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  <title>Unpacking the Gift of Life</title>

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  <copyright>© 2026 Unpacking the Gift of Life</copyright>
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  <itunes:author>Valen Keefer</itunes:author>
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  <description><![CDATA[<p>Our experiences shape more than our health. They shape our relationships, our identity, and the way we move through the world. In Season 3, <em>Unpacking the Gift of Life</em> explores the intersection of health, humanity, and connection—with hope, honesty, and hard-won insight to navigate care, find purpose, and live well alongside chronic illness.</p><p><br></p><p>Hosted by patient advocacy leader and two-time transplant recipient Valen Keefer, every episode is a reminder that none of us are navigating it alone. Through real stories from patients, transplant survivors, healthcare providers, researchers, and advocates, we share heartfelt conversations about building resilience, finding connection, and discovering the perspectives that make life so beautiful.</p>]]></description>
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    <itunes:name>Valen Keefer</itunes:name>
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     <title>Unpacking the Gift of Life</title>
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    <itunes:title>Now What? Finding Your Path Through Kidney Care </itunes:title>
    <title>Now What? Finding Your Path Through Kidney Care </title>
    <itunes:summary><![CDATA["Now what?" It's the question Valen asked 25 years ago as an 18-year-old newly under the care of nephrologist Dr. Terry Watnick, and it's the same question she's answering in this episode for anyone facing a new kidney disease diagnosis today. Valen reunites with Dr. Watnick, a nephrologist and PKD researcher at the University of Maryland School of Medicine, to cover the fundamentals of kidney care for newly diagnosed patients, from building a healthcare team to understanding the different ty...]]></itunes:summary>
    <description><![CDATA[<p>&quot;Now what?&quot; It&apos;s the question Valen asked 25 years ago as an 18-year-old newly under the care of nephrologist Dr. Terry Watnick, and it&apos;s the same question she&apos;s answering in this episode for anyone facing a new kidney disease diagnosis today. Valen reunites with Dr. Watnick, a nephrologist and PKD researcher at the University of Maryland School of Medicine, to cover the fundamentals of kidney care for newly diagnosed patients, from building a healthcare team to understanding the different types of nephrology care available. Walk away knowing how to build a healthcare team you trust, how to know what type of care is right for you, and how to find your community along the way.  </p><p> </p><p>About Your Host </p><p>Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant,  </p><p><a href='https://www.valenkeefer.com/'>www.valenkeefer.com</a> </p><p> </p><p>Additional Resources </p><ul><li><a href='https://pkdcure.org/'>https://pkdcure.org/</a> </li><li><a href='https://pkdcure.org/research/centers-of-excellence/'>https://pkdcure.org/research/centers-of-excellence/</a> </li><li><a href='https://www.medschool.umaryland.edu/profiles/watnick-terry/'>https://www.medschool.umaryland.edu/profiles/watnick-terry/</a> </li></ul><p> </p><p> </p>]]></description>
    <content:encoded><![CDATA[<p>&quot;Now what?&quot; It&apos;s the question Valen asked 25 years ago as an 18-year-old newly under the care of nephrologist Dr. Terry Watnick, and it&apos;s the same question she&apos;s answering in this episode for anyone facing a new kidney disease diagnosis today. Valen reunites with Dr. Watnick, a nephrologist and PKD researcher at the University of Maryland School of Medicine, to cover the fundamentals of kidney care for newly diagnosed patients, from building a healthcare team to understanding the different types of nephrology care available. Walk away knowing how to build a healthcare team you trust, how to know what type of care is right for you, and how to find your community along the way.  </p><p> </p><p>About Your Host </p><p>Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant,  </p><p><a href='https://www.valenkeefer.com/'>www.valenkeefer.com</a> </p><p> </p><p>Additional Resources </p><ul><li><a href='https://pkdcure.org/'>https://pkdcure.org/</a> </li><li><a href='https://pkdcure.org/research/centers-of-excellence/'>https://pkdcure.org/research/centers-of-excellence/</a> </li><li><a href='https://www.medschool.umaryland.edu/profiles/watnick-terry/'>https://www.medschool.umaryland.edu/profiles/watnick-terry/</a> </li></ul><p> </p><p> </p>]]></content:encoded>
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    <itunes:author>Valen Keefer</itunes:author>
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    <pubDate>Thu, 08 Oct 2026 12:00:00 -0400</pubDate>
    <itunes:duration>2684</itunes:duration>
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    <itunes:season>3</itunes:season>
    <itunes:episode>3</itunes:episode>
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    <itunes:title>Don&#39;t You Know, KDIGO?: Clinical Guidelines and Why They Matter</itunes:title>
    <title>Don&#39;t You Know, KDIGO?: Clinical Guidelines and Why They Matter</title>
    <itunes:summary><![CDATA[In recent years, new KDIGO guidelines for both IgA nephropathy (IgAN) and PKD have been released – but what does this mean for patients and their loved ones? In this episode, Valen talks with Mike Spigler, Chief Program Officer and Vice President of Strategic Partnerships, Research and Education at the American Kidney Fund, about the KDIGO (Kidney Disease: Improving Global Outcomes) guidelines that shape care for kidney disease around the world. They discuss where these guidelines come from, ...]]></itunes:summary>
    <description><![CDATA[<p>In recent years, new KDIGO guidelines for both IgA nephropathy (IgAN) and PKD have been released – but what does this mean for patients and their loved ones? In this episode, Valen talks with Mike Spigler, Chief Program Officer and Vice President of Strategic Partnerships, Research and Education at the American Kidney Fund, about the KDIGO (Kidney Disease: Improving Global Outcomes) guidelines that shape care for kidney disease around the world. They discuss where these guidelines come from, what they look like in practice, and how advocacy groups are helping to translate them into plain language so patients can be empowered with knowledge. </p><p>Tune in to learn more about the guidelines shaping clinical care and what they mean day-to-day for patients and caregivers.</p><p><b>About Your Host</b></p><p>Valen Keefer – Patient Advocacy Leader &amp; Strategic Healthcare Consultant, <a href='http://www.valenkeefer.com'>www.valenkeefer.com</a> </p><p><b>Additional Resources</b></p><ul><li><a href='https://www.kidneyfund.org/'>American Kidney Fund</a></li><li><a href='https://www.kidneyfund.org/professionals-and-research/unknown-causes-kidney-disease-project'>AKF - Unknown Causes of Kidney Disease Project</a></li><li><a href='https://kdigo.org/'>KDIGO</a></li><li><a href='https://igan.org/'>The IgA Nephropathy Foundation</a></li><li><a href='https://alportsyndrome.org/'>Alport Syndrome Foundation</a></li></ul>]]></description>
    <content:encoded><![CDATA[<p>In recent years, new KDIGO guidelines for both IgA nephropathy (IgAN) and PKD have been released – but what does this mean for patients and their loved ones? In this episode, Valen talks with Mike Spigler, Chief Program Officer and Vice President of Strategic Partnerships, Research and Education at the American Kidney Fund, about the KDIGO (Kidney Disease: Improving Global Outcomes) guidelines that shape care for kidney disease around the world. They discuss where these guidelines come from, what they look like in practice, and how advocacy groups are helping to translate them into plain language so patients can be empowered with knowledge. </p><p>Tune in to learn more about the guidelines shaping clinical care and what they mean day-to-day for patients and caregivers.</p><p><b>About Your Host</b></p><p>Valen Keefer – Patient Advocacy Leader &amp; Strategic Healthcare Consultant, <a href='http://www.valenkeefer.com'>www.valenkeefer.com</a> </p><p><b>Additional Resources</b></p><ul><li><a href='https://www.kidneyfund.org/'>American Kidney Fund</a></li><li><a href='https://www.kidneyfund.org/professionals-and-research/unknown-causes-kidney-disease-project'>AKF - Unknown Causes of Kidney Disease Project</a></li><li><a href='https://kdigo.org/'>KDIGO</a></li><li><a href='https://igan.org/'>The IgA Nephropathy Foundation</a></li><li><a href='https://alportsyndrome.org/'>Alport Syndrome Foundation</a></li></ul>]]></content:encoded>
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    <itunes:author>Valen Keefer</itunes:author>
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    <pubDate>Wed, 23 Sep 2026 13:00:00 -0400</pubDate>
    <itunes:duration>2210</itunes:duration>
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    <itunes:episode>2</itunes:episode>
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    <itunes:title>Walking a Different Path: John Fluevog’s Story of Creativity, Transplant, and Purpose</itunes:title>
    <title>Walking a Different Path: John Fluevog’s Story of Creativity, Transplant, and Purpose</title>
