling journey of balancing narcolepsy type 1 and obstructive sleep apnea while pursuing a career in optometry. From the thrill of quad biking to the challenges of everyday tasks like getting a haircut, this episode uncovers the rollercoaster ride of managing sleep disorders. From the comical to the challenging, we explore how everyday tasks like getting a haircut can become monumental experiences.

Our conversation ventures into the nuanced aspects of narcolepsy, such as vivid dreams, hallucinations, and the comforting role pets can play during uncertain times. 

We share strategies for staying awake during important moments, like lectures, and the unique ways our pets help us navigate these challenges. Listen in as we tackle misconceptions head-on and reveal how narcolepsy has not only shaped our relationships and social interactions but has also become a significant part of who we are.

Chapters

(15:55) The Emotional Impact of Diagnosis
(23:13) Managing Narcolepsy: Medication and Daily Life
(28:22) Coping Mechanisms for Narcolepsy
(30:23) Experiencing Hallucinations
(36:11) The Impact of Trauma on Hallucinations
(39:44) Auditory Hallucinations and Their Comfort
(44:53) Navigating Relationships with Hallucinations
(52:29) Social Challenges in University Life

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com 

 Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***

 

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1938997 Sun, 12 Jan 2025 11:04:48 +0000 3677 2 7 false S2E6 20 Years to Clarity: Glenn's Narcolepsy Experience S2E6 20 Years to Clarity: Glenn's Narcolepsy Experience Leave a review!

Summary

Glenn takes us through his remarkable journey to a proper diagnosis of narcolepsy type 2 after 20 long years, sharing how his life and career in local government have been influenced by his symptoms and the critical importance of workplace understanding and accommodation.

The episode sheds light on many struggles faced by those with undiagnosed narcolepsy, like Glenn, whose excessive yawning and unintended naps were often misinterpreted. We talk about the broader challenges of receiving proper medical guidance, initial misdiagnosis, and how additional health issues like osteoporosis and vertigo complicate the path to understanding and managing narcolepsy. The social and professional hurdles are real, and Glenn recounts personal anecdotes about how these experiences shaped his life, emphasizing the need for awareness and correct support.

Glenn's candid conversation about the underrepresentation of men in the narcolepsy community, along with the stigma of acknowledging such conditions, is a powerful reminder of the need for diverse voices. As we explore themes of acceptance, self-kindness, and the impact of community connections on mental health, Glenn and I underline the importance of normalizing narcolepsy. We also reflect on the strength gained through sharing stories within the community, leaving listeners with a message of resilience and the importance of self-care. Join us to explore the wisdom found in connection and the power of letting go of shame to embrace a full life despite narcolepsy.

CHAPTERS

(03:26) Living with Narcolepsy Type 2
(05:37) Impact of Diagnosis on Career
(09:08) Misdiagnosis and the Road to Narcolepsy
(16:11) Challenges in Seeking Help
(22:47) Support and Community in Australia
(25:57) Advocacy and Representation in Narcolepsy
(34:01) Social Life and Narcolepsy
(37:24) Stress Management Strategies
(44:29) The Importance of Self-Kindness
(48:34) Community and Connection

 

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow and support Glenn:

https://www.instagram.com/glenn2145/ 

Follow and support Narcolepsy Navigators:

DONATE: https://square.link/u/AhLKgFK4 

OUR WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife

 Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn:

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Summary

Glenn takes us through his remarkable journey to a proper diagnosis of narcolepsy type 2 after 20 long years, sharing how his life and career in local government have been influenced by his symptoms and the critical importance of workplace understanding and accommodation.

The episode sheds light on many struggles faced by those with undiagnosed narcolepsy, like Glenn, whose excessive yawning and unintended naps were often misinterpreted. We talk about the broader challenges of receiving proper medical guidance, initial misdiagnosis, and how additional health issues like osteoporosis and vertigo complicate the path to understanding and managing narcolepsy. The social and professional hurdles are real, and Glenn recounts personal anecdotes about how these experiences shaped his life, emphasizing the need for awareness and correct support.

Glenn's candid conversation about the underrepresentation of men in the narcolepsy community, along with the stigma of acknowledging such conditions, is a powerful reminder of the need for diverse voices. As we explore themes of acceptance, self-kindness, and the impact of community connections on mental health, Glenn and I underline the importance of normalizing narcolepsy. We also reflect on the strength gained through sharing stories within the community, leaving listeners with a message of resilience and the importance of self-care. Join us to explore the wisdom found in connection and the power of letting go of shame to embrace a full life despite narcolepsy.

CHAPTERS

(03:26) Living with Narcolepsy Type 2
(05:37) Impact of Diagnosis on Career
(09:08) Misdiagnosis and the Road to Narcolepsy
(16:11) Challenges in Seeking Help
(22:47) Support and Community in Australia
(25:57) Advocacy and Representation in Narcolepsy
(34:01) Social Life and Narcolepsy
(37:24) Stress Management Strategies
(44:29) The Importance of Self-Kindness
(48:34) Community and Connection

 

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow and support Glenn:

https://www.instagram.com/glenn2145/ 

Follow and support Narcolepsy Navigators:

DONATE: https://square.link/u/AhLKgFK4 

OUR WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife

 Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn:

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1932020 Tue, 31 Dec 2024 16:41:36 +0000 3478 2 6 false S2E5 Rachel’s Superpower: Advocacy Through Sleep and Song S2E5 Rachel’s Superpower: Advocacy Through Sleep and Song Leave a review!

Summary

In this episode of Narcolepsy Navigators, Rachel Nesmith, also known as Sleepy American, shares her personal journey with narcolepsy, the challenges of motherhood, and how she uses music as a platform for advocacy. Rachel discusses her diagnosis, the impact of narcolepsy on her life and family, and the importance of community support. She emphasizes the need to change public perceptions of narcolepsy through her music, aiming to raise awareness and provide relatable content for others facing similar challenges.

In this conversation, the speakers discuss the critical importance of advocacy for narcolepsy awareness, the challenges faced in diagnosis and treatment, and the personal experiences of living with narcolepsy. They emphasize the need for better representation and understanding of the disorder, using transformative analogies to convey the realities of narcolepsy. The discussion also touches on identity, acceptance, and the significance of community support in navigating life with narcolepsy.

Chapters
(02:52) Understanding Narcolepsy and Its Impact
(05:46) Family Dynamics and Support Systems
(09:09) The Challenges of Motherhood with Narcolepsy
(12:00) Music as a Medium for Advocacy
(14:47) The Role of Music in Raising Awareness
(20:46) Navigating Treatment and Support
(23:59) The Importance of Community and Advocacy
(36:30) Challenges in Diagnosis and Treatment
(51:04) Identity and Acceptance of Narcolepsy
(57:12) Community Support and Connection

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow and support Rachel:
Linktree: https://tinyurl.com/dmvcxjda 
Instagram: https://www.instagram.com/thenapcave/ 

Follow and support Narcolepsy Navigators:

OUR WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife

 Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Summary

In this episode of Narcolepsy Navigators, Rachel Nesmith, also known as Sleepy American, shares her personal journey with narcolepsy, the challenges of motherhood, and how she uses music as a platform for advocacy. Rachel discusses her diagnosis, the impact of narcolepsy on her life and family, and the importance of community support. She emphasizes the need to change public perceptions of narcolepsy through her music, aiming to raise awareness and provide relatable content for others facing similar challenges.

In this conversation, the speakers discuss the critical importance of advocacy for narcolepsy awareness, the challenges faced in diagnosis and treatment, and the personal experiences of living with narcolepsy. They emphasize the need for better representation and understanding of the disorder, using transformative analogies to convey the realities of narcolepsy. The discussion also touches on identity, acceptance, and the significance of community support in navigating life with narcolepsy.

