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  <title>So, Life Wants You Dead</title>

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  <itunes:author>Nora Logan</itunes:author>
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  <description><![CDATA[So, Life Wants You Dead is a weekly podcast of intimate patient interviews from around the world and the narrative of one woman’s experience of illness. It's a show about illness, trauma, creativity and disability hosted by Nora Logan, a writer, well-being advocate and liver transplant recipient. Nora went into unexpected liver failure in 2015 at age 28 whilst working in late-night comedy TV.  She received a life-saving liver transplant a few weeks later. Whatever caused her liver to fail was never diagnosed and remains a mystery to this day. She has tried to make sense of her calamity through writing and sharing her experience and by connecting with the patient community. In this show, Nora creates the space to have honest, funny and expansive conversations with people who have an illness, disability or chronic condition and who just so happen to be creatives, too.]]></description>
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    <itunes:title>Carolina Barlow on Deepening Empathy and Making it Funny</itunes:title>
    <title>Carolina Barlow on Deepening Empathy and Making it Funny</title>
    <itunes:summary><![CDATA[In this episode, Nora speaks to writer and producer Carolina Barlow about her life-altering car accident at the age of 28. Nora and Carolina discuss the commonalities in what they’ve been through (and how they both thought maybe astrology would save us — it didn’t), how much humour helps in recovery, and the inevitable depth of empathy gained through having a “before and after”: whether that’s an accident, illness, or loss. They also both agreed that balloon bouquets should be left off gift l...]]></itunes:summary>
    <description><![CDATA[<p>In this episode, Nora speaks to writer and producer Carolina Barlow about her life-altering car accident at the age of 28. Nora and Carolina discuss the commonalities in what they’ve been through (and how they both thought maybe astrology would save us — it didn’t), how much humour helps in recovery, and the inevitable depth of empathy gained through having a “before and after”: whether that’s an accident, illness, or loss. They also both agreed that balloon bouquets should be left off gift lists for people in the hospital moving forward since they only caused us both (literal) nightmares.</p><p>Carolina is currently a staff writer on the upcoming Will Ferrell series THE GOLF WAR, for Netflix. Prior to that she was a producer, writer, and co-host of the Ron Burgundy Podcast as well as the True Romance Podcast with iHeart Media. She is developing an original project with Apatow Productions and recently developed a project with FX with Lisa Harrison attached to produce. Additionally, she has co-produced the Netflix documentary WILL &amp; HARPER and has previously worked with Leslye Headland. She is developing FRANKENSTEIN IS A FRIEND with Will and Mosaic Films.</p><p><a href='https://carolinabarlow.substack.com/'>Carolina&apos;s Substack</a></p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Content warning: </b>We talk about death and suicide in this episode. If you or a loved one is experiencing suicidal ideation or needs support, please reach out.</p><p><b>Resources: </b></p><p><b>USA: </b><a href='https://988lifeline.org/'><b>The National Suicide Prevention Lifeline</b></a><b> is: 988 </b></p><p><a href='https://www.spuk.org.uk/'><b>National Suicide Prevention Helpline</b></a><b> at 0800 689 5652 </b></p><p><b>UK:  </b><a href='https://www.samaritans.org/'><b>Samaritans</b></a><b>: Call: 116 123 free </b></p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></description>
