Raising Disabled

It's OK to Ask for a Hospital Transfer with the Caffeinated Caregivers - Part 2

Fri, 04 Sep 2026 00:00:00 -0500

In this episode of Raising Disabled, we talked to the girls of Caffeinated Caregivers, Alyssa Nutile and Erica Stearns.

In part 2 of this 2 part episode, we talk with Alyssa and Erica about their experiences with asking for a hospital transfer while their children were inpatient. We also share how we advocated for our kids and why you need to know your rights as a parent or patient.

Alyssa and Erica are a MUST FOLLOW on Instagram at @caffeinated_caregivers because they are the queens of hilarious disability parenting memes.

Please subscribe, leave a review, and follow us on social media to know about upcoming episodes and to participate in this podcast.

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Caffeinated Caregivers: Alyssa Nutile and Erica Stearns - Part 1

Fri, 21 Aug 2026 00:00:00 -0500

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In this episode of Raising Disabled, we talked to the girls of Caffeinated Caregivers, Alyssa Nutile and Erica Stearns.

In part 1 of this 2 part episode, we talk about Alyssa and Erica's disabilities that they themselves have and they both share about their own children's disabilities and unique struggles.

They are a MUST FOLLOW on Instagram at @caffeinated_caregivers because they are the queens of hilarious disability parenting memes.

In part 2 of this episode, we are going to continue our conversation and talk about all four of our experiences with requesting a hospital transfer while inpatient and the highs and lows that come with being transferred. We also share how we advocated for ourselves and why you need to know your rights as a parent or patient.

40+ Tips to Avoid Caregiver Burnout

Fri, 07 Aug 2026 00:00:00 -0500

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In this episode of the Raising Disabled Podcast, we are talking about 40+ ways to avoid caregiver burnout.

We talk about:

what caregiver burnout is,
what it can feel like physically and emotionally,
how and why it happens to every single caregiver at some point,
and then we share 40+ tips to avoid burnout or make it more manageable.

How to Create an Accessible Church with Abby Howard

Fri, 24 Jul 2026 00:00:00 -0500

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In this episode of Raising Disabled, we talked to Abby Howard from the Accessible Gospel about how to create a church that is accessible and inclusive to the disability community.

She shares practical tips for how to implement a program at your local church and shares why it is so important for churches to be welcoming to disabled children and adults.

You can follow Abby online @theaccessiblegospel

High Low Buffalo - July 2026

Fri, 10 Jul 2026 00:00:00 -0500

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In this episode, Deonna and Rhandyl share the high, low, and buffalo (random thing that happened) from the last few weeks.

Raising Disabled Voices - Brooklyn Boyer

Fri, 26 Jun 2026 00:00:00 -0500

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In this episode, we talked to Brooklyn Boyer about her injury to her C-5 vertebrae that resulted in becoming a quadriplegic. We talked about her therapy journey, her upcoming wedding, what she does when she is having a tough day, and how her faith has gotten her through her darkest days.

You can follow Brooklyn online @brooklyn.boy3r and on TikTok!

Avoiding Glass Child Syndrome with Deanna Dawson, LPC

Fri, 12 Jun 2026 00:00:00 -0500

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In this episode of Raising Disabled, we are talking about how to avoid "glass child syndrome" with Deanna Dawson LPC.

Deanna is co-owner of The Springs Therapy in Lubbock, Texas and is a parent of her disabled daughter Joy. You can learn more about her family in our episode Deanna Raising Joy.

Vernon Jackson - The Purpose Driven Barber

Fri, 29 May 2026 00:00:00 -0500

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In this episode of Raising Disabled, we talked to Vernon Jackson about cutting disabled children's hair, his viral haircut videos, and why he has decided to make this into a ministry for the disabled community.

To learn more about how to donate a haircut to a child, visit Vernon's website at giftedevent.com and follow him on Instagram and TikTok too!

Raising Disabled Voices - Dr. Tye Martin

Fri, 15 May 2026 12:00:00 -0500

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In this episode, we talk to Dr. Tye Martin about his life with Duchenne muscular dystrophy, his academic career, and what it's like living with a disability.

You can follow Tye on Instagram @dr.tyedmartin or subscribe to his podcast The TYEPOD HERE.

High Low Buffalo - May 2026

Fri, 01 May 2026 00:00:00 -0500

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In this episode, Deonna and Rhandyl share the high, low, and buffalo (random thing that happened) from spring break, Easter, and the past few weeks.

Stacy Raising Addy

Fri, 17 Apr 2026 00:00:00 -0500

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In this episode of Raising Disabled, we talked to Stacy Faulkner about raising her daughter Addy with Cerebral Palsy and their adoption journey.

