Long-Term Aphasia Support with Dyscover: Conversation Groups, Recovery, and Awareness

Hosts Rob Edwards and Jonathan Hirons introduce their podcast follow-up to Hirons’ film on aphasia, a language impairment often caused by stroke or brain injury, affecting speaking, reading, writing, and texting; they note 350,000 people in the UK have aphasia and awareness is low. After an ad inviting sponsorships, they speak with Dyscover charity staff Julie Samuel and Caroline McDonald, plus members Sarah, Neil, and Deena. Dyscover, founded over 30 years ago, provides long-term, facilitated conversation groups (in-person and online) for about 100 members and families. The members describe their strokes and varied recovery, ongoing challenges like fatigue and noise, and how Dyscover’s patience, practice, friendships, ambassador talks, research/training roles, and activities support confidence, identity, and life participation; they discuss patchy access, funding limits, and joint awareness efforts through the Aphasia Alliance.

00:00 Podcast Welcome

00:30 What Is Aphasia

01:09 Sponsor Message

02:16 Meet Dyscover Team

03:34 What Dyscover Does

05:48 Members Stroke Stories

06:20 Sarah Living With Aphasia

08:39 Neil Recovery Journey

11:06 Deena Progress And Challenges

13:46 Long Term Support Gaps

18:39 How Dyscover Helps Members

22:05 Neil As Ambassador

23:59 Editing Skills Return

24:40 Back at BBC Freelance

24:48 Deena Finds Support

26:28 Future of Discover

28:12 Online Groups Reach

30:36 Government Awareness Gap

31:24 Ambassadors Long Term Support

36:30 Deena Cycling Story

38:09 Closing Thanks and Resources

Dyscover webside:

https://dyscover.org.uk

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Creativity, Hope, and Life After Stroke: Supporting People with Aphasia Beyond Rehab

Hosts Rob Edwards and Jonathan Hirons introduce their “On the Tip of My Tongue” podcast, a follow-up to Jonathan’s film about aphasia, a brain-injury condition often caused by stroke that affects language in speaking, writing, reading, and texting; they note 350,000 people in the UK have aphasia yet public awareness is low compared with Parkinson’s. Guest Dr. Jess Johansson, a senior stroke researcher at the University of Leeds/Bradford Institute of Health Research, discusses her 13 years in stroke research and a planned NIHR fellowship application to integrate creative approaches into stroke care and extend support after services end. She describes using crafts like vision boards in stroke groups to promote relaxation, hope, and meaningful activity, emphasizing neuroplasticity and recovery beyond assumed plateaus. The conversation covers fragmented care, the value of groups and social connection, inclusion of people living alone or from deprived backgrounds, shifting away from deficit-focused models, engaging GPs, and raising aphasia awareness through public-facing art exhibitions.

00:00 Creativity After Stroke
00:25 Podcast Intro And Aphasia
01:22 Meet Dr Jess Johansson
02:00 Creative Care Fellowship Plan
03:28 Why Creativity Helps
05:04 Whole Person Recovery
07:16 Research With Stroke Groups
10:12 Access And Inequality
12:01 Living Alone And Support
13:28 Mental Health Adjustment
15:50 Recovery Beyond Plateau
19:43 GPs And Deficit Model
23:01 Raising Aphasia Awareness
25:47 Closing Thoughts And Thanks
26:42 Resources And Community

http://www.linkedin.com/in/dr-jess-johansson-091923383/

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Aphasia Awareness Month Q&A: Myths, Carer Support, Recovery, and the Future

During Aphasia Awareness Month, the podcast hosts a Q&A on aphasia—an often overlooked language disorder affecting speaking, understanding, reading, and writing, commonly after stroke or brain injury—with more than 350,000 people living with it in the UK. Guest Ann Hirons shares a carer’s perspective, discussing how aphasia is treated as a secondary condition, its “quiet crisis” impact on identity and family life, and the need to avoid carer burnout by creating therapy-free zones. The episode debunks the myth that impaired speech means impaired intellect, offers practical tips for everyday interactions (patience, simple questions, don’t finish sentences, use writing/pointing), and explores living with slowed communication and fatigue. It addresses the post-NHS-therapy “cliff edge,” benefits of peer groups, realistic recovery through practice and small steps, and roles for AI tools and creative outlets like film, art, and music supported by neuroplasticity.

00:00 Aphasia Awareness Intro
01:49 Why Aphasia Is Overlooked
03:53 Carer Burnout Balance
06:11 Everyday Anxiety And Support
09:20 Myths About Intelligence
11:36 Simple Communication Tips
13:41 Invisible Prison Advice
16:16 Aphasia Fatigue Reality
17:47 After Therapy Ends
19:08 Recovery Expectations
21:45 AI And Future Tools
23:10 Creativity And Neuroplasticity
25:53 Closing And Resources

https://www.sayaphasia.org

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Speak Up for Aphasia: A Global Awareness Campaign Update

Guest Claire Bennington updates on fundraising for an international aphasia awareness campaign creating a suite of animated videos in multiple languages, launched worldwide with one consistent message. The Tavistock Trust for Aphasia has pledged £35,429 if matched; the campaign is at 57% (about £22,304/42,000 AUD) and aims to raise the remainder by end of June 2026, with a global launch targeted for Aphasia Awareness Month in June 2027. Partners include the Collaboration of Aphasia Trialists for native-speaker translations, champion networks, and free hosting of assets. The message emphasizes “recognize, respond and respect” and that aphasia does not affect intelligence; listeners are asked to donate, fundraise, provide support letters, and follow “Speak Up for Aphasia” on Facebook.