Chapters
(02:52) Understanding Narcolepsy and Its Impact
(05:46) Family Dynamics and Support Systems
(09:09) The Challenges of Motherhood with Narcolepsy
(12:00) Music as a Medium for Advocacy
(14:47) The Role of Music in Raising Awareness
(20:46) Navigating Treatment and Support
(23:59) The Importance of Community and Advocacy
(36:30) Challenges in Diagnosis and Treatment
(51:04) Identity and Acceptance of Narcolepsy
(57:12) Community Support and Connection

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow and support Rachel:
Linktree: https://tinyurl.com/dmvcxjda 
Instagram: https://www.instagram.com/thenapcave/ 

Follow and support Narcolepsy Navigators:

OUR WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife

 Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1926009 Mon, 23 Dec 2024 19:09:02 +0000 3941 2 5 false S2E4 Redefining Rest: Haley’s Resilience with IH and Chronic Illnesses S2E4 Redefining Rest: Haley’s Resilience with IH and Chronic Illnesses Leave a review!

Years ago, Hayley Wall made the bold decision to transition from a demanding hospital role to a flexible occupational therapy position in pediatric home health. This change not only suited her professional skills but also provided the adaptability needed to manage her idiopathic hypersomnia (IH). In this episode, Hayley opens up about how this career shift has empowered her to effectively balance her health with her work and personal life. We also hear from our co-host Liz, who shares her anticipation of an upcoming family event and reflects on her own journey living with narcolepsy.

Navigating the complexities of chronic illness is no easy feat, especially when conditions like type 1 diabetes, idiopathic hypersomnia, and even narcolepsy intersect. Our conversation traverses the landscape of symptoms, diagnostics, and the technological aids that assist in managing these conditions. Hayley and I exchange stories about how self-awareness has been vital in recognizing and addressing the symptoms of our respective illnesses. The dialogue offers insights into the diagnostic processes for IH and the differences from narcolepsy, painting a vivid picture of the day-to-day challenges faced by those living with these conditions.

The power of community, advocacy, and transparency emerges as a central theme throughout our discussion. Hayley shares her passion for advocacy through her social media presence, the Sleepy_OT, and underscores the importance of being open about health challenges with employers to ensure the necessary accommodations are in place. As we explore the balance between professional duties and personal health, we highlight the significant role of supportive communities in making the journey less isolating. Wrapping up with a note of encouragement, we remind our listeners to engage in self-care and seek professional guidance for their health needs.

 

Chapters Timestamps

(02:44) Benefits of Pediatric Home Health
(07:59) Parental Control and Support for Diabetes
(16:37) Managing Productivity and Energy Levels
(19:37) Using Yoga Balls for Sensory Input
(24:28) Flexibility and Understanding in Home Health
(29:36) Raising Awareness of Idiopathic Hypersomnia
(36:23) Navigating Professional Identity With Chronic Conditions
(48:03) Overlap in Sleep Disorders and Comorbidities

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow and support Haley:
Instagram: https://www.instagram.com/thesleepy_ot/
Rare Patient Voice: https://rarepatientvoice.com/rp/thesleepyot

Follow and support Narcolepsy Navigators:

OUR WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife

 Instagram: https://www.instagram.com/narcolepsynaviga

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Years ago, Hayley Wall made the bold decision to transition from a demanding hospital role to a flexible occupational therapy position in pediatric home health. This change not only suited her professional skills but also provided the adaptability needed to manage her idiopathic hypersomnia (IH). In this episode, Hayley opens up about how this career shift has empowered her to effectively balance her health with her work and personal life. We also hear from our co-host Liz, who shares her anticipation of an upcoming family event and reflects on her own journey living with narcolepsy.

Navigating the complexities of chronic illness is no easy feat, especially when conditions like type 1 diabetes, idiopathic hypersomnia, and even narcolepsy intersect. Our conversation traverses the landscape of symptoms, diagnostics, and the technological aids that assist in managing these conditions. Hayley and I exchange stories about how self-awareness has been vital in recognizing and addressing the symptoms of our respective illnesses. The dialogue offers insights into the diagnostic processes for IH and the differences from narcolepsy, painting a vivid picture of the day-to-day challenges faced by those living with these conditions.

The power of community, advocacy, and transparency emerges as a central theme throughout our discussion. Hayley shares her passion for advocacy through her social media presence, the Sleepy_OT, and underscores the importance of being open about health challenges with employers to ensure the necessary accommodations are in place. As we explore the balance between professional duties and personal health, we highlight the significant role of supportive communities in making the journey less isolating. Wrapping up with a note of encouragement, we remind our listeners to engage in self-care and seek professional guidance for their health needs.

 

Chapters Timestamps

(02:44) Benefits of Pediatric Home Health
(07:59) Parental Control and Support for Diabetes
(16:37) Managing Productivity and Energy Levels
(19:37) Using Yoga Balls for Sensory Input
(24:28) Flexibility and Understanding in Home Health
(29:36) Raising Awareness of Idiopathic Hypersomnia
(36:23) Navigating Professional Identity With Chronic Conditions
(48:03) Overlap in Sleep Disorders and Comorbidities

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow and support Haley:
Instagram: https://www.instagram.com/thesleepy_ot/
Rare Patient Voice: https://rarepatientvoice.com/rp/thesleepyot

Follow and support Narcolepsy Navigators:

OUR WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife

 Instagram: https://www.instagram.com/narcolepsynaviga

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1914630 Tue, 03 Dec 2024 11:54:00 +0000 3016 2 4 false S2E3 Living with Narcolepsy & Autism: Rahmat's Path S2E3 Living with Narcolepsy & Autism: Rahmat's Path Leave a review!

Rahmat Farina's journey with narcolepsy began at the age of 20, and it has been marked by resilience and introspection. Imagine trying to maintain your education and daily life while being suddenly overtaken by sleep attacks and sleep paralysis—this was Rahmat's reality. His initial struggles were compounded by disbelief from his family, but understanding grew as his condition became more visible to those around him. With a background in psychology, Rahmat was well-equipped to seek the right medical guidance, shedding light on the perseverance required to navigate the unknown and find answers. His story is a powerful reminder of the importance of early diagnosis and the transformative impact of self-awareness.

In our conversation, the complexities of living with both narcolepsy type 2 and autism are laid bare, revealing the necessity for personalized strategies. Rahmat shares how lifestyle changes, such as diet and exercise, have contributed to managing his symptoms. We also delve into the emotional intricacies of relationships, focusing on the support and understanding that are crucial for someone with chronic health challenges. Rahmat's insights reveal the profound strength found in community and connection, underscoring the hope for increased global awareness of narcolepsy, particularly in Indonesia. This episode is not just a narrative of personal growth but an invitation to foster understanding and support among those facing similar paths.

 

Chapters Timestamps

 

(04:33) Sharing About Sleep Paralysis Symptoms 

(08:53) Finding a Diagnosis 

(13:18) Impact of Undiagnosed Narcolepsy on Health 

(17:01) Evolving Friendships and Support System 

(22:36) Identifying Food Triggers for Sleepiness 

(34:02) Raising Awareness for Narcolepsy Support 

 

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

NEW WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife 

 

***If you find these symptoms relatable, please seek medical advice.***

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Rahmat Farina's journey with narcolepsy began at the age of 20, and it has been marked by resilience and introspection. Imagine trying to maintain your education and daily life while being suddenly overtaken by sleep attacks and sleep paralysis—this was Rahmat's reality. His initial struggles were compounded by disbelief from his family, but understanding grew as his condition became more visible to those around him. With a background in psychology, Rahmat was well-equipped to seek the right medical guidance, shedding light on the perseverance required to navigate the unknown and find answers. His story is a powerful reminder of the importance of early diagnosis and the transformative impact of self-awareness.

In our conversation, the complexities of living with both narcolepsy type 2 and autism are laid bare, revealing the necessity for personalized strategies. Rahmat shares how lifestyle changes, such as diet and exercise, have contributed to managing his symptoms. We also delve into the emotional intricacies of relationships, focusing on the support and understanding that are crucial for someone with chronic health challenges. Rahmat's insights reveal the profound strength found in community and connection, underscoring the hope for increased global awareness of narcolepsy, particularly in Indonesia. This episode is not just a narrative of personal growth but an invitation to foster understanding and support among those facing similar paths.