    <content:encoded><![CDATA[<p>In this episode, Nora speaks to writer and producer Carolina Barlow about her life-altering car accident at the age of 28. Nora and Carolina discuss the commonalities in what they’ve been through (and how they both thought maybe astrology would save us — it didn’t), how much humour helps in recovery, and the inevitable depth of empathy gained through having a “before and after”: whether that’s an accident, illness, or loss. They also both agreed that balloon bouquets should be left off gift lists for people in the hospital moving forward since they only caused us both (literal) nightmares.</p><p>Carolina is currently a staff writer on the upcoming Will Ferrell series THE GOLF WAR, for Netflix. Prior to that she was a producer, writer, and co-host of the Ron Burgundy Podcast as well as the True Romance Podcast with iHeart Media. She is developing an original project with Apatow Productions and recently developed a project with FX with Lisa Harrison attached to produce. Additionally, she has co-produced the Netflix documentary WILL &amp; HARPER and has previously worked with Leslye Headland. She is developing FRANKENSTEIN IS A FRIEND with Will and Mosaic Films.</p><p><a href='https://carolinabarlow.substack.com/'>Carolina&apos;s Substack</a></p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Content warning: </b>We talk about death and suicide in this episode. If you or a loved one is experiencing suicidal ideation or needs support, please reach out.</p><p><b>Resources: </b></p><p><b>USA: </b><a href='https://988lifeline.org/'><b>The National Suicide Prevention Lifeline</b></a><b> is: 988 </b></p><p><a href='https://www.spuk.org.uk/'><b>National Suicide Prevention Helpline</b></a><b> at 0800 689 5652 </b></p><p><b>UK:  </b><a href='https://www.samaritans.org/'><b>Samaritans</b></a><b>: Call: 116 123 free </b></p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></content:encoded>
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    <pubDate>Fri, 21 Feb 2025 08:00:00 -0500</pubDate>
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    <itunes:duration>4122</itunes:duration>
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    <itunes:season>3</itunes:season>
    <itunes:episode>3</itunes:episode>
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    <itunes:title>Georgia Fenwick on Sobriety and Creativity</itunes:title>
    <title>Georgia Fenwick on Sobriety and Creativity</title>
    <itunes:summary><![CDATA[In this episode, Nora speaks to Georgia Fenwick, an entrepreneur, writer, and mother who got sober at 22. We discuss how Georgia got sober, the impact it has had on her creativity, the challenges she faced in shutting down her creative side as she focused on being functional, and what has helped her reconnect with her full self. We also talk about motherhood, her business and her thoughts on the concept of home. Georgia is an entrepreneur, writer, homeopath, energy practitioner, and mother to...]]></itunes:summary>
    <description><![CDATA[<p>In this episode, Nora speaks to Georgia Fenwick, an entrepreneur, writer, and mother who got sober at 22. We discuss how Georgia got sober, the impact it has had on her creativity, the challenges she faced in shutting down her creative side as she focused on being functional, and what has helped her reconnect with her full self. We also talk about motherhood, her business and her thoughts on the concept of home.</p><p>Georgia is an entrepreneur, writer, homeopath, energy practitioner, and mother to two girls. She founded a vintage shop in NYC in 2014 and then co-founded the beloved London bakery Papo’s Bagels in 2020. She got sober at 22 in New York City and is coming up to her 12th sobriety anniversary. </p><p><a href='https://www.instagram.com/georgia.fgomez/'>Find Georgia&apos;s work here.</a></p><p><a href='https://paposbagels.com/'>Find Papo&apos;s Bagels here.</a></p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></description>
    <content:encoded><![CDATA[<p>In this episode, Nora speaks to Georgia Fenwick, an entrepreneur, writer, and mother who got sober at 22. We discuss how Georgia got sober, the impact it has had on her creativity, the challenges she faced in shutting down her creative side as she focused on being functional, and what has helped her reconnect with her full self. We also talk about motherhood, her business and her thoughts on the concept of home.</p><p>Georgia is an entrepreneur, writer, homeopath, energy practitioner, and mother to two girls. She founded a vintage shop in NYC in 2014 and then co-founded the beloved London bakery Papo’s Bagels in 2020. She got sober at 22 in New York City and is coming up to her 12th sobriety anniversary. </p><p><a href='https://www.instagram.com/georgia.fgomez/'>Find Georgia&apos;s work here.</a></p><p><a href='https://paposbagels.com/'>Find Papo&apos;s Bagels here.</a></p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></content:encoded>