    <itunes:summary><![CDATA[Behind John Fluevog's decades of iconic shoe design is a personal story of kidney disease, transplant, and gratitude. Valen talks with John about his creative journey, his diagnosis of polycystic kidney disease, and the transplant that changed his outlook and inspired him to create shoes carrying a message of love and generosity. Through it all, he continues to "walk in the creative," offering advice along the way to others hoping to do the same. Discover how art can be a vehicle for advocacy...]]></itunes:summary>
    <description><![CDATA[<p>Behind John Fluevog&apos;s decades of iconic shoe design is a personal story of kidney disease, transplant, and gratitude. Valen talks with John about his creative journey, his diagnosis of polycystic kidney disease, and the transplant that changed his outlook and inspired him to create shoes carrying a message of love and generosity. Through it all, he continues to &quot;walk in the creative,&quot; offering advice along the way to others hoping to do the same. Discover how art can be a vehicle for advocacy, awareness, and self-expression. </p><p> </p><p><b>About Your Host:</b> </p><p>Valen Keefer – Patient Advocacy Leader &amp; Strategic Healthcare Consultant, <a href='http://www.valenkeefer.com/'>www.valenkeefer.com</a>  </p><p> </p><p><b>Additional Resources</b> </p><ul><li><a href='https://kidney.ca/'>The Kidney Foundation of Canada</a>  </li><li><a href='https://www.myast.org/'>American Society of Transplantation </a> </li><li><a href='https://www.livingdonorcircle.com/'>Living Donor Circle of Excellence</a> </li></ul>]]></description>
    <content:encoded><![CDATA[<p>Behind John Fluevog&apos;s decades of iconic shoe design is a personal story of kidney disease, transplant, and gratitude. Valen talks with John about his creative journey, his diagnosis of polycystic kidney disease, and the transplant that changed his outlook and inspired him to create shoes carrying a message of love and generosity. Through it all, he continues to &quot;walk in the creative,&quot; offering advice along the way to others hoping to do the same. Discover how art can be a vehicle for advocacy, awareness, and self-expression. </p><p> </p><p><b>About Your Host:</b> </p><p>Valen Keefer – Patient Advocacy Leader &amp; Strategic Healthcare Consultant, <a href='http://www.valenkeefer.com/'>www.valenkeefer.com</a>  </p><p> </p><p><b>Additional Resources</b> </p><ul><li><a href='https://kidney.ca/'>The Kidney Foundation of Canada</a>  </li><li><a href='https://www.myast.org/'>American Society of Transplantation </a> </li><li><a href='https://www.livingdonorcircle.com/'>Living Donor Circle of Excellence</a> </li></ul>]]></content:encoded>
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    <itunes:author>Unpacking the Gift of Life</itunes:author>
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    <pubDate>Fri, 04 Sep 2026 12:00:00 -0400</pubDate>
    <itunes:duration>2620</itunes:duration>
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    <itunes:season>3</itunes:season>
    <itunes:episode>1</itunes:episode>
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    <itunes:title>Hope on the Horizon: How Every Voice Shapes Research Innovation</itunes:title>
    <title>Hope on the Horizon: How Every Voice Shapes Research Innovation</title>
    <itunes:summary><![CDATA[The future of rare kidney disease treatment is full of hope and innovation. Valen chats with Dr. Jill Green and Dr. Pranav Garimella about groundbreaking research and why the patient voice matters when working with advocacy groups and industry to shape future treatments. Leave feeling inspired and informed about the innovations driving change in rare kidney disease care.    About Your Host Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, www.valenkeefe...]]></itunes:summary>
    <description><![CDATA[<p>The future of rare kidney disease treatment is full of hope and innovation. Valen chats with Dr. Jill Green and Dr. Pranav Garimella about groundbreaking research and why the patient voice matters when working with advocacy groups and industry to shape future treatments. Leave feeling inspired and informed about the innovations driving change in rare kidney disease care. </p><p><br/></p><p>About Your Host</p><p>Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, <a href='http://www.valenkeefer.com/'>www.valenkeefer.com</a></p><p><br/></p><p>Additional Resources</p><p>Dr. Pranav Garimella - <a href='https://providers.ucsd.edu/details/32642/nephrology-(kidney)'>Pranav Garimella, MBBS, MPH, FASN - Nephrology (Kidney) | UC San Diego Health</a></p><p>Dr. Jill Green - <a href='https://www.linkedin.com/in/jill-a-green-phd-49762450/'>Jill A. Green</a></p><p>PKD Centers of Excellence - <a href='https://pkdcure.org/research/centers-of-excellence/'>Centers of Excellence - Polycystic kidney disease | PKD treatment research | PKD Foundation</a></p><p>UC San Diego PKD Center of Excellence - <a href='https://health.ucsd.edu/care/kidney/polycystic/'>Polycystic Kidney Disease Care | UC San Diego Health</a></p><p>American Kidney Fund - <a href='https://www.kidneyfund.org/'>Join us in fighting kidney disease on all fronts | American Kidney Fund</a></p><p>Rare Kidney Disease Action Network</p><p><a href='https://www.kidneyfund.org/rare-kidney-disease-action-network'>https://www.kidneyfund.org/rare-kidney-disease-action-network</a></p><p>Unknown Causes of CKD Program</p><p><a href='https://www.kidneyfund.org/professionals-and-research/unknown-causes-kidney-disease-project'>https://www.kidneyfund.org/professionals-and-research/unknown-causes-kidney-disease-project</a></p>]]></description>
    <content:encoded><![CDATA[<p>The future of rare kidney disease treatment is full of hope and innovation. Valen chats with Dr. Jill Green and Dr. Pranav Garimella about groundbreaking research and why the patient voice matters when working with advocacy groups and industry to shape future treatments. Leave feeling inspired and informed about the innovations driving change in rare kidney disease care. </p><p><br/></p><p>About Your Host</p><p>Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, <a href='http://www.valenkeefer.com/'>www.valenkeefer.com</a></p><p><br/></p><p>Additional Resources</p><p>Dr. Pranav Garimella - <a href='https://providers.ucsd.edu/details/32642/nephrology-(kidney)'>Pranav Garimella, MBBS, MPH, FASN - Nephrology (Kidney) | UC San Diego Health</a></p><p>Dr. Jill Green - <a href='https://www.linkedin.com/in/jill-a-green-phd-49762450/'>Jill A. Green</a></p><p>PKD Centers of Excellence - <a href='https://pkdcure.org/research/centers-of-excellence/'>Centers of Excellence - Polycystic kidney disease | PKD treatment research | PKD Foundation</a></p><p>UC San Diego PKD Center of Excellence - <a href='https://health.ucsd.edu/care/kidney/polycystic/'>Polycystic Kidney Disease Care | UC San Diego Health</a></p><p>American Kidney Fund - <a href='https://www.kidneyfund.org/'>Join us in fighting kidney disease on all fronts | American Kidney Fund</a></p><p>Rare Kidney Disease Action Network</p><p><a href='https://www.kidneyfund.org/rare-kidney-disease-action-network'>https://www.kidneyfund.org/rare-kidney-disease-action-network</a></p><p>Unknown Causes of CKD Program</p><p><a href='https://www.kidneyfund.org/professionals-and-research/unknown-causes-kidney-disease-project'>https://www.kidneyfund.org/professionals-and-research/unknown-causes-kidney-disease-project</a></p>]]></content:encoded>
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    <itunes:author>Valen Keefer</itunes:author>
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    <pubDate>Tue, 09 Dec 2025 12:00:00 -0500</pubDate>
    <itunes:duration>2816</itunes:duration>
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    <itunes:season>2</itunes:season>
    <itunes:episode>6</itunes:episode>
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    <itunes:title>On the Cutting Edge: Engaging in Rare Disease Research</itunes:title>
    <title>On the Cutting Edge: Engaging in Rare Disease Research</title>
    <itunes:summary><![CDATA[Patients are key to advancing rare disease treatment. IgA nephropathy (IgAN) patient Russ Roberts and his nephrologist Dr. Arnold Silva discuss the role of clinical trials in rare kidney disease research and how patients and providers can work together to shape the future of treatment. Get practical advice on how to get involved in clinical research and make a difference.    About Your Host  Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, ww...]]></itunes:summary>
    <description><![CDATA[<p>Patients are key to advancing rare disease treatment. IgA nephropathy (IgAN) patient Russ Roberts and his nephrologist Dr. Arnold Silva discuss the role of clinical trials in rare kidney disease research and how patients and providers can work together to shape the future of treatment. Get practical advice on how to get involved in clinical research and make a difference. </p><p> </p><p>About Your Host </p><p>Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, <a href='http://www.valenkeefer.com/'>www.valenkeefer.com</a>  </p><p> </p><p>Additional Resources </p><ul><li>CaRe network for patients and clinicians to locate investigators participating in clinical trials – Cardio Renal Institute, <a href='https://cardiorenalinstitute.com/'>https://cardiorenalinstitute.com/</a>  </li><li>Clinical Trials from Around the World, <a href='https://clinicaltrials.gov/'>https://clinicaltrials.gov</a> </li><li>IgA Nephropathy Foundation, <a href='https://igan.org/'>https://igan.org/</a> </li></ul>]]></description>