 

Chapters Timestamps

 

(04:33) Sharing About Sleep Paralysis Symptoms 

(08:53) Finding a Diagnosis 

(13:18) Impact of Undiagnosed Narcolepsy on Health 

(17:01) Evolving Friendships and Support System 

(22:36) Identifying Food Triggers for Sleepiness 

(34:02) Raising Awareness for Narcolepsy Support 

 

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

NEW WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife 

 

***If you find these symptoms relatable, please seek medical advice.***

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1910960 Fri, 29 Nov 2024 15:29:12 +0000 2388 2 3 false Narcolepsy's Brother :Kleine–Levin  Narcolepsy's Brother :Kleine–Levin  Leave a review!

Hello Everyone, We are so excited to be back for Season 2 of Narcolepsy Navigators Podcasts. Here is a brief announcement thanking all of our wonderful listeners from around the world.

Welcome To Season 2. We look forward to hearing  your stories. 

Follow and support Narcolepsy Navigators:

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ 
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ 
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast 
TikTok: https://www.tiktok.com/@narcolepsynavigators 
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

NEW WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife 

 THANK YOU TO EVERY SINGLE PERSON WHO TAKES THE TIME TO LISTEN. WE APPRECIATE THE SUPPORT SO MUCH! 

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Hello Everyone, We are so excited to be back for Season 2 of Narcolepsy Navigators Podcasts. Here is a brief announcement thanking all of our wonderful listeners from around the world.

Welcome To Season 2. We look forward to hearing  your stories. 

Follow and support Narcolepsy Navigators:

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ 
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ 
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast 
TikTok: https://www.tiktok.com/@narcolepsynavigators 
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

NEW WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife 

 THANK YOU TO EVERY SINGLE PERSON WHO TAKES THE TIME TO LISTEN. WE APPRECIATE THE SUPPORT SO MUCH! 

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1900363 Tue, 19 Nov 2024 23:02:49 +0000 84 2 false S2E2 Awake in Colour: Angela’s Creative Outlet for Narcolepsy S2E2 Awake in Colour: Angela’s Creative Outlet for Narcolepsy Leave a review!

In this compelling episode of Narcolepsy Navigators, we meet Angela, an inspiring artist living with narcolepsy and cataplexy. Through her candid storytelling, Angela reveals how creativity and support systems have become her sanctuary amidst the challenges of living with unpredictable sleep disorders.

What You’ll Learn:

  • How Angela uses bead art as a therapeutic escape from medical trauma and daily challenges.
  • The role of emotional support animals, including Angela’s beloved rat, Didamus, in fostering mental well-being.
  • The complexities of living with cataplexy, including sudden muscle weakness, public misconceptions, and the proactive steps Angela takes to educate others with resources like pamphlets for healthcare professionals.
  • Why Angela turns to horror and sci-fi films as a coping strategy for managing cataplexy triggers and the fascinating intersection of lucid dreaming with her condition.

Highlights:

  • Angela’s resilience in turning challenges into triumphs, including gaining international recognition for her art and accolades from the drag community.
  • The vital role of supportive caregivers and networks in helping those with narcolepsy navigate life’s hurdles.
  • Insights into the need for greater empathy, awareness, and accurate representation of narcolepsy and cataplexy in society and media.


Join us as Angela shares her journey of creativity, advocacy, and resilience, proving that even in the face of immense challenges, art and community can be transformative.

Listen Now: Discover how Angela’s story sheds light on the realities of living with invisible disabilities and the profound impact of art and support on mental health.

Chapter Timestamps

(00:10) Navigating Life With Narcolepsy and Art
(13:54) Living With Severe Cataplexy Challenges
(24:07) Artistic Escape and Lucid Dreaming
(33:44) Navigating Life Through Art and Narcolepsy

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow and support Angela:

Website: https://sleepyunicornpixelart.com 
Instagram: https://www.instagram.com/awesomeangela13/ 
TikTok: https://www.tiktok.com/@awesomeangela13?is_from_webapp=1&sender_device=pc 

Follow and support Narcolepsy Navigators:

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ 
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ 
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast 
TikTok: https://www.tiktok.com/@narcolepsynavigators 
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

NEW WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife 

THANK YOU TO EVERY SINGLE PERSON WHO TAKES THE TIME TO LISTEN. WE APPRECIATE THE

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this compelling episode of Narcolepsy Navigators, we meet Angela, an inspiring artist living with narcolepsy and cataplexy. Through her candid storytelling, Angela reveals how creativity and support systems have become her sanctuary amidst the challenges of living with unpredictable sleep disorders.

What You’ll Learn:

  • How Angela uses bead art as a therapeutic escape from medical trauma and daily challenges.
  • The role of emotional support animals, including Angela’s beloved rat, Didamus, in fostering mental well-being.
  • The complexities of living with cataplexy, including sudden muscle weakness, public misconceptions, and the proactive steps Angela takes to educate others with resources like pamphlets for healthcare professionals.
  • Why Angela turns to horror and sci-fi films as a coping strategy for managing cataplexy triggers and the fascinating intersection of lucid dreaming with her condition.

Highlights:

  • Angela’s resilience in turning challenges into triumphs, including gaining international recognition for her art and accolades from the drag community.
  • The vital role of supportive caregivers and networks in helping those with narcolepsy navigate life’s hurdles.
  • Insights into the need for greater empathy, awareness, and accurate representation of narcolepsy and cataplexy in society and media.


Join us as Angela shares her journey of creativity, advocacy, and resilience, proving that even in the face of immense challenges, art and community can be transformative.

Listen Now: Discover how Angela’s story sheds light on the realities of living with invisible disabilities and the profound impact of art and support on mental health.

Chapter Timestamps

(00:10) Navigating Life With Narcolepsy and Art
(13:54) Living With Severe Cataplexy Challenges
(24:07) Artistic Escape and Lucid Dreaming
(33:44) Navigating Life Through Art and Narcolepsy

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow and support Angela:

Website: https://sleepyunicornpixelart.com 
Instagram: https://www.instagram.com/awesomeangela13/ 
TikTok: https://www.tiktok.com/@awesomeangela13?is_from_webapp=1&sender_device=pc 

Follow and support Narcolepsy Navigators:

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ 
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ 
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast 
TikTok: https://www.tiktok.com/@narcolepsynavigators 
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

NEW WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife 

THANK YOU TO EVERY SINGLE PERSON WHO TAKES THE TIME TO LISTEN. WE APPRECIATE THE

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1895100 Sun, 17 Nov 2024 07:36:52 +0000 2773 2 2 false S2E1 Narcolepsy’s Hidden Toll: Tamby’s Journey S2E1 Narcolepsy’s Hidden Toll: Tamby’s Journey Leave a review!

Welcome back to Narcolepsy Navigators for an eye-opening Season Two episode that dives into Tamby's journey with narcolepsy. In this heartfelt conversation, Tamby shares the raw reality of living with a misunderstood condition, navigating cultural misconceptions, and dealing with a whirlwind of challenges, from hallucinations to unexpected cataplexy attacks. She recounts memorable moments, like when family members tried to ward off “evil spirits” by breaking eggs over her head, and reveals how even a Seventh-day Adventist boarding school, where she hoped for understanding, fell short.

This episode goes deeper, uncovering the well-intentioned, if unconventional, interventions from teachers and family, and Tamby’s resilience through years of misdiagnoses and social stigma. Together, we explore why advocacy and accurate portrayals in media matter, and how support systems shape the lives of people with narcolepsy.

Join us for Tamby’s incredible story and a closer look at the strength, humour, and humanity needed to live boldly with narcolepsy.

Chapter Timestamps

(00:10) Life With Narcolepsy
(09:17) Struggles With Sleep and School
(21:24) Navigating School and Misdiagnoses
(27:36) Navigating Narcolepsy and Misunderstanding
(40:38) Challenges of Living With Narcolepsy
(51:28) Living With Narcolepsy and Advocacy

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow us on Social Media for updates:

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast

***If you find these symptoms relatable, please seek medical advice.***

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Welcome back to Narcolepsy Navigators for an eye-opening Season Two episode that dives into Tamby's journey with narcolepsy. In this heartfelt conversation, Tamby shares the raw reality of living with a misunderstood condition, navigating cultural misconceptions, and dealing with a whirlwind of challenges, from hallucinations to unexpected cataplexy attacks. She recounts memorable moments, like when family members tried to ward off “evil spirits” by breaking eggs over her head, and reveals how even a Seventh-day Adventist boarding school, where she hoped for understanding, fell short.

