Long Covid, MD Sun, 24 May 2026 19:29:56 -0400 http://longcovidmd.com en-us © 2026 Long Covid, MD yes Support this Podcast ffb6bf1c-8ce1-5adc-9196-c1701cbeb165 longcovidmd@gmail.com Dr. Zeest Khan episodic false The only long COVID podcast from a doctor with long COVID.


Learn the science, treatments, and strategies you need to regain your health, from Stanford-trained physician Dr Zeest Khan. 

]]> Buzzsprout (https://www.buzzsprout.com) Dr. Zeest Khan longcovidmd@gmail.com https://storage.buzzsprout.com/3oa8ap4uc8o92kl1p198pgl9snvl?.jpg Long Covid, MD http://longcovidmd.com Dr Zeest Khan 71. Is My Diet Causing My Symptoms? How to Identify Food Triggers Without Harming Your Health 71. Is My Diet Causing My Symptoms? How to Identify Food Triggers Without Harming Your Health Is there a “right” diet that will help me feel better?

From low-carb to keto to anti-inflammatory diets, the internet is full of strong opinions—and conflicting results. Some people swear by these approaches. Others try them and stop quickly because they’re too hard, too restrictive, or simply don’t work.

In this episode of Long Covid, MD, Dr. Zeest Khan sits down with food writer and chronic illness advocate Stephanie Weaver to unpack a more realistic and sustainable approach to diet.

This conversation focuses on:

  •  how to think about food triggers
  •  what elimination diets are actually for 
  •  why strict diets can backfire 
  •  and how to approach dietary changes safely and without added stress

Stephanie shares her personal experience living with multiple chronic conditions, including migraine disease, and explains how she developed a step-by-step approach to identifying food triggers—without falling into rigid or overwhelming diet rules.

If you’re considering changing your diet to improve symptoms, this episode will help you think through that decision in a more grounded, practical way.

Chapters

00:00 Diet & Chronic Illness
 03:03 Stephanie’s Story
 08:37 Food Triggers Explained
 11:38 Risks of Restrictive Diets
 15:55 A Safer Approach
 20:33 Key Takeaways

Key Takeaways

  • Elimination diets are not one-size-fits-all
    They are a tool to identify your specific triggers—not a universal solution. 
  • Strict diets can increase stress and backfire
    Overly restrictive plans can add emotional and physical strain, especially in chronic illness. 
  • A gradual, flexible approach works better
    Slow, intentional changes are more sustainable—and more informative. 

About Stephanie Weaver

Stephanie Weaver is a food writer, public health professional, and chronic illness advocate. She developed The Migraine Relief Plan, a structured approach to identifying food triggers for migraine disease.

She is also the author of:

  • The Migraine Relief Plan (cookbook + program) 
  • Bitter Sweet (memoir about chronic illness, food, and family) 

Connect with Stephanie Weaver

More from Long Covid, MD

If you want deeper dives into treatments, research, and how to navigate complex illness:

👉 Subscribe to the newsletter: https://longcovidmd.com

  •  Physician-written breakdowns of treatments 
  •  Practical strategies for navigating care 
  •  Audio versions available for every article 

Disclaimer

This content is for educational purposes only and does not constitute medical advice. Always consult your healthcare provider before making significant changes to your diet or treatment plan.

Keywords (for search optimization)

elimination diet chronic illness, food triggers migraine, diet and inflammation, long covid diet, elimination diet safety, chronic illness nutrition, anti inflammatory diet, migraine diet triggers

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Is there a “right” diet that will help me feel better?

From low-carb to keto to anti-inflammatory diets, the internet is full of strong opinions—and conflicting results. Some people swear by these approaches. Others try them and stop quickly because they’re too hard, too restrictive, or simply don’t work.

In this episode of Long Covid, MD, Dr. Zeest Khan sits down with food writer and chronic illness advocate Stephanie Weaver to unpack a more realistic and sustainable approach to diet.

This conversation focuses on:

  •  how to think about food triggers
  •  what elimination diets are actually for 
  •  why strict diets can backfire 
  •  and how to approach dietary changes safely and without added stress

Stephanie shares her personal experience living with multiple chronic conditions, including migraine disease, and explains how she developed a step-by-step approach to identifying food triggers—without falling into rigid or overwhelming diet rules.

If you’re considering changing your diet to improve symptoms, this episode will help you think through that decision in a more grounded, practical way.

Chapters

00:00 Diet & Chronic Illness
 03:03 Stephanie’s Story
 08:37 Food Triggers Explained
 11:38 Risks of Restrictive Diets
 15:55 A Safer Approach
 20:33 Key Takeaways

Key Takeaways

  • Elimination diets are not one-size-fits-all
    They are a tool to identify your specific triggers—not a universal solution. 
  • Strict diets can increase stress and backfire
    Overly restrictive plans can add emotional and physical strain, especially in chronic illness. 
  • A gradual, flexible approach works better
    Slow, intentional changes are more sustainable—and more informative. 

About Stephanie Weaver

Stephanie Weaver is a food writer, public health professional, and chronic illness advocate. She developed The Migraine Relief Plan, a structured approach to identifying food triggers for migraine disease.

She is also the author of:

  • The Migraine Relief Plan (cookbook + program) 
  • Bitter Sweet (memoir about chronic illness, food, and family) 

Connect with Stephanie Weaver

More from Long Covid, MD

If you want deeper dives into treatments, research, and how to navigate complex illness:

👉 Subscribe to the newsletter: https://longcovidmd.com

  •  Physician-written breakdowns of treatments 
  •  Practical strategies for navigating care 
  •  Audio versions available for every article 

Disclaimer

This content is for educational purposes only and does not constitute medical advice. Always consult your healthcare provider before making significant changes to your diet or treatment plan.

Keywords (for search optimization)

elimination diet chronic illness, food triggers migraine, diet and inflammation, long covid diet, elimination diet safety, chronic illness nutrition, anti inflammatory diet, migraine diet triggers

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-19137677 Tue, 19 May 2026 07:00:00 -0400 1337 71 full false 70. Using AI for Your Medical Care 70. Using AI for Your Medical Care AI is rapidly becoming part of how patients navigate complex illness—but most people are using it without understanding how it actually works, what it’s designed to do, or where it can fail.

In this episode of Long Covid, MD, Dr. Zeest Khan is joined by two experts:

  • Dr Leeda Rashid (former FDA physician, digital health) 
  • Dr Jennifer Curtin (CEO of RTHM Health) 

The discussion breaks down:

  •  What AI is already doing inside healthcare (and why that’s different from what you use at home) 
  •  Why tools like ChatGPT, Claude, and Gemini are not medical devices
  •  The risks of trusting AI-generated answers for diagnosis and treatment 
  •  How specialized tools like RTHM Intelligence attempt to address these gaps 
  •  The privacy trade-offs when sharing your medical data with AI 
  •  How to use AI safely and effectively as a patient 

This episode is a practical framework for using AI as a thinking partner—not a decision maker.

⏱️ Chapter Markers

00:00 – Why patients are turning to AI
03:15 – How AI is actually used in healthcare (FDA perspective)
07:30 – Why ChatGPT and similar tools aren’t medical devices
15:30 – Specialized AI tools vs general AI (RTHM example)
24:50 – Risks: hallucinations, bad advice, and doctor tension
26:30 – Privacy and HIPAA: what happens to your data
38:25 – How to use AI safely in your care

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> AI is rapidly becoming part of how patients navigate complex illness—but most people are using it without understanding how it actually works, what it’s designed to do, or where it can fail.

In this episode of Long Covid, MD, Dr. Zeest Khan is joined by two experts:

  • Dr Leeda Rashid (former FDA physician, digital health) 
  • Dr Jennifer Curtin (CEO of RTHM Health) 

The discussion breaks down:

  •  What AI is already doing inside healthcare (and why that’s different from what you use at home) 
  •  Why tools like ChatGPT, Claude, and Gemini are not medical devices
  •  The risks of trusting AI-generated answers for diagnosis and treatment 
  •  How specialized tools like RTHM Intelligence attempt to address these gaps 
  •  The privacy trade-offs when sharing your medical data with AI 
  •  How to use AI safely and effectively as a patient 

This episode is a practical framework for using AI as a thinking partner—not a decision maker.

⏱️ Chapter Markers

00:00 – Why patients are turning to AI
03:15 – How AI is actually used in healthcare (FDA perspective)
07:30 – Why ChatGPT and similar tools aren’t medical devices
15:30 – Specialized AI tools vs general AI (RTHM example)
24:50 – Risks: hallucinations, bad advice, and doctor tension
26:30 – Privacy and HIPAA: what happens to your data
38:25 – How to use AI safely in your care

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-19076373 Tue, 05 May 2026 08:00:00 -0400 2669 70 full false BONUS: Why Patients Have to Perform for their Doctors (Medical Culture Explained) BONUS: Why Patients Have to Perform for their Doctors (Medical Culture Explained) This is a clip from a Substack Live conversation with Zed Zha, author of Consented: A Doctor’s Call to End Medical Violence and Reclaim Patient Autonomy.

Watch the full episode and sign up for the newsletter here.

In this segment, we examine a pattern many patients recognize immediately, of having to ask their doctor questions in JUST the right way.

This is a conversation about managing power, perception, and risk in every medical interaction. For patients, it's exhausting

In this clip, we discuss:

  • Why patients feel pressure to “perform” to be believed
  • How medical training and culture reinforce this dynamic
  • The impact of labels like “difficult” and “non-compliant”
  • What patient autonomy should actually look like in practice

This is one part of a longer, in-depth conversation on medical culture, consent, and the future of patient care.


Subscribe to Long Covid, MD on Substack

You’ll get:

  • Full-length conversations like this
  • Physician-level breakdowns of treatments and care decisions
  • Live discussions and workshops

Chapters

00:00 — The Performance Patients Have to Master
Patients describe navigating tone, behavior, and perception just to be taken seriously.

02:15 — How Medical Culture Creates This Dynamic
Training, hierarchy, and identity formation in medicine.

04:30 — The Problem with “Difficult Patients”
How labeling shifts responsibility away from the system.

07:30 — Moving Toward Real Collaboration
What a functional doctor–patient partnership looks like.

10:30 — What Consent and Autonomy Actually Mean
Why consent is an ongoing process—not a form.


Keywords (SEO)

substack live interview, Zed Zha Consented, medical culture, patient autonomy, doctor patient relationship, medical gaslighting, difficult patient, healthcare system problems, long covid, chronic illness advocacy

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> This is a clip from a Substack Live conversation with Zed Zha, author of Consented: A Doctor’s Call to End Medical Violence and Reclaim Patient Autonomy.

Watch the full episode and sign up for the newsletter here.

In this segment, we examine a pattern many patients recognize immediately, of having to ask their doctor questions in JUST the right way.

This is a conversation about managing power, perception, and risk in every medical interaction. For patients, it's exhausting

In this clip, we discuss:

  • Why patients feel pressure to “perform” to be believed
  • How medical training and culture reinforce this dynamic
  • The impact of labels like “difficult” and “non-compliant”
  • What patient autonomy should actually look like in practice

This is one part of a longer, in-depth conversation on medical culture, consent, and the future of patient care.


Subscribe to Long Covid, MD on Substack

You’ll get:

  • Full-length conversations like this
  • Physician-level breakdowns of treatments and care decisions
  • Live discussions and workshops

Chapters

00:00 — The Performance Patients Have to Master
Patients describe navigating tone, behavior, and perception just to be taken seriously.

02:15 — How Medical Culture Creates This Dynamic
Training, hierarchy, and identity formation in medicine.

04:30 — The Problem with “Difficult Patients”
How labeling shifts responsibility away from the system.

07:30 — Moving Toward Real Collaboration
What a functional doctor–patient partnership looks like.

10:30 — What Consent and Autonomy Actually Mean
Why consent is an ongoing process—not a form.


Keywords (SEO)

substack live interview, Zed Zha Consented, medical culture, patient autonomy, doctor patient relationship, medical gaslighting, difficult patient, healthcare system problems, long covid, chronic illness advocacy

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-19100053 Wed, 29 Apr 2026 18:00:00 -0400 753 full false 69. Protecting Our Caregivers 69. Protecting Our Caregivers Join the community at longcovidmd.com

Caregiving can slowly reshape a relationship, often in ways people do not talk about. 

In this episode, Dr. Zeest Khan speaks with Kim Moy about the emotional and practical realities of long-term caregiving.

YOU'LL LEARN:

  • Why burnout creeps up slowly, and the early warning signs to watch for
  • What "ambiguous loss" is and why naming it changes everything
  • How to keep your relationship alive when illness takes over
  • Practical tools: the task audit, the 5-minute morning ritual, and the "good jobs list"
  • When and how to ask for help even when you have no budget

Kim has spent more than 30 years caring for her husband who lives with ME/CFS while raising two children and working full time. She shares the idea of “ambiguous loss,” the grief of losing the person someone once was while they are still physically present, and why acknowledging that grief can help caregivers reconnect with their loved ones.

Kim also shares practical tools she teaches caregivers. She explains how to spot early signs of burnout and how to keep illness from defining the entire relationship. She also shares simple daily practices that help caregivers restore their energy and recognize the invisible work they do.

Listen to the episode to hear Kim’s insights and practical guidance for navigating caregiving while protecting your health and your relationship.

Resources for chronic illness caregivers:


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Join the community at longcovidmd.com

Caregiving can slowly reshape a relationship, often in ways people do not talk about. 

In this episode, Dr. Zeest Khan speaks with Kim Moy about the emotional and practical realities of long-term caregiving.

YOU'LL LEARN:

  • Why burnout creeps up slowly, and the early warning signs to watch for
  • What "ambiguous loss" is and why naming it changes everything
  • How to keep your relationship alive when illness takes over
  • Practical tools: the task audit, the 5-minute morning ritual, and the "good jobs list"
  • When and how to ask for help even when you have no budget

Kim has spent more than 30 years caring for her husband who lives with ME/CFS while raising two children and working full time. She shares the idea of “ambiguous loss,” the grief of losing the person someone once was while they are still physically present, and why acknowledging that grief can help caregivers reconnect with their loved ones.

Kim also shares practical tools she teaches caregivers. She explains how to spot early signs of burnout and how to keep illness from defining the entire relationship. She also shares simple daily practices that help caregivers restore their energy and recognize the invisible work they do.

Listen to the episode to hear Kim’s insights and practical guidance for navigating caregiving while protecting your health and your relationship.

Resources for chronic illness caregivers:


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-18864318 Tue, 24 Mar 2026 00:00:00 -0400 1220 full false 68. The NEW Study on Stellate Ganglion Block 68. The NEW Study on Stellate Ganglion Block Dr Anna Maria Bombardieri is a Stanford physician-scientist working with the NIH. She is helping design the RECOVER-TLC study on stellate ganglion block for long COVID. 

In this mini-episode, she explains the process, who's involved in this developing study, and what the goals are.

Until March 3, 2026, the study design is available to review and open to public comments. Listen to Dr Bombardieri explain the study and watch/listen to our longer video explaining everything about stellate blocks. Watch on YouTube: https://youtu.be/CcGChFTZwvY

Then, be part of the science! Share your input with RECOVER-TLC: https://recovercovid.org/news/recover-tlc-seeks-input-planned-study-possible-long-covid-treatment


Join the LCMD community for support, science, and news. Sign up at http://LongCovidMD.com

#longCOVID #COVID #fatigue #MECFS #POTS #medicine #science

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr Anna Maria Bombardieri is a Stanford physician-scientist working with the NIH. She is helping design the RECOVER-TLC study on stellate ganglion block for long COVID. 

In this mini-episode, she explains the process, who's involved in this developing study, and what the goals are.

Until March 3, 2026, the study design is available to review and open to public comments. Listen to Dr Bombardieri explain the study and watch/listen to our longer video explaining everything about stellate blocks. Watch on YouTube: https://youtu.be/CcGChFTZwvY

Then, be part of the science! Share your input with RECOVER-TLC: https://recovercovid.org/news/recover-tlc-seeks-input-planned-study-possible-long-covid-treatment


Join the LCMD community for support, science, and news. Sign up at http://LongCovidMD.com

#longCOVID #COVID #fatigue #MECFS #POTS #medicine #science

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-18756212 Sat, 28 Feb 2026 01:00:00 -0500 458 68 full false 67. Stellate Ganglion Blocks, Explained by Experts 67. Stellate Ganglion Blocks, Explained by Experts 👉 Free newsletter & resources: https://longcovidmd.com

Watch the video on YouTube: https://youtu.be/CcGChFTZwvY

Can a stellate ganglion block (SGB) help long COVID?

