Listeners will appreciate Dr. Troso-Sandoval’s perspective on navigating complex cancer care systems, the benefits of second opinions, and strategies to build transparent, effective communication with oncologists and advanced practice providers. She underscores the power of patient education in reducing stress and fostering trust, making a compelling case for self-advocacy and resilience. She emphasizes the importance of informed, collaborative care.

Whether you’re a survivor, caregiver, or healthcare provider, Dr. Troso-Sandoval’s reflections on balancing expert guidance with personal resilience offer a fresh perspective on thriving through the cancer journey. Tune in for a deeply empowering conversation.

Dr. Troso-Sandoval’s LinkedIn linkedin.com/in/tiffany-troso-sandoval-md-b897a017

Dr. Troso-Sandoval’s  email:  drtroso@winningthecancerjourney.com

Dr. Troso-Sandoval’s Winning the Cancer Journey website: https://www.winningthecancerjourney.com/

Memorial Sloan Kettering Cancer Center About Herbs, Botanicals, and Other Products https://www.mskcc.org/cancer-care/diagnosis-treatment/symptom-management/integrative-medicine/herbs

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Diagnosed at just 34 years old, Kiki’s journey through invasive ductal carcinoma was filled with life-altering challenges—sepsis, difficult reconstruction choices, not being heard, and inadvertent missteps in communication with her daughter when unexpectedly hospitalized during the pandemic.

Her story reveals the courage required to choose a flat chest after multiple complications with implants. Through it all, Kiki found strength in self-advocacy and the support of her husband and daughter. She shares how breast cancer not only changed her body but also reshaped her life, acting as a catalyst to confront past traumas and regrets,  emerging as a more compassionate and open person.

Kiki’s voice, grounded in her experience and challenges as a Black woman navigating the healthcare system, speaks to the power of resilience and of the shared experience with other survivors. Tune in to hear her inspiring message of hope, healing, and the strength to embrace both scars and life after breast cancer.

Email KiKi, Kiana at thebreastdecisionfoundation@gmail.com
Kiki’s LinkedIn linkedin.com/in/kiana-wooten-4700a12a4

The Breast Decision a book by Kiana Wooten

Tiger Lily Foundation

A national women’s health and oncology organization providing education, awareness, advocacy and hands-on support to young women (15-50) before, during and after cancer.

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

At just 21, Terry faced a rare and life-changing cancer that affected his appearance, leading him to retreat from the world. 

Eventually tired of hiding, Terry deliberately took his life back by working out, relying on sheer determination and resilience. He thrived, reclaiming both his confidence and his life. He graduated college, had a family, and succeeded in tech industry sales.

Terry’s journey is about much more than overcoming adversity—it’s about transformation. His perseverance, combined with a mission to help others, has shaped his purpose: to inspire those facing challenges to overcome adversity and live fully. Tune in as Terry shares his journey and insights that are sure to inspire and uplift.

Terry’s email address – terry@terryhealey.com ; for those interested in joining his newsletter and getting notified about his forthcoming book, send an email to terry@terryhealey.com with the subject line “newsletter”

Terry’s resources web page - https://terryhealey.com/?page_id=8 (for support, research and information about facial disfigurement)

Cancer Support Community - https://www.cancersupportcommunity.org/

About Face https://aboutface.ca/about/ About Face’s vision is the elimination of the stigma and discrimination encountered by individuals with a facial difference.

My Face www.myface.org My face Is beautiful

Face Equality International https://faceequalityinternational.org/

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

In the 36th episode of the Everything Cancer Podcast, Dr. Eugene Manley, PhD, joins us to discuss the important work shared through the 2nd Lung Cancer Health Equity Summit: Black and Latino Patients Navigating Lung Cancer - Stepping Stones to Equity

The summit focuses on implementing real-world solutions to improve lung cancer research, screening, care access, and outcomes. Dr. Manley’s mission is to move beyond discussions of inequity and provide a forum for actionable strategies to reduce disparities and improve outcomes.

Dr. Manley aims to bring together healthcare professionals, researchers, patients, and community leaders to share best practices and build partnerships. Topics include expanding screening access, addressing clinical trial diversity, navigating lung cancer, improving access to care, and increasing representation in lung cancer cell lines. 