This episode goes deeper, uncovering the well-intentioned, if unconventional, interventions from teachers and family, and Tamby’s resilience through years of misdiagnoses and social stigma. Together, we explore why advocacy and accurate portrayals in media matter, and how support systems shape the lives of people with narcolepsy.

Join us for Tamby’s incredible story and a closer look at the strength, humour, and humanity needed to live boldly with narcolepsy.

Chapter Timestamps

(00:10) Life With Narcolepsy
(09:17) Struggles With Sleep and School
(21:24) Navigating School and Misdiagnoses
(27:36) Navigating Narcolepsy and Misunderstanding
(40:38) Challenges of Living With Narcolepsy
(51:28) Living With Narcolepsy and Advocacy

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow us on Social Media for updates:

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast

***If you find these symptoms relatable, please seek medical advice.***

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1869025 Mon, 28 Oct 2024 22:33:25 +0000 3634 2 1 false S1E12 Mathilda: Thriving with Narcolepsy from Age Three S1E12 Mathilda: Thriving with Narcolepsy from Age Three Leave a review!

Imagine being the youngest person ever diagnosed with narcolepsy at just three years old. Today, we're honoured to share the extraordinary journey of Mathilda, who has spent her life battling and thriving despite this complex condition. Joined by our Marketing Manager Iris, also living with narcolepsy type 1, we dive into Mathilda's world—from her early diagnosis to the release of her mother Claire's heartfelt memoir, "Waking Mathilda."

In this deeply personal episode, Mathilda opens up about the emotional challenge of reading her own story through her mother's eyes and the resilience it takes to navigate life with narcolepsy and cataplexy. Hear firsthand how she has managed to maintain her sense of self and privacy amidst the attention brought by her unique medical journey. Whether you're familiar with narcolepsy or just learning, Mathilda's story is sure to inspire and enlighten.

From her family dynamics to her personal thoughts on privacy and public attention, Mathilda shares her unique perspective for the first time. Join us for this inspiring episode that promises to educate, move, and resonate with anyone touched by narcolepsy.

Chapter Timestamps

(03:00) - Mathilda's Early Diagnosis
(07:00) - Reading "Waking Mathilda"
(17:00) - Maintaining Privacy and Self-Identity
(21:00) - Family Dynamics
(25:00) - Public Speaking and Sharing Her Story
(30:00) - Final Thoughts

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow us on Social Media for updates:

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast

***If you find these symptoms relatable, please seek medical advice.***

 

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Imagine being the youngest person ever diagnosed with narcolepsy at just three years old. Today, we're honoured to share the extraordinary journey of Mathilda, who has spent her life battling and thriving despite this complex condition. Joined by our Marketing Manager Iris, also living with narcolepsy type 1, we dive into Mathilda's world—from her early diagnosis to the release of her mother Claire's heartfelt memoir, "Waking Mathilda."

In this deeply personal episode, Mathilda opens up about the emotional challenge of reading her own story through her mother's eyes and the resilience it takes to navigate life with narcolepsy and cataplexy. Hear firsthand how she has managed to maintain her sense of self and privacy amidst the attention brought by her unique medical journey. Whether you're familiar with narcolepsy or just learning, Mathilda's story is sure to inspire and enlighten.

From her family dynamics to her personal thoughts on privacy and public attention, Mathilda shares her unique perspective for the first time. Join us for this inspiring episode that promises to educate, move, and resonate with anyone touched by narcolepsy.

Chapter Timestamps

(03:00) - Mathilda's Early Diagnosis
(07:00) - Reading "Waking Mathilda"
(17:00) - Maintaining Privacy and Self-Identity
(21:00) - Family Dynamics
(25:00) - Public Speaking and Sharing Her Story
(30:00) - Final Thoughts

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow us on Social Media for updates:

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast

***If you find these symptoms relatable, please seek medical advice.***

 

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1840225 Sun, 22 Sep 2024 09:49:14 +0100 3138 1 12 false S1E11 Raising a Narcoleptic Dog: Toast’s Story S1E11 Raising a Narcoleptic Dog: Toast’s Story Leave a review!

Join us on this heartwarming episode of Narcolepsy Navigators as we welcome our special guests Laura, an experienced animal foster parent from Illinois, and her narcoleptic dog, Toast. 

From being a breeder dump to becoming a beloved family member, Laura's journey is filled with challenges, adaptations, and the joy of raising a special needs pet. Laura recounts her initial struggles with understanding Toast's condition, the unique measures taken to manage his narcolepsy, and the joyous connections he's fostered within their community.

Laura provides valuable insights into daily routines designed to manage Toast's cataplectic attacks, from utilizing white noise at bedtime to specialized feeding techniques. Gated stairs, supervised outdoor activities, and puzzle bowls are just a few of the adjustments that have helped Toast thrive. Laura emphasizes the importance of exposing Toast to various environments, despite criticism, to better manage his triggers. 

This discussion highlights the significance of allowing special needs pets to live fulfilling lives and the gradual training required for them to handle their triggers effectively. We also touch on the broader implications and common misconceptions surrounding narcoleptic pets, advocating for greater awareness and empathy.

As we wrap up, we focus on the broader narcoleptic community and the quality of life for both humans and animals with narcolepsy and cataplexy. Laura shares her experiences and the profound joy that special needs pets bring into our lives, dispelling common misconceptions and advocating for awareness. We explore the supportive role of social media, the potential for Toast to become a therapy dog, and the critical importance of community support and shared experiences. Tune in for an inspiring conversation that champions understanding and compassion for all beings with special needs.

Chapter Timestamps

(00:10) - Narcolepsy Navigators
(08:46) - Managing Narcolepsy in Dogs
(17:00) - Exploring Narcolepsy in Dogs
(23:40) - Quality of Life for Narcoleptic Dog
(31:36) - Cataplexy and Narcolepsy in Humans
(36:41) - Rescuing Special Needs Animals
(49:22) - Expansion of Narcoleptic Dog Community
(55:46) - Supporting Animals With Special Needs

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow Toast on Social Media:

Instagram: @toastthenarcoleptic

Follow us on Social Media for updates:

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast

***If you find these symptoms relatable, please seek medical advice.***

 

 

 

 

 

nBmRTQygWbjY4cnY16sx

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Join us on this heartwarming episode of Narcolepsy Navigators as we welcome our special guests Laura, an experienced animal foster parent from Illinois, and her narcoleptic dog, Toast. 

From being a breeder dump to becoming a beloved family member, Laura's journey is filled with challenges, adaptations, and the joy of raising a special needs pet. Laura recounts her initial struggles with understanding Toast's condition, the unique measures taken to manage his narcolepsy, and the joyous connections he's fostered within their community.

Laura provides valuable insights into daily routines designed to manage Toast's cataplectic attacks, from utilizing white noise at bedtime to specialized feeding techniques. Gated stairs, supervised outdoor activities, and puzzle bowls are just a few of the adjustments that have helped Toast thrive. Laura emphasizes the importance of exposing Toast to various environments, despite criticism, to better manage his triggers. 

This discussion highlights the significance of allowing special needs pets to live fulfilling lives and the gradual training required for them to handle their triggers effectively. We also touch on the broader implications and common misconceptions surrounding narcoleptic pets, advocating for greater awareness and empathy.

As we wrap up, we focus on the broader narcoleptic community and the quality of life for both humans and animals with narcolepsy and cataplexy. Laura shares her experiences and the profound joy that special needs pets bring into our lives, dispelling common misconceptions and advocating for awareness. We explore the supportive role of social media, the potential for Toast to become a therapy dog, and the critical importance of community support and shared experiences. Tune in for an inspiring conversation that champions understanding and compassion for all beings with special needs.