In this episode, physician and long COVID patient Dr. Zeest Khan speaks with two experts to explain the science, patient experience, risks, and research behind this procedure now being studied in the NIH RECOVER program:

-Dr. Anna Maria Bombardieri, physician-scientist helping design the NIH RECOVER study on SGB  https://med.stanford.edu/profiles/anna-maria-bombardieri

-Dr. Sara Herman, anesthesiologist performing stellate ganglion blocks in clinical practice. https://softrebootwellness.com/

YOU'LL LEARN:
• What the stellate ganglion is and why blocking it may help autonomic symptoms
• What the procedure feels like
• Which long COVID symptoms may improve (brain fog, POTS, fatigue, smell/taste changes)
• Side effects, variability, and realistic expectations
• How to vet a provider and stay safe

BE PART OF THE SCIENCE: The RECOVER-TLC study design is now open for public comment. Learn more at https://recovercovid.org/news/recover-tlc-seeks-input-planned-study-possible-long-covid-treatment

Join the LCMD community for support, science, and news. Sign up at http://LongCovidMD.com

#longCOVID #COVID #fatigue #MECFS #POTS #medicine #science 

Chapters:
00:00 Understanding Stellate Ganglion Block (SGB) for Long COVID
01:36 Personal Insights and Professional Perspectives on SGB
02:36 Why SGB Got Attention
05:20 How SGB Is Currently Used
06:54 What's the Stellate Ganglion?
11:35 Side Effects
12:26 Anatomy Lesson You Need to Know
17:07 TL;DR: SGB anatomy
17:58 How SGB Can Reset the Nervous System
23:46 Is SGB Permanent?
25:58 What Does SGB Feel Like?
33:15 Possible Results
34:12 How to Find a Provider
38:43 Can SGB Cure Long COVID?
40:05 SGB Research
40:29 TL;DR Summary

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> 👉 Free newsletter & resources: https://longcovidmd.com

Watch the video on YouTube: https://youtu.be/CcGChFTZwvY

Can a stellate ganglion block (SGB) help long COVID?

In this episode, physician and long COVID patient Dr. Zeest Khan speaks with two experts to explain the science, patient experience, risks, and research behind this procedure now being studied in the NIH RECOVER program:

-Dr. Anna Maria Bombardieri, physician-scientist helping design the NIH RECOVER study on SGB  https://med.stanford.edu/profiles/anna-maria-bombardieri

-Dr. Sara Herman, anesthesiologist performing stellate ganglion blocks in clinical practice. https://softrebootwellness.com/

YOU'LL LEARN:
• What the stellate ganglion is and why blocking it may help autonomic symptoms
• What the procedure feels like
• Which long COVID symptoms may improve (brain fog, POTS, fatigue, smell/taste changes)
• Side effects, variability, and realistic expectations
• How to vet a provider and stay safe

BE PART OF THE SCIENCE: The RECOVER-TLC study design is now open for public comment. Learn more at https://recovercovid.org/news/recover-tlc-seeks-input-planned-study-possible-long-covid-treatment

Join the LCMD community for support, science, and news. Sign up at http://LongCovidMD.com

#longCOVID #COVID #fatigue #MECFS #POTS #medicine #science 

Chapters:
00:00 Understanding Stellate Ganglion Block (SGB) for Long COVID
01:36 Personal Insights and Professional Perspectives on SGB
02:36 Why SGB Got Attention
05:20 How SGB Is Currently Used
06:54 What's the Stellate Ganglion?
11:35 Side Effects
12:26 Anatomy Lesson You Need to Know
17:07 TL;DR: SGB anatomy
17:58 How SGB Can Reset the Nervous System
23:46 Is SGB Permanent?
25:58 What Does SGB Feel Like?
33:15 Possible Results
34:12 How to Find a Provider
38:43 Can SGB Cure Long COVID?
40:05 SGB Research
40:29 TL;DR Summary

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-18756194 Sat, 28 Feb 2026 00:00:00 -0500 2719 67 full false 66.How Close Are We to an Approved Long COVID Treatment? | RECOVER-TLC Research Update 66.How Close Are We to an Approved Long COVID Treatment? | RECOVER-TLC Research Update RECOVER-TLC released a public update on four major long COVID treatment trials. Many patients are asking the same question: how close are we to an approved treatment?

In this episode, I break down how RECOVER-TLC chooses treatments to study, why the research process takes so long, and where each of the four current trials stands right now. I’ll also explain what this progress realistically means for people living with long COVID—without hype and without false hope.

This is for people who want a clear, honest explanation of long COVID research and timelines, and who want to understand how close—or far—we really are from approved treatments.

In this episode:
-Why approved long COVID treatments take so long
-How RECOVER-TLC selects and designs clinical trials
-Updates on baricitinib, low-dose naltrexone, GLP-1 agonists, and stellate ganglion block
-What this research means for patients right now

Chapters:
00:00 Understanding Long COVID and Research Delays
01:43 The Process of Choosing Targets
03:49 Designing Clinical Trials
07:32 Join the Community
08:25 Baricitinib
09:54 Low Dose Naltrexone (LDN)
11:08 Semaglutide: Exploring GLP-1 Treatments
14:08 Stellate Ganglion Block
16:52 Key Takeaways and Future Outlook

#longCOVID #COVID #fatigue #MECFS #POTS #medicine #science #RECOVERTLC #NIH #FDA #NIAID

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> RECOVER-TLC released a public update on four major long COVID treatment trials. Many patients are asking the same question: how close are we to an approved treatment?

In this episode, I break down how RECOVER-TLC chooses treatments to study, why the research process takes so long, and where each of the four current trials stands right now. I’ll also explain what this progress realistically means for people living with long COVID—without hype and without false hope.

This is for people who want a clear, honest explanation of long COVID research and timelines, and who want to understand how close—or far—we really are from approved treatments.

In this episode:
-Why approved long COVID treatments take so long
-How RECOVER-TLC selects and designs clinical trials
-Updates on baricitinib, low-dose naltrexone, GLP-1 agonists, and stellate ganglion block
-What this research means for patients right now

Chapters:
00:00 Understanding Long COVID and Research Delays
01:43 The Process of Choosing Targets
03:49 Designing Clinical Trials
07:32 Join the Community
08:25 Baricitinib
09:54 Low Dose Naltrexone (LDN)
11:08 Semaglutide: Exploring GLP-1 Treatments
14:08 Stellate Ganglion Block
16:52 Key Takeaways and Future Outlook

#longCOVID #COVID #fatigue #MECFS #POTS #medicine #science #RECOVERTLC #NIH #FDA #NIAID

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-18599933 Tue, 03 Feb 2026 00:00:00 -0500 1183 66 full false 65. Why Has Your Recovery Stalled? 65. Why Has Your Recovery Stalled? Many people with long COVID see early improvement—then hit a recovery plateau. In this episode, physician and long COVID patient Dr. Zeest Khan explains why long COVID recovery stalls and the three patterns she sees most often when progress gets stuck.

Topics covered:

  • Why long COVID recovery plateaus
  • The push-crash cycle and energy envelope
  • Mental health, grief, and decision-making in chronic illness
  • Why trying treatments at random can backfire
  • How to think strategically instead of reactively

Episodes referenced:

#43: Sensory Integration Therapy for Long COVID

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Many people with long COVID see early improvement—then hit a recovery plateau. In this episode, physician and long COVID patient Dr. Zeest Khan explains why long COVID recovery stalls and the three patterns she sees most often when progress gets stuck.

Topics covered:

  • Why long COVID recovery plateaus
  • The push-crash cycle and energy envelope
  • Mental health, grief, and decision-making in chronic illness
  • Why trying treatments at random can backfire
  • How to think strategically instead of reactively

Episodes referenced:

#43: Sensory Integration Therapy for Long COVID

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-18562669 Sat, 24 Jan 2026 11:00:00 -0500 962 65 full false Christmas SOS Christmas SOS For immediate crisis support in the U.S., call or text 988 to reach the Suicide & Crisis Lifeline, offering free, confidential 24/7 help for mental health, substance use, or emotional distress via call, text, or chat.


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> For immediate crisis support in the U.S., call or text 988 to reach the Suicide & Crisis Lifeline, offering free, confidential 24/7 help for mental health, substance use, or emotional distress via call, text, or chat.


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-18419236 Sat, 27 Dec 2025 14:00:00 -0500 256 full false 64. Treat Symptoms or The Root Cause? 64. Treat Symptoms or The Root Cause? Wondering whether to focus on treating Long COVID symptoms or finding the “root cause”? In this episode, Dr. Zeest Khan explains why chasing a cure can lead to false promises and wasted time—and why treating your most pressing symptoms is the fastest, safest way to improve quality of life. Learn how building small wins creates positive momentum, reduces hypervigilance, and empowers you to collaborate effectively with your doctors.

Join the Community at longcovidmd.com

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Wondering whether to focus on treating Long COVID symptoms or finding the “root cause”? In this episode, Dr. Zeest Khan explains why chasing a cure can lead to false promises and wasted time—and why treating your most pressing symptoms is the fastest, safest way to improve quality of life. Learn how building small wins creates positive momentum, reduces hypervigilance, and empowers you to collaborate effectively with your doctors.

Join the Community at longcovidmd.com

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-18290435 Wed, 03 Dec 2025 00:00:00 -0500 1017 64 full false 63. Claim Your Long COVID Story. Here is Mine. 63. Claim Your Long COVID Story. Here is Mine. This week we're sharing an episode from the archive, Dr Khan's appearance on the medical podcast "Taking Healthcare By Storm." Dr Zeest Khan tells Dr Jean Storm about her long COVID journey and the lessons she’s learned as both a physician and a patient. They discuss peer support, medical uncertainty, and why claiming your own story can transform the way you navigate chronic illness. A candid, empowering conversation.

Subscribe to the newsletter at  LongCovidMD.com

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> This week we're sharing an episode from the archive, Dr Khan's appearance on the medical podcast "Taking Healthcare By Storm." Dr Zeest Khan tells Dr Jean Storm about her long COVID journey and the lessons she’s learned as both a physician and a patient. They discuss peer support, medical uncertainty, and why claiming your own story can transform the way you navigate chronic illness. A candid, empowering conversation.

Subscribe to the newsletter at  LongCovidMD.com

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-18245747 Tue, 25 Nov 2025 00:00:00 -0500 2181 63 full false 62. Holidays, Tech, and Remembering Alice Wong 62. Holidays, Tech, and Remembering Alice Wong A quick life update.

Learn about Alice Wong: https://x.com/doctor_zeest/status/1991929577841868847?s=20


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> A quick life update.

Learn about Alice Wong: https://x.com/doctor_zeest/status/1991929577841868847?s=20


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-18231853 Fri, 21 Nov 2025 13:00:00 -0500 1068 62 full false 61. Inside The New Long COVID GLP-1 Study 61. Inside The New Long COVID GLP-1 Study Dr Khan interviews Dr. Julia Moore-Vogel, Scripps Researcher and lead scientist of the new study using tirzepatide to treat Long COVID. The study is called LoCITT-T, and it is actively enrolling participants. They discuss the study's design, eligibility criteria, and the potential benefits of the drug. Julia shares her personal experience with long COVID and how it has influenced her work. The conversation also covers the importance of making clinical trials accessible to those with disabilities and the innovative use of wearable technology in the study.

Keywords

Long COVID, tirzepatide, clinical trial, disability, wearable technology


Resources:

Long COVID Treatment Trial-Tirzepatide (LoCITT-T): https://www.longcovid.scripps.edu

Fatigue Severity Scale: https://www.med.upenn.edu/cbti/assets/user-content/documents/Fatigue%20Severity%20Scale%20(FSS).pdf

FUN-CAP 27: https://batemanhornecenter.org/wp-content/uploads/2023/12/FUNCAP27-questionnaire.pdf

DSQ-COVID: https://www.researchgate.net/publication/360476212_DePaul_Symptom_Questionnaire-COVID

Eric Topol, MD Ground Truths: https://erictopol.substack.com/

All of Us Research Hub: https://www.researchallofus.org/ 

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr Khan interviews Dr. Julia Moore-Vogel, Scripps Researcher and lead scientist of the new study using tirzepatide to treat Long COVID. The study is called LoCITT-T, and it is actively enrolling participants. They discuss the study's design, eligibility criteria, and the potential benefits of the drug. Julia shares her personal experience with long COVID and how it has influenced her work. The conversation also covers the importance of making clinical trials accessible to those with disabilities and the innovative use of wearable technology in the study.

Keywords

Long COVID, tirzepatide, clinical trial, disability, wearable technology


Resources:

Long COVID Treatment Trial-Tirzepatide (LoCITT-T): https://www.longcovid.scripps.edu

Fatigue Severity Scale: https://www.med.upenn.edu/cbti/assets/user-content/documents/Fatigue%20Severity%20Scale%20(FSS).pdf

FUN-CAP 27: https://batemanhornecenter.org/wp-content/uploads/2023/12/FUNCAP27-questionnaire.pdf

DSQ-COVID: https://www.researchgate.net/publication/360476212_DePaul_Symptom_Questionnaire-COVID

Eric Topol, MD Ground Truths: https://erictopol.substack.com/

All of Us Research Hub: https://www.researchallofus.org/ 

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-18186714 Tue, 18 Nov 2025 00:00:00 -0500 2379 61 full false 60. How to Survive the Holidays with Long COVID--with Katherine Marie 60. How to Survive the Holidays with Long COVID--with Katherine Marie Subscribe to the newsletter: longcovidmd.com

In this episode of Long COVID MD, Dr. Zeest Khan is joined by Katherine Marie, an nurse practitioner, long COVID patient, and podcast host. They discuss ways to navigate the holiday season while managing long COVID. They share personal experiences and strategies for maintaining health and energy, such as planning energy like a budget, setting boundaries, and building recovery time into schedules. The conversation highlights the importance of self-compassion and adapting traditions to fit current capabilities.

Hear more from Katherine Marie: https://longcovidrealtalk.com/

Keywords

Long COVID, holiday season, energy management, self-compassion, setting boundaries


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Subscribe to the newsletter: longcovidmd.com

In this episode of Long COVID MD, Dr. Zeest Khan is joined by Katherine Marie, an nurse practitioner, long COVID patient, and podcast host. They discuss ways to navigate the holiday season while managing long COVID. They share personal experiences and strategies for maintaining health and energy, such as planning energy like a budget, setting boundaries, and building recovery time into schedules. The conversation highlights the importance of self-compassion and adapting traditions to fit current capabilities.

Hear more from Katherine Marie: https://longcovidrealtalk.com/

Keywords

Long COVID, holiday season, energy management, self-compassion, setting boundaries


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-18181180 Thu, 13 Nov 2025 23:00:00 -0500 2659 60 full false 59. Reduce MCAS Inflammation with Nasal Sprays 59. Reduce MCAS Inflammation with Nasal Sprays Read the Newsletter: https://longcovidmd.substack.com/p/nasal-sprays-a-sure-fire-way-to-reduce?r=478j9x

Join the Community: https://longcovidmd.substack.com/subscribe

In this episode, Dr. Zeest Khan discusses the importance of nasal hygiene in reducing inflammation and preventing infections. She shares practical tips and techniques, including the use of saline and oxymetazoline, to open congested nasal passages. Dr. Khan also highlights the role of nasal steroids and antihistamines in managing symptoms, especially for those with long COVID and allergies.

Keywords

nasal hygiene, inflammation, saline, oxymetazoline, nasal steroids, antihistamines, long COVID, allergies, nasal passages, health tips

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Read the Newsletter: https://longcovidmd.substack.com/p/nasal-sprays-a-sure-fire-way-to-reduce?r=478j9x

Join the Community: https://longcovidmd.substack.com/subscribe

In this episode, Dr. Zeest Khan discusses the importance of nasal hygiene in reducing inflammation and preventing infections. She shares practical tips and techniques, including the use of saline and oxymetazoline, to open congested nasal passages. Dr. Khan also highlights the role of nasal steroids and antihistamines in managing symptoms, especially for those with long COVID and allergies.

Keywords

nasal hygiene, inflammation, saline, oxymetazoline, nasal steroids, antihistamines, long COVID, allergies, nasal passages, health tips

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-18174975 Tue, 11 Nov 2025 20:00:00 -0500 1184 59 full false 58. Personalize Your Cold Care & Get Better FAST 58. Personalize Your Cold Care & Get Better FAST
In this conversation, Dr. Zeest Khan discusses how she manages acute infections while dealing with the ongoing effects of long COVID. To recover quickly and reduce side effects of medications, she teaches you to personalize your treatment. In this episode you'll learn the 4 categories of cold medicines, common side effects, and how to read a medication label effectively. Take exactly what you need, and ONLY what you need to recover from an upper respirator infection FAST.

Links:

Join the Community and Get the Newsletter

Newsletter for this Episode available November 4, 2025. Sign up so you don't miss it!
Hydration the Right Way


Chapters
00:00 Personalized Cold Care Matters
01:11 My Story
02:08 Medical Disclaimer
02:36 Understanding OTC Cold Meds
03:03 Decongestants and Their Effectiveness
03:48 Four Categories of Cold Meds
04:08 Pain/Fever
04:21 Pick the Right Decongestant
04:58 Antihistamines Explained
07:09 Side Effects of Decongestants
07:57 Antihistamines
09:01 Join the Community!
09:19 Tailoring Treatment to Individual Needs
09:52 Cough Meds
11:05 Practical Application of Cold Care
12:07 The Importance of Pain Management
13:31 Personal Experience with Cold Treatment
15:00 Why You Need Personalized Treatment
15:36 Rest, Hydrate, & Stay Positive

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]>
In this conversation, Dr. Zeest Khan discusses how she manages acute infections while dealing with the ongoing effects of long COVID. To recover quickly and reduce side effects of medications, she teaches you to personalize your treatment. In this episode you'll learn the 4 categories of cold medicines, common side effects, and how to read a medication label effectively. Take exactly what you need, and ONLY what you need to recover from an upper respirator infection FAST.