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    <pubDate>Fri, 14 Feb 2025 09:00:00 -0500</pubDate>
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    <itunes:duration>3343</itunes:duration>
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    <itunes:season>3</itunes:season>
    <itunes:episode>2</itunes:episode>
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    <itunes:title>Daisy Friedman on Tradition, Filmmaking and Embodiment</itunes:title>
    <title>Daisy Friedman on Tradition, Filmmaking and Embodiment</title>
    <itunes:summary><![CDATA[In this episode, Nora speaks to Daisy Friedman, a writer, director, and multi-organ transplant recipient. We talk about Daisy’s story: she received critical transplants as a child which led to her current work as a filmmaker exploring themes of tradition, intimacy, embodiment, and disability.  We discuss the complexities of chronic illness, societal perceptions of disabled bodies, and the empowerment found in creative expression. Daisy talks about her latest short film, Unholy, and how p...]]></itunes:summary>
    <description><![CDATA[<p>In this episode, Nora speaks to Daisy Friedman, a writer, director, and multi-organ transplant recipient. We talk about Daisy’s story: she received critical transplants as a child which led to her current work as a filmmaker exploring themes of tradition, intimacy, embodiment, and disability. </p><p>We discuss the complexities of chronic illness, societal perceptions of disabled bodies, and the empowerment found in creative expression. Daisy talks about her latest short film, Unholy, and how personal experiences shape her work. The episode also touches on the importance of community and the role of art in navigating and articulating the lived experiences of disabled individuals.</p><p>Daisy Friedman is a writer and director based out of New York City. Her history as a multi-organ transplant recipient has drawn her to create work that centers on the intersections of tradition, intimacy, embodiment, and disability. Her short film, Unholy (2024) had its world premiere at <a href='https://www.sundance.org/blogs/2025-sundance-film-festival-unveils-short-film-program-presented-by-vimeo/'><b><em>Sundance 2025</em></b></a><b> </b>and went on to screen at<a href='https://schedule.sxsw.com/2025/films/2206053'> <b><em>South by Southwest 2025</em></b></a>.</p><p><a href='https://www.daisyfriedman.com/'>Daisy&apos;s Website</a></p><p><a href='https://www.instagram.com/daisyfriedman_/'>Daisy&apos;s Instagram</a></p><p><a href='https://www.instagram.com/unholy.film/'>Unholy&apos;s Instagram</a></p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></description>
    <content:encoded><![CDATA[<p>In this episode, Nora speaks to Daisy Friedman, a writer, director, and multi-organ transplant recipient. We talk about Daisy’s story: she received critical transplants as a child which led to her current work as a filmmaker exploring themes of tradition, intimacy, embodiment, and disability. </p><p>We discuss the complexities of chronic illness, societal perceptions of disabled bodies, and the empowerment found in creative expression. Daisy talks about her latest short film, Unholy, and how personal experiences shape her work. The episode also touches on the importance of community and the role of art in navigating and articulating the lived experiences of disabled individuals.</p><p>Daisy Friedman is a writer and director based out of New York City. Her history as a multi-organ transplant recipient has drawn her to create work that centers on the intersections of tradition, intimacy, embodiment, and disability. Her short film, Unholy (2024) had its world premiere at <a href='https://www.sundance.org/blogs/2025-sundance-film-festival-unveils-short-film-program-presented-by-vimeo/'><b><em>Sundance 2025</em></b></a><b> </b>and went on to screen at<a href='https://schedule.sxsw.com/2025/films/2206053'> <b><em>South by Southwest 2025</em></b></a>.</p><p><a href='https://www.daisyfriedman.com/'>Daisy&apos;s Website</a></p><p><a href='https://www.instagram.com/daisyfriedman_/'>Daisy&apos;s Instagram</a></p><p><a href='https://www.instagram.com/unholy.film/'>Unholy&apos;s Instagram</a></p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></content:encoded>