00:00 Welcome and Hosts
00:18 What Is Aphasia
01:24 Campaign Mission and Funding Goal
05:16 Global Partners and Translations
06:42 Public Message Recognize Respond Respect
09:03 Timeline to June 2027 Launch
11:09 How You Can Support
13:02 Wrap Up and Resources

Facebook:  https://www.facebook.com/profile.php?id=61572140991752

Donate to the International Aphasia Awareness campaign:

https://justgiving.com/campaign/qarc-uq-aphasia-awareness

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Hosts Rob Edwards and Jonathan Hirons introduce guest, Genevieve Richardson, a US speech-language pathologist, focuses on supporting “care partners,” arguing recovery improves when caregivers receive training and support to prevent burnout. They compare UK and US support systems, discussing variability in access, the role of insurance and advocacy, and the importance of in-person and online groups to combat isolation. Genevieve describes her telepractice, 12-month care partner roadmap with weekly training and live support, plus a bootcamp and membership, addressing communication strategies and practical life needs like legal and emergency planning. They discuss collaboration via new websites and resources, and share links to the film and Genevieve’s podcast and sites.

00:00 Aphasia Needs Action
00:12 Podcast Welcome and Aphasia Basics
01:09 Care Partners Matter
02:05 US vs UK Support Systems
04:20 Groups and Ongoing Resources
06:46 Genevieve Care Partner Roadmap
10:24 How the 12 Month Program Works
11:42 Community Fights Isolation
13:05 Scaling Up and The Numbers
14:16 Life Logistics and Caregiver Tools
17:50 Building a Global Movement
19:07 Aphasia Energy and The Gas Tank
20:28 New Website and Collaboration
21:52 Genevieve Podcast and Bootcamp
23:13 Wrap Up Links and Resources
24:44 Final Credits and Sign Off

Genevieve's websites:

https://www.dolifespeechpathology.com

https://www.lifeaphasiaacademy.co

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Hanka Mayhew: A Polyglot’s Journey Through Aphasia and Advocacy

Hanka Mayhew lived in Spain for 11 years with her husband and three children, speaking five languages and working as an English teacher and translator until a massive brain bleed left her with aphasia and unable to speak. After three months in hospital in Spain and three in England, she spent a year in a wheelchair relearning how to live. On the Tip of My Tongue podcast, she explains that English and German are easiest, Spanish is slowly returning with little practice, and she can understand some French and Russian but cannot speak them; she retained reading ability but reads more slowly. In February 2024 she joined the Aphasia International Association and became a Say Aphasia ambassador, traveling to assemblies and conferences across Europe and giving talks with therapist support to raise awareness and build an international aphasia community.

00:00 Life in Spain
00:22 Stroke and Aphasia
00:58 Recovery Journey
01:11 Languages After Stroke
03:09 Reading and Fatigue
03:57 Joining AIA and Speaking
05:20 Aphasia Day in Italy
05:53 Future Plans and Travel
07:36 AIA Community and Outreach
11:05 Final Reflections

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons with guest Dr. Abi Roper explore how artificial intelligence can assist people with Aphasia in finding their voices again. The discussion covers the ways AI aids in simplifying text, improving written communication, and developing speech recognition technologies. The episode features Jez Hodgkinson, who created an AI-driven app to help with word-finding and introduces Robert Baldcock, a musician using AI-based personalized voice technology. The conversation highlights both the promise and pitfalls of AI in this field, addressing issues such as AI's limitations in real-time conversations and the need for co-designing tools that are genuinely empowering for users with Aphasia.

00:00 Introduction to the Podcast
00:21 Understanding Aphasia and AI's Potential
01:03 Dr. Abi Roper on AI and Aphasia
01:42 AI's Role in Simplifying Text
02:39 Speech Recognition Challenges and Advances
04:48 Jez Hodgkinson's AI App for Word Finding
07:26 Chatbots and Human Conversation
10:41 AI's Limitations and Hallucinations
12:33 Visual Support and Multimodal Communication
14:09 Robert Baldock Personalized Synthetic Voice
17:03 Co-Designing AI Tools with People with Aphasia

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the world of AI and its applications in treating Aphasia, a debilitating condition affecting language abilities, following brain injuries like strokes. Joining them is Dr. Abi Roper from City, St. George's University, London. Dr. Roper discusses how AI tools, like speech recognition technologies and AI-driven text simplification, benefit individuals with Aphasia by aiding communication and daily tasks. She also addresses the limitations of AI, such as its inability to fully replicate human conversational skills and the importance of verifying AI-generated information. The episode highlights ongoing research and projects aimed at harnessing AI in therapy, underscoring AI's potential to support but not replace human therapists.

00:00 Introduction to AI and Aphasia
01:18 Meet Dr. Abby Roper
01:43 AI's Role in Assisting Aphasia
03:13 Speech Recognition and Practical Uses
05:25 Challenges and Limitations of AI
27:07 The Future of AI in Therapy
30:35 Conclusion and Resources

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

In this episode, Rob Edwards and Jonathan Hirons host Chris Greenhough, a stroke survivor with aphasia who leads support groups, and Lisa Thomas, a senior speech and language therapist with the NHS. They discuss the impact of aphasia, a condition affecting the brain's language capabilities, and the importance of community support and therapy. Chris shares his journey of recovery and involvement in running aphasia support groups, while Lisa talks about the challenges and successes in creating community communication groups. They also touch on the difficulties of raising awareness about aphasia and the need for better support from businesses and transport facilities to help individuals access group sessions.