Links:

Join the Community and Get the Newsletter

Newsletter for this Episode available November 4, 2025. Sign up so you don't miss it!
Hydration the Right Way


Chapters
00:00 Personalized Cold Care Matters
01:11 My Story
02:08 Medical Disclaimer
02:36 Understanding OTC Cold Meds
03:03 Decongestants and Their Effectiveness
03:48 Four Categories of Cold Meds
04:08 Pain/Fever
04:21 Pick the Right Decongestant
04:58 Antihistamines Explained
07:09 Side Effects of Decongestants
07:57 Antihistamines
09:01 Join the Community!
09:19 Tailoring Treatment to Individual Needs
09:52 Cough Meds
11:05 Practical Application of Cold Care
12:07 The Importance of Pain Management
13:31 Personal Experience with Cold Treatment
15:00 Why You Need Personalized Treatment
15:36 Rest, Hydrate, & Stay Positive

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-18090917 Mon, 03 Nov 2025 10:00:00 -0500 1130 58 full true 57. What the Shutdown Means for Long COVID 57. What the Shutdown Means for Long COVID Is scientific research vulnerable to political instability? Dr. Zeest Khan explains how the current US government shutdown could disrupt the billion-dollar NIH RECOVER project, delay clinical trials, and jeopardize the chances of discovering effective treatment. Guests Michael Sieverts and Ezra Spier share insider perspectives on why transparency, stable funding, and patient collaboration are essential to saving Long COVID research and restoring trust in science.

Read more on this topic at Substack

Referenced Episodes:

Tylenol-COVID Connection

Takeaways from RECOVER-TLC 2025

Episode 18: Long COVID Advocacy

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Is scientific research vulnerable to political instability? Dr. Zeest Khan explains how the current US government shutdown could disrupt the billion-dollar NIH RECOVER project, delay clinical trials, and jeopardize the chances of discovering effective treatment. Guests Michael Sieverts and Ezra Spier share insider perspectives on why transparency, stable funding, and patient collaboration are essential to saving Long COVID research and restoring trust in science.

Read more on this topic at Substack

Referenced Episodes:

Tylenol-COVID Connection

Takeaways from RECOVER-TLC 2025

Episode 18: Long COVID Advocacy

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-18060526 Thu, 23 Oct 2025 06:00:00 -0400 1606 57 full false BONUS - Autsim, Tylenol, and Long COVID BONUS - Autsim, Tylenol, and Long COVID I’m pleased to share this recording of my conversation with Dr Alyssa Burgart, a pediatric anesthesiologist and medical bioethicist who writes Poppies & Propofol. We discussed our concerns about the US Health Department’s new —and puzzling — claims that acetaminophen, the active ingredient in Tylenol, causes autism. 

We covered the importance of drug safety, the impact of misogyny in medical care, and the link to long COVID.

If you missed my last post on the topic, read the full story here:

If You Care About COVID, You Should Care About Tylenol


Subscribe to the newsletter: longcovidmd.substack.com/subscribe
Help with production costs by upgrading to a paid subscription or donating at Buy Me A Coffee.

Episode 47: Is Health a Moral Obligation? https://www.buzzsprout.com/2253656/episodes/17011381

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> I’m pleased to share this recording of my conversation with Dr Alyssa Burgart, a pediatric anesthesiologist and medical bioethicist who writes Poppies & Propofol. We discussed our concerns about the US Health Department’s new —and puzzling — claims that acetaminophen, the active ingredient in Tylenol, causes autism. 

We covered the importance of drug safety, the impact of misogyny in medical care, and the link to long COVID.

If you missed my last post on the topic, read the full story here:

If You Care About COVID, You Should Care About Tylenol


Subscribe to the newsletter: longcovidmd.substack.com/subscribe
Help with production costs by upgrading to a paid subscription or donating at Buy Me A Coffee.

Episode 47: Is Health a Moral Obligation? https://www.buzzsprout.com/2253656/episodes/17011381

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-17914166 Sat, 27 Sep 2025 00:00:00 -0400 2400 56 full false 55. Research Updates: Overview of RECOVER-TLC 2025 55. Research Updates: Overview of RECOVER-TLC 2025 The NIH’s RECOVER initiative just held its 2nd annual workshop-- Pathways to Treatment — and here’s what you need to know. In this episode, Dr Khan shares key updates on Long COVID research from RECOVER 2025, including patient voices, new treatments under study, and where the research is headed next.

Listen to Episode 19: Low Dose Naltrexone

We’ll cover:
 ✔️ The role of patient advocates in shaping research
 ✔️ Interventions under study: low-dose naltrexone, baricitinib, GLP-1 receptor agonists, and stellate ganglion blocks
 ✔️ Challenges with access and equity in treatment
 ✔️ What’s next for clinical trials in Long COVID

As both a physician and a patient with Long COVID, Dr Khan brings you a unique perspective on what this research means for patients, clinicians, and the future of care.

🔔 Subscribe for more updates on Long COVID research, treatments, and patient perspectives.
👍 Like this episode if you find it helpful, and share it with others navigating Long COVID.

More resources:
👉 Learn more about RECOVER: https://recovercovid.org

👉 Follow my work on Long Covid, MD: longcovidmd.substack.com

Keywords: Long COVID research update, RECOVER 2025, NIH RECOVER TLC workshop, Long COVID new treatments, low dose naltrexone Long COVID, GLP-1 Long COVID, baricitinib Long COVID, stellate ganglion block Long COVID, Long COVID patient advocacy, Long Covid MD

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> The NIH’s RECOVER initiative just held its 2nd annual workshop-- Pathways to Treatment — and here’s what you need to know. In this episode, Dr Khan shares key updates on Long COVID research from RECOVER 2025, including patient voices, new treatments under study, and where the research is headed next.

Listen to Episode 19: Low Dose Naltrexone

We’ll cover:
 ✔️ The role of patient advocates in shaping research
 ✔️ Interventions under study: low-dose naltrexone, baricitinib, GLP-1 receptor agonists, and stellate ganglion blocks
 ✔️ Challenges with access and equity in treatment
 ✔️ What’s next for clinical trials in Long COVID

As both a physician and a patient with Long COVID, Dr Khan brings you a unique perspective on what this research means for patients, clinicians, and the future of care.

🔔 Subscribe for more updates on Long COVID research, treatments, and patient perspectives.
👍 Like this episode if you find it helpful, and share it with others navigating Long COVID.

More resources:
👉 Learn more about RECOVER: https://recovercovid.org

👉 Follow my work on Long Covid, MD: longcovidmd.substack.com

Keywords: Long COVID research update, RECOVER 2025, NIH RECOVER TLC workshop, Long COVID new treatments, low dose naltrexone Long COVID, GLP-1 Long COVID, baricitinib Long COVID, stellate ganglion block Long COVID, Long COVID patient advocacy, Long Covid MD

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-17857074 Tue, 16 Sep 2025 19:00:00 -0400 838 55 full false 54. The Science of Hydration for Long COVID 54. The Science of Hydration for Long COVID 🔔 Subscribe for more science-backed insights
📖 Read the full newsletter + reference sheet
💬 Share your experience with hydration strategies in the comments—I’d love to hear from you!

Living with Long COVID or POTS often means battling dizziness, fatigue, and brain fog caused by low blood volume. In this episode, Dr Khan breaks down the science of hydration and explain how different fluids—plain water, salt water, and oral rehydration solutions (ORS)—actually work in your body.

You’ll learn:
 ✅ Why plain water gives a quick but short-lived boost
 ✅ How salt water helps your body hold onto fluid
 ✅ Why oral rehydration solutions like WHO ORS and St. Mark’s formula can act almost like IV saline
 ✅ The difference between medical ORS and common sports drinks like Gatorade, Pedialyte, and Liquid IV
 ✅ How the sodium-glucose transporter (SGLT1) “supercharges” absorption

Hydration is more than just drinking water—it’s about strategic plasma expansion to keep blood flowing to your brain and reduce symptoms of dysautonomia.

⚠️ Safety note: Salt loading isn’t for everyone. Check with your doctor if you have kidney disease, heart failure, uncontrolled hypertension, or a tendency to swelling.

👩‍⚕️ I’m Dr. Zeest Khan, a physician and patient with Long COVID. On Long Covid, MD, I simplify medical science to help you make better decisions about your care and recovery.

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> 🔔 Subscribe for more science-backed insights
📖 Read the full newsletter + reference sheet
💬 Share your experience with hydration strategies in the comments—I’d love to hear from you!

Living with Long COVID or POTS often means battling dizziness, fatigue, and brain fog caused by low blood volume. In this episode, Dr Khan breaks down the science of hydration and explain how different fluids—plain water, salt water, and oral rehydration solutions (ORS)—actually work in your body.

You’ll learn:
 ✅ Why plain water gives a quick but short-lived boost
 ✅ How salt water helps your body hold onto fluid
 ✅ Why oral rehydration solutions like WHO ORS and St. Mark’s formula can act almost like IV saline
 ✅ The difference between medical ORS and common sports drinks like Gatorade, Pedialyte, and Liquid IV
 ✅ How the sodium-glucose transporter (SGLT1) “supercharges” absorption

Hydration is more than just drinking water—it’s about strategic plasma expansion to keep blood flowing to your brain and reduce symptoms of dysautonomia.

⚠️ Safety note: Salt loading isn’t for everyone. Check with your doctor if you have kidney disease, heart failure, uncontrolled hypertension, or a tendency to swelling.

👩‍⚕️ I’m Dr. Zeest Khan, a physician and patient with Long COVID. On Long Covid, MD, I simplify medical science to help you make better decisions about your care and recovery.

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-17769983 Tue, 02 Sep 2025 06:00:00 -0400 1342 54 full false 53. IV Fluids and Long COVID: The Evidence May Surprise You 53. IV Fluids and Long COVID: The Evidence May Surprise You Watch the video on YouTube

Can IV fluids really help with Long COVID symptoms like fatigue, dizziness, and brain fog? In this episode, Dr Khan reviews the scientific evidence on IV hydration versus oral rehydration solutions (ORS) in children, athletes, and patients with POTS (postural orthostatic tachycardia syndrome)—and shares her personal experience as both a doctor and a patient living with Long COVID.

You’ll learn:
✔️ How IV fluids expand blood volume and why that matters in Long COVID
✔️ The risks and complications of IV therapy (including when NOT to use it)
✔️ What the research says about ORS vs. IV hydration in different groups
✔️ Why IV fluids may serve as a temporary rescue therapy for some people with POTS or Long COVID
✔️ Practical tips for safe IV use 

💡 Whether you’re exploring treatment options or just curious about the science, this episode breaks down what we know—and what we don’t—about IV hydration in Long COVID.

For links to studies and a printable summary of today's episode, subscribe to the newsletter.

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Watch the video on YouTube

Can IV fluids really help with Long COVID symptoms like fatigue, dizziness, and brain fog? In this episode, Dr Khan reviews the scientific evidence on IV hydration versus oral rehydration solutions (ORS) in children, athletes, and patients with POTS (postural orthostatic tachycardia syndrome)—and shares her personal experience as both a doctor and a patient living with Long COVID.

You’ll learn:
✔️ How IV fluids expand blood volume and why that matters in Long COVID
✔️ The risks and complications of IV therapy (including when NOT to use it)
✔️ What the research says about ORS vs. IV hydration in different groups
✔️ Why IV fluids may serve as a temporary rescue therapy for some people with POTS or Long COVID
✔️ Practical tips for safe IV use 

💡 Whether you’re exploring treatment options or just curious about the science, this episode breaks down what we know—and what we don’t—about IV hydration in Long COVID.

For links to studies and a printable summary of today's episode, subscribe to the newsletter.

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-17715007 Fri, 22 Aug 2025 02:00:00 -0400 1885 full false Season Finale: Reimagining Healthcare with Dr Noha Aboelata, MD Season Finale: Reimagining Healthcare with Dr Noha Aboelata, MD Support Roots' Current Fundraising Campaign!

LCMD will be away for the summer. Will Dr Khan post anything in the meantime?? Find out by following her: 

On the newsletter at longcovidmd.com

On TikTok @LongCovidMD

On Instagram @LongCovidMD


In this episode of Long COVID MD, Dr. Zeest Khan highlights a healthcare system that effectively mitigated the pandemic and maintained community trust, while facing numerous structural obstacles. Should we follow this model of medicine more broadly? She interviews Dr. Noha Aboelata, Family Medicine physician and CEO of Roots Community Health, who shares insights on Root's holistic approach to healthcare, the importance of community trust, and the need for accessible and equitable health services. Roots played a tremendous role in the beginning of the COVID-19 pandemic. The organization offered testing, recognized patterns of viral spread, and shared critical information with the public before, and sometimes in place of, government agencies. Roots' model of rebuilding community trust allowed them to respond quickly and effectively against the COVID-19 pandemic, and continues to serve the community well. The conversation highlights the role of community health in addressing systemic inequities and the significance of empowering patients to advocate for their own health.

People's Health Briefing

How Roots Pushed Medtronic to Improve Pulse Oximetry



Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Support Roots' Current Fundraising Campaign!

LCMD will be away for the summer. Will Dr Khan post anything in the meantime?? Find out by following her: 

On the newsletter at longcovidmd.com

On TikTok @LongCovidMD

On Instagram @LongCovidMD


In this episode of Long COVID MD, Dr. Zeest Khan highlights a healthcare system that effectively mitigated the pandemic and maintained community trust, while facing numerous structural obstacles. Should we follow this model of medicine more broadly? She interviews Dr. Noha Aboelata, Family Medicine physician and CEO of Roots Community Health, who shares insights on Root's holistic approach to healthcare, the importance of community trust, and the need for accessible and equitable health services. Roots played a tremendous role in the beginning of the COVID-19 pandemic. The organization offered testing, recognized patterns of viral spread, and shared critical information with the public before, and sometimes in place of, government agencies. Roots' model of rebuilding community trust allowed them to respond quickly and effectively against the COVID-19 pandemic, and continues to serve the community well. The conversation highlights the role of community health in addressing systemic inequities and the significance of empowering patients to advocate for their own health.

People's Health Briefing

How Roots Pushed Medtronic to Improve Pulse Oximetry



Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-17333787 Sat, 14 Jun 2025 00:00:00 -0400 2778 52 full false BONUS: The Aftermath of COVID - Outrage Overload BONUS: The Aftermath of COVID - Outrage Overload Enjoy Dr Khan's guest appearance on the Outrage Overload podcast. Hosted by David Beckemyer, Outrage Overload explores how outrage media fuels political polarization and stress. David and Dr Khan discuss how the unprocessed grief of a pandemic has contributed to our current polarized social climate.

-----------------------------------------------------------------

How a Doctor’s Long COVID Journey Exposed Systemic Failures


Millions are still living with long COVID, yet many patients are dismissed, misunderstood, or left without answers. In this episode, Dr. Zeest Khan shares her personal journey—from treating critical patients as a cardiothoracic anesthesiologist to becoming a long COVID patient herself.

This conversation isn’t just about COVID—it's about how we listen, how we heal, and what needs to change.

Guest:
Dr. Zeest Khan, physician, long COVID advocate, and host of Long COVID MD podcast.


Text me your feedback and leave your contact info if you'd like a reply (this is a one-way text). Thanks, David

Support the show

Show Notes:
https://outrageoverload.net/

Follow me, David Beckemeyer, on Twitter @mrblog or email outrageoverload@gmail.com. Follow the show on Twitter @OutrageOverload or Instagram @OutrageOverload. We are also on Facebook /OutrageOverload.

HOTLINE: 925-552-7885

Got a Question, comment or just thoughts you'd like to share? Call the OO hotline and leave a message and you could be featured in an upcoming episode

If you would like to help the show, you can contribute here. Tell everyone you know about the show. That’s the best way to support it.

Rate and Review the show on Podchaser: https://www.podchaser.com/OutrageOverload

Intro music and outro music by Michael Ramir C.

Many thanks to my co-editor and co-director, Austin Chen.

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Enjoy Dr Khan's guest appearance on the Outrage Overload podcast. Hosted by David Beckemyer, Outrage Overload explores how outrage media fuels political polarization and stress. David and Dr Khan discuss how the unprocessed grief of a pandemic has contributed to our current polarized social climate.

-----------------------------------------------------------------

How a Doctor’s Long COVID Journey Exposed Systemic Failures


Millions are still living with long COVID, yet many patients are dismissed, misunderstood, or left without answers. In this episode, Dr. Zeest Khan shares her personal journey—from treating critical patients as a cardiothoracic anesthesiologist to becoming a long COVID patient herself.

This conversation isn’t just about COVID—it's about how we listen, how we heal, and what needs to change.

Guest:
Dr. Zeest Khan, physician, long COVID advocate, and host of Long COVID MD podcast.


Text me your feedback and leave your contact info if you'd like a reply (this is a one-way text). Thanks, David

Support the show

Show Notes:
https://outrageoverload.net/

Follow me, David Beckemeyer, on Twitter @mrblog or email outrageoverload@gmail.com. Follow the show on Twitter @OutrageOverload or Instagram @OutrageOverload. We are also on Facebook /OutrageOverload.