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    <pubDate>Fri, 07 Feb 2025 07:00:00 -0500</pubDate>
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    <itunes:duration>3165</itunes:duration>
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    <itunes:season>3</itunes:season>
    <itunes:episode>1</itunes:episode>
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    <itunes:title>Ashley Eakin on Filmmaking, Representation and Creative Triumphs</itunes:title>
    <title>Ashley Eakin on Filmmaking, Representation and Creative Triumphs</title>
    <itunes:summary><![CDATA[In this episode. Nora speaks to writer and director Ashley Eakin. Ashley has directed projects for Disney+, Apple TV+ and Netflix. Her AFI Directing Workshop for Women short film Single, won the 2020 SXSW Special Jury Recognition Award and is being developed into a TV show with FX. Eakin discusses her experiences growing up with Maffucci syndrome, a rare bone disease, and how it has influenced her career in filmmaking. They talk about overcoming internalized ableism, the need for authentic re...]]></itunes:summary>
    <description><![CDATA[<p>In this episode. Nora speaks to writer and director <a href='https://www.ashleyeakin.com/'>Ashley Eakin</a>. Ashley has directed projects for Disney+, Apple TV+ and Netflix. Her AFI Directing Workshop for Women short film <em>Single</em>, won the 2020 SXSW Special Jury Recognition Award and is being developed into a TV show with FX. Eakin discusses her experiences growing up with Maffucci syndrome, a rare bone disease, and how it has influenced her career in filmmaking. They talk about overcoming internalized ableism, the need for authentic representation of disabled people in media, and the importance of uplifting disabled creatives.</p><p><b>ASHLEY EAKIN</b> is a WGA/DGA writer/director. She has directed projects for Disney+, Apple TV+ and Netflix. Her AFI Directing Workshop for Women short film <em>Single</em>, won the 2020 SXSW Special Jury Recognition Award and is being developed into a TV show with FX. Prior to working on her own content, Ashley was the assistant to Jon M. Chu, and worked on his critically acclaimed film, <em>Crazy Rich Asians</em>. Having over 14 years of experience in the TV and Film industry, Ashley is passionate about diversifying the narrative of how disabled people are portrayed in media. She is also a founding member of the DGA’s newly-established and historic Disability Committee. </p><p>Website: <a href='https://www.ashleyeakin.com/'>www.ashleyeakin.com</a><br/>Instagram: <a href='https://www.instagram.com/asheakin/'>@asheakin</a></p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></description>
    <content:encoded><![CDATA[<p>In this episode. Nora speaks to writer and director <a href='https://www.ashleyeakin.com/'>Ashley Eakin</a>. Ashley has directed projects for Disney+, Apple TV+ and Netflix. Her AFI Directing Workshop for Women short film <em>Single</em>, won the 2020 SXSW Special Jury Recognition Award and is being developed into a TV show with FX. Eakin discusses her experiences growing up with Maffucci syndrome, a rare bone disease, and how it has influenced her career in filmmaking. They talk about overcoming internalized ableism, the need for authentic representation of disabled people in media, and the importance of uplifting disabled creatives.</p><p><b>ASHLEY EAKIN</b> is a WGA/DGA writer/director. She has directed projects for Disney+, Apple TV+ and Netflix. Her AFI Directing Workshop for Women short film <em>Single</em>, won the 2020 SXSW Special Jury Recognition Award and is being developed into a TV show with FX. Prior to working on her own content, Ashley was the assistant to Jon M. Chu, and worked on his critically acclaimed film, <em>Crazy Rich Asians</em>. Having over 14 years of experience in the TV and Film industry, Ashley is passionate about diversifying the narrative of how disabled people are portrayed in media. She is also a founding member of the DGA’s newly-established and historic Disability Committee. </p><p>Website: <a href='https://www.ashleyeakin.com/'>www.ashleyeakin.com</a><br/>Instagram: <a href='https://www.instagram.com/asheakin/'>@asheakin</a></p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></content:encoded>
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    <pubDate>Tue, 01 Oct 2024 00:00:00 -0400</pubDate>