The importance of sincere and ongoing community engagement and trust-building is discussed. In their conversation, Dr. Manley and Jill cover the critical nature of including diverse populations in clinical trials and research to ensure effective therapies across all demographics.

Dr. Manley highlights in this conversation how the summit is designed for attendees to bring back solutions to their own communities, practices, and organizations. It is intended to foster collaboration and innovation in cancer screening and care for underserved populations. Patients will be empowered and witness living proof there are many motivated people in their corner. 

2nd Lung Cancer Health Equity Summit Registration:
https://tinyurl.com/LCHES

Submit a poster:
https://tinyurl.com/LCHESPoster

Dr. Eugene Manley, PhD, LinkedIn Info:
https://lnkd.in/e-WinBTT

#LungCancerScreening
#EquityInLungCancerScreening
#EquityInLungCancerCare
#EquityInLungCancerResearch
#ClinicalTrialAccess

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Rochelle’s Links

linkedin.com/in/rochelleprosser

Health Information Technology Advisory Committee Article 

ORCHID HEALTHCARE SOLUTIONS

ORCHID is defined as the Organization for Research and Clinical Cancer Health Innovation in Dignity and dismantling of Disparity in care.

From Rochelle Prosser:

"I know intimately that to navigate oncology requires distinct healthcare system understanding, effective provider-patient communication,  and how to find and navigate solutions when all else has failed. It is a journey not to take alone."

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

 In this heartfelt and candid episode of Everything Cancer, we sit down with Dr. Sam Siegel, a pediatrician, and Dr. Sam Siegel, an onco-generalist doing the heavy lift of starting a survivorship practice. Both doctors are not only healthcare providers but also cancer survivors who each experienced tough treatments and parents to three busy kids. 

Sam and Sam candidly discuss their personal cancer journeys and the complexities of balancing family life with their professional and personal health challenges. Mortality is a topic that is not off the table in their household out of hard-earned necessity.

They discuss the importance of self-advocacy—a topic they frequently address in public speaking, emphasizing the crucial nature of asking questions and not being afraid to seek second opinions.

Dr. Sam Siegel talks about her pioneering onco-generalist survivorship program at Kaiser, which aims to integrate supportive care from the time of diagnosis, focusing on the quality of life, especially for those living with metastatic cancer. They both stress the need for comprehensive, multidisciplinary approaches that go beyond merely extending life to truly enhancing it. 

We discuss the importance of being vital at all stages of one’s journey.

Their beloved dog, Darla, occasionally weighs in on the conversation.

Tune in to hear how the Siegels navigate the ups and downs of cancer, parenting, and building a better future for survivors. Their story is a powerful testament to resilience and the relentless pursuit of living fully, no matter the circumstances.

 Dr. Samantha Siegel's LinkedIn linkedin.com/in/samantha-siegel-md-240341291

What About Primary Care by Dr. Samantha Siegel and Dr. Rebecca Eary in the September issue of Elephants and Tea

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Stephanie emphasizes the unique and transformative power of Cancer Bridges, highlighting how survivors benefit from connecting with others who truly understand their journey. Whether through support groups, creative classes, or one-on-one counseling, Cancer Bridges offers a safe space where everyone—from newly diagnosed patients to long-term survivors to stressed caregivers to children of a parent with cancer—can find comfort, community, and hope.

With a compassionate approach and a diverse array of programs, Cancer Bridges stands as a testament to the strength found in shared experiences and the vital importance of community in the cancer journey. 

Don’t navigate this alone—dip your toe in and discover the support waiting for you.

Contact Stephanie at stephanie@cancerbridges.org

Cancer Bridges 

Programs at Cancer Bridges 

Cancer Bridges Facebook

Cancer Bridges Instagram

CancerCare.org - National online support and resource organization

Just for fun:
The Pittsburgh (Yinzer) Accent

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Jason King, Assistant Manager at the Center, takes us on a tour, explaining how they’ve expanded over the past 11 years with the growing recognition of the need for whole-person survivorship care. The center has grown from a small team of three into a bustling team of 33 dedicated, multidisciplinary members.

Their comprehensive program offers a wide range of services tailored to cancer survivors, from diagnosis through three to five years after treatment.

The Center focuses on whole-person care, addressing survivors' physical, emotional, and practical challenges. 