    <content:encoded><![CDATA[<p>Patients are key to advancing rare disease treatment. IgA nephropathy (IgAN) patient Russ Roberts and his nephrologist Dr. Arnold Silva discuss the role of clinical trials in rare kidney disease research and how patients and providers can work together to shape the future of treatment. Get practical advice on how to get involved in clinical research and make a difference. </p><p> </p><p>About Your Host </p><p>Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, <a href='http://www.valenkeefer.com/'>www.valenkeefer.com</a>  </p><p> </p><p>Additional Resources </p><ul><li>CaRe network for patients and clinicians to locate investigators participating in clinical trials – Cardio Renal Institute, <a href='https://cardiorenalinstitute.com/'>https://cardiorenalinstitute.com/</a>  </li><li>Clinical Trials from Around the World, <a href='https://clinicaltrials.gov/'>https://clinicaltrials.gov</a> </li><li>IgA Nephropathy Foundation, <a href='https://igan.org/'>https://igan.org/</a> </li></ul>]]></content:encoded>
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    <itunes:author>Valen Keefer</itunes:author>
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    <pubDate>Thu, 30 Oct 2025 12:00:00 -0400</pubDate>
    <itunes:duration>2533</itunes:duration>
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    <itunes:season>2</itunes:season>
    <itunes:episode>5</itunes:episode>
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    <itunes:title>Patient-Provider Partnership: The Ins and Outs of Building Your Care Team (Part 2)</itunes:title>
    <title>Patient-Provider Partnership: The Ins and Outs of Building Your Care Team (Part 2)</title>
    <itunes:summary><![CDATA[Strong relationships with your healthcare team are essential for managing complex care. Valen and her nephrologist, Dr. Adarsh Bhat, explore how patients and providers can collaborate, while transplant recipient Tristan Mace shares tips on managing a complex care team. Discover valuable tips on building effective, supportive relationships with your healthcare providers.    About Your Host  Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, www.valen...]]></itunes:summary>
    <description><![CDATA[<p>Strong relationships with your healthcare team are essential for managing complex care. Valen and her nephrologist, Dr. Adarsh Bhat, explore how patients and providers can collaborate, while transplant recipient Tristan Mace shares tips on managing a complex care team. Discover valuable tips on building effective, supportive relationships with your healthcare providers. </p><p><br/></p><p>About Your Host </p><p>Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, <a href='http://www.valenkeefer.com/'>www.valenkeefer.com</a>  </p><p> </p><p>Additional Resources </p><ul><li>Transplants.org, a nonprofit for transplant patients from first consideration to lifelong health, <a href='http://transplants.org/'>www.transplants.org</a> </li><li>Valeos, a nonprofit data initiative improving outcomes and access for transplant patients through data collaboration – <a href='http://valeos.org/'>www.valeos.org</a> </li><li>Tristan Mace’s Wall Street Journal Article – <a href='https://www.wsj.com/health/healthcare/he-got-a-new-heart-now-this-34-year-old-is-fighting-to-fix-the-transplant-system-394a8f78'>www.wsj.com/health/healthcare/he-got-a-new-heart-now-this-34-year-old-is-fighting-to-fix-the-transplant-system-394a8f78?</a>  </li><li>Tristan Mace – <a href='http://tristanmace.com/'>tristanmace.com</a> </li><li>Summit Nephrology, Dr. Adarsh Bhat - <a href='https://summitnephrology.com/doctors/adarsh-bhat/'>www.summitnephrology.com/doctors/adarsh-bhat/</a> </li></ul>]]></description>
    <content:encoded><![CDATA[<p>Strong relationships with your healthcare team are essential for managing complex care. Valen and her nephrologist, Dr. Adarsh Bhat, explore how patients and providers can collaborate, while transplant recipient Tristan Mace shares tips on managing a complex care team. Discover valuable tips on building effective, supportive relationships with your healthcare providers. </p><p><br/></p><p>About Your Host </p><p>Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, <a href='http://www.valenkeefer.com/'>www.valenkeefer.com</a>  </p><p> </p><p>Additional Resources </p><ul><li>Transplants.org, a nonprofit for transplant patients from first consideration to lifelong health, <a href='http://transplants.org/'>www.transplants.org</a> </li><li>Valeos, a nonprofit data initiative improving outcomes and access for transplant patients through data collaboration – <a href='http://valeos.org/'>www.valeos.org</a> </li><li>Tristan Mace’s Wall Street Journal Article – <a href='https://www.wsj.com/health/healthcare/he-got-a-new-heart-now-this-34-year-old-is-fighting-to-fix-the-transplant-system-394a8f78'>www.wsj.com/health/healthcare/he-got-a-new-heart-now-this-34-year-old-is-fighting-to-fix-the-transplant-system-394a8f78?</a>  </li><li>Tristan Mace – <a href='http://tristanmace.com/'>tristanmace.com</a> </li><li>Summit Nephrology, Dr. Adarsh Bhat - <a href='https://summitnephrology.com/doctors/adarsh-bhat/'>www.summitnephrology.com/doctors/adarsh-bhat/</a> </li></ul>]]></content:encoded>
    <enclosure url="https://www.buzzsprout.com/2342454/episodes/18023123-patient-provider-partnership-the-ins-and-outs-of-building-your-care-team-part-2.mp3" length="26002528" type="audio/mpeg" />
    <itunes:author>Valen Keefer</itunes:author>
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    <pubDate>Thu, 16 Oct 2025 13:00:00 -0400</pubDate>
    <itunes:duration>2162</itunes:duration>
    <itunes:keywords></itunes:keywords>
    <itunes:season>2</itunes:season>
    <itunes:episode>4</itunes:episode>
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  <item>
    <itunes:title>Patient-Provider Partnership: The Ins and Outs of Building Your Care Team (Part 1) </itunes:title>
    <title>Patient-Provider Partnership: The Ins and Outs of Building Your Care Team (Part 1) </title>
    <itunes:summary><![CDATA[Strong relationships with your healthcare team are essential for managing complex care. Valen and her nephrologist, Dr. Adarsh Bhat, explore how patients and providers can collaborate, while transplant recipient Tristan Mace shares tips on managing a complex care team. Discover valuable tips on building effective, supportive relationships with your healthcare providers.    About Your Host  Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, www....]]></itunes:summary>
    <description><![CDATA[<p>Strong relationships with your healthcare team are essential for managing complex care. Valen and her nephrologist, Dr. Adarsh Bhat, explore how patients and providers can collaborate, while transplant recipient Tristan Mace shares tips on managing a complex care team. Discover valuable tips on building effective, supportive relationships with your healthcare providers. </p><p> </p><p>About Your Host </p><p>Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, <a href='http://www.valenkeefer.com/'>www.valenkeefer.com</a>  </p><p> </p><p>Additional Resources </p><ul><li>Transplants.org, a nonprofit for transplant patients from first consideration to lifelong health, <a href='http://transplants.org/'>www.transplants.org</a> </li><li>Valeos, a nonprofit data initiative improving outcomes and access for transplant patients through data collaboration – <a href='http://valeos.org/'>www.valeos.org</a> </li><li>Tristan Mace’s Wall Street Journal Article – <a href='https://www.wsj.com/health/healthcare/he-got-a-new-heart-now-this-34-year-old-is-fighting-to-fix-the-transplant-system-394a8f78'>www.wsj.com/health/healthcare/he-got-a-new-heart-now-this-34-year-old-is-fighting-to-fix-the-transplant-system-394a8f78?</a>  </li><li>Tristan Mace – <a href='http://tristanmace.com/'>tristanmace.com</a> </li><li>Summit Nephrology, Dr. Adarsh Bhat - <a href='https://summitnephrology.com/doctors/adarsh-bhat/'>www.summitnephrology.com/doctors/adarsh-bhat/</a> </li></ul>]]></description>
    <content:encoded><![CDATA[<p>Strong relationships with your healthcare team are essential for managing complex care. Valen and her nephrologist, Dr. Adarsh Bhat, explore how patients and providers can collaborate, while transplant recipient Tristan Mace shares tips on managing a complex care team. Discover valuable tips on building effective, supportive relationships with your healthcare providers. </p><p> </p><p>About Your Host </p><p>Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, <a href='http://www.valenkeefer.com/'>www.valenkeefer.com</a>  </p><p> </p><p>Additional Resources </p><ul><li>Transplants.org, a nonprofit for transplant patients from first consideration to lifelong health, <a href='http://transplants.org/'>www.transplants.org</a> </li><li>Valeos, a nonprofit data initiative improving outcomes and access for transplant patients through data collaboration – <a href='http://valeos.org/'>www.valeos.org</a> </li><li>Tristan Mace’s Wall Street Journal Article – <a href='https://www.wsj.com/health/healthcare/he-got-a-new-heart-now-this-34-year-old-is-fighting-to-fix-the-transplant-system-394a8f78'>www.wsj.com/health/healthcare/he-got-a-new-heart-now-this-34-year-old-is-fighting-to-fix-the-transplant-system-394a8f78?</a>  </li><li>Tristan Mace – <a href='http://tristanmace.com/'>tristanmace.com</a> </li><li>Summit Nephrology, Dr. Adarsh Bhat - <a href='https://summitnephrology.com/doctors/adarsh-bhat/'>www.summitnephrology.com/doctors/adarsh-bhat/</a> </li></ul>]]></content:encoded>
    <enclosure url="https://www.buzzsprout.com/2342454/episodes/18023139-patient-provider-partnership-the-ins-and-outs-of-building-your-care-team-part-1.mp3" length="30987281" type="audio/mpeg" />