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    <itunes:season>2</itunes:season>
    <itunes:episode>7</itunes:episode>
    <itunes:episodeType>full</itunes:episodeType>
    <itunes:explicit>false</itunes:explicit>
  </item>
  <item>
    <itunes:title>Harshada Wagner On the Blessing in Illness, Existential Brokenness and His Art Practice</itunes:title>
    <title>Harshada Wagner On the Blessing in Illness, Existential Brokenness and His Art Practice</title>
    <itunes:summary><![CDATA[In this episode, Nora speaks to Harshada David Wagner, a master meditation instructor, author, artist, dad, and wisdom teacher, about being diagnosed with ulcerative colitis and having an ileostomy at 27 and how it has shaped his life, art, and teaching.   Harshada shares candidly about his initial denial and resistance to Western medicine, his experiences with both Eastern and Western medical approaches, and the significant impact of these experiences on his creative and spiritual endeavors....]]></itunes:summary>
    <description><![CDATA[<p>In this episode, Nora speaks to Harshada David Wagner, a master meditation instructor, author, artist, dad, and wisdom teacher, about being diagnosed with ulcerative colitis and having an ileostomy at 27 and how it has shaped his life, art, and teaching. <br/><br/>Harshada shares candidly about his initial denial and resistance to Western medicine, his experiences with both Eastern and Western medical approaches, and the significant impact of these experiences on his creative and spiritual endeavors. <br/><br/>The conversation delves into themes of illness, healing, and the interplay of various healing traditions, offering insights into how these challenges can ultimately foster resilience, spirituality, and creativity.<br/><br/>Website: <a href='https://www.davidhwagner.com/'>www.davidhwagner.com</a><br/>Instagram: <a href='https://www.instagram.com/harshadawagner'>@harshadawagner</a></p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></description>
    <content:encoded><![CDATA[<p>In this episode, Nora speaks to Harshada David Wagner, a master meditation instructor, author, artist, dad, and wisdom teacher, about being diagnosed with ulcerative colitis and having an ileostomy at 27 and how it has shaped his life, art, and teaching. <br/><br/>Harshada shares candidly about his initial denial and resistance to Western medicine, his experiences with both Eastern and Western medical approaches, and the significant impact of these experiences on his creative and spiritual endeavors. <br/><br/>The conversation delves into themes of illness, healing, and the interplay of various healing traditions, offering insights into how these challenges can ultimately foster resilience, spirituality, and creativity.<br/><br/>Website: <a href='https://www.davidhwagner.com/'>www.davidhwagner.com</a><br/>Instagram: <a href='https://www.instagram.com/harshadawagner'>@harshadawagner</a></p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></content:encoded>
    <enclosure url="https://www.buzzsprout.com/2091579/episodes/15772282-harshada-wagner-on-the-blessing-in-illness-existential-brokenness-and-his-art-practice.mp3" length="43327359" type="audio/mpeg" />
    <itunes:image href="https://storage.buzzsprout.com/xkgonx113u61np23p4gewzt0codp?.jpg" />
    <itunes:author>Nora Logan</itunes:author>
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    <pubDate>Tue, 17 Sep 2024 08:00:00 -0400</pubDate>
    <podcast:transcript url="https://www.buzzsprout.com/2091579/15772282/transcript" type="text/html" />
    <podcast:transcript url="https://www.buzzsprout.com/2091579/15772282/transcript.json" type="application/json" />
    <podcast:transcript url="https://www.buzzsprout.com/2091579/15772282/transcript.srt" type="application/x-subrip" />
    <podcast:transcript url="https://www.buzzsprout.com/2091579/15772282/transcript.vtt" type="text/vtt" />
    <itunes:duration>3604</itunes:duration>
    <itunes:keywords></itunes:keywords>
    <itunes:season>2</itunes:season>
    <itunes:episode>6</itunes:episode>
    <itunes:episodeType>full</itunes:episodeType>
    <itunes:explicit>true</itunes:explicit>
  </item>
  <item>
    <itunes:title>Ethan Lipsitz on Embracing Mortality, Artistic Exploration and Parenthood</itunes:title>