You can learn more about Stacy by following their story on Facebook.

Dumb Things People Say - God Never Gives You More Than You Can Handle with guest Chad Bird

Fri, 03 Apr 2026 00:00:00 -0500

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In this episode of Dumb Things People Say we talk about the popular phrase “God never gives you more than you can handle” with our special guest Chad Bird.

Chad is a Scholar in Residence at 1517, where he brings his deep knowledge of Scripture and theology to readers, listeners, and audiences around the world.

You can learn more about Chad by following him on Instagram at @chadlbird or listen to his podcast HERE.

Raising Disabled Voices - Logan Knowles

Fri, 20 Mar 2026 00:00:00 -0500

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In this episode of Raising Disabled, Deonna and Rhandyl raise the voice of Logan Knowles. Logan opens up about his birth story and Cerebral Palsy diagnosis. He shares the challenges of learning to walk as a child and reaching independence by age eleven. He tells us about how sports—especially skiing—transformed his life and confidence while living with cerebral palsy.

Logan also talks about his experience training for and completing the NYC Marathon and his passion for speaking and nonprofit work to inspire others. You can learn more about Logan by visiting his website https://loganknowles.fit and on Instagram @logan_knowles14.

High Low Buffalo - March 2026

Fri, 06 Mar 2026 00:00:00 -0600

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In this episode, Deonna and Rhandyl share the high, low, and buffalo (random thing that happened) from the first few months of the year.

Grace Raising Nella

Fri, 20 Feb 2026 00:00:00 -0600

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In this episode, we talked to Grace Grutter about raising her daughter Nella, who has SMA.

To find out more about Grace, follow her on Instagram @bowennellaandco

What It's Like Having Nurses In Our Home 24/7

Fri, 06 Feb 2026 00:00:00 -0600

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In this episode, we’re pulling back the curtain on what it’s really like to raise a disabled child with home health nurses in your home—every day, all the time. The good, the awkward, the funny, and the parts no one prepares you for.

Raising Disabled Voices - Miracle Pelayo

Fri, 23 Jan 2026 00:00:00 -0600

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In this episode, we talked to actress, model, and disability advocate Miracle Pelayo.

To find out more about Miracle, visit her website miraclepelayo.com or follow her on Instagram @miraclepelayooficial TikTok @miraclepelayo_ or Twitter/X @miraclepelayo20

High Low Buffalo - January 2026

Fri, 09 Jan 2026 00:00:00 -0600

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In this episode, Deonna and Rhandyl share the high, low, and buffalo (random thing that happened) from the holiday break. We share all about our Thanksgiving, Christmas, family events, and everything in between that made our holidays so fun this year!

Jesus and Disability with Chris H. Hulshof

Fri, 14 Nov 2025 00:00:00 -0600

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In this episode, Deonna and Rhandyl talk with Dr. Chris Hulshof, author of Jesus and Disability: A Guide to Creating an Inclusive Church. He shares how raising his son with disabilities has shaped his faith, theology, and approach to ministry.

Together, they discuss why disability isn’t something to fix but something to embrace, how Jesus modeled inclusion, and what churches can do to create spaces where everyone belongs.

High Low Buffalo - October 2025

Fri, 31 Oct 2025 00:00:00 -0500

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In this episode, Deonna and Rhandyl share the high, low, and buffalo (random thing that happened) from the past month. From anniversary vacations, to speaking engagements, to family loss and emergencies, it's been an exciting past few weeks!

Are We Better Parents After Raising Disabled Children?

Fri, 17 Oct 2025 00:00:00 -0500

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Parenting changes us—but parenting a disabled child has transformed us in ways we never expected. In this episode, we talk about how raising our disabled daughters has reshaped our views on parenting, life, and ourselves. Are we better parents now…or just different ones?

Drawing from comments from our incredible community on Instagram and Facebook, this conversation explores the joys, guilt, resilience, and growth that come from raising disabled kids.

The Butterfly Pig

Fri, 03 Oct 2025 00:00:00 -0500

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In this episode of Raising Disabled, we talked to pediatric oncology nurse Mary Jenner, the founder of The Butterfly Pig. She has created an innovative company that is making toys that mirror real medical equipment that children interact with in the hospital and at home.

If you would like to donate towards a child receiving a toy from The Butterfly Pig to reduce that child's anxiety surrounding their medical equipment, check out her Wishful Wings program.