    <itunes:author>Valen Keefer</itunes:author>
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    <pubDate>Thu, 16 Oct 2025 12:00:00 -0400</pubDate>
    <itunes:duration>2577</itunes:duration>
    <itunes:keywords></itunes:keywords>
    <itunes:season>2</itunes:season>
    <itunes:episode>4</itunes:episode>
    <itunes:episodeType>full</itunes:episodeType>
    <itunes:explicit>false</itunes:explicit>
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  <item>
    <itunes:title>Care for the Rare: Real Caregivers Share Support Strategies for Rare Kidney Disease (Part 2)</itunes:title>
    <title>Care for the Rare: Real Caregivers Share Support Strategies for Rare Kidney Disease (Part 2)</title>
    <itunes:summary><![CDATA[Caregiving is a shared journey. Valen is joined by mother-daughter duo Linda and Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis (ARPKD/CHF) patient Claire Bevec, along with Valen’s husband Noah, to talk about the evolving dynamics of caregiving. Hear advice and strategies for navigating the caregiving journey and transition from pediatric to adult care with compassion and resilience.    About Your Host  Valen Keefer – Patient Advocacy Leader, Heal...]]></itunes:summary>
    <description><![CDATA[<p>Caregiving is a shared journey. Valen is joined by mother-daughter duo Linda and Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis (ARPKD/CHF) patient Claire Bevec, along with Valen’s husband Noah, to talk about the evolving dynamics of caregiving. Hear advice and strategies for navigating the caregiving journey and transition from pediatric to adult care with compassion and resilience. </p><p> </p><p>About Your Host </p><p>Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, <a href='http://www.valenkeefer.com/'>www.valenkeefer.com</a>  </p><p> </p><p>Additional Resources </p><ul><li>ARPKD Facebook Support Group, <a href='https://m.facebook.com/groups/ARPKD/?ref=share&amp;mibextid=wwXIfr'>https://m.facebook.com/groups/ARPKD/?ref=share&amp;mibextid=wwXIfr</a> </li><li>Harmony for Hope, <a href='https://harmony4hope.org/'>https://harmony4hope.org/</a>  </li><li>“Self Care While Being a Caregiver” – featuring Noah Keefer on Otsuka’s Patient Education Network, <a href='https://www.otsukapatiented.com/kidney-disease/community-stories/self-care-while-being-caregiver'>https://www.otsukapatiented.com/kidney-disease/community-stories/self-care-while-being-caregiver</a> </li><li>“The Crucial Care Partner” – Episode 5 of Letters of Hope, a docuseries on the trials and triumphs of transplantation, <a href='https://valenkeefer.com/letters-of-hope-docuseries'>https://valenkeefer.com/letters-of-hope-docuseries</a><b> </b> </li><li>“Understanding ARPKD” – PKD Foundation, <a href='https://pkdcure.org/about-the-disease/arpkd/'>https://pkdcure.org/about-the-disease/arpkd/</a>  </li><li>“Welcome to Holland” – Emily Perl Kingsley, <a href='https://www.emilyperlkingsley.com/welcome-to-holland'>https://www.emilyperlkingsley.com/welcome-to-holland</a> </li></ul>]]></description>
    <content:encoded><![CDATA[<p>Caregiving is a shared journey. Valen is joined by mother-daughter duo Linda and Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis (ARPKD/CHF) patient Claire Bevec, along with Valen’s husband Noah, to talk about the evolving dynamics of caregiving. Hear advice and strategies for navigating the caregiving journey and transition from pediatric to adult care with compassion and resilience. </p><p> </p><p>About Your Host </p><p>Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, <a href='http://www.valenkeefer.com/'>www.valenkeefer.com</a>  </p><p> </p><p>Additional Resources </p><ul><li>ARPKD Facebook Support Group, <a href='https://m.facebook.com/groups/ARPKD/?ref=share&amp;mibextid=wwXIfr'>https://m.facebook.com/groups/ARPKD/?ref=share&amp;mibextid=wwXIfr</a> </li><li>Harmony for Hope, <a href='https://harmony4hope.org/'>https://harmony4hope.org/</a>  </li><li>“Self Care While Being a Caregiver” – featuring Noah Keefer on Otsuka’s Patient Education Network, <a href='https://www.otsukapatiented.com/kidney-disease/community-stories/self-care-while-being-caregiver'>https://www.otsukapatiented.com/kidney-disease/community-stories/self-care-while-being-caregiver</a> </li><li>“The Crucial Care Partner” – Episode 5 of Letters of Hope, a docuseries on the trials and triumphs of transplantation, <a href='https://valenkeefer.com/letters-of-hope-docuseries'>https://valenkeefer.com/letters-of-hope-docuseries</a><b> </b> </li><li>“Understanding ARPKD” – PKD Foundation, <a href='https://pkdcure.org/about-the-disease/arpkd/'>https://pkdcure.org/about-the-disease/arpkd/</a>  </li><li>“Welcome to Holland” – Emily Perl Kingsley, <a href='https://www.emilyperlkingsley.com/welcome-to-holland'>https://www.emilyperlkingsley.com/welcome-to-holland</a> </li></ul>]]></content:encoded>
    <enclosure url="https://www.buzzsprout.com/2342454/episodes/17934102-care-for-the-rare-real-caregivers-share-support-strategies-for-rare-kidney-disease-part-2.mp3" length="21367864" type="audio/mpeg" />
    <itunes:author>Valen Keefer</itunes:author>
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    <pubDate>Thu, 02 Oct 2025 12:00:00 -0400</pubDate>
    <itunes:duration>1776</itunes:duration>
    <itunes:keywords></itunes:keywords>
    <itunes:season>2</itunes:season>
    <itunes:episode>3</itunes:episode>
    <itunes:episodeType>full</itunes:episodeType>
    <itunes:explicit>false</itunes:explicit>
  </item>
  <item>
    <itunes:title>Care for the Rare: Real Caregivers Share Support Strategies for Rare Kidney Disease (Part 1)</itunes:title>
    <title>Care for the Rare: Real Caregivers Share Support Strategies for Rare Kidney Disease (Part 1)</title>
    <itunes:summary><![CDATA[Caregiving is a shared journey. Valen is joined by mother-daughter duo Linda and Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis (ARPKD/CHF) patient Claire Bevec, along with Valen’s husband Noah, to talk about the evolving dynamics of caregiving. Hear advice and strategies for navigating the caregiving journey and transition from pediatric to adult care with compassion and resilience.    About Your Host  Valen Keefer – Patient Advocacy Leader, Heal...]]></itunes:summary>
    <description><![CDATA[<p>Caregiving is a shared journey. Valen is joined by mother-daughter duo Linda and Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis (ARPKD/CHF) patient Claire Bevec, along with Valen’s husband Noah, to talk about the evolving dynamics of caregiving. Hear advice and strategies for navigating the caregiving journey and transition from pediatric to adult care with compassion and resilience. </p><p> </p><p>About Your Host </p><p>Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, <a href='http://www.valenkeefer.com/'>www.valenkeefer.com</a>  </p><p> </p><p>Additional Resources </p><ul><li>ARPKD Facebook Support Group, <a href='https://m.facebook.com/groups/ARPKD/?ref=share&amp;mibextid=wwXIfr'>https://m.facebook.com/groups/ARPKD/?ref=share&amp;mibextid=wwXIfr</a> </li><li>Harmony for Hope, <a href='https://harmony4hope.org/'>https://harmony4hope.org/</a>  </li><li>“Self Care While Being a Caregiver” – featuring Noah Keefer on Otsuka’s Patient Education Network, <a href='https://www.otsukapatiented.com/kidney-disease/community-stories/self-care-while-being-caregiver'>https://www.otsukapatiented.com/kidney-disease/community-stories/self-care-while-being-caregiver</a> </li><li>“The Crucial Care Partner” – Episode 5 of Letters of Hope, a docuseries on the trials and triumphs of transplantation, <a href='https://valenkeefer.com/letters-of-hope-docuseries'>https://valenkeefer.com/letters-of-hope-docuseries</a><b> </b> </li><li>“Understanding ARPKD” – PKD Foundation, <a href='https://pkdcure.org/about-the-disease/arpkd/'>https://pkdcure.org/about-the-disease/arpkd/</a>  </li><li>“Welcome to Holland” – Emily Perl Kingsley, <a href='https://www.emilyperlkingsley.com/welcome-to-holland'>https://www.emilyperlkingsley.com/welcome-to-holland</a> </li></ul>]]></description>
    <content:encoded><![CDATA[<p>Caregiving is a shared journey. Valen is joined by mother-daughter duo Linda and Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis (ARPKD/CHF) patient Claire Bevec, along with Valen’s husband Noah, to talk about the evolving dynamics of caregiving. Hear advice and strategies for navigating the caregiving journey and transition from pediatric to adult care with compassion and resilience. </p><p> </p><p>About Your Host </p><p>Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, <a href='http://www.valenkeefer.com/'>www.valenkeefer.com</a>  </p><p> </p><p>Additional Resources </p><ul><li>ARPKD Facebook Support Group, <a href='https://m.facebook.com/groups/ARPKD/?ref=share&amp;mibextid=wwXIfr'>https://m.facebook.com/groups/ARPKD/?ref=share&amp;mibextid=wwXIfr</a> </li><li>Harmony for Hope, <a href='https://harmony4hope.org/'>https://harmony4hope.org/</a>  </li><li>“Self Care While Being a Caregiver” – featuring Noah Keefer on Otsuka’s Patient Education Network, <a href='https://www.otsukapatiented.com/kidney-disease/community-stories/self-care-while-being-caregiver'>https://www.otsukapatiented.com/kidney-disease/community-stories/self-care-while-being-caregiver</a> </li><li>“The Crucial Care Partner” – Episode 5 of Letters of Hope, a docuseries on the trials and triumphs of transplantation, <a href='https://valenkeefer.com/letters-of-hope-docuseries'>https://valenkeefer.com/letters-of-hope-docuseries</a><b> </b> </li><li>“Understanding ARPKD” – PKD Foundation, <a href='https://pkdcure.org/about-the-disease/arpkd/'>https://pkdcure.org/about-the-disease/arpkd/</a>  </li><li>“Welcome to Holland” – Emily Perl Kingsley, <a href='https://www.emilyperlkingsley.com/welcome-to-holland'>https://www.emilyperlkingsley.com/welcome-to-holland</a> </li></ul>]]></content:encoded>