Chapter Timestamps

(00:10) - Narcolepsy Navigators
(08:46) - Managing Narcolepsy in Dogs
(17:00) - Exploring Narcolepsy in Dogs
(23:40) - Quality of Life for Narcoleptic Dog
(31:36) - Cataplexy and Narcolepsy in Humans
(36:41) - Rescuing Special Needs Animals
(49:22) - Expansion of Narcoleptic Dog Community
(55:46) - Supporting Animals With Special Needs

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow Toast on Social Media:

Instagram: @toastthenarcoleptic

Follow us on Social Media for updates:

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast

***If you find these symptoms relatable, please seek medical advice.***

 

 

 

 

 

nBmRTQygWbjY4cnY16sx

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1839101 Fri, 20 Sep 2024 11:47:07 +0100 4746 1 11 false S1E10 Sara: Dreams Interrupted S1E10 Sara: Dreams Interrupted Leave a review!

Experience the raw and transformative journey of Sara Duncan, a courageous 29-year-old from Oregon, as she navigates the complexities of life with narcolepsy. From her pre-med college days filled with relentless fatigue to the frustrating misdiagnoses that dismissed her symptoms as mere anxiety and depression, Sarah's story highlights the often-overlooked struggles of those living with this condition. This episode of Narcolepsy Navigators sheds light on the emotional and physical challenges Sarah faced, emphasizing the critical role of self-advocacy in the pursuit of proper medical recognition and treatment.

Discover the profound impact of Sara’s narcolepsy diagnosis on her aspirations of becoming a doctor. Working in a beloved hospital, she encountered the harsh realities of America's medical system, often leaving patients to fend for themselves. Sara's narrative not only underscores the systemic barriers in medical education and practice but also explores the broader challenges disabled individuals face in both educational and professional settings. Learn about Sara's difficult decisions and the alternative paths she pursued to create a fulfilling life despite the limitations imposed by her condition.

Explore the nuanced interplay between narcolepsy, ADHD, and the endocrine system as Sara details her journey towards managing her symptoms. From the significance of simple accommodations to the emotional liberation of embracing her identity, Sara's experience is a testament to resilience and self-discovery. This episode delves into the societal pressures and stigmatization around disabilities, emphasizing the importance of embracing one's identity and advocating for necessary resources.

Join us for an eye-opening conversation that challenges societal norms and celebrates the strength found in vulnerability.


CHAPTER TIMESTAMPS

(00:10) Navigating Life With Narcolepsy
(04:30) Misdiagnosis and Medication Pressure
(11:23) Navigating Medical School With Narcolepsy
(17:34) Navigating Accommodations in Medical School
(20:18) Navigating Disability in Medical Education
(31:31) Exploring Sleep-Inducing Aromatherapy Tea
(36:04) Narcolepsy and Body Regulation
(39:05) Exploring Asexuality and Disability in Relationships
(43:39) Evolution of Disability Identity
(51:22) Reevaluating Disability and Support
(56:33) Understanding Disabling Labelling and Ableism

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow Sara on Social Media:

Instagram: @duncanpnw
TikTok: @missalexandria

Follow us on Social Media for updates:

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast

***If you find these symptoms relatable, please seek medical advice.***

 

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Experience the raw and transformative journey of Sara Duncan, a courageous 29-year-old from Oregon, as she navigates the complexities of life with narcolepsy. From her pre-med college days filled with relentless fatigue to the frustrating misdiagnoses that dismissed her symptoms as mere anxiety and depression, Sarah's story highlights the often-overlooked struggles of those living with this condition. This episode of Narcolepsy Navigators sheds light on the emotional and physical challenges Sarah faced, emphasizing the critical role of self-advocacy in the pursuit of proper medical recognition and treatment.

Discover the profound impact of Sara’s narcolepsy diagnosis on her aspirations of becoming a doctor. Working in a beloved hospital, she encountered the harsh realities of America's medical system, often leaving patients to fend for themselves. Sara's narrative not only underscores the systemic barriers in medical education and practice but also explores the broader challenges disabled individuals face in both educational and professional settings. Learn about Sara's difficult decisions and the alternative paths she pursued to create a fulfilling life despite the limitations imposed by her condition.

Explore the nuanced interplay between narcolepsy, ADHD, and the endocrine system as Sara details her journey towards managing her symptoms. From the significance of simple accommodations to the emotional liberation of embracing her identity, Sara's experience is a testament to resilience and self-discovery. This episode delves into the societal pressures and stigmatization around disabilities, emphasizing the importance of embracing one's identity and advocating for necessary resources.

Join us for an eye-opening conversation that challenges societal norms and celebrates the strength found in vulnerability.


CHAPTER TIMESTAMPS

(00:10) Navigating Life With Narcolepsy
(04:30) Misdiagnosis and Medication Pressure
(11:23) Navigating Medical School With Narcolepsy
(17:34) Navigating Accommodations in Medical School
(20:18) Navigating Disability in Medical Education
(31:31) Exploring Sleep-Inducing Aromatherapy Tea
(36:04) Narcolepsy and Body Regulation
(39:05) Exploring Asexuality and Disability in Relationships
(43:39) Evolution of Disability Identity
(51:22) Reevaluating Disability and Support
(56:33) Understanding Disabling Labelling and Ableism

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow Sara on Social Media:

Instagram: @duncanpnw
TikTok: @missalexandria

Follow us on Social Media for updates:

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast

***If you find these symptoms relatable, please seek medical advice.***

 

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1773847 Wed, 28 Aug 2024 09:00:00 +0100 3736 1 10 false S1E9 Christine's Journey: Mental Health and Work Life S1E9 Christine's Journey: Mental Health and Work Life Leave a review!

Can navigating life with narcolepsy impact your mental health and career? Join us on Narcolepsy Navigators as we explore these pressing questions with our special guest, Christine from Northern Ireland. You'll hear firsthand about her journey with narcolepsy type 1 and cataplexy, and how symptoms manifest uniquely in her jaw. We share our personal struggles with exhaustion and anxiety, emphasizing the critical need for balance to avoid burnout. This episode sheds light on the emotional toll and personal growth that come from managing a misunderstood condition.

We also address the often-overlooked challenge of obtaining a proper narcolepsy diagnosis, from adolescence through professional life. I recount my own experiences of debilitating fatigue and the misinterpretations by medical professionals. The episode includes practical tips for self-advocacy, such as using handwritten notes and journals to communicate symptoms effectively. Our conversation underscores the importance of persistence in securing a diagnosis and the vital role of organizational strategies in managing daily life with narcolepsy.

Chapter Timestamps

(00:10) Living With Narcolepsy and Mental Health
(14:36) Navigating Narcolepsy Diagnosis Challenges
(21:15) Managing Narcolepsy Challenges and Medications
(35:35) Understanding and Supporting Narcolepsy Patients
(42:21) Supporting Narcolepsy Patients Through Healthcare
(54:00) Navigating Career Changes With Narcolepsy
(57:22) Exploring Narcolepsy and ADHD Connections

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow Christine on Social Media:

Follow us on Social Media for updates: 

 

***If you find these symptoms relatable, please seek medical advice.***

 

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Can navigating life with narcolepsy impact your mental health and career? Join us on Narcolepsy Navigators as we explore these pressing questions with our special guest, Christine from Northern Ireland. You'll hear firsthand about her journey with narcolepsy type 1 and cataplexy, and how symptoms manifest uniquely in her jaw. We share our personal struggles with exhaustion and anxiety, emphasizing the critical need for balance to avoid burnout. This episode sheds light on the emotional toll and personal growth that come from managing a misunderstood condition.

We also address the often-overlooked challenge of obtaining a proper narcolepsy diagnosis, from adolescence through professional life. I recount my own experiences of debilitating fatigue and the misinterpretations by medical professionals. The episode includes practical tips for self-advocacy, such as using handwritten notes and journals to communicate symptoms effectively. Our conversation underscores the importance of persistence in securing a diagnosis and the vital role of organizational strategies in managing daily life with narcolepsy.