With services like oncology rehab, dietitian, sexual health, and social work visits, the Center is designed to meet whole-person survivors' needs during and after treatment. This integrative approach ensures that survivors receive the support they need to navigate life through and beyond cancer treatment.

A key highlight is the Center’s Lifetime Clinics, which serve as an "oncology home" for patients three to five years post-treatment. These clinics provide ongoing care, helping survivors manage long-term effects and maintain their health.

Jason discusses the importance of integrative oncology. By treating the whole person and collaborating with external resources, such as acupuncture and massage therapy, when needed, the Center ensures that survivors feel heard, supported, and empowered throughout their journey.

This episode is essential listening for anyone interested in how whole-person, survivor-centered care can significantly improve quality of life. Tune in to learn how Jason and his team are making a meaningful difference in the lives of cancer survivors by offering a comprehensive model of care that truly puts the patient first.

Jason's email address: jason.king2@prismahealth.org

Prisma Health Center for Integrative Oncology and Survivorship

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Through relentless research, networking with cancer survivors worldwide, and embracing a new diet, Mark discovered the power of integrative care and the importance of living with purpose. 

His story is a testament to the resilience of the human spirit and the power of community. 

Tune in to hear how Mark created purpose to face each day in his darkest of times, molding a platform to inspire and support others facing similar battles. Learn why he believes there's always hope as long as you keep living and fighting.

This episode is a must-listen for anyone seeking inspiration, practical advice, and a reminder that no matter the odds, there is always a way forward.

2BYourOwnHero YouTube Channel 

Marks' email: oilsallwell@gmail.com

Mark's Caring Bridge Blog

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Join us on Everything Cancer as we explore the world of cancer survivorship advocacy with Dr. Veronika Panagiotou, the strategically dynamic Advocacy and Program Manager at the National Coalition for Cancer Survivorship (NCCS). 

Dr. Panagiotou shares her inspiring journey from being diagnosed with non-Hodgkin's lymphoma to becoming an advocate for cancer survivors across the nation through the NCCS.

One of the most crucial roles NCCS plays is ensuring that the survivor's voice is heard at the crucial legislative and policy levels. 

Dr. Panagiotou shares how the NCCS annual Survivorship Survey has made a significant impact by providing vital data that directly informs policy decisions.  You can be a part of this by participating in the survey!

Dr. Panagiotou highlights the transformative tools and resources NCCS offers, including the Survivorship Checklist, to help survivors navigate their journey with confidence and clarity. 

Whether you're a cancer survivor, a caregiver, or simply someone who wants to understand the impact of advocacy on cancer care, this episode is packed with insights and inspiration. Dr. Panagiotou’s passion for her work, her personal experience, and her dedication to championing survivors truly shine through, making this a must-listen.

Note: My podcast producer, Elijah, did his best to "studio-ize" my recording from my makeshift studio during disaster mitigation efforts at my home. 

NCCS

Survivorship Survey

Survivorship Checklist - NCCS - National Coalition for Cancer Survivorship (canceradvocacy.org)

Resources - NCCS - National Coalition for Cancer Survivorship (canceradvocacy.org)

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Harriet emphasizes the importance of intentionality and finding small joys, even during the darkest times. She shares how she used imagery and worked with a creative therapist to navigate her cancer journey. Her creative coping strategies, including making and using inspirational coping cards, provided her with comfort and focus. Harriet relates how the art of Kintzugi—finding beauty in brokenness—offers valuable insights for anyone facing life's challenges. Tune in for an episode filled with wisdom, resilience, and practical advice on navigating grief and finding meaning after trauma.

Harriet’s Website Rebuild Life Now

Harriet’s Non-Hodgkin’s Lymphoma Patient Story on YouTube 

Harriet’s email address Harriet@rebuildlifenow.com

Harriet’s LinkedIn 

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

• Avoid lubricants containing irritants such as  chlorhexidine gluconate
   polyquaternium 
   fragrances
   glycerin
   propylene glycol
   parabens
   spermicide 
   menthol
   capsaicin
   flavors
   numbing agents like lidocaine

We hope this episode helps you feel more comfortable and informed about choosing and using lubricants to enhance your intimate experiences. Enjoy exploring together! 