    <enclosure url="https://www.buzzsprout.com/2342454/episodes/17931962-care-for-the-rare-real-caregivers-share-support-strategies-for-rare-kidney-disease-part-1.mp3" length="28566414" type="audio/mpeg" />
    <itunes:author>Valen Keefer</itunes:author>
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    <pubDate>Thu, 02 Oct 2025 12:00:00 -0400</pubDate>
    <itunes:duration>2376</itunes:duration>
    <itunes:keywords></itunes:keywords>
    <itunes:season>2</itunes:season>
    <itunes:episode>3</itunes:episode>
    <itunes:episodeType>full</itunes:episodeType>
    <itunes:explicit>false</itunes:explicit>
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  <item>
    <itunes:title>Action in Advocacy: The Patient’s Guide to Finding Your Voice</itunes:title>
    <title>Action in Advocacy: The Patient’s Guide to Finding Your Voice</title>
    <itunes:summary><![CDATA[Advocacy starts with finding your voice. Valen and chronic rare disease patient advocate Swapna Kakani discuss how they discovered their purpose in patient advocacy and offer practical tips for anyone wanting to make a difference. Learn how to use your voice to drive change and support the rare disease community.    About Your Host  Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, www.valenkeefer.com     Additional Resources  S...]]></itunes:summary>
    <description><![CDATA[<p>Advocacy starts with finding your voice. Valen and chronic rare disease patient advocate Swapna Kakani discuss how they discovered their purpose in patient advocacy and offer practical tips for anyone wanting to make a difference. Learn how to use your voice to drive change and support the rare disease community. </p><p> </p><p>About Your Host </p><p>Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, <a href='http://www.valenkeefer.com/'>www.valenkeefer.com</a>  </p><p> </p><p>Additional Resources </p><ul><li>Swapna Kakani (@swapnaspeaks), <a href='https://www.instagram.com/swapnaspeaks'>https://www.instagram.com/swapnaspeaks</a>  </li><li>The Gutsy Perspective – Short Bowel Syndrome Quality of Life Research, <a href='https://www.thegutsyperspective.org/'>https://www.thegutsyperspective.org/</a> </li><li>Alabama Rare – Alabama rare disease policy advocacy network, <a href='http://www.alabamarare.org/'>www.alabamarare.org</a> </li><li>State Zebra Network – rare disease state policy advocacy network, <a href='http://www.zebranetwork.org/'>www.zebranetwork.org</a> </li><li>Intestinal Rehab &amp; Transplant Unwrapped – organization for supporting patients with intestinal failure, rehabilitation, and transplantation, <a href='http://www.transplantunwrapped.org/'>www.transplantunwrapped.org</a> </li></ul>]]></description>
    <content:encoded><![CDATA[<p>Advocacy starts with finding your voice. Valen and chronic rare disease patient advocate Swapna Kakani discuss how they discovered their purpose in patient advocacy and offer practical tips for anyone wanting to make a difference. Learn how to use your voice to drive change and support the rare disease community. </p><p> </p><p>About Your Host </p><p>Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, <a href='http://www.valenkeefer.com/'>www.valenkeefer.com</a>  </p><p> </p><p>Additional Resources </p><ul><li>Swapna Kakani (@swapnaspeaks), <a href='https://www.instagram.com/swapnaspeaks'>https://www.instagram.com/swapnaspeaks</a>  </li><li>The Gutsy Perspective – Short Bowel Syndrome Quality of Life Research, <a href='https://www.thegutsyperspective.org/'>https://www.thegutsyperspective.org/</a> </li><li>Alabama Rare – Alabama rare disease policy advocacy network, <a href='http://www.alabamarare.org/'>www.alabamarare.org</a> </li><li>State Zebra Network – rare disease state policy advocacy network, <a href='http://www.zebranetwork.org/'>www.zebranetwork.org</a> </li><li>Intestinal Rehab &amp; Transplant Unwrapped – organization for supporting patients with intestinal failure, rehabilitation, and transplantation, <a href='http://www.transplantunwrapped.org/'>www.transplantunwrapped.org</a> </li></ul>]]></content:encoded>
    <enclosure url="https://www.buzzsprout.com/2342454/episodes/17854016-action-in-advocacy-the-patient-s-guide-to-finding-your-voice.mp3" length="24574280" type="audio/mpeg" />
    <itunes:author>Valen Keefer</itunes:author>
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    <pubDate>Thu, 18 Sep 2025 12:00:00 -0400</pubDate>
    <itunes:duration>2043</itunes:duration>
    <itunes:keywords></itunes:keywords>
    <itunes:season>2</itunes:season>
    <itunes:episode>2</itunes:episode>
    <itunes:episodeType>full</itunes:episodeType>
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  <item>
    <itunes:title>Let’s Walk Together: Our Journeys with Rare Kidney Disease</itunes:title>
    <title>Let’s Walk Together: Our Journeys with Rare Kidney Disease</title>
    <itunes:summary><![CDATA[Living with rare disease is a journey of challenges and triumphs. Valen and IgA nephropathy (IgAN) patient advocate Malkia White share their personal stories, exploring what makes the rare disease experience unique and the strength that comes from shared experiences. Tune in to hear about the power of connection in the rare disease community.   About Your Host Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, www.valenkeefer.com   Additional Resources #ThatG...]]></itunes:summary>
    <description><![CDATA[<p>Living with rare disease is a journey of challenges and triumphs. Valen and IgA nephropathy (IgAN) patient advocate Malkia White share their personal stories, exploring what makes the rare disease experience unique and the strength that comes from shared experiences. Tune in to hear about the power of connection in the rare disease community. <br/><br/>About Your Host<br/>Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, <a href='https://valenkeefer.com/'>www.valenkeefer.com</a> <br/><br/>Additional Resources<br/>#ThatGirlNeedsAKidney, <a href='https://facebook.com/thatgirlneedsakidney '>https://facebook.com/thatgirlneedsakidney </a><br/>#ThatGirlNeedsAKidney, <a href='https://instagram.com/ThatGirlNeedsAKidneyResources '>https://instagram.com/ThatGirlNeedsAKidneyResources </a><br/>IgA Nephropathy Foundation, <a href='https://igan.org/ '>https://igan.org/ </a><br/>National Organization for Rare Disorders, <a href='https://rarediseases.org/'>https://rarediseases.org/</a><br/>Mental Health America, <a href='https://mhanational.org/ '>https://mhanational.org/ </a><br/>Learn More about Living Donation – National Kidney Donation Organization, <a href='https://www.nkdo.org/'>https://www.nkdo.org/</a></p>]]></description>
    <content:encoded><![CDATA[<p>Living with rare disease is a journey of challenges and triumphs. Valen and IgA nephropathy (IgAN) patient advocate Malkia White share their personal stories, exploring what makes the rare disease experience unique and the strength that comes from shared experiences. Tune in to hear about the power of connection in the rare disease community. <br/><br/>About Your Host<br/>Valen Keefer – Patient Advocacy Leader, Health Educator, &amp; Strategic Consultant, <a href='https://valenkeefer.com/'>www.valenkeefer.com</a> <br/><br/>Additional Resources<br/>#ThatGirlNeedsAKidney, <a href='https://facebook.com/thatgirlneedsakidney '>https://facebook.com/thatgirlneedsakidney </a><br/>#ThatGirlNeedsAKidney, <a href='https://instagram.com/ThatGirlNeedsAKidneyResources '>https://instagram.com/ThatGirlNeedsAKidneyResources </a><br/>IgA Nephropathy Foundation, <a href='https://igan.org/ '>https://igan.org/ </a><br/>National Organization for Rare Disorders, <a href='https://rarediseases.org/'>https://rarediseases.org/</a><br/>Mental Health America, <a href='https://mhanational.org/ '>https://mhanational.org/ </a><br/>Learn More about Living Donation – National Kidney Donation Organization, <a href='https://www.nkdo.org/'>https://www.nkdo.org/</a></p>]]></content:encoded>
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    <pubDate>Thu, 04 Sep 2025 12:00:00 -0400</pubDate>
    <itunes:duration>2261</itunes:duration>
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    <itunes:season>2</itunes:season>
    <itunes:episode>1</itunes:episode>
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    <itunes:title>Ask Us Anything</itunes:title>
    <title>Ask Us Anything</title>
    <itunes:summary><![CDATA[In the final episode of Season 1 of Unpacking the Gift of Life, Valen and Cristen invite you into an open conversation where no question is off-limits. In this “Ask Us Anything” special, they tackle topics that resonate deeply within the transplant community: coping with post-transplant depression, navigating the nuances of family and friend support, managing sun exposure, staying vigilant against COVID, and safeguarding your kidneys when surrounded by children. As they reflect on the season'...]]></itunes:summary>