Caroline Raising Briella

Fri, 19 Sep 2025 00:00:00 -0500

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In this episode of Raising Disabled, we talk to Caroline about raising her daughter Briella who has Cerebral Palsy. Caroline is the social media manager for our sponsors Altimate Medical and Zing Standers.

Follow Caroline on Instagram @briellaandme

High Low Buffalo - September 2025

Fri, 05 Sep 2025 00:00:00 -0500

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In this episode, Deonna and Rhandyl share the high, low, and buffalo (random thing that happened) from the past few weeks. From vacations, concerts, and new ventilators to two hospitalizations and birthday parties, it's been a crazy past month!

How to Handle More Than You Can Handle with Amanda Griffith Atkins

Fri, 08 Aug 2025 00:00:00 -0500

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In this episode, we talk to Amanda Griffith Atkins about her new book How to Handle More Than You Can Handle.

We talk about:

how to get out of survival mode,
what trauma does to your brain,
how to handle the grief associated with disability,
how to practice radical acceptance,
and how to make meaning in your own life.

Follow Amanda on Instagram @amanda.griffith.atkins and buy her book HERE!

Dumb Things People Say - Unsolicited Medical Advice

Fri, 25 Jul 2025 00:00:00 -0500

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In this episode, we are continuing our series "Dumb Things People Say" by talking about our feelings about receiving unsolicited medical advice from friends, family, and strangers.

We are sharing stories about advice that we have received and that our friends on Instagram have experienced. We talk about what not to say, how we actually want to be supported by those who want to be an advocate, and we give you some ideas as the parent of a disabled child of responses if you receive unwanted medical advice.

Check out the other episodes in our "Dumb Things People Say" here:

When Are They Going to Get Better?

God Give Special Kids to Special People

You Are So Strong

Everything Happens for a Reason

High Low Buffalo - July 2025

Fri, 11 Jul 2025 00:00:00 -0500

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In this episode, Deonna and Rhandyl share the high, low, and buffalo (random thing that happened) from the last couple of months.

Our prayers are with the flood victims in our home state of Texas. We compiled a small list of places where you can donate to people in need like we have:

https://cftexashillcountry.fcsuite.com/erp/donate/create/fund?funit_id=4201

https://spiritofgiving.org/donate/?int=curbside-home-hero.hill-country-disaster-relief

https://www.cbsnews.com/texas/news/where-to-donate-help-central-texas-flood-recovery/

Brady Crandall - Founder of Youth Crews

Fri, 27 Jun 2025 00:00:00 -0500

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In this episode, we talked to Brady Crandall the co-founder of Youth Crews Diapers.

To learn more about these new diapers made just for kids, visit their website HERE.

Follow them on Instagram at @youth.crews

Alex Raising Mattie

Fri, 13 Jun 2025 00:00:00 -0500

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In this episode, we talked to Alex Dragich about raising her daughter Mattie. Mattie was diagnosed with a rare genetic syndrome called KAT6B.

To follow Alex and Mattie's journey, follow them HERE!

The Autism Dad

Fri, 30 May 2025 00:00:00 -0500

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In this episode, we talk to Rob Gorski AKA The Autism Dad about his 3 autistic sons.

You can learn more about Rob, his mission to educate about autism, and his podcast at theautismdad.com

50th Episode Celebration

Fri, 16 May 2025 00:00:00 -0500

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In this episode, we look back on 50 episodes of RAISING DISABLED and reflect on our favorite question that we always ask caregivers, "What is the best thing to come out raising your disabled child?" We share some of our favorite answers from our past episodes and then we talk about what our answer is to this question.

Jillian Raising Roman and Stella

Fri, 02 May 2025 00:00:00 -0500

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In this episode, we talk to Jillian about raising her kids, Roman and Stella who are battling a rare genetic condition called ASMD.

Follow Jillian on social media @confessionsofararediseasemama and subscribe to her podcast HERE.

Get a copy of her book "Soaring Together" inspired by her disabled children HERE.

What is Morgan's Wonderland?

Fri, 18 Apr 2025 00:00:00 -0500

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In this episode, we share Deonna's family's experience at Morgan’s Wonderland, the world’s first ultra-accessible theme park located in San Antonio, Texas.

Deonna shares:

What makes Morgan’s Wonderland so special for families with disabilities,
Accessibility highlights, from wheelchair-friendly rides to inclusive playgrounds,
Our favorite attractions and sensory-friendly features,
and tips for parents planning a visit with a child who uses a wheelchair.

Brittany Raising Sawyer and Zion

Fri, 04 Apr 2025 00:00:00 -0500

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In this episode, we talked to Brittany Lagarde about raising her daughter Sawyer who has Sanfilippo syndrome and her son Zion who has autism.