00:00 Introduction to the Podcast

00:38 Understanding Aphasia

01:16 Chris's Journey with Aphasia

01:42 Lisa's Role and Contributions

02:06 Chris's Aphasia Groups

04:58 Lisa's Connection to Say Aphasia

06:56 Challenges and Solutions in Aphasia Care

10:36 Group Activities and Social Impact

14:52 Transport Issues and Community Support

22:06 Raising Awareness and Future Goals

24:49 Conclusion and Resource

https://www.sayaphasia.org/worcester

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

AI and Aphasia: Overcoming Communication Barriers

In this episode of 'On the Tip of My Tongue' podcast, Jez shares his personal journey with Aphasia following a severe stroke in 2016. He discusses the challenges he faced in communicating and how he overcame them by starting a local Aphasia support group during the COVID-19 pandemic. Jez also delves into his long-standing interest in AI, dating back to the 1980s, and explains how AI has significantly advanced in recent years. He introduces an AI-powered app he developed to assist Aphasia sufferers in recalling words more easily. The conversation highlights the potential of AI to support individuals with communication difficulties while noting the broader implications of AI technology in society.

00:00 Introduction and Guest Background
00:15 Overcoming Aphasia: Personal Journey
01:28 Community Involvement and Support Groups
03:17 Introduction to AI and Early Experiences
05:14 Developing an AI App for Aphasia
15:41 Practical Uses of AI in Daily Life
22:27 Challenges and Future of AI
25:17 Conclusion and Final Thoughts

Say Aphasia Group Winchester and Southampton 

https://www.sayaphasia.org/winchester

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Transformative Power of Music Therapy with Elizabeth Nightingale

In this podcast episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons are joined by Elizabeth Nightingale, a neurological music therapist. The discussion delves into the impactful role of music therapy across various fields, including stroke recovery, pediatrics, and palliative care. Elizabeth shares insights into the innovative programs at Chilton Music Therapy, which blend music with community outreach and online learning. The conversation also covers the specifics of music therapy for Aphasia patients, highlighting the cognitive and emotional benefits, the development of new neural pathways, and the creation of supportive communities. The episode emphasizes the nationwide accessibility of these services through online platforms, making therapeutic music interventions available even in remote and under-served areas.

00:00 Introduction to the Podcast

00:54 Meet the Hosts and the Topic of Aphasia

01:49 Welcoming Elizabeth Nightingale

02:23 Overview of Chiltern Music Therapy

03:57 Impact of Music Therapy on Various Conditions

05:22 The Science Behind Music Therapy

07:23 Online Aphasia Music Therapy Groups

09:13 Access and Participation Details

18:23 Promoting the Online Groups

21:24 Concluding Remarks and Resources

For more info about Chiltern and Aphasia

https://www.chilternmusictherapy.co.uk/stories/use-your-voice-aphasia

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

International Aphasia Awareness Campaign with Claire Bennington

In this episode of 'Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons speak with Claire Bennington, chairperson of the Australian Aphasia Association and an experienced speech and language therapist. Claire shares her extensive experience working with adults with Aphasia, details her involvement with the Australian Aphasia Association since 2018, and discusses her PhD project, which focuses on co-designing a unified international Aphasia awareness campaign. The conversation covers the current fundraising initiatives, the challenges of raising awareness for Aphasia, and the ways listeners can get involved. Claire also highlights the importance of global collaboration and multi-language accessibility for the campaign materials aiming to make a significant impact on Aphasia awareness worldwide.

00:00 Introduction to the Podcast and Guest
01:24 Understanding Aphasia
02:01 Claire Bennington's Background and Role
03:47 Challenges and Activities of the Australian Aphasia Association
06:19 Fundraising Efforts and Campaigns
09:03 Global Aphasia Awareness Campaign
17:29 Conclusion and How to Get Involved

To donate to Claire's Just Giving page, click here:

https://www.justgiving.com/campaign/qarc-uq-aphasia-awareness

To contact Claire about the Match the Momentum: Unite for Aphasia Awareness campaign

Claire Bennington - c.bennington@student.uq.edu.au>

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Overcoming Aphasia: Robert Baldock’s Journey and Advocacy

This episode of 'On the Tip of My Tongue' features Robert Baldock, a Scottish-based composer and new media artist who experienced a severe ischemic stroke in 2017, resulting in acute aphasia and severe verbal dyspraxia. Robert shares his journey through his stroke, the challenges he faced with communication, and his path to recovery. He discusses his innovative use of technology and alternative communication methods, including a synthetic voice developed from his radio recordings. Additionally, Robert talks about his advocacy efforts for the reinstatement of the thrombectomy procedure in Scotland, demonstrating his resilience and commitment to helping others. For more information on strokes and aphasia, listeners are directed to several helpful resources.

00:00 Introduction to Robert Baldock
00:50 Understanding Aphasia
01:33 Robert's Stroke Experience
03:26 Life After Stroke
07:09 Communication Challenges and Solutions
08:43 Advocacy and Campaigning
09:33 Conclusion and Resources

For more information about Robert and Andy Fielding (AKA MC Zirconium) is on their website 

https://www.projectmoonbase.com

Robert's original music can be found on his Band Camp website

https://aleatorymusicsystems.bandcamp.com/music

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Join us as Graham Hall shares his inspiring journey through music and Aphasia in our newest episode of "On the Tip of My Tongue". Learn how his passion for percussion and songwriting helps him overcome challenges. Listen today! 😊 #Aphasia #MusicHealing #Podcast

Living with Aphasia: A Journey Through Music and Recovery

Rob Edwards and Jonathan Hirons discuss the impact of Aphasia following a stroke experienced by Graham 10 years ago. The podcast, titled 'On the Tip of My Tongue', complements a film about Aphasia made by Jonathan. Aphasia impairs language skills and affects 350,000 people in the UK, yet remains relatively unknown. Graham shares his journey of adapting to life post-stroke, highlighting his transition from performing with Opera North to creating music and lyrics to aid his recovery and raise awareness. The discussion underscores the therapeutic power of music, the struggle with word-finding, and the broader impact of Aphasia.