    <description><![CDATA[<p>In the final episode of Season 1 of <em>Unpacking the Gift of Life</em>, Valen and Cristen invite you into an open conversation where no question is off-limits. In this “Ask Us Anything” special, they tackle topics that resonate deeply within the transplant community: coping with post-transplant depression, navigating the nuances of family and friend support, managing sun exposure, staying vigilant against COVID, and safeguarding your kidneys when surrounded by children. As they reflect on the season&apos;s journey, Valen and Cristen explore the inspiration that has fueled each episode, highlighting the resilience, hope, and community that have made this season so impactful. Join them for an honest and heartfelt discussion that wraps up the season by celebrating the strength and spirit of those living with the extraordinary gift of life.<br/><br/>Learn more about your hosts:</p><ul><li>Valen Keefer, Patient Advocate, Consultant, Educator, Motivational Speaker: <a href='http://www.valenkeefer.com'>www.valenkeefer.com</a></li><li>Cristen Wathen, Licensed Counselor and Associate Professor at Palo Alto University: <a href='https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc'>https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc</a></li></ul><p>Additional resources:</p><ul><li>Skin Cancer Resource Center: <a href='https://www.aad.org/public/diseases/skin-cancer'>Skin Cancer Resource Center (aad.org)</a></li><li>“Skin Care in the Immunosuppressed” episode of the <em>Both Sides of the Stethoscope</em> podcast: <a href='https://podcasts.apple.com/us/podcast/both-sides-of-the-stethoscope/id1580609482?i=1000613031353'>https://podcasts.apple.com/us/podcast/both-sides-of-the-stethoscope/id1580609482?i=1000613031353</a></li><li>“Traveling with Transplant” episode of the <em>Both Sides of the Stethoscope</em> podcast: <a href='https://podcasts.apple.com/us/podcast/both-sides-of-the-stethoscope/id1580609482?i=1000569406245'>https://podcasts.apple.com/us/podcast/both-sides-of-the-stethoscope/id1580609482?i=1000569406245</a> </li><li>Vanessa’s Travels With Transplant IG account: <a href='https://www.instagram.com/travelswithtransplant?igsh=MzRlODBiNWFlZA=='>https://www.instagram.com/travelswithtransplant?igsh=MzRlODBiNWFlZA==</a></li><li>Kate Bowler: <a href='https://katebowler.com/guide/illness-happens/'>https://katebowler.com/guide/illness-happens/</a></li><li>If you or someone you know is struggling or in crisis, call or text 988 or chat at 988lifeline.org.</li></ul>]]></description>
    <content:encoded><![CDATA[<p>In the final episode of Season 1 of <em>Unpacking the Gift of Life</em>, Valen and Cristen invite you into an open conversation where no question is off-limits. In this “Ask Us Anything” special, they tackle topics that resonate deeply within the transplant community: coping with post-transplant depression, navigating the nuances of family and friend support, managing sun exposure, staying vigilant against COVID, and safeguarding your kidneys when surrounded by children. As they reflect on the season&apos;s journey, Valen and Cristen explore the inspiration that has fueled each episode, highlighting the resilience, hope, and community that have made this season so impactful. Join them for an honest and heartfelt discussion that wraps up the season by celebrating the strength and spirit of those living with the extraordinary gift of life.<br/><br/>Learn more about your hosts:</p><ul><li>Valen Keefer, Patient Advocate, Consultant, Educator, Motivational Speaker: <a href='http://www.valenkeefer.com'>www.valenkeefer.com</a></li><li>Cristen Wathen, Licensed Counselor and Associate Professor at Palo Alto University: <a href='https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc'>https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc</a></li></ul><p>Additional resources:</p><ul><li>Skin Cancer Resource Center: <a href='https://www.aad.org/public/diseases/skin-cancer'>Skin Cancer Resource Center (aad.org)</a></li><li>“Skin Care in the Immunosuppressed” episode of the <em>Both Sides of the Stethoscope</em> podcast: <a href='https://podcasts.apple.com/us/podcast/both-sides-of-the-stethoscope/id1580609482?i=1000613031353'>https://podcasts.apple.com/us/podcast/both-sides-of-the-stethoscope/id1580609482?i=1000613031353</a></li><li>“Traveling with Transplant” episode of the <em>Both Sides of the Stethoscope</em> podcast: <a href='https://podcasts.apple.com/us/podcast/both-sides-of-the-stethoscope/id1580609482?i=1000569406245'>https://podcasts.apple.com/us/podcast/both-sides-of-the-stethoscope/id1580609482?i=1000569406245</a> </li><li>Vanessa’s Travels With Transplant IG account: <a href='https://www.instagram.com/travelswithtransplant?igsh=MzRlODBiNWFlZA=='>https://www.instagram.com/travelswithtransplant?igsh=MzRlODBiNWFlZA==</a></li><li>Kate Bowler: <a href='https://katebowler.com/guide/illness-happens/'>https://katebowler.com/guide/illness-happens/</a></li><li>If you or someone you know is struggling or in crisis, call or text 988 or chat at 988lifeline.org.</li></ul>]]></content:encoded>
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    <itunes:author>Valen Keefer, Cristen Wathen</itunes:author>
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    <pubDate>Wed, 04 Sep 2024 12:00:00 -0400</pubDate>
    <itunes:duration>1781</itunes:duration>
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    <itunes:season>1</itunes:season>
    <itunes:episode>6</itunes:episode>
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  <item>
    <itunes:title>Advocating for Ourselves in Social and Healthcare Relationships</itunes:title>
    <title>Advocating for Ourselves in Social and Healthcare Relationships</title>
    <itunes:summary><![CDATA[Communication and speaking up for ourselves is so important, yet can feel exhausting. Valen, Cristen, and their friend, Noelia, dig deep into three aspects of communication as it relates to patient advocacy. First, experiences of advocating for ourselves in our social relationships with partners, loved ones, friends, and the community at large. Second, the meaning, purpose, and value of a trusting relationship with our healthcare teams. And third, they share conversations about internal dialo...]]></itunes:summary>
    <description><![CDATA[<p>Communication and speaking up for ourselves is so important, yet can feel exhausting. Valen, Cristen, and their friend, Noelia, dig deep into three aspects of communication as it relates to patient advocacy. First, experiences of advocating for ourselves in our social relationships with partners, loved ones, friends, and the community at large. Second, the meaning, purpose, and value of a trusting relationship with our healthcare teams. And third, they share conversations about internal dialogue, being kind to ourselves, and emotional honesty. Tune in to learn ways to advocate for yourself, be empowered to have honest conversations, and live a meaningful life in the midst of chronic illness. </p><p> </p><p>Learn more about your hosts:</p><ul><li>Valen Keefer, Patient Advocate, Consultant, Educator, Motivational Speaker: <a href='http://www.valenkeefer.com'>www.valenkeefer.com</a></li><li>Cristen Wathen, Licensed Counselor and Associate Professor at Palo Alto University: <a href='https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc'>https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc</a></li></ul><p> </p><p>Additional resources: </p><ul><li>Letters of Hope - a docuseries on the trials and triumphs of transplantation: <a href='https://valenkeefer.com/letters-of-hope-docuseries'>Letters of Hope | Valen Keefer</a></li><li>Chronic Illness and Assertiveness - Setting firm boundaries for better health: <a href='https://www.psychologytoday.com/us/blog/chronically-me/201908/chronic-illness-and-assertiveness'>Chronic Illness and Assertiveness- Psychology Today</a></li><li>Minority Health Resources: <a href='https://minorityhealth.hhs.gov'>US Department of Health and Human Services Office of Minority Health</a></li><li>Treatment Challenges in Autosomal Dominant Polycystic Kidney Disease - Continuing research, current treatment guidelines, and a look at why Black and Hispanic populations are chronically underserved: <a href='https://www.medcentral.com/nephrology/kidney/treatment-challenges-adpkd'>Polycystic Kidney Disease BIPOC Treatment Challenges </a></li><li>NKF Peers en Español: <a href='https://www.kidney.org/es/peers'>https://www.kidney.org/es/peers</a></li></ul>]]></description>
    <content:encoded><![CDATA[<p>Communication and speaking up for ourselves is so important, yet can feel exhausting. Valen, Cristen, and their friend, Noelia, dig deep into three aspects of communication as it relates to patient advocacy. First, experiences of advocating for ourselves in our social relationships with partners, loved ones, friends, and the community at large. Second, the meaning, purpose, and value of a trusting relationship with our healthcare teams. And third, they share conversations about internal dialogue, being kind to ourselves, and emotional honesty. Tune in to learn ways to advocate for yourself, be empowered to have honest conversations, and live a meaningful life in the midst of chronic illness. </p><p> </p><p>Learn more about your hosts:</p><ul><li>Valen Keefer, Patient Advocate, Consultant, Educator, Motivational Speaker: <a href='http://www.valenkeefer.com'>www.valenkeefer.com</a></li><li>Cristen Wathen, Licensed Counselor and Associate Professor at Palo Alto University: <a href='https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc'>https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc</a></li></ul><p> </p><p>Additional resources: </p><ul><li>Letters of Hope - a docuseries on the trials and triumphs of transplantation: <a href='https://valenkeefer.com/letters-of-hope-docuseries'>Letters of Hope | Valen Keefer</a></li><li>Chronic Illness and Assertiveness - Setting firm boundaries for better health: <a href='https://www.psychologytoday.com/us/blog/chronically-me/201908/chronic-illness-and-assertiveness'>Chronic Illness and Assertiveness- Psychology Today</a></li><li>Minority Health Resources: <a href='https://minorityhealth.hhs.gov'>US Department of Health and Human Services Office of Minority Health</a></li><li>Treatment Challenges in Autosomal Dominant Polycystic Kidney Disease - Continuing research, current treatment guidelines, and a look at why Black and Hispanic populations are chronically underserved: <a href='https://www.medcentral.com/nephrology/kidney/treatment-challenges-adpkd'>Polycystic Kidney Disease BIPOC Treatment Challenges </a></li><li>NKF Peers en Español: <a href='https://www.kidney.org/es/peers'>https://www.kidney.org/es/peers</a></li></ul>]]></content:encoded>