Follow Brittany on Instagram @happylagardeless

Check out Brittany's husband Sam's book Zion the Lion HERE!

Nutrition for Chronic Conditions with 3 CulinaryMed Docs

Fri, 21 Mar 2025 00:00:00 -0500

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In this episode we talked with Allison Childress, Shannon Galyean, and Michelle Alcorn of 3 CulinaryMed Docs about their app My Partner Sam.

My Partner Sam is a culinary medicine app that creates customized medically tailored meal plans for people with chronic conditions, specifically for those who have multiple chronic conditions.

To learn more about their mission, visit their website to learn about how their app could benefit your disabled child and family's health.

40+ Life Hacks for Caregivers

Fri, 07 Mar 2025 00:00:00 -0600

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In this episode Deonna, Rhandyl, and our listeners share over 45 "life hacks" or ways to make your life easier as a caregiver!

Abbey Raising Avery

Fri, 21 Feb 2025 00:00:00 -0600

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In this episode we talk to Abbey Luckett Benjamin from Louisiana about raising her daughter Avery.

We talk about her daughter's diagnosis of Adenylosuccinate Lyase Deficiency or ADSL, her seizures, living with a medically complex child in a rural area, Avery participating in dance classes, and how she finds joy in the midst of trials.

Follow her Instagram at @abbeybenj

Superstitions from Parents of Disabled Kids

Fri, 07 Feb 2025 00:00:00 -0600

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In this episode, we share all of the superstitions from our listeners and ourselves surrounding the care of our disabled children.

New Years Goals for 2025 from Us and Our Listeners

Fri, 24 Jan 2025 00:00:00 -0600

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In this episode, we share our goals for 2025 from us and our amazing listeners. We also share our goals for the Raising Disabled Podcast for this year and a few guests that we would love to have on the show very soon!

Holiday Recap with Rhandyl and Deonna

Fri, 10 Jan 2025 00:00:00 -0600

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In this episode, Rhandyl and Deonna share about their holiday break, Stuff the Van with Allie and Cole, their daughter's favorite gifts, and what to expect in Season 3 of the podcast!

What Are You Most Thankful for About Raising Your Disabled Child?

Wed, 27 Nov 2024 00:00:00 -0600

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In this episode, us and our listeners share what we're most thankful for about raising our disabled children.

We share our drastic shifts in our priorities, our resilience as caregivers, and the unique perspectives our disabled kids bring into our lives.

We are taking a break from releasing new episodes until January 10, 2024 so we'll see you in 2025 for season 3 of the Raising Disabled podcast.

Christmas Gift Ideas for Disabled Kids

Fri, 08 Nov 2024 00:00:00 -0600

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In this episode, we're talking about thoughtful, accessible Christmas gift ideas tailored for kids with disabilities. We share our favorites and share ideas from our listeners too!

Key Takeaways:

When selecting gifts for disabled kids, prioritize their interests and abilities.
Ask the parents or caregivers to ensure the gift is appropriate.
Take basic everyday items and make them personal and fun.
Think outside of the box with subscriptions, sensory toys, or experiences.

If you have any more ideas for us, let us know at @raisingdisabledpodcast

Creative Speech Therapy Methods with The Singing SLP

Fri, 25 Oct 2024 00:00:00 -0500

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In this episode, we learn about speech therapy methods with speech-language pathologist Kevin Simmons, the Singing SLP.

Specializing in working with children with disabilities, Kevin shares his unique approach that combines play-based therapy, music therapy, and interactive techniques to help children have a great speech therapy experience.

We talk about:

Play-Based Speech Therapy: He shares about how incorporating games, toys, and imaginative play can engage children with speech delays, making therapy fun and effective.
Music as a Therapy Tool: He talks about how rhythm, singing, and musical instruments can stimulate speech and language development, particularly in children with autism and other developmental disabilities.
Sensory Haircuts: He shares about why he gives some of his clients haircuts and gives some tips for parents if their child has a difficult time in the barber chair.

Whether you're a parent, caregiver, speech therapist, or educator, this episode is packed with practical advice to support children with disabilities on their communication journey.

Follow Kevin on Instagram @singingslp

Ruby Raising Lexi

Fri, 11 Oct 2024 00:00:00 -0500

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In this episode we talk to Ruby about her daughter Lexi who has Arthrogryposis Multiplex Congenita (AMC), a rare condition affecting joint movement.

We talk about:

the early days of the diagnosis and navigating early interventions,
what her physical therapy and multiple surgeries have been like,
her teaching her daughter how to advocate for herself,
and the challenges and triumphs of parenting a child with AMC.