00:00 A Life-Changing Stroke
01:03 Introduction to the Podcast
01:22 Understanding Aphasia
01:59 Personal Journey with Aphasia
03:20 Musical Career and Aphasia
05:02 Creating Music with Aphasia
07:48 Future Aspirations and Reflections
11:49 Conclusion and Resources

Graham's website:  https://grahamhall.bandcamp.com/music

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Aphasia in Popular Culture and Awareness: Exploring the Silent Struggle

In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the world of Aphasia—a condition caused by brain injury that significantly impacts communication abilities. They discuss its portrayal in popular culture, specifically referencing a character with Aphasia in the detective series 'Department Q.' The hosts highlight the importance of Aphasia awareness, especially during June, the designated Aphasia Awareness Month. They share insights about various types of Aphasia, mention notable individuals like Maurice Ravel and Bruce Willis who have faced the condition, and the impact and advances in therapy. The conversation also touches on diverse topics including a musician friend, Graham Hall, and a nostalgic reflection on Rob's appearance in 'Doctor Who.' The episode underscores the significance of awareness and community support in understanding and managing Aphasia.

00:00 Introduction to the Podcast and Hosts
00:45 Understanding Aphasia
02:05 Aphasia in Popular Culture
04:51 Interview with Graham Hall
07:27 Famous People with Aphasia
14:37 Rob's Doctor Who Experience
19:58 Podcast Growth and Listener Demographics
21:23 Conclusion and Resources

Life in the key of Aphasia - https://grahamhall.bandcamp.com

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Navigating Conversations with Aphasia: Insights from Iain Stansfield

In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons explore the intricacies of living with aphasia through a conversation with Iain Stansfield and Dr. Suzanne Beeke. Iain shares his personal journey following a stroke, emphasising the challenges of communicating with aphasia and the impact on relationships. The discussion delves into experiences from the 'Better Conversations with Aphasia' therapy group, a program developed by Dr. Beeke at UCL. Key points include the significance of video reflection in improving communication strategies and the evolving dynamic between individuals with aphasia and their partners. Listeners are encouraged to support the podcast and can find more resources at stroke.org.uk, sayaphasia.org, or the NHS aphasia page.

00:00 Understanding Aphasia: A Shift in Conversations
00:34 Welcome to 'On the Tip of My Tongue'
02:33 Introducing Iain Stansfield
03:06 The Therapy Group Experience
04:42 Reflections on Communication Challenges
06:40 Impact of Video Reflections
07:37 Changes and Insights Post-Therapy
10:49 Future Directions and Final Thoughts
12:33 Conclusion and Resources

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Dan's Journey: Triumph Over Aphasia

In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the life of Dan Sutton, who suffered severe head injuries from a cycling accident in 2016. These injuries resulted in Aphasia and mobility challenges. Despite his struggles, Dan founded the Minds Over Matter Social Group to create a supportive community for individuals with brain injuries. The episode explores Dan's daily routines, his love for social activities, and how he navigates the complexities of living with Aphasia. Listeners learn about the significance of shared experiences and community support in overcoming adversity. The hosts also highlight the importance of raising awareness about Aphasia, a condition that remains relatively unknown despite affecting 350,000 people in the UK.

00:00 Understanding Brain Injury and Aphasia
00:23 Introduction to the Podcast
00:41 What is Aphasia?
01:19 Dan Sutton's Inspiring Journey
02:07 Daily Life and Challenges
02:44 Social Activities and Hobbies
04:10 Struggles with Reading and Audio Books
05:54 The Power of Community and Support
09:10 Singing and Aphasia
10:14 Conclusion and Resources

Visit the to Minds over Matter instagram account

https://www.instagram.com/mindsovermatter.osm/

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Breaking Barriers: Disability Awareness and Inclusion with Sarah Petherbridge

In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons discuss the challenges and misconceptions surrounding disabilities, particularly aphasia. They are joined by Sarah Petherbridge, a disability trainer and speaker who shares her experiences of living with profound deafness and working in the corporate sector. Sarah emphasizes the importance of creating inclusive workplaces and the need for a shift from diversity initiatives to genuine inclusion. She discusses the impact of government policies on disability rights, the importance of technology, and the necessity of changing societal attitudes. The conversation also highlights strategies for small businesses to promote inclusivity without incurring substantial costs. The episode underscores the broader definition of disability and the significant progress needed to close the disability employment and pay gaps.

00:00 Introduction to the Podcast
00:36 Understanding Aphasia
01:13 Meet Sarah Petherbridge: Disability Trainer and Speaker
02:19 Sarah's Journey and Business
03:02 Challenges and Changes in Disability Inclusion
06:17 Employment Gaps and Workplace Adjustments
19:39 The Role of Technology in Disability Inclusion
20:30 Social Perceptions and Personal Experiences
31:29 Future Outlook and Final Thoughts
32:51 Conclusion and Resources

https://www.sarahpetherbridge.co.uk

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons welcome Talia Lazarus, a presenter, broadcaster, and host of the mental health podcast, 'I Got Back Up.' Talia shares her harrowing story of a devastating electric scooter accident in 2021, which resulted in serious leg injuries and an 18-month rehabilitation journey. She discusses her physical and mental recovery, overcoming multiple surgeries, and even achieving the incredible feat of running a half marathon only 10 months post-surgery. The conversation delves into the power of mindset, the significance of embracing fears, and the transformative journey that led Talia to a successful career in sports broadcasting and mental health advocacy. With heartfelt anecdotes and insightful advice, this episode underscores the importance of resilience, community, and self-belief.