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If you would like to help the show, you can contribute here. Tell everyone you know about the show. That’s the best way to support it.

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Intro music and outro music by Michael Ramir C.

Many thanks to my co-editor and co-director, Austin Chen.

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-17258830 Sat, 31 May 2025 16:00:00 -0400 2220 51 full false #50: Ask The Patient - Why Medicine Still Doesn't Listen, with Dr Zed Zha #50: Ask The Patient - Why Medicine Still Doesn't Listen, with Dr Zed Zha Buy Me A Coffee

Summary

In this conversation, Dr. Zed Zha and Dr. Zeest Khan discuss the complexities of the patient-doctor relationship, particularly in the context of Long COVID. They explore the systemic issues that lead to mistrust in the medical system, the importance of patient advocacy, and the need for a shift in medical culture towards collaboration and understanding. Dr. Zha shares insights from her platform, 'Ask the Patient,' where she gathers feedback from patients to improve medical practice. The discussion emphasizes the need for physicians to recognize their power dynamics with patients and to adopt more compassionate, patient-centered approaches in their care.

Dr Zed Zha, MD
Zed is a physician and author. As a medical culture critic, she is committed to addressing critical issues such as medical misogyny, racism, anti-fatness, and ableism. As a feminist patient advocate, her writing brings to light the often-unspoken challenges within the healthcare system that fracture trust between patients and clinicians and find the common path for us to move forward together. Her nonfiction book defining medical consent is currently in the process of being acquired. 

Zed is also a storyteller. Her upcoming nonfiction children's book titled Why We Eat Fried Peanuts: A Celebration of Family and Lunar New Year, comes out in January 2025 by becker&mayer! Her Iive performance about her thieving mother is available on The Noturnists Podcast and on Youtube by the Bellevue Literary Review.

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buy Me A Coffee

Summary

In this conversation, Dr. Zed Zha and Dr. Zeest Khan discuss the complexities of the patient-doctor relationship, particularly in the context of Long COVID. They explore the systemic issues that lead to mistrust in the medical system, the importance of patient advocacy, and the need for a shift in medical culture towards collaboration and understanding. Dr. Zha shares insights from her platform, 'Ask the Patient,' where she gathers feedback from patients to improve medical practice. The discussion emphasizes the need for physicians to recognize their power dynamics with patients and to adopt more compassionate, patient-centered approaches in their care.

Dr Zed Zha, MD
Zed is a physician and author. As a medical culture critic, she is committed to addressing critical issues such as medical misogyny, racism, anti-fatness, and ableism. As a feminist patient advocate, her writing brings to light the often-unspoken challenges within the healthcare system that fracture trust between patients and clinicians and find the common path for us to move forward together. Her nonfiction book defining medical consent is currently in the process of being acquired. 

Zed is also a storyteller. Her upcoming nonfiction children's book titled Why We Eat Fried Peanuts: A Celebration of Family and Lunar New Year, comes out in January 2025 by becker&mayer! Her Iive performance about her thieving mother is available on The Noturnists Podcast and on Youtube by the Bellevue Literary Review.

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-17125986 Sat, 17 May 2025 00:00:00 -0400 2064 50 full false #49: The Impact of Cranio-Cervical Instability, w Dr Katie Brown #49: The Impact of Cranio-Cervical Instability, w Dr Katie Brown Buy Me A Coffee

Summary

In this conversation, Dr Zeest Khan speaks with Dr. Katie Brown, who shares her journey as a family doctor and a patient with ME/CFS. She discusses the complexities of diagnosing and treating long COVID, particularly focusing on the role of cranio-cervical instability (CCI) and its impact on patients' health. Dr. Brown emphasizes the importance of understanding the symptoms, the challenges in accessing proper care, and the need for collaboration among healthcare providers to improve patient outcomes. She also offers insights into treatment options and encourages both patients and doctors to take ownership of their health and care.

Bio
Dr Katie Brown: Katie Brown, MD has dedicated her career to learning how to treat ME/CFS and related conditions, including Long COVID. Her interest stems from her own experience with the disease which she developed during her first year of medical school. She is very grateful to now be in remission and have the chance to use all she has learned, both as a doctor and a patient, to support others with ME/CFS. The clinical uncertainty around ME/CFS should not mean that patients don't get help. In order to educate and encourage other doctors to treat ME/CFS, she is writing a book outlining best practices for primary care doctors. You can sign up to her newsletter to be notified when the book is published. 

Sign up for Dr Brown's newsletter: https://www.katiebrownmd.com/newsletter

Dr Brown's CFS website: https://chronicfatiguedoctornearme.com/

Dr Brown's notes on UCI, updated regularly: https://publish.obsidian.md/gsdpc/Publish/Patient+Resources/Cervical+Instability   

Additional Resources:

Project ECHO

Ressek et al Presentation and physical therapy management of upper cervical instability 

The Sick Times article on craniocervical instability




Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buy Me A Coffee

Summary

In this conversation, Dr Zeest Khan speaks with Dr. Katie Brown, who shares her journey as a family doctor and a patient with ME/CFS. She discusses the complexities of diagnosing and treating long COVID, particularly focusing on the role of cranio-cervical instability (CCI) and its impact on patients' health. Dr. Brown emphasizes the importance of understanding the symptoms, the challenges in accessing proper care, and the need for collaboration among healthcare providers to improve patient outcomes. She also offers insights into treatment options and encourages both patients and doctors to take ownership of their health and care.

Bio
Dr Katie Brown: Katie Brown, MD has dedicated her career to learning how to treat ME/CFS and related conditions, including Long COVID. Her interest stems from her own experience with the disease which she developed during her first year of medical school. She is very grateful to now be in remission and have the chance to use all she has learned, both as a doctor and a patient, to support others with ME/CFS. The clinical uncertainty around ME/CFS should not mean that patients don't get help. In order to educate and encourage other doctors to treat ME/CFS, she is writing a book outlining best practices for primary care doctors. You can sign up to her newsletter to be notified when the book is published. 

Sign up for Dr Brown's newsletter: https://www.katiebrownmd.com/newsletter

Dr Brown's CFS website: https://chronicfatiguedoctornearme.com/

Dr Brown's notes on UCI, updated regularly: https://publish.obsidian.md/gsdpc/Publish/Patient+Resources/Cervical+Instability   

Additional Resources:

Project ECHO

Ressek et al Presentation and physical therapy management of upper cervical instability 

The Sick Times article on craniocervical instability




Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-17058316 Sat, 10 May 2025 00:00:00 -0400 2036 49 full false #48: Money, Disability and Asking For Help Without Shame, with Kira Stoops #48: Money, Disability and Asking For Help Without Shame, with Kira Stoops Buy Me A Coffee


In this episode of Long COVID MD, Dr. Zeest Khan discusses the financial challenges faced by individuals with long COVID and chronic illnesses. She interviews Kira Stoops, a writer and advocate, who shares her personal journey with chronic illness, the importance of asking for help, and the value of building community. They explore the realities of managing finances while living with a disability, the stigma around seeking assistance, and the tools that can aid in adapting to new life circumstances. Kira emphasizes the importance of self-compassion and the need to cut oneself some slack while navigating these challenges.

Kira Stoops

Kira is a writer who is chronically ill. Despite having ME/CFS for nearly a decade, she's determined to live the good life: close connections, moments of sunshine, meaningful work, and snarky humor. Find more of her work at Flying Bicycle Creative, her (free!) Meatscon tool for sickies here, and her Substack about luxe sickie life here. 


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buy Me A Coffee


In this episode of Long COVID MD, Dr. Zeest Khan discusses the financial challenges faced by individuals with long COVID and chronic illnesses. She interviews Kira Stoops, a writer and advocate, who shares her personal journey with chronic illness, the importance of asking for help, and the value of building community. They explore the realities of managing finances while living with a disability, the stigma around seeking assistance, and the tools that can aid in adapting to new life circumstances. Kira emphasizes the importance of self-compassion and the need to cut oneself some slack while navigating these challenges.

Kira Stoops

Kira is a writer who is chronically ill. Despite having ME/CFS for nearly a decade, she's determined to live the good life: close connections, moments of sunshine, meaningful work, and snarky humor. Find more of her work at Flying Bicycle Creative, her (free!) Meatscon tool for sickies here, and her Substack about luxe sickie life here. 


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-17069810 Sat, 03 May 2025 00:00:00 -0400 1189 48 48 full true #47: Is Health a Moral Obligation? With Ethicist Alyssa Burgart, MD #47: Is Health a Moral Obligation? With Ethicist Alyssa Burgart, MD Buy Me a Coffee

Is being healthy a personal virtue, or a civic duty? And how should you be treated if you're not healthy?

In this episode of Long Covid, MD, Dr. Zeest Khan is joined by Dr. Alyssa Burgart, pediatric anesthesiologist and bioethicist, for a timely conversation on healthism—the idea that health is a moral responsibility—and how it's shaping everything from doctor-patient relationships to public health policy.

Together, they explore:

  • What healthism is and why it matters now more than ever
  • How figures like RFK Jr. and Dr. Mehmet Oz are using morality and patriotism to frame health in political terms
  • What these narratives mean for people with Long COVID and other chronic illnesses
  • How blame and bias show up in the clinic—and how both patients and clinicians can push back
  • Why trauma-informed care is critical for healing, not just treatment

This episode offers practical insight and ethical clarity for anyone navigating illness in a society that often treats sickness as a personal failure.

Read more of Dr Burgart's work on Substack

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buy Me a Coffee

Is being healthy a personal virtue, or a civic duty? And how should you be treated if you're not healthy?

In this episode of Long Covid, MD, Dr. Zeest Khan is joined by Dr. Alyssa Burgart, pediatric anesthesiologist and bioethicist, for a timely conversation on healthism—the idea that health is a moral responsibility—and how it's shaping everything from doctor-patient relationships to public health policy.

Together, they explore:

  • What healthism is and why it matters now more than ever
  • How figures like RFK Jr. and Dr. Mehmet Oz are using morality and patriotism to frame health in political terms
  • What these narratives mean for people with Long COVID and other chronic illnesses
  • How blame and bias show up in the clinic—and how both patients and clinicians can push back
  • Why trauma-informed care is critical for healing, not just treatment

This episode offers practical insight and ethical clarity for anyone navigating illness in a society that often treats sickness as a personal failure.

Read more of Dr Burgart's work on Substack

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-17011381 Sat, 26 Apr 2025 00:00:00 -0400 2233 47 full false BONUS: Dr Zeest Khan on "Taking Healthcare By Storm" BONUS: Dr Zeest Khan on "Taking Healthcare By Storm" Buy Me a Coffee

On this special bonus episode, we share Dr Zeest Khan's guest appearance on the podcast "Taking Healthcare By Storm" hosted by Dr Jean Storm, medical director of Quality Insights.

Dr. Khan shares her journey with long COVID, highlighting the importance of peer support, symptom validation, creative treatment approaches, and trusted information sources. She emphasizes the need for curiosity and compassion in healthcare providers managing long COVID patients. 

Learn more about Dr. Khan by listening to her podcast or by visiting her website or Substack.

If you have any topics or guests you'd like to see on future episodes, reach out to us on our website.

Publication number QI-040425-GK


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buy Me a Coffee

On this special bonus episode, we share Dr Zeest Khan's guest appearance on the podcast "Taking Healthcare By Storm" hosted by Dr Jean Storm, medical director of Quality Insights.

Dr. Khan shares her journey with long COVID, highlighting the importance of peer support, symptom validation, creative treatment approaches, and trusted information sources. She emphasizes the need for curiosity and compassion in healthcare providers managing long COVID patients. 

Learn more about Dr. Khan by listening to her podcast or by visiting her website or Substack.

If you have any topics or guests you'd like to see on future episodes, reach out to us on our website.

Publication number QI-040425-GK


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-16990549 Sat, 19 Apr 2025 00:00:00 -0400 2181 46 full false #45: Federal Funding Cuts, Ramadan with Long COVID, and What’s Making Me Happy- March 2025 Long COVID Rundown #45: Federal Funding Cuts, Ramadan with Long COVID, and What’s Making Me Happy- March 2025 Long COVID Rundown

Dr Khan's month in review. What happened in March for the podcast? What will federal cuts to CDC, NIH, FDA and RECOVER mean for long COVID patients? How can we participate in and celebrate holidays like Ramadan, given our physical limitations? Plus a new monthly segment that's more light-hearted called "What's Making Me Happy".

What's your rundown and what's making you happy?

Links

Michael Lewis' Essay on Heather Stone

The Residence

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]>

Dr Khan's month in review. What happened in March for the podcast? What will federal cuts to CDC, NIH, FDA and RECOVER mean for long COVID patients? How can we participate in and celebrate holidays like Ramadan, given our physical limitations? Plus a new monthly segment that's more light-hearted called "What's Making Me Happy".

What's your rundown and what's making you happy?

Links

Michael Lewis' Essay on Heather Stone

The Residence

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-16903101 Tue, 08 Apr 2025 00:00:00 -0400 1991 45 full false #44: What Makes a Medical Visit Worthwhile? #44: What Makes a Medical Visit Worthwhile? Join the next Livestream

Buy Me A Coffee

In this episode of Long Covid MD, Dr. Zeest Khan shares audio from her recent Substack Live event. How can you tell if a medical appointment or treatment is helpful or if it's doing more harm than good? Dr Khan shares insights from her personal journey with Long COVID and answers questions from the group. Together, they discuss the complexities of navigating the healthcare system. Dr Khan emphasizes the importance of intentionality in medical appointments, the need for patient empowerment, and the significance of having a primary care provider as a home base. The conversation also covers the challenges of managing multiple appointments, the importance of clear communication with healthcare providers, and strategies for ensuring accurate medical documentation. 



Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Join the next Livestream

Buy Me A Coffee

In this episode of Long Covid MD, Dr. Zeest Khan shares audio from her recent Substack Live event. How can you tell if a medical appointment or treatment is helpful or if it's doing more harm than good? Dr Khan shares insights from her personal journey with Long COVID and answers questions from the group. Together, they discuss the complexities of navigating the healthcare system. Dr Khan emphasizes the importance of intentionality in medical appointments, the need for patient empowerment, and the significance of having a primary care provider as a home base. The conversation also covers the challenges of managing multiple appointments, the importance of clear communication with healthcare providers, and strategies for ensuring accurate medical documentation. 



Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-16876219 Sat, 29 Mar 2025 00:00:00 -0400 3564 44 full true #43: Sensory Integration Therapy for Long COVID #43: Sensory Integration Therapy for Long COVID Summary

In this conversation, Dr Zeest Khan and occupational therapist Amy Mooney discuss sensory processing disorders, which seem to be triggered by a COVID infection. They discuss the implications for individuals with long COVID, and the importance of tailored occupational therapy approaches. They also explore how chronic illness affects sensory integration, the challenges faced by patients, and the need for medical recognition of sensory processing issues. Amy emphasizes the importance of listening to one's body and adapting therapy to individual needs, particularly for those with fatigue-related conditions.



Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Summary

In this conversation, Dr Zeest Khan and occupational therapist Amy Mooney discuss sensory processing disorders, which seem to be triggered by a COVID infection. They discuss the implications for individuals with long COVID, and the importance of tailored occupational therapy approaches. They also explore how chronic illness affects sensory integration, the challenges faced by patients, and the need for medical recognition of sensory processing issues. Amy emphasizes the importance of listening to one's body and adapting therapy to individual needs, particularly for those with fatigue-related conditions.



Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-16830511 Sat, 22 Mar 2025 00:00:00 -0400 2325 43 full false #42: Long COVID in the Elderly and Long-Term Care, with Dr Jean Storm, DO #42: Long COVID in the Elderly and Long-Term Care, with Dr Jean Storm, DO In this episode, Dr Zeest Khan is joined by Dr Jean Storm, a specialist in long-term care medicine and the medical director of Quality Insights, a healthcare quality improvement organization. Dr Storm worked as a physician in nursing homes during the height of the COVID-19 pandemic and now she's urging us to recognize the impact of long COVID in this population.

Dr Khan and Dr Storm discuss the needs of long-term care residents, how long COVID presents and how it is often overlooked. Dr Storm explains ways to advocate for loved ones in nursing homes and strategies to avoid severe COVID infections in long-term care. 

Links

Dr Storm's Podcast: Taking Healthcare by Storm

Function Calculator: Barthel Index for Activities of Daily Living

Resources for COVID-19 treatment, surveillance, and vaccinations in the long-term care population: https://covid.nymda.org

Articles

Nursing Home Staffing Levels and Resident Health Outcomes: Is the Role of the Physical Therapist Undervalued? 

Prevalence and Predictors of Persistence of COVID-19 Symptoms in Older Adults: A Single-Center Study

Audio engineering by True Media Solutions

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> In this episode, Dr Zeest Khan is joined by Dr Jean Storm, a specialist in long-term care medicine and the medical director of Quality Insights, a healthcare quality improvement organization. Dr Storm worked as a physician in nursing homes during the height of the COVID-19 pandemic and now she's urging us to recognize the impact of long COVID in this population.

Dr Khan and Dr Storm discuss the needs of long-term care residents, how long COVID presents and how it is often overlooked. Dr Storm explains ways to advocate for loved ones in nursing homes and strategies to avoid severe COVID infections in long-term care. 