Follow @amcsupport to learn more about the disease!

Dumb Things People Say - When Are They Going to Get Better

Fri, 27 Sep 2024 00:00:00 -0500

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In this episode of Raising Disabled, we talk about one of the most frustrating questions parents of disabled children hear: "When will they be better?"

We discuss:

why this question is harmful,
how it reflects some of our society's misconceptions about disability,
and the emotional toll it takes on families.

We hope to redefine what it means to live with and love a disabled child, emphasizing acceptance over expectations. Whether you're a parent, friend, or ally, this episode will help you understand why focusing on "fixing" isn't the right approach and how you can be a better advocate.

If you like this episode, check out these past "Dumb Things People Say" episodes:

How to Talk to Your Kids About Disabled People

Fri, 13 Sep 2024 00:00:00 -0500

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In this episode we tell parents of typical children:

Why they should be having an intentional, continuous conversation with their kids about people with disabilities,
What they should teach their children to do and say (and what not to do as well),
and we shared opinions from our listeners and fellow caregivers about what they wish you were teaching your kids about their disabled child.

Special thanks to the following friends of the show for their comments:

lovetoemma
alvesmomkickingcask
emily_mommato4
happygolandry
saratothebeth
Aracely Ginn
specialneedsparentjourney
Heidi Walton
Ruby Moseley
annabusby1
daidrahamlin
theunboxedfamily
disorderrarediseasefilms
unbalancedraremom
annabethburnham
valcirino1
hkwoodley

Back to School Feelings from our Listeners

Fri, 30 Aug 2024 02:00:00 -0500

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In this episode we share our feelings and the feelings of some of our listeners about their kids going back to school.

We talk about the perspectives of families:

going to public school,
using home services,
and those who choose to home school.

Special thank you to the following for being willing to share their feelings on Back to School:

@estebana12345

@saratothebeth

@neurodivergent_girls

@meaminermom

@emily_pwalker

@alvesmomkickingcask

Jessica Raising Ryan

Fri, 16 Aug 2024 00:00:00 -0500

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In this episode of Raising Disabled we talk to Jessica Patay about:
raising her son Ryan,
her book and podcast We Are Brave Together,
and her caregiver retreats.

Learn more about Jessica and her projects at https://www.wearebravetogether.org/book

Lindsay Raising Eva

Fri, 02 Aug 2024 00:00:00 -0500

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In this episode we talk to Lindsay Sherbondy about:

her daughter Eva's life altering accident,
what life has been like for their family following this accident,
how God has used this pain for good,
and her art and how trauma affected it.

If you would like to learn more about Lindsay's art, visit her store Lindsay Letters HERE>>

Disability Pride Month

Fri, 19 Jul 2024 00:00:00 -0500

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In this episode of Raising Disabled we asked our Instagram and Facebook friends what "disability pride" means to them as the parents of disabled kids.

Disability accounts we recommend:

Accessible Adventures @accessible.adventures
Joy Davis @everydaywithjoy
The Autism Dad @theautismdad
Callie Colwick @calliecolwick
Megan DeJarnett @megandejarnett
Nina Tame @nina_tame
Rebecca Koltun @rebecca_koltun

Thank you to the following friends of Raising Disabled for their comments:

@hkwoodley
@amber_l_robertson
@mariespero
@caelajeannettewrites
@psykodrjulie
@vkretchm
@wheelstratedtales
@scarlettandmama
@littlefacelens
Breanna
Estebana

Mental Health App mentioned in the show - Finch

Effie Raising Ford + Once Upon a Gene Podcast

Fri, 05 Jul 2024 00:00:00 -0500

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In this episode of Raising Disabled we talk to Effie Parks about:

raising her son Ford,
her podcast Once Upon a Gene,
and her mission to help families with genetic disorders.

You can follow Effie on Instagram at @onceuponagene.podcast

Katrina Raising Dallas - The Recess Project

Fri, 21 Jun 2024 00:00:00 -0500

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In this episode we:

talk to Katrina about raising her daughter Dallas,
acceptance of your child's disability,
and her non-profit The Recess Project.

Follow them on Instagram @therecessprojectofficial and @discover_with_dallas

Ryan Raising Reynolds + My Mejo App

Fri, 07 Jun 2024 00:00:00 -0500

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In this episode we talk to Ryan about:

raising his son Reynolds,
his experience being a stay at home dad,
and My Mejo, an app that keeps families of disabled kids organized and sane.

Follow Ryan on Instagram @dadhappend and follow his app @my_mejo

Go download his app here! You will LOVE it!