Let’s Slide Into Lubricants After Cancer: Solutions for Sexual Health 

Leave comments or email us with your experiences and recommendations for intimate products. Stay tuned for future episodes on related topics. Thank you for listening to Everything Cancer!

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Dr. Aks shares her extensive knowledge of integrative health. Cynthia discusses how nutritional values in food impact our well-being. She explains the importance of individualized nutritional therapy and practical steps for maintaining a balanced diet. She also explores how integrative and healthcare team collaboration can enhance the quality of life during and after cancer treatment.

This episode provides valuable insights and practical tips for cancer survivors looking to enhance their health and well-being through better nutritional choices and how to work with an integrative health coach and their oncology care team.

Key Points:

1. Nutritional Therapy:

   - Importance of nutrient-rich diets for health and healing.

   - High-energy foods: Plants and their role in providing essential nutrients.

   - Low-energy foods: Processed foods and their lack of nutritional value.

2. Individualized Nutrition:

   - Bio-individuality: One diet does not fit all.

   - The importance of personalized dietary plans based on genetic makeup.

   - Example of MTHFR gene mutation and its impact on nutrient metabolism.

3. Supplements vs. Food:

   - The preference for food over supplements when possible.

   - The need for high-quality supplements when necessary.

   - Ensuring supplement quality by looking for certifications and reputable brands.

4. Integrative Health Approach:

   - Importance of trust and communication between patients and their care team.

   - Collaboration with healthcare team members

5. Practical Advice:

    - Taking baby steps to implement dietary changes.

    - Educating and involving children in healthy eating habits.

Cynthia Aks Contact Info:
drcak3d@yahoo.com

If you would like to read more on this topic:

How to Make Evidence-Based Integrative Medicine a Part of Everyday Oncology Practice from American Society of Clinical Oncology Books

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Slower

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Welcome to the "Everything Cancer" podcast.  Today, we're delving into the vital topic of mouth care with Dr. Rajiv Saini, Chief Science Officer at H2Ocean. 

Dr. Saini discusses why good, gentle oral health is crucial during cancer treatment and survivorship. 

Rajiv explains how chemotherapy and radiation can make the mouth sensitive and prone to sores and infections. He emphasizes the need for gentle, effective oral care routines. 

Dry mouth can occur for any number of reasons. It can persist for months or even years after radiation and some chemotherapy treatments. H2Ocean’s Healing Sea Salt Rinse can help alleviate that sensation for several hours. Jill describes H2Ocean as a “Spa Day for your mouth.”

Rajiv explains the science behind H2Ocean's patented formula, containing Red Sea salt, lysozyme, and xylitol, and its benefits in maintaining a healthy oral microbiome. Rajiv shares his passion for the product and H2Ocean's commitment to supporting cancer communities by donating mouthwash to cancer care organizations.

Rajiv is also a dentist, periodontist, Harvard-trained in Healthcare Operations, and a participant in oral care research and development in multiple settings.

Tune in to learn how a spa day for your mouth can enhance your well-being, whether you're in treatment or focusing on daily care.

📌 Show Notes:

• Dr. Rajiv Saini: Dentist, Periodontist, Harvard Medical School Health-Care Operations, over 175 publications, research and development in several settings, and Chief Science Officer at H2Ocean.
• Importance of oral care during and after cancer treatment.
• Benefits of H2Ocean's sea salt-based mouthwash.

👂 Thank you for joining us on this episode of Everything Cancer. Stay healthy and take care of your mouth!

www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Slower

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Ellen talks with Jill about how she grapples with survivor's guilt but has found purpose in advocating for breast cancer research through Komen. She shares with the audience how much the community and support of her local breast cancer support chapter means to her. 

Ellen’s telling blends emotional depth with practical advice and personal anecdotes. Through this interview, she shows she has not lost her sharp wit.

Key Topics

Ellen’s experience advocating for herself and the importance of having a supportive medical team.

The role of her nurse navigator in her care.

Survivor’s guilt and the realization that everyone’s cancer journey is personal.

Empathy for others with more challenging journeys and her drive to advocate for others.

Ellen introduces her company, Artifcts, which helps people preserve meaningful memories through photos, videos, and stories.

Her involvement with Susan G. Komen and the rewarding experience of supporting research and providing direct financial assistance to those in need

What community and feeling connected in the cancer journey has come to mean for her.

