When Life Gives You Raspberries Sun, 31 May 2026 09:47:24 +0100 https://cavernomauk.buzzsprout.com en-gb © 2026 When Life Gives You Raspberries yes 59080978-d243-5073-8ba8-8df2c9d870a5 Cavernoma Alliance UK episodic false Welcome to when life gives you raspberries - the cavernoma podcast where we discuss all things cavernoma! Join host Jade as she discusses all the things that aren’t usually spoken about - from specific symptoms and what it’s like to experience them, to the day-to-day struggles that come with having a cavernoma. They'll be opening up about their own cavernoma stories and chatting to special guests about their expertise and experiences. They’ll also be answering any questions you have about living with cavernoma - so if you do have any questions just email podcast@cavernoma.org.uk.

]]> Buzzsprout (https://www.buzzsprout.com) Cavernoma Alliance UK https://storage.buzzsprout.com/w5ons5yd1i6porsk2zy4rffrm3bn?.jpg When Life Gives You Raspberries Jade Cavernoma and Fatigue Cavernoma and Fatigue Send us Fan Mail

In our first episode of series 2, Jade dicusses her journey and how fatigue impacts her life daily. With some facts and follower comments too! We hope you enjoy. 💕

]]> Send us Fan Mail

In our first episode of series 2, Jade dicusses her journey and how fatigue impacts her life daily. With some facts and follower comments too! We hope you enjoy. 💕

]]> Jade Buzzsprout-19267026 Sun, 31 May 2026 09:00:00 +0100 1006 2 1 full false 4. The Two Cs: Communication & Connection, with therapist Robyn Hughes 4. The Two Cs: Communication & Connection, with therapist Robyn Hughes Send us Fan Mail

This month Ailsa and Jade are joined by CAUK therapist and friend Robyn Hughes to discuss all things therapy, and learning to cope living with and caring for cavernoma. 

In this episode, guest Robyn generously shares her own personal and professional experience of rare disease and living with illness in the family, and talks us through how a therapy relationship can be so helpful. 

Don't forget to subscribe to 'When Life Gives You Raspberries" and leave us a review.  If you have questions, comments or feedback please email podcast@cavernoma.org.uk

]]> Send us Fan Mail

This month Ailsa and Jade are joined by CAUK therapist and friend Robyn Hughes to discuss all things therapy, and learning to cope living with and caring for cavernoma. 

In this episode, guest Robyn generously shares her own personal and professional experience of rare disease and living with illness in the family, and talks us through how a therapy relationship can be so helpful. 

Don't forget to subscribe to 'When Life Gives You Raspberries" and leave us a review.  If you have questions, comments or feedback please email podcast@cavernoma.org.uk

]]> Cavernoma Alliance UK Buzzsprout-13164936 Thu, 06 Jul 2023 00:00:00 +0100 2822 1 4 full false It's Epilepsy Week! It's Epilepsy Week! Send us Fan Mail

It's National Epilepsy Week!

To mark this important awareness week, Ailsa & Jade sat down to discuss their experiences of seizures and epilepsy as a result of cavernoma. 

They also bust some of the most common myths surrounding the condition.

Epilepsy Action website: https://www.epilepsy.org.uk/
Epilepsy Society website: https://epilepsysociety.org.uk/

Thanks for listening! Don't forget to subscribe to our podcast to be kept up to date on all of our brand new episodes!

]]> Send us Fan Mail

It's National Epilepsy Week!

To mark this important awareness week, Ailsa & Jade sat down to discuss their experiences of seizures and epilepsy as a result of cavernoma. 

They also bust some of the most common myths surrounding the condition.

Epilepsy Action website: https://www.epilepsy.org.uk/
Epilepsy Society website: https://epilepsysociety.org.uk/

Thanks for listening! Don't forget to subscribe to our podcast to be kept up to date on all of our brand new episodes!

]]> Cavernoma Alliance UK Buzzsprout-12769368 Wed, 24 May 2023 07:00:00 +0100 3526 1 3 full false 2. Cavernoma & Me: What it's like to live with cavernoma 2. Cavernoma & Me: What it's like to live with cavernoma Send us Fan Mail

Welcome back to another episode of 'When life gives you raspberries' - a podcast all about cavernoma. 

This week hosts Ailsa and Jade discuss what it's like to live with their cavernomas, chatting about the different stages of recovery, the uncertainty that comes with cavernoma and how it can impact every part of life.  

They also share some of their top tried and tested tips and advice for living with cavernoma. 

Get in touch with Ailsa & Jade to ask a question or share your story by emailing podcast@cavernoma.org.uk or follow Cavernoma Alliance on social media @cavernomauk

]]> Send us Fan Mail

Welcome back to another episode of 'When life gives you raspberries' - a podcast all about cavernoma. 

This week hosts Ailsa and Jade discuss what it's like to live with their cavernomas, chatting about the different stages of recovery, the uncertainty that comes with cavernoma and how it can impact every part of life.  

They also share some of their top tried and tested tips and advice for living with cavernoma. 

Get in touch with Ailsa & Jade to ask a question or share your story by emailing podcast@cavernoma.org.uk or follow Cavernoma Alliance on social media @cavernomauk

]]> Cavernoma Alliance UK Buzzsprout-12710915 Mon, 24 Apr 2023 12:00:00 +0100 3655 1 2 full false 1. Welcome to "When life gives you raspberries..." 1. Welcome to "When life gives you raspberries..." Send us Fan Mail

Join us for the first ever episode of the first ever podcast all about cavernoma.
Listen in and get to know your hosts, Ailsa & Jade!

References;
Incidental findings on brain magnetic resonance imaging: systematic review and meta-analysis | The BMJ

Population-Based Prevalence of Cerebral Cavernous Malformations in Older Adults - PMC (nih.gov)

Epidemiology of cavernous malformations - PubMed (nih.gov)

Orphanet: Familial cerebral cavernous malformation


]]> Send us Fan Mail

Join us for the first ever episode of the first ever podcast all about cavernoma.
Listen in and get to know your hosts, Ailsa & Jade!

References;
Incidental findings on brain magnetic resonance imaging: systematic review and meta-analysis | The BMJ

Population-Based Prevalence of Cerebral Cavernous Malformations in Older Adults - PMC (nih.gov)

Epidemiology of cavernous malformations - PubMed (nih.gov)

Orphanet: Familial cerebral cavernous malformation


]]> Ailsa Buzzsprout-12431181 Mon, 20 Mar 2023 10:00:00 +0000 1911 1 1 full false