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    <itunes:author>Valen Keefer, Cristen Wathen</itunes:author>
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    <pubDate>Mon, 19 Aug 2024 09:00:00 -0400</pubDate>
    <itunes:duration>2628</itunes:duration>
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    <itunes:episode>5</itunes:episode>
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  <item>
    <itunes:title>Three Unique Perspectives on Having Children: Pre- and Post-Transplant</itunes:title>
    <title>Three Unique Perspectives on Having Children: Pre- and Post-Transplant</title>
    <itunes:summary><![CDATA[Valen, Cristen, and their friend, Elizabeth, share their individual paths of whether to have children, what led to their choices, and how ADPKD and transplant shaped their decision-making. They acknowledge the emotions surrounding their difficult decisions, share personal stories on how they navigated and embraced having or not having a child, and how they moved forward in a positive way. Listen in to be inspired and empowered by their vulnerability and determination.   Learn more about your ...]]></itunes:summary>
    <description><![CDATA[<p>Valen, Cristen, and their friend, Elizabeth, share their individual paths of whether to have children, what led to their choices, and how ADPKD and transplant shaped their decision-making. They acknowledge the emotions surrounding their difficult decisions, share personal stories on how they navigated and embraced having or not having a child, and how they moved forward in a positive way. Listen in to be inspired and empowered by their vulnerability and determination.<br/><br/></p><p>Learn more about your hosts:</p><ul><li>Valen Keefer, Patient Advocate, Consultant, Educator, Motivational Speaker: <a href='http://www.valenkeefer.com'>www.valenkeefer.com</a></li><li>Cristen Wathen, Licensed Counselor and Associate Professor at Palo Alto University: <a href='https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc'>https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc</a></li></ul><p><br/>Additional resources:</p><ul><li>PKD Australia Pregnancy &amp; Childbearing Question Prompt List: <a href='https://drive.google.com/file/d/1Fu8lHf93b7IxbUF6_JPzLcKxU3oGEbvS/view?usp=sharing'>https://drive.google.com/file/d/1Fu8lHf93b7IxbUF6_JPzLcKxU3oGEbvS/view?usp=sharing</a></li><li>Transplant Pregnancy Registry: <a href='https://www.transplantpregnancyregistry.org/'>https://www.transplantpregnancyregistry.org/</a></li><li>Pregnancy after deceased donor vs living donor kidney transplant: associated obstetric and graft outcomes: <a href='https://www.ajog.org/article/S0002-9378(23)00543-4/pdf'>https://www.ajog.org/article/S0002-9378(23)00543-4/pdf</a></li><li>Pregnancy, Motherhood &amp; Organ Transplant: <a href='https://www.facebook.com/groups/41330239911'>https://www.facebook.com/groups/41330239911</a> </li></ul>]]></description>
    <content:encoded><![CDATA[<p>Valen, Cristen, and their friend, Elizabeth, share their individual paths of whether to have children, what led to their choices, and how ADPKD and transplant shaped their decision-making. They acknowledge the emotions surrounding their difficult decisions, share personal stories on how they navigated and embraced having or not having a child, and how they moved forward in a positive way. Listen in to be inspired and empowered by their vulnerability and determination.<br/><br/></p><p>Learn more about your hosts:</p><ul><li>Valen Keefer, Patient Advocate, Consultant, Educator, Motivational Speaker: <a href='http://www.valenkeefer.com'>www.valenkeefer.com</a></li><li>Cristen Wathen, Licensed Counselor and Associate Professor at Palo Alto University: <a href='https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc'>https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc</a></li></ul><p><br/>Additional resources:</p><ul><li>PKD Australia Pregnancy &amp; Childbearing Question Prompt List: <a href='https://drive.google.com/file/d/1Fu8lHf93b7IxbUF6_JPzLcKxU3oGEbvS/view?usp=sharing'>https://drive.google.com/file/d/1Fu8lHf93b7IxbUF6_JPzLcKxU3oGEbvS/view?usp=sharing</a></li><li>Transplant Pregnancy Registry: <a href='https://www.transplantpregnancyregistry.org/'>https://www.transplantpregnancyregistry.org/</a></li><li>Pregnancy after deceased donor vs living donor kidney transplant: associated obstetric and graft outcomes: <a href='https://www.ajog.org/article/S0002-9378(23)00543-4/pdf'>https://www.ajog.org/article/S0002-9378(23)00543-4/pdf</a></li><li>Pregnancy, Motherhood &amp; Organ Transplant: <a href='https://www.facebook.com/groups/41330239911'>https://www.facebook.com/groups/41330239911</a> </li></ul>]]></content:encoded>
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    <pubDate>Tue, 09 Jul 2024 11:00:00 -0400</pubDate>
    <itunes:duration>2871</itunes:duration>
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    <itunes:season>1</itunes:season>
    <itunes:episode>4</itunes:episode>
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    <itunes:title>Living Well Alongside Chronic Illness</itunes:title>
    <title>Living Well Alongside Chronic Illness</title>
    <itunes:summary><![CDATA[We never forget the day we receive a life-altering diagnosis. Valen and Cristen share their pivotal moments of being diagnosed with polycystic kidney disease (PKD). With Valen being diagnosed as a child, they discuss the lessons learned from living with ADPKD from youth to adulthood. Through the challenges surrounding a lifelong health journey, they discovered a wellspring of resilience, strength, and above all, hope. Listen in to hear how they learned to live well alongside PKD and be inspir...]]></itunes:summary>
    <description><![CDATA[<p>We never forget the day we receive a life-altering diagnosis. Valen and Cristen share their pivotal moments of being diagnosed with polycystic kidney disease (PKD). With Valen being diagnosed as a child, they discuss the lessons learned from living with ADPKD from youth to adulthood. Through the challenges surrounding a lifelong health journey, they discovered a wellspring of resilience, strength, and above all, hope. Listen in to hear how they learned to live well alongside PKD and be inspired on how you can too. </p><p> </p><p>Learn more about your hosts:</p><ul><li>Valen Keefer, Patient Advocate, Consultant, Educator, Motivational Speaker: <a href='http://www.valenkeefer.com'>www.valenkeefer.com</a></li><li>Cristen Wathen, Licensed Counselor and Associate Professor at Palo Alto University: <a href='https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc'>https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc</a></li></ul><p> </p><p>Additional resources: </p><ul><li>Valen’s blogs: <a href='https://valenkeefer.com/written-articles'>Written Articles | Valen Keefer</a></li><li>Gary Ware book: <a href='https://www.breakthroughplay.com/playful-rebellion/'>Playful Rebellion</a></li><li>PKD Foundation Center of Excellence: <a href='https://pkdcure.org/carecenters/'>ADPKD Care | PKD Foundation (pkdcure.org)</a></li><li>Spontaneous Muscle Release Technique (SMRT) back therapy: <a href='https://efullcircle.com/'>Full Circle School of Massage Therapy - Basic Massage Program and NCBTMB-Approved Continuing Education for Massage Therapists &amp; Bodyworkers (efullcircle.com)</a></li><li>American Counseling Association: <a href='https://www.counseling.org/publications/counseling-today-magazine/article-archive/article/legacy/coping-with-the-stress-and-uncertainty-of-chronic-health-conditions'>Coping with the stress and uncertainty of chronic health conditions</a></li></ul>]]></description>
    <content:encoded><![CDATA[<p>We never forget the day we receive a life-altering diagnosis. Valen and Cristen share their pivotal moments of being diagnosed with polycystic kidney disease (PKD). With Valen being diagnosed as a child, they discuss the lessons learned from living with ADPKD from youth to adulthood. Through the challenges surrounding a lifelong health journey, they discovered a wellspring of resilience, strength, and above all, hope. Listen in to hear how they learned to live well alongside PKD and be inspired on how you can too. </p><p> </p><p>Learn more about your hosts:</p><ul><li>Valen Keefer, Patient Advocate, Consultant, Educator, Motivational Speaker: <a href='http://www.valenkeefer.com'>www.valenkeefer.com</a></li><li>Cristen Wathen, Licensed Counselor and Associate Professor at Palo Alto University: <a href='https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc'>https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc</a></li></ul><p> </p><p>Additional resources: </p><ul><li>Valen’s blogs: <a href='https://valenkeefer.com/written-articles'>Written Articles | Valen Keefer</a></li><li>Gary Ware book: <a href='https://www.breakthroughplay.com/playful-rebellion/'>Playful Rebellion</a></li><li>PKD Foundation Center of Excellence: <a href='https://pkdcure.org/carecenters/'>ADPKD Care | PKD Foundation (pkdcure.org)</a></li><li>Spontaneous Muscle Release Technique (SMRT) back therapy: <a href='https://efullcircle.com/'>Full Circle School of Massage Therapy - Basic Massage Program and NCBTMB-Approved Continuing Education for Massage Therapists &amp; Bodyworkers (efullcircle.com)</a></li><li>American Counseling Association: <a href='https://www.counseling.org/publications/counseling-today-magazine/article-archive/article/legacy/coping-with-the-stress-and-uncertainty-of-chronic-health-conditions'>Coping with the stress and uncertainty of chronic health conditions</a></li></ul>]]></content:encoded>