Links

Dr Storm's Podcast: Taking Healthcare by Storm

Function Calculator: Barthel Index for Activities of Daily Living

Resources for COVID-19 treatment, surveillance, and vaccinations in the long-term care population: https://covid.nymda.org

Articles

Nursing Home Staffing Levels and Resident Health Outcomes: Is the Role of the Physical Therapist Undervalued? 

Prevalence and Predictors of Persistence of COVID-19 Symptoms in Older Adults: A Single-Center Study

Audio engineering by True Media Solutions

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-16747123 Sat, 15 Mar 2025 00:00:00 -0400 3258 full false #41: Why Is This So Difficult? February 2025 Long COVID Rundown #41: Why Is This So Difficult? February 2025 Long COVID Rundown What do you do when you just want a break from being sick? In this month's episode of The Rundown, Dr Zeest Khan shares her ongoing journey with long COVID, discussing the frustrations and challenges she faces in recovery. She reflects on the medical treatments she has undergone, the importance of reliable information, and the emotional toll of navigating the complexities of this condition. 


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> What do you do when you just want a break from being sick? In this month's episode of The Rundown, Dr Zeest Khan shares her ongoing journey with long COVID, discussing the frustrations and challenges she faces in recovery. She reflects on the medical treatments she has undergone, the importance of reliable information, and the emotional toll of navigating the complexities of this condition. 


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-16711968 Sat, 01 Mar 2025 00:00:00 -0500 1543 full false #40: Long COVID in Children, with Dr Melanie Hoppers, MD #40: Long COVID in Children, with Dr Melanie Hoppers, MD Read a summary of our conversation here, and sign up for my newsletter to receive summaries of each podcast episode and more at LongCovidMD.substack.com


Dr. Melanie Hoppers is a board-certified physician in both adult and pediatric medicine, and is a consultant at the Bateman-Horne Center. In this conversation, Dr Hoppers shares her extensive experience treating children with post-viral illnesses, particularly ME-CFS and long COVID. She discusses her personal journey as a parent of a child with ME-CFS, and the challenges her family faced in finding appropriate care - challenges that parents of long COVID kids continue to face today. Dr. Hoppers emphasizes the importance of pacing, parental advocacy, and the need for better medical education on these conditions. She also outlines treatment options and encourages parents to find joy and support in their journey.


Audio Engineering by True Media Solutions

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Read a summary of our conversation here, and sign up for my newsletter to receive summaries of each podcast episode and more at LongCovidMD.substack.com


Dr. Melanie Hoppers is a board-certified physician in both adult and pediatric medicine, and is a consultant at the Bateman-Horne Center. In this conversation, Dr Hoppers shares her extensive experience treating children with post-viral illnesses, particularly ME-CFS and long COVID. She discusses her personal journey as a parent of a child with ME-CFS, and the challenges her family faced in finding appropriate care - challenges that parents of long COVID kids continue to face today. Dr. Hoppers emphasizes the importance of pacing, parental advocacy, and the need for better medical education on these conditions. She also outlines treatment options and encourages parents to find joy and support in their journey.


Audio Engineering by True Media Solutions

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-16669468 Sat, 22 Feb 2025 00:00:00 -0500 2921 40 full false #39: January Long COVID Rundown - Improving Executive Function with Speech and Language Pathology #39: January Long COVID Rundown - Improving Executive Function with Speech and Language Pathology Record a Voice Note

Summary

In this episode of Long Covid, MD, Dr. Zeest Khan shares personal updates from January, highlighting recent projects to educate other medical professionals on long COVID. She explains some of the ways long COVID impacts executive function and how she utilizes Speech and Language Pathology to improve cognition. She also reflects on the impact of social media on mental health and the need for community support among those affected by chronic illness. 

Long COVID Project ECHO presentation

Timer Cube 

Cognitive Rehab via Speech and Language Pathology




Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Record a Voice Note

Summary

In this episode of Long Covid, MD, Dr. Zeest Khan shares personal updates from January, highlighting recent projects to educate other medical professionals on long COVID. She explains some of the ways long COVID impacts executive function and how she utilizes Speech and Language Pathology to improve cognition. She also reflects on the impact of social media on mental health and the need for community support among those affected by chronic illness. 

Long COVID Project ECHO presentation

Timer Cube 

Cognitive Rehab via Speech and Language Pathology




Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-16563689 Wed, 05 Feb 2025 00:00:00 -0500 1520 39 full false #38: My Long COVID Guidelines for Recovery #38: My Long COVID Guidelines for Recovery In this episode of Long COVID, MD, Dr. Zeest Khan shares highlights from her recent Project ECHO webinar, sponsored by the University of Utah and the Bateman Horne Center. Drawing from her personal journey and clinical expertise, she introduces actionable strategies to manage the complex and often overwhelming nature of Long COVID.

Subscribe to Dr. Khan's newsletter at longcovidmd.substack.com.

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> In this episode of Long COVID, MD, Dr. Zeest Khan shares highlights from her recent Project ECHO webinar, sponsored by the University of Utah and the Bateman Horne Center. Drawing from her personal journey and clinical expertise, she introduces actionable strategies to manage the complex and often overwhelming nature of Long COVID.

Subscribe to Dr. Khan's newsletter at longcovidmd.substack.com.

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-16485941 Wed, 22 Jan 2025 18:00:00 -0500 1642 38 full false #37: Getting Better Sleep, with Behavioral Psychologist Dr Hylton Molzof, PhD #37: Getting Better Sleep, with Behavioral Psychologist Dr Hylton Molzof, PhD

In this conversation, Stanford psychologist and behavioral sleep specialist Dr. Hylton Molzof joins Dr Khan to discuss the complexities of sleep. They focus particularly on insomnia in chronic illness, and the role of Cognitive Behavioral Therapy for Insomnia (CBTI). They discuss the physiological stages of sleep, the impact of chronic illness on sleep patterns, and practical strategies for managing sleep-related anxiety. Dr. Molzof emphasizes the importance of adapting CBTI techniques for individuals with chronic conditions, especially in the context of long COVID. The conversation also covers the significance of sleep evaluation and the nuances of sleep restriction as a treatment method.

Find printable worksheets and resources Dr Molzof has shared at https://substack.com/home/post/p-154561158?source=queue&autoPlay=false

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]>

In this conversation, Stanford psychologist and behavioral sleep specialist Dr. Hylton Molzof joins Dr Khan to discuss the complexities of sleep. They focus particularly on insomnia in chronic illness, and the role of Cognitive Behavioral Therapy for Insomnia (CBTI). They discuss the physiological stages of sleep, the impact of chronic illness on sleep patterns, and practical strategies for managing sleep-related anxiety. Dr. Molzof emphasizes the importance of adapting CBTI techniques for individuals with chronic conditions, especially in the context of long COVID. The conversation also covers the significance of sleep evaluation and the nuances of sleep restriction as a treatment method.

Find printable worksheets and resources Dr Molzof has shared at https://substack.com/home/post/p-154561158?source=queue&autoPlay=false

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-16415490 Wed, 15 Jan 2025 06:00:00 -0500 3404 full false #36: "Look for the Helpers" - A New Year's Resolution for Long COVID #36: "Look for the Helpers" - A New Year's Resolution for Long COVID Happy 2025! In this special New Year’s episode of Long COVID MD, Dr. Zeest Khan reflects on an invaluable piece of wisdom from Mr. Rogers: “Look for the helpers.”

Navigating Long COVID is anything but straightforward, but this timeless advice serves as a guiding principle. Dr. Khan breaks it down into three actionable steps to help you identify the assistance you need, avoid detractors, and—perhaps the hardest part—learn to receive help with grace.

Resources and Links:

  • Subscribe to Long COVID MD on Substack: longcovidmd.substack.com
  • Featured episodes:
    • Don’t Sleep on Your Power: Senator Lindsey Port on Long COVID Advocacy
    • Building Solutions with the Long COVID Moonshot Initiative

Follow and Support:
Subscribe to stay updated on new episodes and bonus content. Let us know your thoughts, questions, and New Year’s resolutions by emailing us or commenting on Substack!

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Happy 2025! In this special New Year’s episode of Long COVID MD, Dr. Zeest Khan reflects on an invaluable piece of wisdom from Mr. Rogers: “Look for the helpers.”

Navigating Long COVID is anything but straightforward, but this timeless advice serves as a guiding principle. Dr. Khan breaks it down into three actionable steps to help you identify the assistance you need, avoid detractors, and—perhaps the hardest part—learn to receive help with grace.

Resources and Links:

  • Subscribe to Long COVID MD on Substack: longcovidmd.substack.com
  • Featured episodes:
    • Don’t Sleep on Your Power: Senator Lindsey Port on Long COVID Advocacy
    • Building Solutions with the Long COVID Moonshot Initiative

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]]> Dr. Zeest Khan Buzzsprout-16399613 Wed, 08 Jan 2025 06:00:00 -0500 990 4 36 full false #35: The Autonomic Nervous System in Long COVID, with Dr Alba Azola, MD #35: The Autonomic Nervous System in Long COVID, with Dr Alba Azola, MD Send me a voicemail: speakpipe.com/longcovidmd

In this conversation, Dr. Khan discusses the impact of the autonomic nervous system in Long COVID, with Dr. Alba Azola, Assistant Professor of Physical Medicine and Rehabilitation at Johns Hopkins University.  Dr Azola explains the complexities of autonomic dysfunction, particularly focusing on dysautonomia and POTS, and how these conditions affect patients' daily lives. The discussion highlights the importance of a patient-centered approach in rehabilitation and the need for a multidisciplinary team to address the various symptoms and challenges faced by long COVID patients. In this conversation, Drs Azola and Khan delve into the complexities of dysautonomia, particularly in the context of long COVID and mast cell activation syndrome. They discuss the importance of understanding autonomic dysfunction, the role of mast cells in various symptoms, and the need for a collaborative healthcare approach. The conversation emphasizes non-pharmacologic interventions, the significance of tailored exercise programs, and the various medications available to manage symptoms. Ultimately, they highlight the importance of patient empowerment and finding healthcare providers who are willing to listen and collaborate.

Dr Alba Azola, MD
@HopkinsMECFSC
@AzolaAlba

Bio

Assistant Professor, Departments of Rehabilitation and Physical Medicine and Pediatrics, Johns Hopkins Medical Center. Director of the Long COVID Chronic Fatigue Syndrome Clinic and Co-director of the JH-UTSW Brain Health Program. She is a co-investigator in several NIH, PCORI, and CDC-sponsored studies on Long COVID. As part of the AAPMR PASC collaborative, she has co-authored several guidance statements on managing Long COVID symptoms, including fatigue, dysautonomia, and cardiovascular complications.

Audio engineering by True Media Solutions https://truemediasolutions.ca/

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Send me a voicemail: speakpipe.com/longcovidmd

In this conversation, Dr. Khan discusses the impact of the autonomic nervous system in Long COVID, with Dr. Alba Azola, Assistant Professor of Physical Medicine and Rehabilitation at Johns Hopkins University.  Dr Azola explains the complexities of autonomic dysfunction, particularly focusing on dysautonomia and POTS, and how these conditions affect patients' daily lives. The discussion highlights the importance of a patient-centered approach in rehabilitation and the need for a multidisciplinary team to address the various symptoms and challenges faced by long COVID patients. In this conversation, Drs Azola and Khan delve into the complexities of dysautonomia, particularly in the context of long COVID and mast cell activation syndrome. They discuss the importance of understanding autonomic dysfunction, the role of mast cells in various symptoms, and the need for a collaborative healthcare approach. The conversation emphasizes non-pharmacologic interventions, the significance of tailored exercise programs, and the various medications available to manage symptoms. Ultimately, they highlight the importance of patient empowerment and finding healthcare providers who are willing to listen and collaborate.

Dr Alba Azola, MD
@HopkinsMECFSC
@AzolaAlba

Bio

Assistant Professor, Departments of Rehabilitation and Physical Medicine and Pediatrics, Johns Hopkins Medical Center. Director of the Long COVID Chronic Fatigue Syndrome Clinic and Co-director of the JH-UTSW Brain Health Program. She is a co-investigator in several NIH, PCORI, and CDC-sponsored studies on Long COVID. As part of the AAPMR PASC collaborative, she has co-authored several guidance statements on managing Long COVID symptoms, including fatigue, dysautonomia, and cardiovascular complications.

Audio engineering by True Media Solutions https://truemediasolutions.ca/

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-16147955 Wed, 11 Dec 2024 00:00:00 -0500 3442 3 34 full false #34: "Don't Sleep on Your Power" Senator Lindsey Port on Long COVID Advocacy #34: "Don't Sleep on Your Power" Senator Lindsey Port on Long COVID Advocacy Leave me a voicemail: speakpipe.com/longcovidmd

Lindsey Port, who lives with severe Long COVID, represents District 55 in the Minnesota State Senate. How does she do it and to what extent can state governments impact the lives of people with chronic illness? In our conversation, Senator Port shares why she insists on disability accommodations, why it was important for her to share her Long COVID story, and why she encourages YOU to share yours.

Senator Port believes that while there are valid reasons for concern as the government undergoes a transition, there are concrete reasons to remain hopeful.

Learn more about Senator Port
https://www.instagram.com/lindseyportmn/
https://www.lindseyportmn.com/
https://bsky.app/profile/lindseyportmn.bsky.social

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Leave me a voicemail: speakpipe.com/longcovidmd

Lindsey Port, who lives with severe Long COVID, represents District 55 in the Minnesota State Senate. How does she do it and to what extent can state governments impact the lives of people with chronic illness? In our conversation, Senator Port shares why she insists on disability accommodations, why it was important for her to share her Long COVID story, and why she encourages YOU to share yours.

Senator Port believes that while there are valid reasons for concern as the government undergoes a transition, there are concrete reasons to remain hopeful.

Learn more about Senator Port
https://www.instagram.com/lindseyportmn/
https://www.lindseyportmn.com/
https://bsky.app/profile/lindseyportmn.bsky.social

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-16161822 Wed, 27 Nov 2024 00:00:00 -0500 1689 3 34 full true "Why I'm Not Panicking" Substack Long COVID Rundown, November 2024 "Why I'm Not Panicking" Substack Long COVID Rundown, November 2024 The United States government is in transition, and the new administration may make dramatic changes that will impact people with Long COVID, among others. In this reading of my November essay for the Long Covid MD Substack, I explain why, because I am concerned, I am not panicking. 

Read, subscribe and share: https://longcovidmd.substack.com/p/why-im-not-panicking?r=478j9x

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> The United States government is in transition, and the new administration may make dramatic changes that will impact people with Long COVID, among others. In this reading of my November essay for the Long Covid MD Substack, I explain why, because I am concerned, I am not panicking. 

Read, subscribe and share: https://longcovidmd.substack.com/p/why-im-not-panicking?r=478j9x

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-16158213 Fri, 22 Nov 2024 15:00:00 -0500 1113 full false #33: Long COVID, Grief, and Post-Traumatic Growth - A Conversation with Mental Health Counselor Paige Zuckerman #33: Long COVID, Grief, and Post-Traumatic Growth - A Conversation with Mental Health Counselor Paige Zuckerman Ask me a question at speakpipe.com/longcovidmd

In this conversation, Dr. Zeest Khan and certified clinical mental health counselor Paige Zuckerman discuss the critical role of therapy for those dealing with chronic illness and Long COVID. They explore the stigma surrounding mental health, the importance of understanding grief and fear in the context of medical loss, and the potential for post-traumatic growth. The discussion also covers the renegotiation of relationships and boundaries, the significance of finding the right therapist, and the concept of allostatic load in managing chronic illness. Ultimately, they emphasize the value of community and support groups in navigating these challenges.

Paige Zuckerman https://www.psychologytoday.com/us/therapists/paige-zuckerman-salt-lake-city-ut/195354

Audio engineering by True Media Solutions 

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Ask me a question at speakpipe.com/longcovidmd

In this conversation, Dr. Zeest Khan and certified clinical mental health counselor Paige Zuckerman discuss the critical role of therapy for those dealing with chronic illness and Long COVID. They explore the stigma surrounding mental health, the importance of understanding grief and fear in the context of medical loss, and the potential for post-traumatic growth. The discussion also covers the renegotiation of relationships and boundaries, the significance of finding the right therapist, and the concept of allostatic load in managing chronic illness. Ultimately, they emphasize the value of community and support groups in navigating these challenges.

Paige Zuckerman https://www.psychologytoday.com/us/therapists/paige-zuckerman-salt-lake-city-ut/195354

Audio engineering by True Media Solutions 

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-16097028 Wed, 13 Nov 2024 06:00:00 -0500 3518 3 33 full false #32: "Science as a Collaborative Team Sport" Reflections on RECOVER-TLC #32: "Science as a Collaborative Team Sport" Reflections on RECOVER-TLC Record a voicemail: https://www.speakpipe.com/LongCovidMD

How is the United States using federal funds to find a cure to Long COVID? Today, with the help of prominent guests, I reflect on the recent RECOVER-TLC workshop, which will influence the direction of Long COVID in the United States. The workshop was hosted by the National Institute of Allergy and Infectious Disease, and included presentations by scientists, clinicians, patients and advocates. It's a really big deal, but don't worry if you missed it. I'm here to catch you up on the major highlights and take-aways.