00:00 Introduction to Talia Lazarus' Journey
00:48 Understanding Aphasia
01:49 The Accident and Immediate Aftermath
03:59 The Road to Recovery
05:58 Running a Half Marathon
09:29 Starting the Podcast
13:56 Career as a Presenter and Broadcaster
21:44 Embracing Positivity and Overcoming Challenges
31:43 Reflections and Future Plans
36:56 Closing Remarks and Farewell

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Understanding Acquired Brain Injuries: Challenges and Support Systems plus Returning to Work

In this episode, Jonathan interviews Tamsin Keyes, the Publications and Research Manager at HEADWAY, the Brain Injury Association. Tamsin provides an in-depth explanation of what constitutes a brain injury, ranging from traumatic incidents to medical complications like strokes and aneurysms. She also outlines the difficulties individuals face when returning to work post-injury, including cognitive challenges and workplace accommodations. The discussion highlights the hidden nature of brain injuries and the importance of awareness, support, and legal rights under the Equality Act. Tamsin also shares resources and services provided by HEADWAY, including their helpline, local support groups, and vocational rehabilitation options. The episode aims to raise awareness and offer practical advice for individuals affected by brain injuries and their families.

00:00 Introduction to HEADWAY and Brain Injury
00:28 Understanding Brain Injuries
02:50 Challenges of Returning to Work
08:14 Support Systems for Employment
14:37 HEADWAY's Services and Support
23:27 Conclusion and Final Thoughts

www.headway.org.uk

www.acas.org.uk

www.gov.uk/government/collections/disability-confident-campaign

www.jobcentreguide.co.uk/about-disability-employment-advisors

www.gov.uk/guidance/equality-act-2010-guidance

www.vrassociationuk.com/resources-for-individuals

www.ncvo.org.uk/get-involved/volunteering/volunteering-opportunities

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Overcoming Aphasia: The Journey of Graham Hall

In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons discuss aphasia with Graham Hall, an orchestral percussionist who suffered a stroke a decade ago. Graham shares his experiences dealing with aphasia, its impact on his career, and the challenges of regaining his speech and musical abilities. Despite losing the joy in playing music, Graham found fulfilment in music arrangement and preparation. The discussion touches on brain injury recovery, neuroplasticity, and the importance of continuous practice. Graham's story aims to raise awareness about aphasia and encourages support for individuals with brain injuries.

00:00 Introduction and Personal Story
00:34 Welcome to the Podcast
00:52 Understanding Aphasia
01:45 Graham Hall's Stroke Experience
03:20 Challenges in Music Post-Stroke
06:00 Reconnecting with Music
10:07 Living with Aphasia
14:31 Raising Awareness and Support
27:58 The Role of Family and Friends
29:55 Creative Coping Mechanisms
33:06 Conclusion and Resources

Before my stroke (2014) I used parody to comment/mock the situation in my musical life.
So I've been using that to describe my new life with aphasia. The lyrics are "contrafactum" (the substitution of text for another without change to the music) and comment on how I cope with brain damage and aphasia. The irony is that despite having musical anhedonia I'm still a musician!  

https://grahamhall.bandcamp.com

Amongst other books , Graham recommends Musicophilia

 [ https://www.oliversacks.com/oliver-sacks-books/musicophilia-oliver-sacks/]

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Surviving Stroke and Navigating Aphasia: Nigel's Story

This podcast episode titled 'On the Tip of My Tongue' features Rob Edwards and Jonathan Hirons discussing aphasia, a language impairment often caused by a stroke or brain injury. They interview Paula Fearnley and Nigel Cheffers-Heard to hear Nigel's journey of recovering from a stroke that resulted in aphasia. Paula shares her challenges as a caregiver, their struggles with the healthcare system, and Nigel's progress over six years. The episode explores the social and occupational difficulties faced by aphasia patients and highlights the importance of community support, exercise, and persistence in recovery. It concludes by addressing the need for better workplace integration for those affected by aphasia.

00:00 A Shocking Turn of Events
00:29 Introduction to the Podcast
00:47 Understanding Aphasia
01:25 Nigel's Stroke Journey
04:07 The Struggle for Diagnosis
07:42 Recovery and Rehabilitation
10:57 Challenges in Daily Life
25:16 Returning to Work
31:58 Supporting Stroke Survivors
36:57 Conclusion and Resources

Say Aphasia Exeter

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Emma Rich: Battling Aphasia and Advocating for Neuro Rehab

In this episode, Emma Rich, Charity Coordinator at Say Aphasia, shares her harrowing journey with severe brain injury and subsequent aphasia. She recounts her critical medical emergency, rehabilitation experiences, and the crucial role of neuroplasticity in her recovery. Emma discusses the importance of speech therapy, community support groups, and the uneven access to rehabilitation services. Advocating for better support and employment opportunities for brain injury and stroke survivors, Emma emphasizes the need for education, hope, and inclusive societal attitudes toward individuals with neurological conditions.

00:00 Introduction and Welcome
00:16 Emma's Brain Hemorrhage Experience
01:51 Recovery Journey Begins
03:45 Rehabilitation and Neuroplasticity
05:58 Challenges and Support Systems
10:21 Involvement with Say Aphasia
18:43 Employment and Inclusivity
29:34 Hope and Rehabilitation
31:54 Conclusion and Final Thoughts

Say Aphasia website: https://www.sayaphasia.org

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

X:                http://x.com/buffaloloungeuk

The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Overcoming Aphasia and the Importance of Carers

In this episode, the host reflects on past events and highlights key themes such as surviving a critical health incident in Las Vegas, the significant role of communication in recovery from strokes, and the challenges and strategies for living with aphasia. The episode also emphasizes the importance of unpaid carers, their economic contribution, and the need for perseverance in finding effective communication methods post-injury. The narrative draws an analogy to living in a foreign country to convey the experience of aphasia, highlighting its often hidden nature and the frustration of not being recognized for having a serious condition.