Ellen concludes with a dark but funny pun about her journey, emphasizing the importance of humor in healing... this poignant moment highlights how humor can be a powerful tool for coping with the challenges of cancer.

Artifcts 

ELLEN GOODWIN'S ARTIFCTS
Wife, mother, friend, cyclist, book lover, plant killer, & world explorer + co-founder of Artifcts! 

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Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

TEDx Speaker: Hear about Amanda's impactful TEDx talk, sharing her story and advocating for cancer survivors: Through Pain Comes Optimism 

Advocacy and Resources: Learn about Amanda's website, cancerisanasshole.com, offering resources, patient advocacy, and support for cancer patients and their families.

Healing Through Advocating for  Others: Hear how offering patient advocacy services through her website soothes Amanda’s soul. 

Personal Struggles and Triumphs: Amanda opens up about her challenges with chemo brain, neuropathy, and the emotional toll of cancer treatment. 

The Power of Journaling: Amanda discusses the healing power of journaling through her journey

Heroic and Creative Son: Discover how Amanda and her son, Isaac, created cancerisanimposter.com to help kids understand and cope with a family member's cancer diagnosis. 

Inspiring Resilience: Amanda shares how she maintains her fighting spirit and spreads hope, even amidst never-ending health challenges.

Wisdom for Survivors: Insightful tips on navigating the cancer journey, the importance of second opinions, and leveraging support networks.

Amazing Off-the-Cuff Answer: Hear Amanda’s inspiring and incredible answer to Jill’s surprise interview-closing question.

Amanda’s TikTok Channel: Cancer Patient Advocate 

Join us for an inspiring and heartfelt episode that underscores the strength and resilience of cancer survivors, providing valuable insights and resources for those on their own survivorship journey.

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Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Today, Tim joins the podcast and shows us his gift of making us feel like we are talking at his kitchen table.

He got real with us and sharing how the survivors he welcomes to his show impact his life and perspective.

Tim gives us a glimpse of his vulnerable side as he recalls the challenge of going from remission to recurrence of his Chronic Myeloid Leukemia (CML).  

We are suspended in time with Tim as he recounts the uplifting and meaningful support he received from two members of his audience while sharing his personal sense of devastation with recurrence of CML on “Showing Up”.

He sheds light on the inspiring aspect of the survivors supporting each other as he recounts his shift from a private cancer story private to sharing it publicly in 2021 …
"Showing Up: Perspectives on Cancer," was born.

“Showing Up” is a live show airing Wednesdays at 8 PM Eastern on LinkedIn, then is posted on YouTube. The show provides a safe space for cancer patients, survivors, and supporters to share their stories, fostering a sense of community and understanding.

Showing Up: Perspectives on Cancer on YouTube - https://www.youtube.com/@perspectivesoncancer/featured

On Amazon, Tim has published inspiring survivor stories,
Perspectives on Cancer: Cancer Patients, Survivors & Supporters Share Their Stories
https://a.co/d/0VSgpjm

Perspectives on Cancer: Stories of Healing, Hope, and Resilience
Volume 2 https://a.co/d/dlyNrDU 

Enjoy this episode as we turn the hosting tables on Tim and have him in the Everything Cancer Podcast guest seat.

If you are interested in attending or supporting Tim’s Showing Up: Perspectives On Cancer In-Person Event, which is Oct. 5 & 6,

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Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

• Understanding the Role: Mark sheds light on why your Clinical Oncology Pharmacist is worth your time and attention.
• Supplement Safety: Insight into how supplements can interact with cancer treatments and the importance of informing your healthcare team about any non-prescribed substances you are taking.
• Immunotherapy Insights: Learn about the potential side effects of immunotherapy, how they are managed, and the importance of patient education in ensuring safe and effective treatment.
• Future of Oncology: Discover advancements in BITE therapy, making cutting-edge treatments more accessible in community settings.
• Michigan’s POEM Initiative: Mark’s investment in exceptional patient care is evident through his involvement in the POEM initiative. He invites Michigan Oncology Pharmacists to join.
• Survivorship Clinic Plans: The need for expert survivorship care is apparent. Mark shares his collaboration with oncology care experts and the initiative to launch a Survivorship Clinic staffed by a Clinical Oncology Pharmacist and an Advanced Practice provider.
• Empowering Patients: The importance of communication and education in empowering patients to take an active role in their treatment and care.