Chapter Timestamps

(00:10) Living With Narcolepsy and Mental Health
(14:36) Navigating Narcolepsy Diagnosis Challenges
(21:15) Managing Narcolepsy Challenges and Medications
(35:35) Understanding and Supporting Narcolepsy Patients
(42:21) Supporting Narcolepsy Patients Through Healthcare
(54:00) Navigating Career Changes With Narcolepsy
(57:22) Exploring Narcolepsy and ADHD Connections

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow Christine on Social Media:

Follow us on Social Media for updates: 

 

***If you find these symptoms relatable, please seek medical advice.***

 

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1808892 Tue, 13 Aug 2024 20:25:28 +0100 4007 1 9 false S1E8 Katy: Parenting Through the Fog of IH S1E8 Katy: Parenting Through the Fog of IH Leave a review!

Can you imagine trying to balance parenting, a creative passion, and a chronic sleep disorder? Join us on Narcolepsy Navigators as we explore this challenging reality through the inspiring life of Katie, a 30-year-old mom from South Dakota. Diagnosed with idiopathic hypersomnia (IH) in early 2022, Katie shares her journey of self-discovery and the long path to understanding her incessant sleepiness. She opens up about how her daily interactions were impacted and the adjustments she made to manage her condition while raising a young child and nurturing her love for sewing and quilting.

In our in-depth discussion, we tackle the complexities of medication approval, sleep inertia, and the role of energy drinks in staying functional. Katie reveals her practical strategies for managing day-to-day responsibilities, emphasizing the unique pressures parents face with these conditions. She also discusses the importance of diet and external support, particularly in meal preparation and maintaining a balanced lifestyle, underscoring how these elements can mitigate the symptoms of IH.

Communication and support networks play a crucial role in living with a chronic condition. Katie candidly talks about how she and her husband navigate parenting their energetic four-year-old while managing her medication and safety concerns. We explore the emotional toll and the significance of self-care, highlighting the vital support from family and the online community. Finally, Katie reflects on balancing social connections, creative passions, and the necessity for empathy and understanding for those living with chronic sleep disorders. Tune in for a heartfelt conversation that sheds light on the nuanced life of a mother living with idiopathic hypersomnia.

Chapter Timestamps

(00:00) Living With Idiopathic Hypersomnia
(08:15) Navigating Medication and Energy Drinks
(18:42) Parenting With Idiopathic Hypersomnia Challenges
(24:05) Navigating Communication and Support Networks
(29:39) Balancing Work, Creativity, and Friendship
(43:19) The Creative Struggles of Idiopathic Hypersomnia
(50:07) Caring for Mother With Hypersomnia

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow us on Social Media for updates: 

IG: https://www.instagram.com/narcolepsynavigatorspodcast/
FB: https://www.facebook.com/profile.php?id=61558638497300&sk=about 

*If you find these symptoms relatable, please seek medical advice.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Can you imagine trying to balance parenting, a creative passion, and a chronic sleep disorder? Join us on Narcolepsy Navigators as we explore this challenging reality through the inspiring life of Katie, a 30-year-old mom from South Dakota. Diagnosed with idiopathic hypersomnia (IH) in early 2022, Katie shares her journey of self-discovery and the long path to understanding her incessant sleepiness. She opens up about how her daily interactions were impacted and the adjustments she made to manage her condition while raising a young child and nurturing her love for sewing and quilting.

In our in-depth discussion, we tackle the complexities of medication approval, sleep inertia, and the role of energy drinks in staying functional. Katie reveals her practical strategies for managing day-to-day responsibilities, emphasizing the unique pressures parents face with these conditions. She also discusses the importance of diet and external support, particularly in meal preparation and maintaining a balanced lifestyle, underscoring how these elements can mitigate the symptoms of IH.

Communication and support networks play a crucial role in living with a chronic condition. Katie candidly talks about how she and her husband navigate parenting their energetic four-year-old while managing her medication and safety concerns. We explore the emotional toll and the significance of self-care, highlighting the vital support from family and the online community. Finally, Katie reflects on balancing social connections, creative passions, and the necessity for empathy and understanding for those living with chronic sleep disorders. Tune in for a heartfelt conversation that sheds light on the nuanced life of a mother living with idiopathic hypersomnia.

Chapter Timestamps

(00:00) Living With Idiopathic Hypersomnia
(08:15) Navigating Medication and Energy Drinks
(18:42) Parenting With Idiopathic Hypersomnia Challenges
(24:05) Navigating Communication and Support Networks
(29:39) Balancing Work, Creativity, and Friendship
(43:19) The Creative Struggles of Idiopathic Hypersomnia
(50:07) Caring for Mother With Hypersomnia

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow us on Social Media for updates: 

IG: https://www.instagram.com/narcolepsynavigatorspodcast/
FB: https://www.facebook.com/profile.php?id=61558638497300&sk=about 

*If you find these symptoms relatable, please seek medical advice.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1781190 Sat, 06 Jul 2024 22:10:18 +0100 3054 1 8 false S1E7 Henry's Narcolepsy Journey: A 13-year Battle S1E7 Henry's Narcolepsy Journey: A 13-year Battle Leave a review!

What if a sleep study could be the key to unlocking a 13-year mystery? Join us as we sit down with Henry from Queens, New York, who shares his deeply personal journey from experiencing his first symptoms of narcolepsy type 2 in 1996 to finally receiving a diagnosis in 2009. 

In this episode, Henry opens up about his trial-and-error process with medications, to experiencing the highs and lows of finding the right combination, including his experiences with Xyrem. Learn how narcolepsy impacted his work life, requiring adaptable environments and a supportive network to help him maintain a sense of normalcy and identity. 

Tune in as Henry discusses practical coping mechanisms for dealing with symptoms like brain fog and hallucinations and highlights the invaluable support of community groups. This episode is a testament to the power of awareness, education, and unwavering support in overcoming the obstacles posed by narcolepsy.

Chapters:

  • (00:06) - Narcolepsy Awareness
  • (07:21) - Managing Narcolepsy and Work Life
  • (13:31) - Challenges of trying to adopt with Narcolepsy
  • (19:04) - Managing Narcolepsy

Highlights:

  • (02:51 - 04:01) Journey to Narcolepsy Diagnosis (70 Seconds)
  • (12:31 - 13:31) Narcolepsy and Self-Identity (60 Seconds)
  • (16:32 - 17:38) Support and Understanding of Narcolepsy (66 Seconds)
  • (21:57 - 24:08) Understanding and Managing Narcolepsy (131 Seconds)
  • (29:16 - 30:58) The Red Button (102 Seconds)

 

Subscribe for more inspiring episodes, share to raise narcolepsy and idiopathic hypersomnia awareness, and join the conversation by sharing your experiences.

Follow us on our Social Media platforms for updates: https://www.instagram.com/narcolepsynavigatorspodcast/

www.linkedin.com/company/narcolepsy-navigators-podcast 

https://www.facebook.com//Narcolepsy-Navigators

 

*If you find these symptoms relatable, please seek medical advice.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

What if a sleep study could be the key to unlocking a 13-year mystery? Join us as we sit down with Henry from Queens, New York, who shares his deeply personal journey from experiencing his first symptoms of narcolepsy type 2 in 1996 to finally receiving a diagnosis in 2009. 

In this episode, Henry opens up about his trial-and-error process with medications, to experiencing the highs and lows of finding the right combination, including his experiences with Xyrem. Learn how narcolepsy impacted his work life, requiring adaptable environments and a supportive network to help him maintain a sense of normalcy and identity. 

Tune in as Henry discusses practical coping mechanisms for dealing with symptoms like brain fog and hallucinations and highlights the invaluable support of community groups. This episode is a testament to the power of awareness, education, and unwavering support in overcoming the obstacles posed by narcolepsy.

Chapters:

  • (00:06) - Narcolepsy Awareness
  • (07:21) - Managing Narcolepsy and Work Life
  • (13:31) - Challenges of trying to adopt with Narcolepsy
  • (19:04) - Managing Narcolepsy

Highlights:

  • (02:51 - 04:01) Journey to Narcolepsy Diagnosis (70 Seconds)
  • (12:31 - 13:31) Narcolepsy and Self-Identity (60 Seconds)
  • (16:32 - 17:38) Support and Understanding of Narcolepsy (66 Seconds)
  • (21:57 - 24:08) Understanding and Managing Narcolepsy (131 Seconds)
  • (29:16 - 30:58) The Red Button (102 Seconds)

 

Subscribe for more inspiring episodes, share to raise narcolepsy and idiopathic hypersomnia awareness, and join the conversation by sharing your experiences.