00:00 Reflecting on Past Episodes
00:10 A Harrowing Experience in Las Vegas
00:40 The Importance of Communication Post-Stroke
00:52 Meet Pete Cody: A Story of Resilience
01:05 Tips for a Healthy Brain
01:31 The Role and Impact of Unpaid Carers
02:07 Understanding Aphasia: A Hidden Disability

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

X:                http://x.com/buffaloloungeuk

The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Journey Through Aphasia: An Interview with Colin Lyle

In this episode of the On the Tip of My Tongue podcast, Colin Lyle, founder of the Say Aphasia charity, shares his powerful journey from experiencing a stroke and developing aphasia to actively supporting others with the condition. Colin talks about his stressful lifestyle that led to his stroke, the challenges he faced during recovery, and his efforts in starting the Say Aphasia charity. The episode covers the importance of speech and language therapy, the challenges of living with aphasia, and the mission to raise awareness and support for those affected. Colin’s inspiring story highlights the significance of community and peer support in navigating life with aphasia.

00:00 Introduction to Aphasia
02:22 Colin's Stroke and Initial Challenges
03:45 Speech and Language Therapy Journey
07:47 Founding Say Aphasia Charity
12:04 Expanding the Charity and Overcoming Hurdles
23:09 Future Plans and Reflections
31:33 Conclusion and Resources

Say Aphasia

The Say Aphasia Charity provides supportive drop-in groups for people with aphasia in the UK. It is run by people with aphasia for people with aphasia.

Aphasia is not a well known condition and so people with this communication disability can feel alone and isolated from their community.

Our aim is to provide continuous support in a social environment with people who are experiencing similar life changes.

Our charity makes a difference to people living with aphasia by:

• Offering companionship and support
• Helping to adjust to living with aphasia.
• Meeting people who are experiencing a similar life change.
• Making new life long friends.
• Gaining tips and advice from others with aphasia.
• Gaining confidence to socialise and communicate as best they can.
• Re-gaining independence as much as they can.
• Helping to reduce loneliness.
• Providing support in a relaxed and welcoming environment.
• Offering art class and singing class as a therapeutic way to relax and express themselves.

#AphasiaAwareness 

#StrokeRecovery 

#SayAphasia


https://www.sayaphasia.org

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

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Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Rebuilding Lives After Stroke: Colin Lyle's Journey with Aphasia

In this episode of the Tip of My Tongue podcast, Colin Lyle, founder of the Say Aphasia charity, discusses his personal journey with aphasia following a stroke 11 years ago. Colin shares details about his former stressful career, his initial denial about the severity of his condition, and the extensive speech and language therapy that aided his recovery. He explains the challenges he faced, including the realization that he could no longer continue his previous work. Colin also talks about the founding of Say Aphasia, the expansion of the charity, and the group's mission to support people with aphasia. He touches on the importance of peer support groups, the impact of stress on health, and the future direction of his charity. Colin highlights the need for more awareness and support for aphasia, revealing that many people still lack access to necessary speech and language therapy.

00:00 Introduction to Aphasia and Colin's Journey
02:22 Colin's Stroke and Initial Recovery
03:26 Challenges and Realizations Post-Stroke
07:47 Founding Say Aphasia Charity
11:50 Expanding the Charity and Overcoming Obstacles
23:09 Future Plans and Reflections
31:33 Conclusion and Resources

#AphasiaAwareness 

#StrokeRecovery 

#SayAphasia


https://www.sayaphasia.org

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

X:                http://x.com/buffaloloungeuk

The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Understanding the Role of the Royal College of Speech and Language Therapists

In this episode of the 'Tip of My Tongue' podcast, host Jonathan and Rob engage in a detailed conversation with Derek Munn, the Director of Policy and Public Affairs at the Royal College of Speech and Language Therapists. Munn shares insights on his role, which involves working with UK governments, managing legislative policies, and advocating for speech and language therapy services. He discusses the history and evolution of the Royal College, highlighting its formation, the role of speech therapists, and the importance of collaborative practices. The conversation also delves into the challenges of treating conditions like aphasia and the need for comprehensive communication support systems. Munn underscores the significance of raising public awareness about various speech and language disorders and the necessity of integrating speech therapists into multidisciplinary healthcare teams.

00:00 Introduction and Guest Welcome
01:19 Overview of the Royal College of Speech and Language Therapists
02:37 History and Evolution of Speech Therapy
05:02 Modern Speech Therapy Practices
06:22 Challenges in Speech Therapy and Aphasia Awareness
12:23 Workplace Inclusivity for People with Communication Challenges
21:41 Raising Awareness and Advocacy
31:37 Conclusion and Final Thoughts

https://www.rcslt.org

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

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Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Better Conversations with Aphasia: In-Depth with Dr. Suzanne Beek

In this episode, Dr. Suzanne Beek, Associate Professor of Language and Cognition at UCL, discusses her innovative therapy called Better Conversations with Aphasia. She explains how aphasia, a communication difficulty often resulting from stroke, affects conversations and the simple strategies her program employs to improve communication between people with aphasia and their loved ones. Dr. Beek also talks about the therapeutic techniques, including video feedback, that speech and language therapists use to facilitate better conversations. The conversation also highlights common communication issues, such as 'test questions,' and the need for greater awareness and support for speech and language therapy.