Kami and Tanner Raising Callie

Fri, 24 May 2024 00:00:00 -0500

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In this episode, we talk to Kami and Tanner about raising their daughter Callie.

This episode is sponsored by Zing Standers.

One Year Anniversary of Raising Disabled

Fri, 10 May 2024 00:00:00 -0500

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In this episode, we look back at our favorite moments from the first year of Raising Disabled. Thank you so much to every single person who has listened!

Glass Ouse device mentioned in the show linked here.

This episode is sponsored by Zing Standers.

Anger Management Strategies with Deanna Dawson

Fri, 26 Apr 2024 00:00:00 -0500

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In this episode we talk with Licensed Counselor Deanna Dawson of Springs Therapy about:
what anger actually is,
how to identify it and recognize triggers,
and TONS of useful tips when your disabled child or you as the parent get angry.

This episode is sponsored by Zing Standers.

At our house, my daughter is in her Zing Stander all the time. She loves to get in it and play video games, read, and play on her computer. Zing Standers are designed to offer more than just support. They pave the way for crucial early intervention therapy.

From helping develop strength and balance, joint development, to improving circulation and digestion, standing frames can be an essential part of therapy plans promoting holistic growth and development. With customizable support and positioning options, a Zing Stander can cater to any child's positioning needs.

You can learn more at ZingStanders.com

Dumb Things People Say - God Gives Special Kids to Special People

Fri, 12 Apr 2024 00:00:00 -0500

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In this episode we are talking about the common phrase "God Gives Special Kids to Special People" and are discussing how parents of disabled kids feel when people say this to them and what you could say instead.

Guilt with Amanda Griffith Atkins

Fri, 29 Mar 2024 00:00:00 -0500

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On this episode we talk with Licensed Therapist and Disability Parent/Advocate Amanda Griffith Atkins and she answers these questions from our listeners:

Why do we as parents feel guilty when we take time for ourselves/self-care?
What can we do if we feel guilty about our child’s injury or diagnosis?
What do you say to people who have guilt about what happened to their baby in utero?
What do you say to parents who feel that they need more hours in the day and they aren’t doing enough for their child?
How do we deal with guilt that we can't spend as much time with our typical kids?
What advice to do you have for parents who have to facilitate painful procedures that may cause pain without feeling guilty about it?
What do you say to parents who feel guilty over their birth trauma and not having that natural mom/baby bonding time?
What do you tell moms who feel guilty about making their kids do SO many things every day and not having any room to be spontaneous?
What do you tell parents who feel like they can't ask for help?
What would you say to a mom or dad who feels guilty while at work?
What advice do you have for parents who feel like they can't afford something that would make their child's life better?

The Sibling Perspective

Fri, 15 Mar 2024 07:00:00 -0500

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In this episode of Raising Disabled, we talked to Stephanie Dotson about her experience growing up with her disabled sibling, Abby.

Accessible Adventures with Kristy Cook

Fri, 01 Mar 2024 00:00:00 -0600

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In this episode, we talk to Kristy Cook of Accessible Adventures about:

raising her disabled son Robbie
how they travel in their RV
all of their favorite National/State Parks
and her amazing tips for travel

Follow her family's adventures at @accessible.adventures

Click here to see Kristy's $7 Track Chair Map

Brands mentioned during the show:

Vacation Mishaps

Fri, 16 Feb 2024 00:00:00 -0600

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In this episode we share some of our scariest vacation stories and how we learned from them.

Deanna Raising Joy

Fri, 02 Feb 2024 00:00:00 -0600

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In this episode we talk to Deanna Dawson about:

raising her adopted daughter Joy who has Shaken Baby Syndrome,
her family fostering many kids, some with disabilities,
her church program for kids with disabilities,
her job as a counselor at The Springs Therapy.

This episode was sponsored by The Springs Therapy.

Deonna's kids have been counseled by Deanna at The Springs Therapy and it made a HUGE difference in their sleep, behavior, and anxiety. They also gave us the tools that we needed to continue that therapy at home.

What sets them apart is that they have a therapist that works specifically with families of disabled children, as well as the child with the disability.

The Springs Therapy group meets the diverse needs of clients by having therapists with different specialties.

They counsel people of all ages, and offer group therapy options, support groups, parenting classes, and offer tele-heath in Texas.

Check out their website at thespringstherapy.com and tell them Raising Disabled Podcast sent you.

Holiday Catch Up with Deonna and Rhandyl

Fri, 19 Jan 2024 00:00:00 -0600

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In this episode Deonna and Rhandyl talk about what they did over their Thanksgiving and Christmas holiday break.