Thank you to:
Jon Douglas https://jondouglas.dev/longhaul
Jermaine Greaves https://www.instagram.com/jermainegreaves/
Todd Davenport, PhD https://www.pacific.edu/campus-directory/todd-davenport
Alba Azola, MD https://profiles.hopkinsmedicine.org/provider/alba-azola/2707119

RECOVER-TLC Patient Input https://recovercovid.org/news/nih-invites-public-participation-inform-future-long-covid-clinical-trials

RECOVER-TLC videos https://youtube.com/playlist?list=PLqByiC0rX0ZOAlM0l0dCSefm-GvYHCBr_&si=M1YBjCm6RbvziBJ2

CURE-ID https://cure.ncats.io/



Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Record a voicemail: https://www.speakpipe.com/LongCovidMD

How is the United States using federal funds to find a cure to Long COVID? Today, with the help of prominent guests, I reflect on the recent RECOVER-TLC workshop, which will influence the direction of Long COVID in the United States. The workshop was hosted by the National Institute of Allergy and Infectious Disease, and included presentations by scientists, clinicians, patients and advocates. It's a really big deal, but don't worry if you missed it. I'm here to catch you up on the major highlights and take-aways.

Thank you to:
Jon Douglas https://jondouglas.dev/longhaul
Jermaine Greaves https://www.instagram.com/jermainegreaves/
Todd Davenport, PhD https://www.pacific.edu/campus-directory/todd-davenport
Alba Azola, MD https://profiles.hopkinsmedicine.org/provider/alba-azola/2707119

RECOVER-TLC Patient Input https://recovercovid.org/news/nih-invites-public-participation-inform-future-long-covid-clinical-trials

RECOVER-TLC videos https://youtube.com/playlist?list=PLqByiC0rX0ZOAlM0l0dCSefm-GvYHCBr_&si=M1YBjCm6RbvziBJ2

CURE-ID https://cure.ncats.io/



Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-16053644 Wed, 06 Nov 2024 00:00:00 -0500 2305 full false #31 October Rundown: Pacing and the Push-Crash Cycle #31 October Rundown: Pacing and the Push-Crash Cycle Send me a voicemail https://www.speakpipe.com/LongCovidMD

This is the audio voiceover for my October Substack article, an overview of my month living with Long COVID

This month I discuss how I was took on big projects without severely crashing. We discuss the ways I pace, even when it looks like I'm pushing.

Join the community on Substack. Longcovidmd.substack.com

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Send me a voicemail https://www.speakpipe.com/LongCovidMD

This is the audio voiceover for my October Substack article, an overview of my month living with Long COVID

This month I discuss how I was took on big projects without severely crashing. We discuss the ways I pace, even when it looks like I'm pushing.

Join the community on Substack. Longcovidmd.substack.com

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-16020805 Wed, 30 Oct 2024 14:00:00 -0400 1184 3 31 full false #30: Using Biometrics to Manage Long COVID, with Visible CEO Harry Leeming #30: Using Biometrics to Manage Long COVID, with Visible CEO Harry Leeming Summary

In this conversation, Dr Zeest Khan and Visible founder Harry Leeming discuss the innovative use of biometric tracking in managing long COVID and other chronic illnesses. They explore the significance of heart rate variability (HRV), the role of wearable technology, and the importance of pacing in symptom management. The discussion also highlights the impact of the menstrual cycle on health and the resources available through Visible, a company dedicated to improving health outcomes for those with chronic conditions.

MakeVisible.com



Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Summary

In this conversation, Dr Zeest Khan and Visible founder Harry Leeming discuss the innovative use of biometric tracking in managing long COVID and other chronic illnesses. They explore the significance of heart rate variability (HRV), the role of wearable technology, and the importance of pacing in symptom management. The discussion also highlights the impact of the menstrual cycle on health and the resources available through Visible, a company dedicated to improving health outcomes for those with chronic conditions.

MakeVisible.com



Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-15977178 Wed, 23 Oct 2024 13:00:00 -0400 2460 Keywords biometric tracking, long COVID, heart rate variability, wearable technology, health management, pacing, menstrual cycle, Visible, chronic illness, health data 3 30 full false #29 Answering Your Questions! #29 Answering Your Questions! Today I'm answering questions from listeners and online friends. We discuss:
-How to find a Long COVID doctor
-Best(?) meds to use during a COVID infection
-Pediatric LongCOVID 
-Dental work and anesthesia

Leave me a voice note here: https://www.speakpipe.com/msg/s/371091/1/5ftvm7bekf0v0vrj

Support the show here:
https://www.amazon.com/hz/wishlist/ls/5EAAQUNVKP3K?ref_=wl_share

Substack Q&A
https://longcovidmd.substack.com/p/q-and-a-with-dr-k-long-covid-surgery?r=478j9x

Pediatric resources
Amy Mooney: OT4ME.com
Bateman-Horne Center: https://batemanhornecenter.org/
LongCOVDKids: https://www.longcovidkids.org/



Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Today I'm answering questions from listeners and online friends. We discuss:
-How to find a Long COVID doctor
-Best(?) meds to use during a COVID infection
-Pediatric LongCOVID 
-Dental work and anesthesia

Leave me a voice note here: https://www.speakpipe.com/msg/s/371091/1/5ftvm7bekf0v0vrj

Support the show here:
https://www.amazon.com/hz/wishlist/ls/5EAAQUNVKP3K?ref_=wl_share

Substack Q&A
https://longcovidmd.substack.com/p/q-and-a-with-dr-k-long-covid-surgery?r=478j9x

Pediatric resources
Amy Mooney: OT4ME.com
Bateman-Horne Center: https://batemanhornecenter.org/
LongCOVDKids: https://www.longcovidkids.org/



Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-15822976 Fri, 27 Sep 2024 00:00:00 -0400 1762 full false #28: Occupational Therapy for Long COVID, with Amy Mooney MS OTR/L #28: Occupational Therapy for Long COVID, with Amy Mooney MS OTR/L Occupational therapist Amy Mooney focuses her practice on people with fatiguing diseases like ME/CFS and Long COVID. She joins me to discuss how occupational therapy can be a valuable addition to your recovery program. Finding ways to engage in our lives, to do the things we want to do, is at the heart of occupational therapy.

Amy shares how she has modified her practice to empower people with fatigue, and suggests ways you can engage with an occupational therapist near you.

Amy Mooney
OT4ME.com
Amy is a private practice occupational therapist specializing in therapeutic care for individuals with chronic conditions involving Post-Exertional Malaise (PEM) and Post-Exertion Symptom Exacerbation (PESE). With over 25 years of OT experience, her telehealth practice focuses on conditions like Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Long COVID, and related co-morbid conditions such as dysautonomia, Ehlers-Danlos syndrome, Mast Cell Activation Syndrome, and Fibromyalgia.
Amy's “Pacing for PEM” guidelines and therapeutic strategies have been featured in national and international conferences, continuing education programs for medical professionals, and paƟent advocacy webinars. Drawing on her extensive background in diverse seƫtings, including schools, home health, and clinics, Amy
brings a comprehensive understanding of paƟent needs to her practice. As a caregiver to a loved one with ME/CFS, she has a deep, personal understanding of the challenges faced by individuals and families in seeking
appropriate care. Her approach is rooted in compassion, focusing on symptom management, pacing strategies, and adaptive interventions to enhance the quality of life for her clients.
Amy has a bachelor’s degree from Loyola University Chicago, a master’s degree in occupational therapy from
Rush University Chicago and is a returned Peace Corp volunteer. Amy calls Chicago home.

Bateman-Horne Center
https://batemanhornecenter.org/

Amy on YouTube with SolveME
https://www.youtube.com/watch?v=w5Yt0BdeeN8

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Occupational therapist Amy Mooney focuses her practice on people with fatiguing diseases like ME/CFS and Long COVID. She joins me to discuss how occupational therapy can be a valuable addition to your recovery program. Finding ways to engage in our lives, to do the things we want to do, is at the heart of occupational therapy.

Amy shares how she has modified her practice to empower people with fatigue, and suggests ways you can engage with an occupational therapist near you.

Amy Mooney
OT4ME.com
Amy is a private practice occupational therapist specializing in therapeutic care for individuals with chronic conditions involving Post-Exertional Malaise (PEM) and Post-Exertion Symptom Exacerbation (PESE). With over 25 years of OT experience, her telehealth practice focuses on conditions like Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Long COVID, and related co-morbid conditions such as dysautonomia, Ehlers-Danlos syndrome, Mast Cell Activation Syndrome, and Fibromyalgia.
Amy's “Pacing for PEM” guidelines and therapeutic strategies have been featured in national and international conferences, continuing education programs for medical professionals, and paƟent advocacy webinars. Drawing on her extensive background in diverse seƫtings, including schools, home health, and clinics, Amy
brings a comprehensive understanding of paƟent needs to her practice. As a caregiver to a loved one with ME/CFS, she has a deep, personal understanding of the challenges faced by individuals and families in seeking
appropriate care. Her approach is rooted in compassion, focusing on symptom management, pacing strategies, and adaptive interventions to enhance the quality of life for her clients.
Amy has a bachelor’s degree from Loyola University Chicago, a master’s degree in occupational therapy from
Rush University Chicago and is a returned Peace Corp volunteer. Amy calls Chicago home.

Bateman-Horne Center
https://batemanhornecenter.org/

Amy on YouTube with SolveME
https://www.youtube.com/watch?v=w5Yt0BdeeN8

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-15723323 Fri, 13 Sep 2024 00:00:00 -0400 2843 full false #27: Long COVID Life Update #27: Long COVID Life Update Today I share an update on my health (all good things) and what I do to recover when I push myself too much, overdo it, and have post-exertional malaise.

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Today I share an update on my health (all good things) and what I do to recover when I push myself too much, overdo it, and have post-exertional malaise.

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-15702963 Fri, 06 Sep 2024 00:00:00 -0400 1398 3 27 full false #26: Long Covid's Impact on Global Health Equity, with Dr Rachel Hall-Clifford, PhD #26: Long Covid's Impact on Global Health Equity, with Dr Rachel Hall-Clifford, PhD Dr Rachel Hall-Clifford is a medical anthropologist and a global health expert who has done extensive field work to improve systemic health inequities around the world. When she developed Long Covid after an infection in 2022, those systemic failures became a personal issue.
Dr Hall-Clifford wrote a powerful article on her experience with Long Covid and the role wealthy countries play in the global treatment of this disease. In our conversation, she speaks about her personal struggles and the universal need for Long Covid treatment.

"Long Covid Feels Like a Gun to My Head"
https://www.statnews.com/2024/06/18/long-covid-infectious-disease-expert-personal-story-life-with-no-cure/

"Underbelly: Childhood Diarrhea and the Hidden Local Realities of Global Health"
https://mitpress.mit.edu/9780262547765/underbelly/

safe+natal
www.safenatal.org

Dr Hall-Clifford's TedX Talk on Co-Design in global public health: https://www.youtube.com/watch?v=rvRAdsQ1_hA

Rachel Hall-Clifford (PhD, MPH, MSc) is Associate Professor in the Center for the Study of Human Health and the Department of Sociology at Emory University. She is a medical anthropologist who applies social science approaches to global health research and implementation. Her research areas include accessible health care for marginalized populations, health systems strengthening in post-genocide contexts, and global health fieldwork ethics. She is author of the new book, Underbelly, focusing on the multivalent power asymmetries in global health.  Rachel is also Co-Founder of safe+natal, a perinatal monitoring and care toolkit developed with Guatemalan midwives. Global health was brought home in a new way for Rachel since the covid infection that led to long covid in 2022. 

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr Rachel Hall-Clifford is a medical anthropologist and a global health expert who has done extensive field work to improve systemic health inequities around the world. When she developed Long Covid after an infection in 2022, those systemic failures became a personal issue.
Dr Hall-Clifford wrote a powerful article on her experience with Long Covid and the role wealthy countries play in the global treatment of this disease. In our conversation, she speaks about her personal struggles and the universal need for Long Covid treatment.

"Long Covid Feels Like a Gun to My Head"
https://www.statnews.com/2024/06/18/long-covid-infectious-disease-expert-personal-story-life-with-no-cure/

"Underbelly: Childhood Diarrhea and the Hidden Local Realities of Global Health"
https://mitpress.mit.edu/9780262547765/underbelly/

safe+natal
www.safenatal.org

Dr Hall-Clifford's TedX Talk on Co-Design in global public health: https://www.youtube.com/watch?v=rvRAdsQ1_hA

Rachel Hall-Clifford (PhD, MPH, MSc) is Associate Professor in the Center for the Study of Human Health and the Department of Sociology at Emory University. She is a medical anthropologist who applies social science approaches to global health research and implementation. Her research areas include accessible health care for marginalized populations, health systems strengthening in post-genocide contexts, and global health fieldwork ethics. She is author of the new book, Underbelly, focusing on the multivalent power asymmetries in global health.  Rachel is also Co-Founder of safe+natal, a perinatal monitoring and care toolkit developed with Guatemalan midwives. Global health was brought home in a new way for Rachel since the covid infection that led to long covid in 2022. 

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-15664581 Fri, 30 Aug 2024 00:00:00 -0400 2622 full false #25: Metformin For Long Covid #25: Metformin For Long Covid LongCovidMD.substack.com
LongCovidMD.com

In this episode of The Medicine Cabinet series, I explain how Metformin, a drug we often associate with diabetes, helps acute covid and may help Long Covid.

Metformin is an old, relatively inexpensive medication that has many established off-label uses. I explain its mechanisms of action, who it might be right for, and I discuss the recently published COVID OUT research findings that supported metformin's use in acute infection. It reduces hospitalizations, death, and the development of Long Covid.

What does that mean for those of us who already have Long Covid? I share my opinions.

Research Links
COVID OUT metformin dose used: 500mg on Day 1, 500mg twice daily on Days 2-5 and 500mg in the AM and 1,000mg in the PM on Days 6-14


https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4214027/

https://www.medrxiv.org/content/10.1101/2023.06.06.23290989v1

https://www.thelancet.com/journals/laninf/article/PIIS1473-3099(23)00299-2/fulltext#%20

https://academic.oup.com/cid/article/79/2/354/7660393?login=false

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10595158/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9111510/#:~:text=Recent%20evidence%20has%20shown%20that,has%20immunomodulatory%2C%20anti%E2%80%90inflammatory%2C

CURE-ID Database
https://cure.ncats.io/home


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> LongCovidMD.substack.com
LongCovidMD.com

In this episode of The Medicine Cabinet series, I explain how Metformin, a drug we often associate with diabetes, helps acute covid and may help Long Covid.

Metformin is an old, relatively inexpensive medication that has many established off-label uses. I explain its mechanisms of action, who it might be right for, and I discuss the recently published COVID OUT research findings that supported metformin's use in acute infection. It reduces hospitalizations, death, and the development of Long Covid.

What does that mean for those of us who already have Long Covid? I share my opinions.

Research Links
COVID OUT metformin dose used: 500mg on Day 1, 500mg twice daily on Days 2-5 and 500mg in the AM and 1,000mg in the PM on Days 6-14


https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4214027/

https://www.medrxiv.org/content/10.1101/2023.06.06.23290989v1

https://www.thelancet.com/journals/laninf/article/PIIS1473-3099(23)00299-2/fulltext#%20

https://academic.oup.com/cid/article/79/2/354/7660393?login=false

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10595158/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9111510/#:~:text=Recent%20evidence%20has%20shown%20that,has%20immunomodulatory%2C%20anti%E2%80%90inflammatory%2C

CURE-ID Database
https://cure.ncats.io/home


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-15625798 Fri, 23 Aug 2024 00:00:00 -0400 1845 3 25 full false #24: Where in the World is Long Covid? #24: Where in the World is Long Covid? LongCovidMD@gmail.com
LongCovidMD.com

This podcast, like Long Covid, has a global reach. Whether we see one another or not, we are part of a new community. And this community, while struggling, is pretty amazing. Today I highlight the diverse location of listeners, to remind you that you are not alone in your struggle.  Did I give your town a shout-out? Did I miss it? 

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> LongCovidMD@gmail.com
LongCovidMD.com

This podcast, like Long Covid, has a global reach. Whether we see one another or not, we are part of a new community. And this community, while struggling, is pretty amazing. Today I highlight the diverse location of listeners, to remind you that you are not alone in your struggle.  Did I give your town a shout-out? Did I miss it? 

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-15577101 Fri, 16 Aug 2024 00:00:00 -0400 564 2 24 full false #23: "Where is the Finish Line?" Courtney Baker, Endurance Athlete with Long Covid #23: "Where is the Finish Line?" Courtney Baker, Endurance Athlete with Long Covid LongCovidMD.com
LongCovidMD@gmail.com


What happens when you go from running ultramarathons to having difficulty walking? Endurance runner Courtney Baker knows the answer too well. Courtney is an endurance athlete who has been navigating long COVID for three and a half years. In our conversation, she shares her experience before and after the pandemic, her ultimate diagnosis with long COVID, and the challenges she faces in managing her symptoms. She emphasizes the importance of finding a supportive community of people who understand what she's going through. Courtney also discusses the athlete mindset and how it can be both helpful and detrimental in approaching healing and recovery. She reflects on the importance of asking for help and finding balance while living with long COVID and shares her journey of learning to prioritize self-care and set boundaries. Courtney emphasizes the value of community and the support of loved ones in navigating the challenges of long COVID and encourages listeners to embrace acceptance and find joy in the midst of their struggles.