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Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Heather shares her inspiring advocacy journey, spurred by her son's diagnosis and incredulity at the lack of coverage for Lymphedema Treatment over simple wording. 

This episode sheds light on the complexities of living with lymphedema, the importance of effective treatment, and the significant legislative triumph with the passing of the Lymphedema Treatment Act. Heather offers practical tips for patients facing insurance denials, emphasizing the importance of appealing and leveraging support from state departments and HR departments.

https://lymphedematreatmentact.org/

Newsletter for Lymphedema Advocacy Group https://lymphedematreatmentact.org/category/newsletter-archives/

Contact Heather at info@lymphedematreatmentact.org

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Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

In the second part of our interview with Dr. Alique Topalian, PhD in Health Promotion Education, we continue to explore her remarkable journey as both a pediatric and young adult cancer survivor. Dr. Topalian delves deeper into her advocacy work, fighting for legislative changes to support all cancer survivors. Dr. Topalian is a relentless advocate, from working to have insurance coverage for biomarker testing to pushing for transparency in copay assistance programs. 

Tune in for an insightful discussion on the complexities of cancer treatment and the unique challenges faced by the adolescent and young adult (AYA) cancer community.

Key Topics:

The financial challenges of cancer treatment, including the impact of high drug costs and the limitations of copay assistance.

House Bill 177 and its significance for cancer patients.

The importance of self-advocacy and understanding one's own medical needs.

The unique needs and challenges of the adolescent and young adult cancer survivor community.

Strategies for effective self-advocacy and navigating the healthcare system.

Highlights:

[00:00] Introduction: Overview of Dr. Topalian's journey and advocacy work.

[00:48] House Bill 177: Discussion on the copay accumulator bill and its implications for cancer patients.

[02:38] Copay Assistance Programs: The challenges and limitations of these programs, including personal anecdotes from Dr. Topalian.

[04:35] Advocacy Efforts: Dr. Topalian's work to ensure copay assistance counts towards deductibles and out-of-pocket maximums.

[12:11] AYA Cancer Advocacy: The specific needs of adolescent and young adult cancer survivors and Dr. Topalian's efforts in this area.

[16:14] Personal Challenges: Dr. Topalian's experiences with healthcare navigation, disability, and maintaining a career during treatment.

[20:33] Self-Advocacy Tips: Importance of knowing your body, recording symptoms, preparing questions, and having support during medical appointments.

[24:17] Provider Relationships: The importance of finding the right healthcare provider who listens and advocates for you.

Dr. Topalian’s LinkedIn LinkedIn.com/in/alique-topali

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Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

In this first part of our interview with Dr. Alique Topalian, we explore her incredible journey as both a pediatric and young adult cancer survivor. Dr. Topalian shares her experiences with self-advocacy, the challenges of finding a bone marrow match, and her involvement in bio-marker insurance coverage legislation. 

She discusses her shift from psychiatry to Health Promotion Education in oncology. 

Tune in for an inspiring and informative conversation.

Key Topics:

- Dr. Alique Topalian's early diagnosis and treatment for acute myeloid leukemia.

- The significance of biomarker testing in her treatment plan.

- Challenges faced in finding a bone marrow match and the importance of donor registries.

- The role of supportive services like The Gathering Place in her recovery.

- Legislative advocacy for biomarker testing and copay assistance program transparency.

Highlights:

- [00:00] Introduction: Overview of Dr. Topalian's journey and the focus of her advocacy work.

- [01:32] Early Diagnosis: Dr. Topalian's diagnosis with acute myeloid leukemia at age four and her treatment journey.

- [03:32] Relapse and Biomarker Testing: The role of biomarker testing in her treatment after a 22-year remission.

- [05:02] Career Transition: Moving from psychiatry to cancer survivorship and supportive services.

- [08:32] Supportive Services: The impact of The Gathering Place and supportive services on her recovery.

- [11:15] Advocacy Journey: Dr. Topalian's involvement in cancer advocacy and her legislative efforts.

- [18:57] Biomarker Testing Advocacy: The importance of biomarker testing and the barriers to access she is working to overcome.