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    <pubDate>Mon, 03 Jun 2024 12:00:00 -0400</pubDate>
    <itunes:duration>1928</itunes:duration>
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    <itunes:season>1</itunes:season>
    <itunes:episode>3</itunes:episode>
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    <itunes:title>The Importance of Being Proactive with Our Emotional Wellbeing</itunes:title>
    <title>The Importance of Being Proactive with Our Emotional Wellbeing</title>
    <itunes:summary><![CDATA[Valen and Cristen delve into the profound world of emotions surrounding chronic illness. They discuss mental health stigma, the lack of support and resources, and why being proactive with our mental health is so important. You’ll learn insights into how to become an advocate for your emotional wellbeing and strategies for accessing and working with mental health professionals.  Hosted by: Valen Keefer - Patient Advocate, Consultant, Educator, Motivational Speaker Cristen Wathen - Licensed Cou...]]></itunes:summary>
    <description><![CDATA[<p>Valen and Cristen delve into the profound world of emotions surrounding chronic illness. They discuss mental health stigma, the lack of support and resources, and why being proactive with our mental health is so important. You’ll learn insights into how to become an advocate for your emotional wellbeing and strategies for accessing and working with mental health professionals.<br/><br/><b>Hosted by:</b><br/>Valen Keefer - Patient Advocate, Consultant, Educator, Motivational Speaker<br/>Cristen Wathen - Licensed Counselor and Associate Professor at Palo Alto University<br/><br/><a href='http://www.valenkeefer.com'><b>www.valenkeefer.com<br/></b></a><a href='http://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc'><b>www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc</b></a><b><br/> <br/>Additional resources:<br/></b>About Kate Bowler: <a href='https://katebowler.com/about/'><b>www.katebowler.com/about/</b></a><br/>American Counseling Association’s “What is Counseling?” : <a href='https://www.counseling.org/mental-health-counseling/what-is-counseling'><b>www.counseling.org/mental-health-counseling/what-is-counseling </b></a><br/>Psychology Today: <a href='https://www.psychologytoday.com/us'><b>www.psychologytoday.com/us</b></a><br/>PKD Foundation’s Resources: <a href='https://connect.pkdcure.org/'><b>www.connect.pkdcure.org/</b></a><br/>PKD Foundation’s Peer Mentor Program: <a href='https://connect.pkdcure.org/p2p-mentoring/'><b>www.connect.pkdcure.org/p2p-mentoring/</b></a><br/><br/>This podcast is sponsored by Otsuka Pharmaceutical Development &amp; Commercialization, Inc., and is not intended to provide medical advice.</p>]]></description>
    <content:encoded><![CDATA[<p>Valen and Cristen delve into the profound world of emotions surrounding chronic illness. They discuss mental health stigma, the lack of support and resources, and why being proactive with our mental health is so important. You’ll learn insights into how to become an advocate for your emotional wellbeing and strategies for accessing and working with mental health professionals.<br/><br/><b>Hosted by:</b><br/>Valen Keefer - Patient Advocate, Consultant, Educator, Motivational Speaker<br/>Cristen Wathen - Licensed Counselor and Associate Professor at Palo Alto University<br/><br/><a href='http://www.valenkeefer.com'><b>www.valenkeefer.com<br/></b></a><a href='http://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc'><b>www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc</b></a><b><br/> <br/>Additional resources:<br/></b>About Kate Bowler: <a href='https://katebowler.com/about/'><b>www.katebowler.com/about/</b></a><br/>American Counseling Association’s “What is Counseling?” : <a href='https://www.counseling.org/mental-health-counseling/what-is-counseling'><b>www.counseling.org/mental-health-counseling/what-is-counseling </b></a><br/>Psychology Today: <a href='https://www.psychologytoday.com/us'><b>www.psychologytoday.com/us</b></a><br/>PKD Foundation’s Resources: <a href='https://connect.pkdcure.org/'><b>www.connect.pkdcure.org/</b></a><br/>PKD Foundation’s Peer Mentor Program: <a href='https://connect.pkdcure.org/p2p-mentoring/'><b>www.connect.pkdcure.org/p2p-mentoring/</b></a><br/><br/>This podcast is sponsored by Otsuka Pharmaceutical Development &amp; Commercialization, Inc., and is not intended to provide medical advice.</p>]]></content:encoded>
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    <itunes:author>Valen Keefer, Cristen Wathen</itunes:author>
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    <pubDate>Mon, 06 May 2024 12:00:00 -0400</pubDate>
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    <itunes:title>Meet Your Hosts and Learn the Meaning Behind Unpacking the Gift of Life</itunes:title>
    <title>Meet Your Hosts and Learn the Meaning Behind Unpacking the Gift of Life</title>
    <itunes:summary><![CDATA[Hosts Valen and Cristen share how their unique yet parallel experiences of living with polycystic kidney disease (PKD) led to their serendipitous friendship and passion for patient advocacy. This episode introduces the two women and how they inspired the power of hope in each other before meeting. Valen and Cristen also explore how their PKD and transplant journeys motivate them to provide an honest perspective of the physical and emotional complexities of living with chronic illness.   ...]]></itunes:summary>
    <description><![CDATA[<p>Hosts Valen and Cristen share how their unique yet parallel experiences of living with polycystic kidney disease (PKD) led to their serendipitous friendship and passion for patient advocacy. This episode introduces the two women and how they inspired the power of hope in each other before meeting. Valen and Cristen also explore how their PKD and transplant journeys motivate them to provide an honest perspective of the physical and emotional complexities of living with chronic illness. <br/><br/>By offering the support and resources they wish they had, Valen and Cristen aspire to connect with others who are not alone in their health journey – and whose experiences resonate with their own. Told through a conversation between friends, Valen and Cristen navigate the real stories, thoughts, and feelings that come with unpacking the extraordinary gift of life.</p><p><b>Hosted by: <br/>Valen Keefer </b>–<b> </b>Patient Advocate, Consultant, Educator, Motivational Speaker<br/><b>Cristen Wathen </b>– Licensed Counselor and Associate Professor at Palo Alto University</p><p><a href='http://www.valenkeefer.com'><b>www.valenkeefer.com</b></a><b><br/></b><a href='https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc '><b>https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc</b></a><b> <br/><br/></b>This podcast is sponsored by Otsuka Pharmaceutical Development &amp; Commercialization, Inc., and is not intended to provide medical advice.</p>]]></description>
    <content:encoded><![CDATA[<p>Hosts Valen and Cristen share how their unique yet parallel experiences of living with polycystic kidney disease (PKD) led to their serendipitous friendship and passion for patient advocacy. This episode introduces the two women and how they inspired the power of hope in each other before meeting. Valen and Cristen also explore how their PKD and transplant journeys motivate them to provide an honest perspective of the physical and emotional complexities of living with chronic illness. <br/><br/>By offering the support and resources they wish they had, Valen and Cristen aspire to connect with others who are not alone in their health journey – and whose experiences resonate with their own. Told through a conversation between friends, Valen and Cristen navigate the real stories, thoughts, and feelings that come with unpacking the extraordinary gift of life.</p><p><b>Hosted by: <br/>Valen Keefer </b>–<b> </b>Patient Advocate, Consultant, Educator, Motivational Speaker<br/><b>Cristen Wathen </b>– Licensed Counselor and Associate Professor at Palo Alto University</p><p><a href='http://www.valenkeefer.com'><b>www.valenkeefer.com</b></a><b><br/></b><a href='https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc '><b>https://www.paloaltou.edu/faculty/cristen-wathen-phd-lcpc-ncc</b></a><b> <br/><br/></b>This podcast is sponsored by Otsuka Pharmaceutical Development &amp; Commercialization, Inc., and is not intended to provide medical advice.</p>]]></content:encoded>
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    <itunes:author>Valen Keefer, Cristen Wathen</itunes:author>
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    <pubDate>Mon, 01 Apr 2024 12:00:00 -0400</pubDate>
    <itunes:duration>1590</itunes:duration>
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    <itunes:season>1</itunes:season>
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