Reach Out To Courtney

Email: courtney90111@gmail.com

Facebook: https://www.facebook.com/courtney.lynne.baker/

Long Covid Support for Endurance Athletes

https://www.facebook.com/groups/longcovidsupportforenduranceathletes




Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> LongCovidMD.com
LongCovidMD@gmail.com


What happens when you go from running ultramarathons to having difficulty walking? Endurance runner Courtney Baker knows the answer too well. Courtney is an endurance athlete who has been navigating long COVID for three and a half years. In our conversation, she shares her experience before and after the pandemic, her ultimate diagnosis with long COVID, and the challenges she faces in managing her symptoms. She emphasizes the importance of finding a supportive community of people who understand what she's going through. Courtney also discusses the athlete mindset and how it can be both helpful and detrimental in approaching healing and recovery. She reflects on the importance of asking for help and finding balance while living with long COVID and shares her journey of learning to prioritize self-care and set boundaries. Courtney emphasizes the value of community and the support of loved ones in navigating the challenges of long COVID and encourages listeners to embrace acceptance and find joy in the midst of their struggles.

Reach Out To Courtney

Email: courtney90111@gmail.com

Facebook: https://www.facebook.com/courtney.lynne.baker/

Long Covid Support for Endurance Athletes

https://www.facebook.com/groups/longcovidsupportforenduranceathletes




Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-15555184 Fri, 09 Aug 2024 00:00:00 -0400 3089 2 23 full false #22: Long Covid and Personal Identity #22: Long Covid and Personal Identity LongCovidMD.com

How has your personal identity been challenged by your Long Covid symptoms? I've spent a lot of time exploring this question and today I'm sharing what answers have come up for me.

Our identity is connected to the titles we hold, and those titles are attached to values and judgements.

I believe we don't have to lose ourselves when we have chronic illness, even if our world looks drastically different. 

How are you navigating challenges to your identity? Email me at longcovidmd@gmail.com


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> LongCovidMD.com

How has your personal identity been challenged by your Long Covid symptoms? I've spent a lot of time exploring this question and today I'm sharing what answers have come up for me.

Our identity is connected to the titles we hold, and those titles are attached to values and judgements.

I believe we don't have to lose ourselves when we have chronic illness, even if our world looks drastically different. 

How are you navigating challenges to your identity? Email me at longcovidmd@gmail.com


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-15516269 Fri, 02 Aug 2024 00:00:00 -0400 1154 2 22 full false #21: Spotting Long Covid Pseudoscience #21: Spotting Long Covid Pseudoscience Or Email at LongCovidMD@gmail.com


In this conversation, Dr Zeest Khan discusses the characteristics of pseudoscience accounts on social media that claim to provide reliable information about Long Covid. She provides a checklist to help identify these unreliable sources, including triggering fear and anxiety, using all or none statements, selling products related to their claims, speaking outside their area of expertise, and using dense and complicated language. Zeest emphasizes the importance of verifying credentials and understanding the capacity in which the person is speaking. 

Sources:
Dr Andrea Love https://immunologic.substack.com/
How To Spot A Con Artist https://www.michigan.gov/reinventretirement/protection/investment-scams/how-to-spot-a-con-artist


Keywords

long COVID, pseudoscience, social media, reliable sources, checklist, fear and anxiety, all or none statements, selling products, expertise, credentials, complicated language


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Or Email at LongCovidMD@gmail.com


In this conversation, Dr Zeest Khan discusses the characteristics of pseudoscience accounts on social media that claim to provide reliable information about Long Covid. She provides a checklist to help identify these unreliable sources, including triggering fear and anxiety, using all or none statements, selling products related to their claims, speaking outside their area of expertise, and using dense and complicated language. Zeest emphasizes the importance of verifying credentials and understanding the capacity in which the person is speaking. 

Sources:
Dr Andrea Love https://immunologic.substack.com/
How To Spot A Con Artist https://www.michigan.gov/reinventretirement/protection/investment-scams/how-to-spot-a-con-artist


Keywords

long COVID, pseudoscience, social media, reliable sources, checklist, fear and anxiety, all or none statements, selling products, expertise, credentials, complicated language


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-15439144 Fri, 19 Jul 2024 01:00:00 -0400 1233 2 21 full false #20: How Do You Love Yourself Through Your Limitations? #20: How Do You Love Yourself Through Your Limitations? I want to be back to my baseline immediately, and I'm getting impatient. But the impatience itself is draining me. How do you show yourself grace? How do you love yourself through your limitations? 

Send me your advice. Tell me what keeps you going. Email me at LongCovidMD@gmail.com




Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> I want to be back to my baseline immediately, and I'm getting impatient. But the impatience itself is draining me. How do you show yourself grace? How do you love yourself through your limitations? 

Send me your advice. Tell me what keeps you going. Email me at LongCovidMD@gmail.com




Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Buzzsprout-15402299 Fri, 12 Jul 2024 15:00:00 -0400 482 full false #19: Low-Dose Naltrexone (LDN) for Long Covid #19: Low-Dose Naltrexone (LDN) for Long Covid Check out the new website LongCovidMD.com
Email me at LongCovidMD@gmail.com

On this installment of The Medicine Cabinet series, I tackle the use of Low-Dose Naltrexone (LDN) to treat Long Covid symptoms. Naltrexone is a fascinating drug that works one way at high doses and another way at low doses. In low doses, it can be a potent anti-inflammatory, and it may help reverse autoimmune conditions. 
There's a lot more to it. I explain how LDN works, who should consider it, and obstacles to access. I also share practical tips to dosing that will help you avoid, or at least understand, side effects. 

Links:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6313374/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10862402/
https://www.physio-pedia.com/Glial_Cells


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Check out the new website LongCovidMD.com
Email me at LongCovidMD@gmail.com

On this installment of The Medicine Cabinet series, I tackle the use of Low-Dose Naltrexone (LDN) to treat Long Covid symptoms. Naltrexone is a fascinating drug that works one way at high doses and another way at low doses. In low doses, it can be a potent anti-inflammatory, and it may help reverse autoimmune conditions. 
There's a lot more to it. I explain how LDN works, who should consider it, and obstacles to access. I also share practical tips to dosing that will help you avoid, or at least understand, side effects. 

Links:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6313374/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10862402/
https://www.physio-pedia.com/Glial_Cells


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-15353245 Fri, 05 Jul 2024 00:00:00 -0400 1521 full false #18: "A Vision of the Future That's About Progress [and] Coming Together" - Ezra Spier, Long Covid Moonshot #18: "A Vision of the Future That's About Progress [and] Coming Together" - Ezra Spier, Long Covid Moonshot How do we find community when we're energy-limited?  Long Covid Moonshot member Ezra Spier helps me answer this question. Ezra is an Oakland, California-based patient researcher, person with Long Covid, and creator of the website Long Covid Studies . He is a member of Long Covid Moonshot and the Patient-Led Research Collaborative. Outside of Long Covid advocacy, Ezra is an independent operations and technology consultant who helps organizations thrive through periods of growth.  

We talk about advocacy, leveraging our strengths, and birds!

Links:
Longcovidstudies.net
Longcovidmoonshot.com
The Spoonbill Club https://buttondown.email/edyong209/archive/the-eds-up-birding-for-long-haulers/

Find Ezra Spier
https://x.com/ahhrrr

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> How do we find community when we're energy-limited?  Long Covid Moonshot member Ezra Spier helps me answer this question. Ezra is an Oakland, California-based patient researcher, person with Long Covid, and creator of the website Long Covid Studies . He is a member of Long Covid Moonshot and the Patient-Led Research Collaborative. Outside of Long Covid advocacy, Ezra is an independent operations and technology consultant who helps organizations thrive through periods of growth.  

We talk about advocacy, leveraging our strengths, and birds!

Links:
Longcovidstudies.net
Longcovidmoonshot.com
The Spoonbill Club https://buttondown.email/edyong209/archive/the-eds-up-birding-for-long-haulers/

Find Ezra Spier
https://x.com/ahhrrr

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-15323941 Fri, 28 Jun 2024 00:00:00 -0400 3328 2 18 full false #17 "Not All Storms Come To Disrupt Your Life" - KatherineMarie #17 "Not All Storms Come To Disrupt Your Life" - KatherineMarie Many people have Long Covid. Hear their voices. Podcast listener and nurse practitioner KatherineMarie shares her story.

Would you like to share your story? Email me at LongCovidMD@gmail.com

Listen to KatherineMarie's podcast "Long Covid Real Talk"
https://podcasts.apple.com/us/podcast/real-talk-about-long-covid/id1740051506


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Many people have Long Covid. Hear their voices. Podcast listener and nurse practitioner KatherineMarie shares her story.

Would you like to share your story? Email me at LongCovidMD@gmail.com

Listen to KatherineMarie's podcast "Long Covid Real Talk"
https://podcasts.apple.com/us/podcast/real-talk-about-long-covid/id1740051506


Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-15046534 Fri, 24 May 2024 00:00:00 -0400 1880 full false #16 "There's No Way This Is The Same Person" Physical Therapist Prof. Todd Davenport, PhD #16 "There's No Way This Is The Same Person" Physical Therapist Prof. Todd Davenport, PhD In all the years I practiced medicine, I didn't know much about fatigue-related conditions. While I was in the dark, researchers like Todd Davenport, Department Chair of Physical Therapy at the University of the Pacific, shed light on how fatigue affects patients with disease and even those who are healthy. In our interview, Todd shares how he and other physical therapists approach fatigue, how he saw Long Covid coming, and how to find a physical therapist who is right for you.

Follow me on X @doctor_zeest

Find Todd on X @sunsopeningband

Todd E. Davenport, PT, DPT, PhD, MPH
TODD DAVENPORT is Professor and Chair in the Department of Physical Therapy at University of the Pacific in Stockton, California. He earned his bachelor’s degrees in psychology and exercise science (sports medicine) from Willamette University in Salem, Oregon, Doctor of Physical Therapy degree from the University of Southern California in Los Angeles, California, Master of Public Health degree from the University of California at Berkeley, California, and Doctor of Philosophy in Health, Exercise, and Sport Sciences from the University of Portsmouth in the United Kingdom. Dr. Davenport is a scientific advisor to the Workwell Foundation and Chair of Long Covid Physio.

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> In all the years I practiced medicine, I didn't know much about fatigue-related conditions. While I was in the dark, researchers like Todd Davenport, Department Chair of Physical Therapy at the University of the Pacific, shed light on how fatigue affects patients with disease and even those who are healthy. In our interview, Todd shares how he and other physical therapists approach fatigue, how he saw Long Covid coming, and how to find a physical therapist who is right for you.

Follow me on X @doctor_zeest

Find Todd on X @sunsopeningband

Todd E. Davenport, PT, DPT, PhD, MPH
TODD DAVENPORT is Professor and Chair in the Department of Physical Therapy at University of the Pacific in Stockton, California. He earned his bachelor’s degrees in psychology and exercise science (sports medicine) from Willamette University in Salem, Oregon, Doctor of Physical Therapy degree from the University of Southern California in Los Angeles, California, Master of Public Health degree from the University of California at Berkeley, California, and Doctor of Philosophy in Health, Exercise, and Sport Sciences from the University of Portsmouth in the United Kingdom. Dr. Davenport is a scientific advisor to the Workwell Foundation and Chair of Long Covid Physio.

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-15102711 Mon, 20 May 2024 13:00:00 -0400 2669 full false #15 David Tuller, Holding Research Accountable #15 David Tuller, Holding Research Accountable The incomparable science journalist David Tuller (https://crowdfund.berkeley.edu/project/42302) shares how he dissects and reports on medical research. He made a name for himself contesting the methods used in the PACE trial, a study that claimed to support the use of cognitive behavioral therapy (CBT) and exercise as a treatment for ME/CFS, but has now been debunked. He sees similarities between the approach to ME and now Long Covid. I ask David about the legacy of the PACE trial today, and how we can we trust what we read in scientific journals.

David is an independent science journalist and holds a fellowship at UC Berkeley Center for Global Public Health. His position is entirely funded by donations from the public. Consider supporting his work here:  https://crowdfund.berkeley.edu/project/42302

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> The incomparable science journalist David Tuller (https://crowdfund.berkeley.edu/project/42302) shares how he dissects and reports on medical research. He made a name for himself contesting the methods used in the PACE trial, a study that claimed to support the use of cognitive behavioral therapy (CBT) and exercise as a treatment for ME/CFS, but has now been debunked. He sees similarities between the approach to ME and now Long Covid. I ask David about the legacy of the PACE trial today, and how we can we trust what we read in scientific journals.

David is an independent science journalist and holds a fellowship at UC Berkeley Center for Global Public Health. His position is entirely funded by donations from the public. Consider supporting his work here:  https://crowdfund.berkeley.edu/project/42302

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-14943661 Fri, 10 May 2024 00:00:00 -0400 4649 2 14 full false #14 The Medicine Cabinet: Paxlovid and Molnupiravir #14 The Medicine Cabinet: Paxlovid and Molnupiravir Welcome to The Medicine Cabinet, a series of episodes where I pull out a pill bottle and explain why it might be used in Long Covid.

Today we're covering the Paxlovid and Molnupiravir, the two antivirals currently FDA approved to treat acute covid infections, and sometimes Long Covid. They are very different drugs, with very different side effect profiles...and they're not for everyone. Learn the basics on the very first episode of the The Medicine Cabinet.

What's in your medicine cabinet? What drug or supplement do you want to learn more about? Email me at LongCovidMD@gmail.com

*The contents of this podcast are for educational purposes only and do not constitute medical advice. Talk to your medical professional before starting any new treatment.*

Links:
Molnupiravir https://www.covid19treatmentguidelines.nih.gov/therapies/antivirals-including-antibody-products/molnupiravir/
Paxlovid https://www.fda.gov/media/158165/download

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Welcome to The Medicine Cabinet, a series of episodes where I pull out a pill bottle and explain why it might be used in Long Covid.

Today we're covering the Paxlovid and Molnupiravir, the two antivirals currently FDA approved to treat acute covid infections, and sometimes Long Covid. They are very different drugs, with very different side effect profiles...and they're not for everyone. Learn the basics on the very first episode of the The Medicine Cabinet.

What's in your medicine cabinet? What drug or supplement do you want to learn more about? Email me at LongCovidMD@gmail.com

*The contents of this podcast are for educational purposes only and do not constitute medical advice. Talk to your medical professional before starting any new treatment.*

Links:
Molnupiravir https://www.covid19treatmentguidelines.nih.gov/therapies/antivirals-including-antibody-products/molnupiravir/
Paxlovid https://www.fda.gov/media/158165/download

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-14991457 Mon, 06 May 2024 00:00:00 -0400 912 2 3 full false #13: How Reinfection Affects Long Covid #13: How Reinfection Affects Long Covid Season 2 is here! It's also episode #13 so for something spooky, let's talk about getting reinfected with the virus that changed your life forever. Today I discuss how my recent reinfection felt, how reinfection affected my Long Covid symptoms, and how I responded. I'll share how antivirals work, who they work best for, and who shouldn't take them. We'll also peruse the existing literature on reinfection and Long Covid. 

How did reinfection affect you? Email me at LongCovidMD@gmail.com

Links:
https://www.fda.gov/media/158165/download
https://www.pfizer.com/science/coronavirus/severe-covid
https://www.covid19treatmentguidelines.nih.gov/therapies/antivirals-including-antibody-products/molnupiravir/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10454552/
https://www.longcovid.org/images/Documents/Reinfections_in_Long_Covid_Survey_Report_by_Long_Covid_Support_and_Long_Covid_Kids_080922.pdf

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Season 2 is here! It's also episode #13 so for something spooky, let's talk about getting reinfected with the virus that changed your life forever. Today I discuss how my recent reinfection felt, how reinfection affected my Long Covid symptoms, and how I responded. I'll share how antivirals work, who they work best for, and who shouldn't take them. We'll also peruse the existing literature on reinfection and Long Covid. 

How did reinfection affect you? Email me at LongCovidMD@gmail.com

Links:
https://www.fda.gov/media/158165/download
https://www.pfizer.com/science/coronavirus/severe-covid
https://www.covid19treatmentguidelines.nih.gov/therapies/antivirals-including-antibody-products/molnupiravir/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10454552/
https://www.longcovid.org/images/Documents/Reinfections_in_Long_Covid_Survey_Report_by_Long_Covid_Support_and_Long_Covid_Kids_080922.pdf

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-14988941 Fri, 03 May 2024 00:00:00 -0400 3094 full false #12: Anesthesia & Long Covid #12: Anesthesia & Long Covid In the final episode of Season 1 I discuss my favorite subject, anesthesiology. I explain how anesthesia works, whether it's an injection at the dentist or general anesthesia for major surgery, and discuss how your experience with anesthesia might change now that you have Long Covid. 

Expect a break in episodes while I prepare Season 2.  It's going to be bigger, bolder and even more informative. Follow me on X to stay updated.