00:00 Introduction to Dr. Suzanne Beak and Better Conversations with Aphasia
00:13 Understanding Aphasia: Cognitive Effort and Communication Challenges
01:53 Dr. Suzanne Beak's Background and Research Focus
02:48 The Concept of Better Conversations
03:36 Implementing Better Conversations with Aphasia
05:57 The Role of Video Feedback in Therapy
07:55 Common Communication Challenges and Solutions
08:08 Addressing Test Questions in Conversations
10:37 The Emotional Impact of Aphasia
19:12 Raising Awareness and Media Representation
21:26 Different Types of Aphasia: Stroke vs. Primary Progressive Aphasia
34:09 Funding and Support for Aphasia Research
36:10 Training and Future Directions in Aphasia Therapy
41:18 Accessing Better Conversations with Aphasia
42:40 Conclusion and Final Thoughts

https://www.ucl.ac.uk/pals/research/language-and-cognition/language-and-cognition-research/better-conversations-lab

UCL Communication Clinic for people with aphasia and families
https://www.ucl.ac.uk/pals/ucl-communication-clinic

Twitter: https://x.com/BCAphasia

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

X:                http://x.com/buffaloloungeuk

The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Overcoming Aphasia: Pete Cody's Journey and Community Impact

In this episode, we talk to Pete Cody, a former Mondelez Cadbury salesman who became a peer leader for Say Aphasia after a serious car accident left him with aphasia. Pete discusses the challenges he faced transitioning from a high-paced sales job to living with a communication disorder, and how he found purpose by running aphasia support groups in Darlington and Bishop Auckland. He shares stories of personal struggles, the importance of community support, and the growth and impact of the aphasia groups he leads. The conversation highlights both the isolation that can come with aphasia and the hope and connection found through dedicated support networks.

00:00 Introduction to Pete Cody and His Journey
02:15 Life Before and After the Accident
04:15 Transition to Running Aphasia Groups
05:49 Challenges and Support in Managing Aphasia
07:44 Community Engagement and Growth
14:49 Future Plans and Aspirations
18:24 Concluding Thoughts and Reflections

https://www.sayaphasia.org

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Overcoming Trauma: Tom Ryan Elliott Talks Aphasia, Epilepsy, and Workplace Challenges

In this episode, we talk to Tom Ryan Elliott, who suffered a severe brain injury in 2014 leading to aphasia and epilepsy. He recounts his experience of how a work event in Las Vegas dramatically changed his life, leaving him in a coma and resulting in long-term disabilities. The discussion focuses on Tom's struggles and perseverance in the workplace, the lack of awareness about aphasia and epilepsy, and his journey towards building a new career in media and photography. Tom shares insights into the difficulties faced by people with disabilities in professional settings and his own future ambitions to raise awareness and secure more inclusive environments.

00:00 Introduction to Tom Ryan Elliott
02:25 Tom's Life-Changing Accident
05:42 Living with Aphasia and Epilepsy
08:22 Challenges in the Workplace
16:28 Pursuing a New Career in Media
26:49 Raising Awareness About Aphasia
01:55 Introduction to Tom Ryan Elliott
02:25 The Life-Changing Accident
04:38 Living with Aphasia and Epilepsy
08:22 Challenges in the Workplace
11:12 Pursuing a New Career in Media
16:18 Raising Awareness About Aphasia
25:31 Future Plans and Final Thoughts

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Reflecting on the Journey: Uncovering the Themes of Aphasia Awareness

In the final episode of Series 1 of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons review the key themes and insights from their podcast series dedicated to raising awareness about aphasia. They discuss the stigmatization and misunderstandings surrounding the condition, share personal stories from guests such as Dr. Trevor Powell and insights from Michael Shann on the role of carers. The episode underscores the importance of caring, the challenges faced by those with aphasia, and looks ahead to future technological advancements in treatment.

00:00 Introduction to the Podcast
00:16 Reflecting on the Series
00:59 Understanding Aphasia and Stigmatization
05:22 Personal Experiences with Aphasia
07:43 The Role of Carers
10:59 Future of Aphasia Treatment
11:15 Conclusion and Next Steps

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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X:                http://x.com/buffaloloungeuk

The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Intertwined Health: Neuropsychology, Brain Health, and Insights from Dr. Trevor Powell

In this episode of 'On the Tip of My Tongue,' Dr. Trevor Powell, a consultant clinical neuropsychologist, discusses the interconnectedness of physical and mental health, emphasizing how psychological processes influence physical conditions. He addresses the stigma surrounding mental health by comparing it to physical health problems. Dr. Powell provides insights into neuropsychology, detailing its evolution and its critical role in assessing and rehabilitating brain injuries. The conversation touches on cognitive rehabilitation, the significance of insight in brain injuries, and the importance of physical and mental activities for brain health. The episode also delves into aphasia, its impact on language functions, and aims to dispel prejudices associated with the condition. Additionally, there is a light-hearted discussion about walking football and its benefits for mental and physical well-being.

00:00 Introduction to Dr. Trevor Powell
01:56 The Interconnection of Physical and Mental Health
03:48 Understanding Neuropsychology
04:59 Insight and Cognitive Decline
07:35 Dr. Powell's Journey and Charity Work
11:03 Language Functions and Brain Injuries
15:50 Walking Football and Mental Health
18:16 Final Thoughts on Brain Health

Trevor Powell is a Chartered Clinical Psychologist and Clinical Neuropsychologist with over 30 years experience of working in mental health and neuropsychology in the NHS.

He is the clinical lead and manager for neuropsychology service in Berkshire and specialises in head injury (TBI) and more recently Asperger’s Syndrome (ASD).

Dr Powell's books include: The Mental Health Handbook; Head Injury, A Practical Guide; The Brain Injury Workbook and, more recently, Recognising Asperger’s Syndrome.