    <title>Ethan Lipsitz on Embracing Mortality, Artistic Exploration and Parenthood</title>
    <itunes:summary><![CDATA[In this episode, Nora speaks to social practice artist Ethan Lipsitz. Diagnosed with brain cancer in 2017, Ethan discusses how his diagnosis shifted his perspective, the roles of curiosity and acceptance in his journey, and the evolution of his artistic practices.   Their conversation delves into the impact of their respective health crises on their identities, the balance between embracing love and mortality, and the subtleties of connecting with others through transformative experiences. Et...]]></itunes:summary>
    <description><![CDATA[<p>In this episode, Nora speaks to social practice artist Ethan Lipsitz. Diagnosed with brain cancer in 2017, Ethan discusses how his diagnosis shifted his perspective, the roles of curiosity and acceptance in his journey, and the evolution of his artistic practices. <br/><br/>Their conversation delves into the impact of their respective health crises on their identities, the balance between embracing love and mortality, and the subtleties of connecting with others through transformative experiences. Ethan also speaks to the changing language of love, the challenges related to the stoicism inherent in masculinity, and the importance of creativity in living a fulfilling life.<br/><br/><a href='https://www.ethanlipsitz.com/'>Ethan&apos;s Website</a><br/><a href='https://www.instagram.com/ethanlipsitz/'>Ethan&apos;s Instagram</a><br/><a href='https://www.instagram.com/p/CspRuMFv3Uc/'>The spirals we talk about at 46:23</a></p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p><p><br/><br/></p>]]></description>
    <content:encoded><![CDATA[<p>In this episode, Nora speaks to social practice artist Ethan Lipsitz. Diagnosed with brain cancer in 2017, Ethan discusses how his diagnosis shifted his perspective, the roles of curiosity and acceptance in his journey, and the evolution of his artistic practices. <br/><br/>Their conversation delves into the impact of their respective health crises on their identities, the balance between embracing love and mortality, and the subtleties of connecting with others through transformative experiences. Ethan also speaks to the changing language of love, the challenges related to the stoicism inherent in masculinity, and the importance of creativity in living a fulfilling life.<br/><br/><a href='https://www.ethanlipsitz.com/'>Ethan&apos;s Website</a><br/><a href='https://www.instagram.com/ethanlipsitz/'>Ethan&apos;s Instagram</a><br/><a href='https://www.instagram.com/p/CspRuMFv3Uc/'>The spirals we talk about at 46:23</a></p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p><p><br/><br/></p>]]></content:encoded>
    <enclosure url="https://www.buzzsprout.com/2091579/episodes/15670929-ethan-lipsitz-on-embracing-mortality-artistic-exploration-and-parenthood.mp3" length="43271176" type="audio/mpeg" />
    <itunes:image href="https://storage.buzzsprout.com/8nfs2lwohg7y3wbzn1davbktzf68?.jpg" />
    <itunes:author>Nora Logan</itunes:author>
    <guid isPermaLink="false">Buzzsprout-15670929</guid>
    <pubDate>Tue, 03 Sep 2024 08:00:00 -0400</pubDate>
    <podcast:transcript url="https://www.buzzsprout.com/2091579/15670929/transcript" type="text/html" />
    <podcast:transcript url="https://www.buzzsprout.com/2091579/15670929/transcript.json" type="application/json" />
    <podcast:transcript url="https://www.buzzsprout.com/2091579/15670929/transcript.srt" type="application/x-subrip" />
    <podcast:transcript url="https://www.buzzsprout.com/2091579/15670929/transcript.vtt" type="text/vtt" />
    <itunes:duration>3599</itunes:duration>
    <itunes:keywords></itunes:keywords>
    <itunes:season>2</itunes:season>
    <itunes:episode>5</itunes:episode>
    <itunes:episodeType>full</itunes:episodeType>
    <itunes:explicit>false</itunes:explicit>
  </item>
  <item>
    <itunes:title>Dr Akilah Cadet on Dismantling White Supremacy, Living Fully and the Power of Self-Advocacy</itunes:title>
    <title>Dr Akilah Cadet on Dismantling White Supremacy, Living Fully and the Power of Self-Advocacy</title>