Links
My article about Long Covid for the California Society of Anesthesiologists
https://csahq.org/2022/06/13/experiencing-long-covid-as-a-physician-and-a-patient/

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> In the final episode of Season 1 I discuss my favorite subject, anesthesiology. I explain how anesthesia works, whether it's an injection at the dentist or general anesthesia for major surgery, and discuss how your experience with anesthesia might change now that you have Long Covid. 

Expect a break in episodes while I prepare Season 2.  It's going to be bigger, bolder and even more informative. Follow me on X to stay updated.

Links
My article about Long Covid for the California Society of Anesthesiologists
https://csahq.org/2022/06/13/experiencing-long-covid-as-a-physician-and-a-patient/

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-14767907 Mon, 25 Mar 2024 22:00:00 -0400 2453 1 12 full false #11: How To Build a Relationship With Your Doctor #11: How To Build a Relationship With Your Doctor We doctors are an odd bunch, I will admit, but the medical system is even more odd. It's complicated, it's constricting, and the business of medicine infiltrates the patient-physician relationship.  Most doctors are as unhappy about this as you are. Today I explain the constraints doctors work within that directly affect your experience as a patient, and how to work within these constraints to make the most out of your doctor visits. 

Links:
Why Doctor Visits Are So Short
https://www.kevinmd.com/2014/05/10-minutes-doctor.html

Changes in Patient Outcomes Associated With Private Equity Acquisition
https://jamanetwork.com/journals/jama/article-abstract/2813379

Physician Burnout 
https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2810256




Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> We doctors are an odd bunch, I will admit, but the medical system is even more odd. It's complicated, it's constricting, and the business of medicine infiltrates the patient-physician relationship.  Most doctors are as unhappy about this as you are. Today I explain the constraints doctors work within that directly affect your experience as a patient, and how to work within these constraints to make the most out of your doctor visits. 

Links:
Why Doctor Visits Are So Short
https://www.kevinmd.com/2014/05/10-minutes-doctor.html

Changes in Patient Outcomes Associated With Private Equity Acquisition
https://jamanetwork.com/journals/jama/article-abstract/2813379

Physician Burnout 
https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2810256




Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-14658832 Sat, 09 Mar 2024 17:00:00 -0500 2790 1 11 full false #10: How To Stay Informed on Long Covid Without Becoming Overloaded #10: How To Stay Informed on Long Covid Without Becoming Overloaded Some significant news hit the press this week, with significant backlash. Today I explain the news, the backlash, and how I stay up to date on Long Covid without getting swept up in the response. Emotions are important and require energy, so I share my step-by-step approach to processing heavy events without damaging my recovery. 

What do you think? Email comments to LongCovidMD@gmail.com

Links

Deep Phenotyping of Post-Infectious Myalgic Encephalomyelitis
https://www.nature.com/articles/s41467-024-45107-3

David Tuller, Virology Blog, Interview with Neuroscientist Michael VanElzakker
https://virology.ws/2024/02/28/trial-by-error-an-interview-with-neuroscientist-michael-vanelzakker-about-the-just-published-and-long-awaited-nih-study/

CDC Updated Covid Isolation Guidelines
https://www.cdc.gov/respiratory-viruses/background/index.html

Ashish Jha's X post
https://x.com/ashishkjha/status/1763661662739943810?s=20

Happiness Lab Podcast
https://www.pushkin.fm/podcasts/the-happiness-lab-with-dr-laurie-santos

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Some significant news hit the press this week, with significant backlash. Today I explain the news, the backlash, and how I stay up to date on Long Covid without getting swept up in the response. Emotions are important and require energy, so I share my step-by-step approach to processing heavy events without damaging my recovery. 

What do you think? Email comments to LongCovidMD@gmail.com

Links

Deep Phenotyping of Post-Infectious Myalgic Encephalomyelitis
https://www.nature.com/articles/s41467-024-45107-3

David Tuller, Virology Blog, Interview with Neuroscientist Michael VanElzakker
https://virology.ws/2024/02/28/trial-by-error-an-interview-with-neuroscientist-michael-vanelzakker-about-the-just-published-and-long-awaited-nih-study/

CDC Updated Covid Isolation Guidelines
https://www.cdc.gov/respiratory-viruses/background/index.html

Ashish Jha's X post
https://x.com/ashishkjha/status/1763661662739943810?s=20

Happiness Lab Podcast
https://www.pushkin.fm/podcasts/the-happiness-lab-with-dr-laurie-santos

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-14626778 Mon, 04 Mar 2024 15:00:00 -0500 2900 1 10 full false #9: Why America Hasn't Solved Long Covid #9: Why America Hasn't Solved Long Covid America hasn't found a cure or even a treatment for Long Covid. Today I explain why. It's about money, but it's more complicated than just money.

Links:
RECOVER https://recovercovid.org/
https://www.statnews.com/2023/08/09/long-covid-nih-trials/#:~:text=Among%20the%20trials%20announced%20so,along%20with%20several%20behavioral%20options.
AHRQ  https://www.ahrq.gov/coronavirus/long-covid.html
PAHPA https://aspr.hhs.gov/legal/pahpa/Pages/default.aspx

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> America hasn't found a cure or even a treatment for Long Covid. Today I explain why. It's about money, but it's more complicated than just money.

Links:
RECOVER https://recovercovid.org/
https://www.statnews.com/2023/08/09/long-covid-nih-trials/#:~:text=Among%20the%20trials%20announced%20so,along%20with%20several%20behavioral%20options.
AHRQ  https://www.ahrq.gov/coronavirus/long-covid.html
PAHPA https://aspr.hhs.gov/legal/pahpa/Pages/default.aspx

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-14475224 Fri, 09 Feb 2024 19:00:00 -0500 1790 1 9 full false #8: The US Senate Committee Hearing on Long Covid: Take-Aways and Context #8: The US Senate Committee Hearing on Long Covid: Take-Aways and Context Congressional support for Long Covid research influences all of us, but can be hard to understand. I researched so you don't have to, and in this episode I tell you what I've learned.

On January 18, 2024 the US Senate HELP Committee held a hearing "Addressing Long Covid: Advancing Research and Improving Patient Care." I'll explain the who/what/where and why and explain what Long Covid research funding exists today.

Follow me on X @doctor_zeest

Links:
https://www.help.senate.gov/hearings/addressing-long-covid-advancing-research-and-improving-patient-care

Bernie Sanders Op-Ed: "US Is Turning its Back on Long Covid"
https://www.usatoday.com/story/opinion/voices/2024/01/26/long-covid-paxlovid-costs-plaguing-american-healthcare/72337750007/

Senators Kaine/Young/Inhoff Advocate for LC
https://thehill.com/opinion/congress-blog/4181662-after-the-pandemic-ends-long-covid-still-needs-congressional-attention/

Young, Kaine Introduce Bill to Support Americans Living with Long Covid

https://www.young.senate.gov/newsroom/press-releases/young-kaine-introduce-bill-to-support-americans-living-with-long-covid

RECOVER Initiative
https://recovercovid.org/

AHRQ funding for Long Covid
https://www.ahrq.gov/coronavirus/long-covid.html

Long Covid Moonshot
https://longcovidmoonshot.com/

Long Covid Action Project Media Release
https://longcovidactionproject.com/long-covid-activists-disrupt-senate-hearing/





Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Congressional support for Long Covid research influences all of us, but can be hard to understand. I researched so you don't have to, and in this episode I tell you what I've learned.

On January 18, 2024 the US Senate HELP Committee held a hearing "Addressing Long Covid: Advancing Research and Improving Patient Care." I'll explain the who/what/where and why and explain what Long Covid research funding exists today.

Follow me on X @doctor_zeest

Links:
https://www.help.senate.gov/hearings/addressing-long-covid-advancing-research-and-improving-patient-care

Bernie Sanders Op-Ed: "US Is Turning its Back on Long Covid"
https://www.usatoday.com/story/opinion/voices/2024/01/26/long-covid-paxlovid-costs-plaguing-american-healthcare/72337750007/

Senators Kaine/Young/Inhoff Advocate for LC
https://thehill.com/opinion/congress-blog/4181662-after-the-pandemic-ends-long-covid-still-needs-congressional-attention/

Young, Kaine Introduce Bill to Support Americans Living with Long Covid

https://www.young.senate.gov/newsroom/press-releases/young-kaine-introduce-bill-to-support-americans-living-with-long-covid

RECOVER Initiative
https://recovercovid.org/

AHRQ funding for Long Covid
https://www.ahrq.gov/coronavirus/long-covid.html

Long Covid Moonshot
https://longcovidmoonshot.com/

Long Covid Action Project Media Release
https://longcovidactionproject.com/long-covid-activists-disrupt-senate-hearing/





Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-14460882 Wed, 07 Feb 2024 17:00:00 -0500 3065 1 8 full false #7: 5 Things I'm Doing This Year as a Doctor With Long Covid #7: 5 Things I'm Doing This Year as a Doctor With Long Covid Welcome 2024! This is NOT another new years resolution list. Instead, I discuss the priorities I set for myself to support my recovery and make the most of my resources. Some of them require action around the new year, some of them require reflection throughout the year. On this episode, I share 5 of the things I am doing around the New Year to protect my health and continue my recovery from Long Covid.

I want to hear from you! Email me at LongCovidMD@gmail.com

Find me on X @doctor_zeest

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Welcome 2024! This is NOT another new years resolution list. Instead, I discuss the priorities I set for myself to support my recovery and make the most of my resources. Some of them require action around the new year, some of them require reflection throughout the year. On this episode, I share 5 of the things I am doing around the New Year to protect my health and continue my recovery from Long Covid.

I want to hear from you! Email me at LongCovidMD@gmail.com

Find me on X @doctor_zeest

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-14323085 Tue, 16 Jan 2024 17:00:00 -0500 2012 1 7 full false #6: The Latest Long Covid Science - Summary of UCSF Grand Rounds with Ziad al-Aly, Michael Peluso and Akiko Iwasaki #6: The Latest Long Covid Science - Summary of UCSF Grand Rounds with Ziad al-Aly, Michael Peluso and Akiko Iwasaki It's easy to feel out of touch with Long Covid science.  Recently, three of the most prestigious Long Covid researchers updated a group of prestigious physicians on this very topic. Lucky for us the meeting was recorded and shared. Lucky for you, I've summarized it and translated the medical jargon.  

In this episode I summarize the words of Drs Ziad al-Aly, Michael Peluso and Akiko Iwasaki, as they presented their research to a group of physicians at UCSF. The meeting, Internal Medicine Grand Rounds was held on December 14, 2023 and was moderated by department Chair Dr Bob Wachter. The scientists each discuss their groundbreaking Long Covid findings, their current research studies, and their predictions for the future.  I did my best to present their work in a way that is accurate and accessible to everyone.  

Email me at LongCovidMD@gmail.com

Watch the original meeting on YouTube at: https://www.youtube.com/watch?v=rMt6ZV-hHSE

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> It's easy to feel out of touch with Long Covid science.  Recently, three of the most prestigious Long Covid researchers updated a group of prestigious physicians on this very topic. Lucky for us the meeting was recorded and shared. Lucky for you, I've summarized it and translated the medical jargon.  

In this episode I summarize the words of Drs Ziad al-Aly, Michael Peluso and Akiko Iwasaki, as they presented their research to a group of physicians at UCSF. The meeting, Internal Medicine Grand Rounds was held on December 14, 2023 and was moderated by department Chair Dr Bob Wachter. The scientists each discuss their groundbreaking Long Covid findings, their current research studies, and their predictions for the future.  I did my best to present their work in a way that is accurate and accessible to everyone.  

Email me at LongCovidMD@gmail.com

Watch the original meeting on YouTube at: https://www.youtube.com/watch?v=rMt6ZV-hHSE

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-14177158 Tue, 19 Dec 2023 19:00:00 -0500 2395 1 6 full false #5: Recovering from a Long Covid Setback #5: Recovering from a Long Covid Setback I got sick, on top of being sick. So today we take a side journey to discuss what it takes to bounce back from a crash, and how I deal with the uncertainty of life with Long Covid. 

What do you think about when you're sick in bed? Today I'll tell you what I think about, and it's not always fun. I discuss motherhood, how the ghosts of my patients live with me, and how my friends are literally a part of my recovery plan. Grab a cup of tea and get in your feelings with me. I've never gotten so personal.

Email me at LongCovidMD@gmail.com
Twitter.com/doctor_zeest

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> I got sick, on top of being sick. So today we take a side journey to discuss what it takes to bounce back from a crash, and how I deal with the uncertainty of life with Long Covid. 

What do you think about when you're sick in bed? Today I'll tell you what I think about, and it's not always fun. I discuss motherhood, how the ghosts of my patients live with me, and how my friends are literally a part of my recovery plan. Grab a cup of tea and get in your feelings with me. I've never gotten so personal.

Email me at LongCovidMD@gmail.com
Twitter.com/doctor_zeest

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-14150598 Thu, 14 Dec 2023 20:00:00 -0500 2709 1 5 full false #4: Building a Medical Dream Team Part 1: How to Read a Hospital Badge #4: Building a Medical Dream Team Part 1: How to Read a Hospital Badge Today's episode kicks off a series that will help you become an discerning patient.  How much do you know about the health professionals taking care of you?  Do you really understand the training of different hospital staff?  On today's episode, I teach you how to read a hospital badge. I explain the difference between MD and DO, tell you if an APRN is the same thing as a nurse practitioner, and describe what an MA does. I'll also share which health care professionals you probably need but don't know about. Listen to find out!

Email me at LongCovidMD@gmail.com
Find me on X @Doctor_Zeest

Disclaimer: While the host is a licensed physician, listening to this podcast does not establish a patient-physician relationship. The contents are the host's opinions and do not constitute medical advice.

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Today's episode kicks off a series that will help you become an discerning patient.  How much do you know about the health professionals taking care of you?  Do you really understand the training of different hospital staff?  On today's episode, I teach you how to read a hospital badge. I explain the difference between MD and DO, tell you if an APRN is the same thing as a nurse practitioner, and describe what an MA does. I'll also share which health care professionals you probably need but don't know about. Listen to find out!

Email me at LongCovidMD@gmail.com
Find me on X @Doctor_Zeest

Disclaimer: While the host is a licensed physician, listening to this podcast does not establish a patient-physician relationship. The contents are the host's opinions and do not constitute medical advice.

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-14061247 Thu, 30 Nov 2023 22:00:00 -0500 2661 1 4 full false #3: Sick Like a Doctor #3: Sick Like a Doctor Today's episode I share the lessons I learned during my medical career that have helped my recovery. It includes an exercise you can do to clarify your symptoms and better communicate with your own doctor.

Find me on Twitter/X  @doctor_zeest
Email me at LongCovidMD@gmail.com

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Today's episode I share the lessons I learned during my medical career that have helped my recovery. It includes an exercise you can do to clarify your symptoms and better communicate with your own doctor.

Find me on Twitter/X  @doctor_zeest
Email me at LongCovidMD@gmail.com

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-13989121 Fri, 17 Nov 2023 01:00:00 -0500 2942 1 3 full false #2: My Long Covid Story #2: My Long Covid Story Today I talk about grief, the definitions of and similarities between Long Covid and Myalgic Encephalomyelitis, and my Long Covid story. 

References:
https://www.cdc.gov/me-cfs/pdfs/Could-You-Have-MECFS_508.pdf
https://www.covid.gov/longcovid/definitions
https://jheor.org/post/1746-economic-effects-of-long-covid-even-larger-than-we-thought

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Today I talk about grief, the definitions of and similarities between Long Covid and Myalgic Encephalomyelitis, and my Long Covid story. 

References:
https://www.cdc.gov/me-cfs/pdfs/Could-You-Have-MECFS_508.pdf
https://www.covid.gov/longcovid/definitions
https://jheor.org/post/1746-economic-effects-of-long-covid-even-larger-than-we-thought

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Dr. Zeest Khan Buzzsprout-13943319 Thu, 09 Nov 2023 17:00:00 -0500 3022 1 2 full false #1: My Life Before COVID #1: My Life Before COVID In this brief episode, I introduce you to the life I had before LongCOVID and how my pre-COVID experiences guide my current recovery. 

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> In this brief episode, I introduce you to the life I had before LongCOVID and how my pre-COVID experiences guide my current recovery. 

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Zeest Buzzsprout-13897524 Thu, 02 Nov 2023 15:00:00 -0400 1218 1 1 full false Long Covid, MD Podcast Trailer Long Covid, MD Podcast Trailer Welcome to the first peak into our podcast, "Long Covid, MD"! I'm Zeest Khan, a board-certified physician who has been sidelined with LongCovid. For 10 years I saved the lives of critically ill patients and now I'm determined to save my own. I'm opening up about my journey and  want to share the medical insights that guide my recovery.  I'm offering practical tools to help you navigate your medical options and maintain some joy in the face of this confounding disease. Let's go!

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Welcome to the first peak into our podcast, "Long Covid, MD"! I'm Zeest Khan, a board-certified physician who has been sidelined with LongCovid. For 10 years I saved the lives of critically ill patients and now I'm determined to save my own. I'm opening up about my journey and  want to share the medical insights that guide my recovery.  I'm offering practical tools to help you navigate your medical options and maintain some joy in the face of this confounding disease. Let's go!

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

]]> Zeest Buzzsprout-13882580 Tue, 31 Oct 2023 13:00:00 -0400 175 1 trailer false