Feeding robot mentioned in the show: Obi Robot

Tips for Buying Gifts for Disabled Kids

Fri, 17 Nov 2023 00:00:00 -0600

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In this episode, we are sharing A LOT of gift ideas for disabled kids. These ideas are from us, our kids, our Raising Disabled Parent Group (ask us how you can join and help with future episodes) and our listeners.

We talked about so many great ideas for kids with so many different disabilities but here are some of the specific ones that we love with links:

Quadstick Adaptive Video Game Controller
Nugget Couch
The Butterfly Pig Dolls and Medical Accessories
Tonies
Billy Footwear
Linkimals
Z-Vibe Kits from Ark Therapeutic Products

Books about Inclusion or with Disabled Characters:

We're All Wonders by R.J. Palacio
I'm Basically A Unicorn by Melanie Hawkins
The Wonderful Way You Are by Sarah Elizabeth Brooks
Let's Go Play by Shelby McCarthy
The Day God Made You by Rory Feek
Who Do You See When You Look At Me by Angela Ray Rodgers
Jessica's Box by Peter Carnavas

Brooke Raising Corben

Fri, 03 Nov 2023 00:00:00 -0500

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In this episode we're talking with Brooke about her journey Raising Disabled with her son, Corben. Corben has Down Syndrome and Autism.

Brooke walks us through

when they found out about his disability,
what is like being a parent to a disabled child,
tells us about his recent scary hospital stay and new diagnosis,
how they navigate life now,
and so much more.

Remi's Routine

Fri, 20 Oct 2023 00:00:00 -0500

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In this episode, Rhandyl shares about the daily routine of her daughter Remi, who has Severe Tracheobronchomalacia or TBM.

Spinal Cord Injury - Allie's Daily Routine

Fri, 06 Oct 2023 00:00:00 -0500

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In this episode, Deonna shares about the daily routine of her daughter Allie, who has a C1 level spinal cord injury.

Dumb Things People Say : You Are So Strong

Fri, 22 Sep 2023 00:00:00 -0500

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In this episode of Raising Disabled we asked LOTS of disabled parents how they feel about people telling them "You Are So Strong".

Scriptures about strength referenced in the show:

Psalm 46:1 - God is our refuge and strength, a very present help in trouble.

Philippians 4:13 - I can do all things through Christ which strengtheneth me.

Beautiful Disasters

Fri, 08 Sep 2023 00:00:00 -0500

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In this episode Deonna and Rhandyl are sharing stories about what devastating storms and stolen cars have taught them about parenthood.

Supporting the Siblings of Disabled Children with Katie Taylor of Child Life On Call

Fri, 25 Aug 2023 00:00:00 -0500

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In this episode we are talking to Katie from Child Life On Call. Katie is the CEO and Founder of Child Life On Call, an app, podcast, and website dedicated to closing the resource gap through the intersection of child life services and technology.

We discuss:

how to support the siblings of disabled children,
what a child life specialist is,
and how to support your local child life specialists.

Here are some links that were mentioned in the show:

Supporting Siblings: How Child Life Specialists Can Help

Katie's Favorite Things on Amazon

Katie's Podcast Child Life on Call

Please follow Katie on Instagram @childlifeoncall

Danielle Raising Barron

Fri, 11 Aug 2023 00:00:00 -0500

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In this episode we're talking with Danielle Rose about her journey Raising Disabled with her son, Barron. Barron was born in 2022 and has microcephaly and lissencephaly.

Danielle walks us through

when they found out about his disability,
how her faith has grown since becoming a parent of a disabled child,
how they navigate life now,
and so much more.

How to Prepare for an ARD Meeting with Diagnostician Chelsey Robertson

Fri, 28 Jul 2023 00:00:00 -0500

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In Episode 9 of Raising Disabled, we talk to Diagnostician Chelsey Robertson about:

How to prepare for an ARD Meeting concerning your disabled child in the public school setting,
What an IEP is and how to get what your child needs to succeed,
and how to make to most of your ARD meeting.

To learn more about IDEA, as mentioned in the podcast, click on the link below:
https://sites.ed.gov/idea/parents-families/

Dumb Things People Say - Everything Happens for a Reason

Fri, 14 Jul 2023 00:00:00 -0500

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This is Part 1 of a new series - Dumb Things People Say. We will periodically launch parts to this series throughout our episodes. This is to bring awareness to how triggering words can be to people in certain circumstances.

You've heard it before or maybe you've said it before - Everything Happens for a Reason! On this episode, we dive into this quote and talk about why it's not something that should be said to someone going through a tough situation.