    <itunes:summary><![CDATA[In this episode, Nora talks to Dr. Akilah Cadet, who shares what it's like living with rare genetic conditions, the challenges of being believed as a Black woman in the American healthcare system, and the impact of white supremacy in healthcare.   She discusses the grief of living with a disabled body and the constant calculations she has to make to live her life, about facing death and how it has influenced her to live unapologetically. She highlights the financial burden of disability and t...]]></itunes:summary>
    <description><![CDATA[<p>In this episode, Nora talks to Dr. Akilah Cadet, who shares what it&apos;s like living with rare genetic conditions, the challenges of being believed as a Black woman in the American healthcare system, and the impact of white supremacy in healthcare. <br/><br/>She discusses the grief of living with a disabled body and the constant calculations she has to make to live her life, about facing death and how it has influenced her to live unapologetically. She highlights the financial burden of disability and the need for an integrated system. We also discuss the weight of responsibility she feels as a disabled Black woman and the challenges she faces in finding rest and financial security.<br/><br/>Dr. Cadet reflects on her extensive background in the health field and how it has shaped her understanding of disability. She highlights the importance of advocating for oneself in healthcare settings and the disparities faced by oppressed communities. Finally, she discusses the need for celebration and joy in the face of adversity, highlighting the need for disabled people to be celebrated and seen as happy and successful rather than being defined by their disabilities. <br/><br/><a href='https://www.changecadet.com/'>Dr Akilah Cadet&apos;s Website</a><br/><a href='https://www.instagram.com/changecadet/'>Dr Akilah Cadet&apos;s Instagram</a></p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></description>
    <content:encoded><![CDATA[<p>In this episode, Nora talks to Dr. Akilah Cadet, who shares what it&apos;s like living with rare genetic conditions, the challenges of being believed as a Black woman in the American healthcare system, and the impact of white supremacy in healthcare. <br/><br/>She discusses the grief of living with a disabled body and the constant calculations she has to make to live her life, about facing death and how it has influenced her to live unapologetically. She highlights the financial burden of disability and the need for an integrated system. We also discuss the weight of responsibility she feels as a disabled Black woman and the challenges she faces in finding rest and financial security.<br/><br/>Dr. Cadet reflects on her extensive background in the health field and how it has shaped her understanding of disability. She highlights the importance of advocating for oneself in healthcare settings and the disparities faced by oppressed communities. Finally, she discusses the need for celebration and joy in the face of adversity, highlighting the need for disabled people to be celebrated and seen as happy and successful rather than being defined by their disabilities. <br/><br/><a href='https://www.changecadet.com/'>Dr Akilah Cadet&apos;s Website</a><br/><a href='https://www.instagram.com/changecadet/'>Dr Akilah Cadet&apos;s Instagram</a></p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></content:encoded>
    <enclosure url="https://www.buzzsprout.com/2091579/episodes/15615006-dr-akilah-cadet-on-dismantling-white-supremacy-living-fully-and-the-power-of-self-advocacy.mp3" length="43555742" type="audio/mpeg" />
    <itunes:image href="https://storage.buzzsprout.com/jrd9ovgj8eqdz7ykv1efoby120e2?.jpg" />
    <itunes:author>Nora Logan</itunes:author>
    <guid isPermaLink="false">Buzzsprout-15615006</guid>
    <pubDate>Tue, 20 Aug 2024 08:00:00 -0400</pubDate>
    <podcast:transcript url="https://www.buzzsprout.com/2091579/15615006/transcript" type="text/html" />
    <podcast:transcript url="https://www.buzzsprout.com/2091579/15615006/transcript.json" type="application/json" />
    <podcast:transcript url="https://www.buzzsprout.com/2091579/15615006/transcript.srt" type="application/x-subrip" />
    <podcast:transcript url="https://www.buzzsprout.com/2091579/15615006/transcript.vtt" type="text/vtt" />
    <itunes:duration>3623</itunes:duration>
    <itunes:keywords></itunes:keywords>
    <itunes:season>2</itunes:season>
    <itunes:episode>4</itunes:episode>
    <itunes:episodeType>full</itunes:episodeType>
    <itunes:explicit>true</itunes:explicit>
  </item>
  <item>