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Caring for Loved Ones with Aphasia: A Personal Journey with Ann

In this episode of the 'On the Tip of My Tongue' podcast, we welcome Ann, Jon's wife, to discuss her experience caring for a partner with aphasia following his stroke. Ann shares her professional background in psychology and addiction therapy within the NHS, which provided her some tools in managing Jon's condition. The conversation covers the initial challenges, the importance of early intervention and therapy, and the support systems and strategies Ann employed to assist John's recovery. Ann emphasizes the value of support groups and staying positive, while highlighting her journey from managing overwhelming emotions to achieving significant milestones in Jon's rehabilitative process.

00:00 Introduction to Anne Hirons

00:46 Anne's Professional Background

03:26 Initial Challenges and Discoveries

05:56 Jon's Diagnosis and Early Days

10:22 Communication and Therapy Techniques

13:24 Impact on Relationship and Daily Life

20:00 Advice for Caregivers

23:15 Concluding Thoughts and Gratitude

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Supporting Carers: Insights and Initiatives from Carers UK

In this episode, Michael Shann, head of carer support at Carers UK, discusses his 12.5-year journey with the charity, highlighting its mission to improve the lives of carers. He provides an in-depth overview of the services offered, including a helpline, online and in-person meetups, and various support resources. Michael also elaborates on the challenges carers face, such as mental health issues and financial difficulties, and emphasizes the vital role carers play in the economy. The conversation touches on ongoing campaigns for policy reform and future plans for Carers UK's 60th anniversary, aiming to increase awareness and support for carers.

00:00 Introduction and Personal Background
01:44 Day-to-Day Work at Carers UK
03:29 Support Services and Resources
04:36 Membership and Volunteering
06:41 Challenges and Peer Support
09:12 Finding and Accessing Support
11:16 Current Issues and Future Plans
16:54 The Role and Impact of Carers
20:14 Conclusion and Final Thoughts
 
Carers UK is the leading national charity for unpaid carers.
It supports, advocate for, champion and connect carers across the UK, so that no one has to care alone.

Making life better for carers

Looking after someone can be a rewarding experience but it can also be lonely and bewildering.  

For almost 60 years Carers UK has been making life better for carers, raising their voices together to call for change and seek recognition and support. 

Guided by a Board of Trustees that's primarily made up of current and former carers, it is here to make life better for carers, listening to what carers tell us and rooted in the real experiences of its members. 

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

X:                http://x.com/buffaloloungeuk

The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Understanding Aphasia: A Deep Dive into the Hidden Disability

In this episode of the 'On the Tip of My Tongue' podcast, hosts Rob Edwards and Jonathan Hirons discuss aphasia, a little-known yet common condition affecting language and communication due to brain injury. They chat with Barbara Chalk, a retired speech and language therapist and trustee of the charity Say Aphasia, to explore why aphasia is under-recognized, the various challenges it poses, and the support structures available for those affected. Barbara shares insights on the nuances of the condition, its impact on self-esteem, and the importance of long-term support and community for rehabilitation and coping.

00:00 Introduction to Aphasia
00:15 Meet the Hosts and Guest
00:32 Understanding Aphasia
02:00 Challenges of Living with Aphasia
05:21 Misconceptions and Public Perception
07:49 Therapy and Rehabilitation
13:08 Long-term Support and Say Aphasia
14:01 Personal Experiences and Coping Strategies
15:08 Funding and NHS Challenges
17:20 Research and Future Directions
32:04 Conclusion and Resources
33:10 Preview of Next Episode

APHASIA

"A lot of people's experience of aphasia is that nobody knows what it is and it's a hidden disability. Not being recognised as having something seriously wrong with you is incredibly frustrating"

"Is there something, is this an insightful way to kind of talk about aphasia? Is there something inherent in the condition itself, being something to do with the voice rather than the body"

ABOUT  SAY APHASIA

"The joy of it is it's run by people with aphasia. Now, you know, a lot of people with aphasia are quite young, working age, and if they can't go back to work, they're kind of, all their peers, all their friends will be working  and they'll sit at home going  feel so hopeless, I can't do anything."


BARBARA CHALK
Trustee of Say Aphasia - https://www.sayaphasia.org

Barbara is a retired NHS speech and language therapist who specialised with adults with aphasia and other neurological conditions.

Barbara has also worked as a personnel manager for a local business and is a director of an established online book business.

She founded and was Chair of the charity, Living with Aphasia, in Exeter which joined forces with Say Aphasia in 2022.

She believes in the positive impact the charity has on people living with aphasia.

She will support their dedicated team to sustain their strong and successful future

To watch Jonathan’s film: https://tipofmytonguefilm.com

https://sayaphasia.org
http://x.com/buffaloloungeuk
https://www.linkedin.com/in/jonathanhirons/

The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

X:                http://x.com/buffaloloungeuk

The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Understanding Aphasia: Personal Journeys and Insights

In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the challenges and experiences of living with aphasia, a language disorder caused by brain injury. Jonathan shares his personal journey following a stroke, highlighting the struggles and the gradual recovery process. The discussion covers different types of aphasia, the importance of early therapy, and the social perceptions and misconceptions surrounding the condition. The episode aims to raise awareness, inspire hope, and provide valuable information for sufferers and their carers.

00:00 Introduction and Personal Story
00:15 Welcome to the Podcast
00:32 Understanding Aphasia
01:09 The Documentary: On the Tip of My Tongue
01:45 Experiencing a Stroke
02:54 Challenges with Language and Recovery
05:25 Raising Awareness and Offering Hope
06:23 Types of Aphasia
10:16 Road to Recovery
16:16 Social Confidence and Perceptions
21:23 Conclusion and Next Episode Preview

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

X:                http://x.com/buffaloloungeuk

The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org