Follow us on our Social Media platforms for updates: https://www.instagram.com/narcolepsynavigatorspodcast/

www.linkedin.com/company/narcolepsy-navigators-podcast 

https://www.facebook.com//Narcolepsy-Navigators

 

*If you find these symptoms relatable, please seek medical advice.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1747950 Thu, 23 May 2024 05:08:00 +0100 2149 1 7 false S1E6 Adapting to the Unpredictable: Natalie's Narrative S1E6 Adapting to the Unpredictable: Natalie's Narrative Leave a review!

Nobody wants to embark on a journey across the turbulent seas of narcolepsy, but Natalie, a German mother and teacher, offers her moving story of doing just that. In her world, the emergence of narcolepsy in her late twenties was only the start of a journey marked by delayed diagnosis, developing cataplexy, and the struggle with ineffective sleep apnea therapies. This episode gives us access to her universe. Her narrative is not limited to the difficulties she faced; it also explores the resiliency needed to balance her rigorous professional obligations with the subtleties of parenting an autistic child.

Throughout our heartfelt conversation, the spectrum of emotions and adjustments Natalie has faced becomes apparent. She clarifies the challenges teachers face on the job, including the social ramifications of medicine, the difficulties of maintaining safe driving practices, and the difficult route to treatment accessibility in Germany. 

Natalie's story sheds light on the transformative effect of lifestyle adjustments and the comfort found in support networks in a society that frequently takes pride in its unwavering productivity. Her choice to treat her narcolepsy non-medically resulted in major life changes, such as changes in her diet and employment, demonstrating her dedication to putting her health first. 

Chapter Timestamps

  • (03:52 - 05:03) Discovery of Narcolepsy Symptoms
  • (08:00 - 10:11) Managing Cataplexy as a Teacher
  • (11:24 - 12:30) Understanding Narcolepsy and Supportive Environment
  • (16:58 - 17:48) Managing Epilepsy in Germany
  • (21:58 - 23:18) Parenting and Narcolepsy
  • (30:04 - 31:33) Managing Nerve Pain From Electromagnetic Radiation
  • (33:49 - 35:18) Collaboration Between Doctors and Patients
  • (37:16 - 39:08) Embracing and Learning From Narcolepsy

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow us on Instagram for updates: https://www.instagram.com/narcolepsynavigatorspodcast/

*If you find these symptoms relatable, please seek medical advice.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Nobody wants to embark on a journey across the turbulent seas of narcolepsy, but Natalie, a German mother and teacher, offers her moving story of doing just that. In her world, the emergence of narcolepsy in her late twenties was only the start of a journey marked by delayed diagnosis, developing cataplexy, and the struggle with ineffective sleep apnea therapies. This episode gives us access to her universe. Her narrative is not limited to the difficulties she faced; it also explores the resiliency needed to balance her rigorous professional obligations with the subtleties of parenting an autistic child.

Throughout our heartfelt conversation, the spectrum of emotions and adjustments Natalie has faced becomes apparent. She clarifies the challenges teachers face on the job, including the social ramifications of medicine, the difficulties of maintaining safe driving practices, and the difficult route to treatment accessibility in Germany. 

Natalie's story sheds light on the transformative effect of lifestyle adjustments and the comfort found in support networks in a society that frequently takes pride in its unwavering productivity. Her choice to treat her narcolepsy non-medically resulted in major life changes, such as changes in her diet and employment, demonstrating her dedication to putting her health first. 

Chapter Timestamps

  • (03:52 - 05:03) Discovery of Narcolepsy Symptoms
  • (08:00 - 10:11) Managing Cataplexy as a Teacher
  • (11:24 - 12:30) Understanding Narcolepsy and Supportive Environment
  • (16:58 - 17:48) Managing Epilepsy in Germany
  • (21:58 - 23:18) Parenting and Narcolepsy
  • (30:04 - 31:33) Managing Nerve Pain From Electromagnetic Radiation
  • (33:49 - 35:18) Collaboration Between Doctors and Patients
  • (37:16 - 39:08) Embracing and Learning From Narcolepsy

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow us on Instagram for updates: https://www.instagram.com/narcolepsynavigatorspodcast/

*If you find these symptoms relatable, please seek medical advice.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1729710 Mon, 29 Apr 2024 11:00:00 +0100 2520 1 6 false S1E5 When Sleep Interrupts Life - Sakhara's Story S1E5 When Sleep Interrupts Life - Sakhara's Story Leave a review!

Discover the untold stories of life with narcolepsy as Sakhara Johnson joins us for an intimate conversation about her journey. We peel back the curtain on her day-to-day battles, from the initial misdiagnoses and the arduous path to discovering she had severe narcolepsy, to the ongoing struggles with treatments and their impact on her personal life. Sakhara doesn't hold back in sharing the gritty details of using a CPAP machine, undergoing surgeries, and the toll these take on her academic and social experiences. Her resilience in the face of such trials is nothing short of inspiring, offering a beacon of hope for anyone facing similar hardships.

This episode isn't just Sakhara's narrative; it's a critical examination of the broader issues at play within the narcolepsy community, especially for people of color. We probe the need for better representation and participation in events like World Narcolepsy Day, discussing the complexities of cultural stigmas and the barriers that hinder support. Sakhara opens up about her own path to acceptance and the role of community and faith in navigating the challenges of this often misunderstood condition.

Chapter Timestamps

  • (00:06) - Living With Narcoleptic Challenges
  • (13:35) - Representation and Acceptance of Narcolepsy
  • (23:21) - Impact of Narcolepsy on Relationships
  • (28:53) - Navigating Relationships With Narcolepsy
  • (39:45) - Navigating Narcolepsy in Dating

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow us on Instagram for updates: https://www.instagram.com/narcolepsynavigatorspodcast/

*If you find these symptoms relatable, please seek medical advice.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

Discover the untold stories of life with narcolepsy as Sakhara Johnson joins us for an intimate conversation about her journey. We peel back the curtain on her day-to-day battles, from the initial misdiagnoses and the arduous path to discovering she had severe narcolepsy, to the ongoing struggles with treatments and their impact on her personal life. Sakhara doesn't hold back in sharing the gritty details of using a CPAP machine, undergoing surgeries, and the toll these take on her academic and social experiences. Her resilience in the face of such trials is nothing short of inspiring, offering a beacon of hope for anyone facing similar hardships.

This episode isn't just Sakhara's narrative; it's a critical examination of the broader issues at play within the narcolepsy community, especially for people of color. We probe the need for better representation and participation in events like World Narcolepsy Day, discussing the complexities of cultural stigmas and the barriers that hinder support. Sakhara opens up about her own path to acceptance and the role of community and faith in navigating the challenges of this often misunderstood condition.

Chapter Timestamps

  • (00:06) - Living With Narcoleptic Challenges
  • (13:35) - Representation and Acceptance of Narcolepsy
  • (23:21) - Impact of Narcolepsy on Relationships
  • (28:53) - Navigating Relationships With Narcolepsy
  • (39:45) - Navigating Narcolepsy in Dating

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow us on Instagram for updates: https://www.instagram.com/narcolepsynavigatorspodcast/

*If you find these symptoms relatable, please seek medical advice.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1713900 Sun, 07 Apr 2024 13:15:40 +0100 2780 1 5 false S1E4 A Deep Dive Into Idiopathic Hypersomnia with Ross S1E4 A Deep Dive Into Idiopathic Hypersomnia with Ross Leave a review!

This has been a highly anticipated episode for us here on the Narcolepsy Navigators podcast. Our hosts Kerly and Liz, are both taking on an incredibly deep and detailed dive into what living with Idiopathic Hypersomnia is really like and what is actually the difference between narcolepsy and IH?