Dr. Topalian’s LinkedIn LinkedIn.com/in/alique-topalian-phd-mph

Next Episode Teaser:

Join us for the second part of our interview with Dr. Alique Topalian, where we delve deeper into her legislative advocacy efforts, the how she has met the challenges of navigating healthcare costs and AYA cancer survivorship.

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Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Join us as Doreen and Marilyn share their expert strategies to help cancer survivors navigate and overcome these cognitive challenges.

Key Discussion Points:

1. Role of Speech-Language Pathologists (SLPs):

   - SLPs address language and processing, attention skills, memory, and communication, These are crucial for managing cognitive impairments.

   - SLPs are vital in helping individuals with cognitive impairment caused by chemotherapy.

2. Chemotherapy-Induced Cognitive Impairment:

   - Affects attention, memory, word finding, organization, decision-making, and problem-solving.

   - Research shows MRI-detectable changes in brain gray and white matter, validating this condition.

3. Long Live Your Brain Program:

   - A six-week online course focused on lifestyle choices, reducing information overload, cognitive energy management, and environmental organization.

   - Emphasizes shared experiences through group coaching, fostering support, and building coping strategies.

- Support from group activities helps individuals feel less isolated and more supported.

4. Strategies for Coping:

   - Stop, Breathe, and Restart: A technique to reset focus and manage information overload.

   - Say it and Make it So: Vocalizing actions to make routine tasks mindful and memorable

   - Journal symptoms and use patient portals to communicate with healthcare providers.

   - Encouragement to re-engage socially, choosing quieter, less crowded environments for better cognitive processing.

 - Support from group activities helps individuals feel less isolated and more supported.

Contact Information:

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Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Slower

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Slower

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

What you'll learn:

Discover how sleep aids in combating fatigue, alleviating stress and reducing chemotherapy-induced cognitive impairment.

Jill shares practical tips to improve your sleep quality including establishing A consistent bedtime routine and creating a comfortable safe sleeping environment.

Jill briefly shares some of her personal bedtime habits as concrete examples and how they help her unwind and relax.

Tune into the Everything Cancer podcast for insightful episodes on self-care and self-advocacy strategies. Share this episode with someone who you think might benefit from sleep trips, and subscribe for continued useful content. 

Good night and good sleep.

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Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Mike shares his story: from his and his spouse’s unwillingness to accept what they were sure was an inaccurate diagnosis to fierce self-advocacy leading to the accurate but incurable cancer diagnosis of Multiple Myeloma. True grit helped him surpass an initial life expectancy of four years with his blood cancer, along with searching for leaders in the treatment of his cancer and engaging in clinical trials. 

Ten years later, Mike is going strong.

Mike Herman’s story is not just one of cancer survivorship but of transformation and empowerment. Mike envisions a future where every cancer patient is well-informed, feels comfortable asking their cancer providers questions, obtains second opinions (and even third or fourth), and seriously explores clinical trials in their cancer battle. 

His personal trajectory underlines the advancements in cancer treatments over the years, with a shift from traditional chemotherapy to more targeted therapies like bispecific antibodies, which he gained through access to cancer clinical trials.

Mike emphasizes the critical role of clinical trials in improving cancer treatment and offers insights into his positive responses to new targeted therapies that significantly improved his life quality and extended his expectancy.

He discusses his cancer patient advocacy group, Speaking on Cancer Patient Advocacy, which aims to equip patients with easily accessible resources to understand their cancer better and effectively navigate their treatment options.

Tune into this inspiring episode to hear how Mike not only beat the odds but also turned his battle against cancer into a mission to empower others.

Access the evidence-based, credible, and informative resources Mike and his group have put together for over 20 types of cancer at: Speaking on Cancer Patient Advocacy https://www.socpanow.com/about

Mike Herman on LinkedIn https://www.linkedin.com/in/mike-herman-403225204/ 

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Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

One of the biggest hurdles in a cancer journey can be the reluctance to ask for or accept help. Set aside this hesitancy and prioritize your well-being. Start today by allowing yourself to accept the support that is available to you.

Whether it’s sorting through complex information handed out by healthcare providers, maintaining a part of your garden, organizing a room, or researching treatment options—there are countless ways your crew can assist. Leverage their skills to make your daily life and decision-making process smoother and more manageable.

Having a trusted crew member by your side during medical appointments can be invaluable. They can help ensure you ask the right questions, understand the information provided, and offer moral support during those tough conversations.