We talk about our own situations and other caregivers, who are Raising Disabled insight on the subject. We hope you enjoy listening and can take something from this episode.

Divine Interventions

Fri, 30 Jun 2023 00:00:00 -0500

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In this episode, we are talking about moments in our “Raising Disabled” journey when he felt like God made something huge happened that may have seemed bad at the time, but altered the future of our daughter’s lives for the good.

Amber Raising Henry

Fri, 16 Jun 2023 00:00:00 -0500

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This episode we're talking with Amber Teal about her journey Raising Disabled with her son, Henry. Henry has Duane-radial ray syndrome. Amber walks us through when they found out about his disability, the many surgeries he's had and plans to have, how they navigate life now, and so much more.

Amber's light shines bright and we can tell Henry has added so much flame to her fire. Tune in to be inspired by this woman of grace and joy.

Paley Institute is where Henry's surgeries are performed

Summer Ideas for Children with Disabilities

Fri, 02 Jun 2023 00:00:00 -0500

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In this episode of Raising Disabled we are discussing how to navigate summertime with a disabled child. Summer is challenging for families with disabled children, and we talk through triggers, tips, trips, and making the best of this time of year. We also encourage all caregivers, for their mental health, whether Raising Disabled or not, to consciously take a moment away from the caretaker role.

We shout out a few amazing places that provide inclusion that we know about, and a few local facilities in our hometown. We also mention Wheel The World for inclusive destination vacations.

Howdy Homemade Ice Cream
Seismique
Morgan’s Wonderland
We Rock The Spectrum
Main Event
Houston Zoo
Inclusive playgrounds

Parenting Birth Disabilities vs. Acquired Disabilities

Fri, 19 May 2023 00:00:00 -0500

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In this episode of Raising Disabled we are talking about the differences between parenting a child that was disabled from birth vs. a child with an acquired disability.

With Rhandyl's experience with a birth disability and Deonna's experience with her daughter becoming paralyzed at age 4, we share our insights on the initial shock of finding out, how that affected our families, and the acceptance of our kid's disabilities.

We also talk about the poem "Holland" by Emily Perl Kingsley so we added that here:

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Rhandyl's Story

Fri, 05 May 2023 00:00:00 -0500

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In this episode were going to talk about Rhandyl's story of when she started "Raising Disabled" when her daughter Remi was born premature.

Rhandyl is going to share:

What happened at birth
Long hospitalization experience
Transitioning home with medically fragile baby
Her daughters diagnoses
Their new normal
What have been the greatest challenges so far
What have been blessings in the midst of the trials

If you'd like to learn more about Rhandyl and her family you can follow Team Remi on Facebook and follow her on Instagram @rhandyllorae

Deonna's Story

Fri, 05 May 2023 00:00:00 -0500

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In this episode were going to talk about Deonna's story of when she started "Raising Disabled" when her daughter Allie was paralyzed at the age of 4.

Deonna is going to share:

What happened that caused the paralysis
What life has been like since they've been home
What have been the greatest challenges so far
What have been blessings in the midst of the trials

You can see more of Deonna's daily life and see more about her journey of raising a disabled child and grief on Instagram @deonnawadeart

If you live in the Lubbock area and are want to use to same amazing realtor we did, call Ruben Trujillo from Clear Rock Realty

Intro: Raising Disabled

Fri, 05 May 2023 00:00:00 -0500

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In this episode we (Deonna and Rhandyl) introduce ourselves and talk about why we started "Raising Disabled."

We talk about who we are making Raising Disabled for:

Parents of disabled children
People that want to advocate for the disabled community

In the next episode, we are going to be hearing Rhandyl's story about when she began her journey in parenting a disabled child.

Special thanks to LOVE LAW FIRM for getting our podcast set up the right way.
If you live in NY, and are setting up a podcast, Francine is your attorney!

Thank you to Andrew Barefoot for the intro music and allowing us to use his song "Everybody Belongs" at the end of our podcast. It is PERFECT for Raising Disabled!

Raising Disabled Podcast Trailer

Sun, 30 Apr 2023 10:00:00 -0500

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Hey y'all! We're Deonna and Rhandyl and this is Raising Disabled where we openly talk about parenting our disabled kids and the challenges and triumphs that we've experienced along the way.

If you are a parent of a disabled child or have wondered what it's actually like and want to make sure EVERYBODY BELONGS, you're in the right place.

Please subscribe to Raising Disabled to have some fun with us as we discuss the extreme highs and lows that we and our guests have experienced firsthand living this different life that we love.