Chapters

(01:57 - 05:22) Living With Idiopathic Hypersomnia in UK 
(05:19 - 05:37) Unusual Problem With Unknown Cause 
(07:20 - 09:38) Sleep Patterns in Idiopathic Hypersomnia 
(14:14 - 18:47) Struggles With Medication Effectiveness 
(21:23 - 22:41) Hallucinations in Narcolepsy and IH 
(40:02 - 41:50) Struggling With Unpredictable Sleep Attacks
(45:19 - 47:06) Nap's Importance and Grogginess 
(52:44 - 55:05) Strategies for Managing Narcolepsy Symptoms 
(57:59 - 01:00:30) Managing Sleep Patterns With Medication 
(01:10:24 - 01:11:58) Idiopathic Hypersomnia 

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow us on Instagram for updates: https://www.instagram.com/narcolepsynavigatorspodcast/

*If you find these symptoms relatable, please see a medical professional.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

This has been a highly anticipated episode for us here on the Narcolepsy Navigators podcast. Our hosts Kerly and Liz, are both taking on an incredibly deep and detailed dive into what living with Idiopathic Hypersomnia is really like and what is actually the difference between narcolepsy and IH?

Chapters

(01:57 - 05:22) Living With Idiopathic Hypersomnia in UK 
(05:19 - 05:37) Unusual Problem With Unknown Cause 
(07:20 - 09:38) Sleep Patterns in Idiopathic Hypersomnia 
(14:14 - 18:47) Struggles With Medication Effectiveness 
(21:23 - 22:41) Hallucinations in Narcolepsy and IH 
(40:02 - 41:50) Struggling With Unpredictable Sleep Attacks
(45:19 - 47:06) Nap's Importance and Grogginess 
(52:44 - 55:05) Strategies for Managing Narcolepsy Symptoms 
(57:59 - 01:00:30) Managing Sleep Patterns With Medication 
(01:10:24 - 01:11:58) Idiopathic Hypersomnia 

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow us on Instagram for updates: https://www.instagram.com/narcolepsynavigatorspodcast/

*If you find these symptoms relatable, please see a medical professional.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1673280 Tue, 27 Feb 2024 22:09:40 +0000 4065 1 4 false S1E3 Navigating the World with Narcolepsy: Liz's Travel Tales S1E3 Navigating the World with Narcolepsy: Liz's Travel Tales Leave a review!

In this engaging episode, host Kerly Bwoga chats with Liz, who shares her experiences of traveling with narcolepsy. Diagnosed at 18, Liz offers a candid look into the highs and lows of her travel adventures, providing valuable insights for anyone facing similar challenges.

Chapters:

  • Welcoming Liz and Introduction [0:00]
  • Liz's Narcolepsy Diagnosis and Background [2:15]
  • The Realities of Traveling with Narcolepsy [5:30]
  • Joyful Experiences in Liz's Travels [10:45]
  • Confronting Travel Challenges [15:20]
  • Liz's Tips for Traveling with Narcolepsy [20:35]

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow us on Instagram for updates: https://www.instagram.com/narcolepsynavigatorspodcast/

*If you find these symptoms relatable, please seek medical advice.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this engaging episode, host Kerly Bwoga chats with Liz, who shares her experiences of traveling with narcolepsy. Diagnosed at 18, Liz offers a candid look into the highs and lows of her travel adventures, providing valuable insights for anyone facing similar challenges.

Chapters:

  • Welcoming Liz and Introduction [0:00]
  • Liz's Narcolepsy Diagnosis and Background [2:15]
  • The Realities of Traveling with Narcolepsy [5:30]
  • Joyful Experiences in Liz's Travels [10:45]
  • Confronting Travel Challenges [15:20]
  • Liz's Tips for Traveling with Narcolepsy [20:35]

Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.

Follow us on Instagram for updates: https://www.instagram.com/narcolepsynavigatorspodcast/

*If you find these symptoms relatable, please seek medical advice.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1642060 Tue, 30 Jan 2024 10:00:00 +0000 3372 1 2 false S1E2 Meet The Host: Kerly's Narcolepsy Journey S1E2 Meet The Host: Kerly's Narcolepsy Journey Leave a review!

In this episode, host Kerly opens up about her narcolepsy journey. She discusses the early signs, the path to a proper diagnosis, the challenges she faced in her education, and her reasons for founding 'Narcolepsy Navigators' and 'Naps for Life'."

Key Topics:

  • Kerly's Experience with Narcolepsy and Cataplexy during Festive Seasons [0:00]
  • The Road to Narcolepsy Diagnosis: Early Signs and Misdiagnoses [3:00]
  • Overcoming Academic Challenges with Narcolepsy [8:00]
  • The Crucial Steps to a Correct Narcolepsy Diagnosis [15:00]
  • Coping Mechanisms and Medication Management [20:00]
  • The Inspiration Behind "Narcolepsy Navigators" and "Naps for Life" [25:00]

Support narcolepsy awareness by sharing this podcast!

Follow us on Instagram for updates, and join our "NapsForLife" community on Facebook for peer support.

Share your stories or questions about living with narcolepsy.

 

"Share a Story to Change a Story." - Team NN

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Leave a review!

In this episode, host Kerly opens up about her narcolepsy journey. She discusses the early signs, the path to a proper diagnosis, the challenges she faced in her education, and her reasons for founding 'Narcolepsy Navigators' and 'Naps for Life'."

Key Topics:

  • Kerly's Experience with Narcolepsy and Cataplexy during Festive Seasons [0:00]
  • The Road to Narcolepsy Diagnosis: Early Signs and Misdiagnoses [3:00]
  • Overcoming Academic Challenges with Narcolepsy [8:00]
  • The Crucial Steps to a Correct Narcolepsy Diagnosis [15:00]
  • Coping Mechanisms and Medication Management [20:00]
  • The Inspiration Behind "Narcolepsy Navigators" and "Naps for Life" [25:00]

Support narcolepsy awareness by sharing this podcast!

Follow us on Instagram for updates, and join our "NapsForLife" community on Facebook for peer support.

Share your stories or questions about living with narcolepsy.

 

"Share a Story to Change a Story." - Team NN

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1643757 Mon, 29 Jan 2024 01:13:47 +0000 2603 1 3 false S1E1 Understanding Narcolepsy and Idiopathic Hypersomnia: A Deep Dive with Kerly Bwoga S1E1 Understanding Narcolepsy and Idiopathic Hypersomnia: A Deep Dive with Kerly Bwoga Leave a review!

In this episode, our host Kerly Bwoga founder of Naps for Life Narcolepsy, delves into the complexities of narcolepsy and idiopathic hypersomnia. She discusses the symptoms, diagnosis, and treatment options for these sleep disorders, and highlights their impact on daily life.

Key Topics

  • Introduction to Narcolepsy Navigators [0:10]
  • What is Narcolepsy? Understanding the Disorder [1:50]
  • The Journey to Diagnosis [3:33]
  • Exploring Narcolepsy Symptoms [5:11]
  • Navigating Treatment Options [8:57]
  • The Daily Reality of Living with Narcolepsy [11:22]

Share this episode to help spread awareness and follow us on all platforms for more insightful stories.

Follow us on Instagram: https://www.instagram.com/narcolepsynavigators/

*If you find these symptoms relatable, please seek medical advice.

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
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LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
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***If you find these symptoms relatable, please seek medical advice.***


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In this episode, our host Kerly Bwoga founder of Naps for Life Narcolepsy, delves into the complexities of narcolepsy and idiopathic hypersomnia. She discusses the symptoms, diagnosis, and treatment options for these sleep disorders, and highlights their impact on daily life.

Key Topics

  • Introduction to Narcolepsy Navigators [0:10]
  • What is Narcolepsy? Understanding the Disorder [1:50]
  • The Journey to Diagnosis [3:33]
  • Exploring Narcolepsy Symptoms [5:11]
  • Navigating Treatment Options [8:57]
  • The Daily Reality of Living with Narcolepsy [11:22]

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*If you find these symptoms relatable, please seek medical advice.

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TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast 

***If you find these symptoms relatable, please seek medical advice.***


]]> Kerly Bwoga https://permalink.castos.com/podcast/57196/episode/1612962 Sun, 10 Dec 2023 08:59:43 +0000 705 1 1 false