By understanding the potential of your support network and actively engaging with them, you can significantly decrease your stress and enhance your well-being.
 #CancerJourney #Wellbeing #Cancer #CancerCare #SelfAdvocacy #SupportSystem

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Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Slower

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Writing down your priorities and goals can help you have more effective discussions with your healthcare providers, family members, your crew.

Journal and discuss what is keeping you from doing what is important to you.

• Writing down your priorities and goals can help you have more effective discussions with healthcare providers, family members, caregivers, and loved ones.
• Communication with your crew and providers gets them in your corner. 
• Social interactions, such as attending work, book clubs, other interactions can provide a sense of normalcy and  social support through the cancer journey.
• Priorities can change as life circumstances change. Be okay with being dynamic in your priorities.
• Journaling can be a helpful tool for organizing and documenting your priorities, goals, and talking points for discussions.

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Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Slower

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

There are a lot of moving pieces in the cancer journey. Do yourself a favor and take stress off of your shoulders by jotting down things that impact your journey.

Use your phone, a notebook, a binder, or Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond – on Amazon, any medium to keep track of:

Questions for your doctor and their answers

Symptoms -anything that feels different

• Research shows the benefits of tracking symptoms are: 
  -  potential for better outcomes
  -  increased satisfaction with your healthcare team
  -  more prompt and optimal management of symptoms

Lab Values

Tumor Markers
 
Important conversations with:

• Providers
• Loved ones
• Health insurance representatives
• HR/Leave administrator 

Your next steps

Your thoughts on decisions

Trust issues with a provider

What is important to you at any given time

 Financial assistance received from organizations

Gifts of time, meals, or tasks

Gifts

Thank you for being part of the Everything Cancer Podcast community.

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Young Women’s Breast Cancer Awareness Foundation https://ywbcaf.org/

*Note: Please excuse the occasional echo in this episode - it is an early recording and we upgraded the equipment soon after :)

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

• How the Cancer Survivor Provider Network (CSPN) came to be
• The need to serve survivors well
• The resources, learning opportunities, and networking provided by CSPN
• What is the National Coalition of Cancer Survivorship
• Survivorship starts the day of diagnosis
• Survivorship often includes the grief of giving up the vision of what your life was
• The acute and extended phases of survivorship
• Practice self-advocacy
• Get your crew together and leverage their talents to take stress off you
• The power of supportive organizations
• The benefits of pre-hab and rehab
• An onco-generalist is a person who understands all the elements of supportive care
• Have your cancer team kill cancer – they are the experts; and your supportive care team deal with the quality of life issues, where they are the experts 
• The social worker, dietitian, physical therapist, exercise specialist, and sexual health specialist can all be members of your supportive care team – the experts in supportive care
• Journaling for a purpose
• Help your cancer or supportive care provider understand your experience with journaling
• The helpfulness of phrasing your concerns in a knowledgeable way (obtain your information from credible sources) 
• Your journaled information gives your care team something to work with 
• Journaling helps you share with your providers what your life looks like outside of those 15-minute office visits
• Journaling helps you understand how your body and symptoms change over time – you are not static
• Understanding and dealing with cognitive changes after cancer treatment
• Create your supportive care plan from the day of diagnosis, knowing what you can do at every step to be more successful with lifestyle medicine: nutrition, optimizing sleep, exercise
• Your supportive care plan helps you have a better quality of life
• A knowledgeable, supportive care team can unravel the complex issues of survivorship

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

• The frustration with knowing something was wrong and not being diagnosed
• Facing mortality
• Survivor guilt when others did not make it
• Body image changes, dealing with scars (external and heartfelt)
• How therapy and shared experiences make a difference
• Dating after cancer
• Being upfront with potential romantic interests about being  a survivor and the accompanying issues (such as infertility) before the first date
• Pain with sex after cancer
• The side-by-side lanes of blessings and survivorship issues, and dynamic switching of lanes, wrenching herself back into the blessings lane
• How Sal came to love having cows put their head in her lap (she does not whisper to them that she loves burgers). 

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...

Support the show

Thank you for listening. We would love to hear your thoughts about this episode. We want to hear from you: what topics you would like to have discussed or a guest you would like to see featured in future episodes. This show is here for you. Email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...