    <itunes:title>Jezz Chung on Transformation, Neurodivergence and the Power of Imagination + Community</itunes:title>
    <title>Jezz Chung on Transformation, Neurodivergence and the Power of Imagination + Community</title>
    <itunes:summary><![CDATA[In this episode, Nora interviews Jezz Chung, a Korean-American writer, facilitator, and performer based in NYC. This Way to Change, their debut book of prose, poems, and practices, came out earlier this year. Jezz discusses their experiences with neurodivergence and disability and how these aspects of their identity intersect with their creative endeavors. The conversation delves into the power of imagination, the importance of disabled representation in media, and the impact of collective li...]]></itunes:summary>
    <description><![CDATA[<p>In this episode, Nora interviews <a href='https://www.jezzchung.com/'>Jezz Chung</a>, a Korean-American writer, facilitator, and performer based in NYC. <a href='https://www.chroniclebooks.com/products/this-way-to-change?srsltid=AfmBOooa-lZSDbbiICxH3n5c8bdayfCY-lPN-jx15BssmCMBiqVUXTdt'>This Way to Change</a>, their debut book of prose, poems, and practices, came out earlier this year. Jezz discusses their experiences with neurodivergence and disability and how these aspects of their identity intersect with their creative endeavors. The conversation delves into the power of imagination, the importance of disabled representation in media, and the impact of collective liberation. </p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p>00:35 Meet Jezz Chung: Writer, Facilitator, and Performer</p><p>03:41 Discussing This Way to Change</p><p>05:05 The Impact of Poetry and Collective Liberation</p><p>08:07 Navigating Disability and Neurodivergence</p><p>11:33 The Role of Disability Activists and Influences</p><p>15:21 Discovering Disability Justice</p><p>19:43 Realizing Neurodivergence and Self-Diagnosis</p><p>24:15 Empowerment Through Self-Permission</p><p>27:09 Personal Journey and Self-Realization</p><p>28:08 Navigating Dreams and Self-Affirmation</p><p>29:40 Challenges and Coping Mechanisms</p><p>33:34 The Concept of Time and Spiritual Practices</p><p>37:26 Imagination and Creativity</p><p>39:39 Sensory Joy and Mental Health</p><p>47:02 The Power of Friendship and Community</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><b>Sign up for our newsletter </b><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>here.</b></a><b> </b></p><p><br/></p>]]></description>
    <content:encoded><![CDATA[<p>In this episode, Nora interviews <a href='https://www.jezzchung.com/'>Jezz Chung</a>, a Korean-American writer, facilitator, and performer based in NYC. <a href='https://www.chroniclebooks.com/products/this-way-to-change?srsltid=AfmBOooa-lZSDbbiICxH3n5c8bdayfCY-lPN-jx15BssmCMBiqVUXTdt'>This Way to Change</a>, their debut book of prose, poems, and practices, came out earlier this year. Jezz discusses their experiences with neurodivergence and disability and how these aspects of their identity intersect with their creative endeavors. The conversation delves into the power of imagination, the importance of disabled representation in media, and the impact of collective liberation. </p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p>00:35 Meet Jezz Chung: Writer, Facilitator, and Performer</p><p>03:41 Discussing This Way to Change</p><p>05:05 The Impact of Poetry and Collective Liberation</p><p>08:07 Navigating Disability and Neurodivergence</p><p>11:33 The Role of Disability Activists and Influences</p><p>15:21 Discovering Disability Justice</p><p>19:43 Realizing Neurodivergence and Self-Diagnosis</p><p>24:15 Empowerment Through Self-Permission</p><p>27:09 Personal Journey and Self-Realization</p><p>28:08 Navigating Dreams and Self-Affirmation</p><p>29:40 Challenges and Coping Mechanisms</p><p>33:34 The Concept of Time and Spiritual Practices</p><p>37:26 Imagination and Creativity</p><p>39:39 Sensory Joy and Mental Health</p><p>47:02 The Power of Friendship and Community</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><b>Sign up for our newsletter </b><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>here.</b></a><b> </b></p><p><br/></p>]]></content:encoded>
    <enclosure url="https://www.buzzsprout.com/2091579/episodes/15574110-jezz-chung-on-transformation-neurodivergence-and-the-power-of-imagination-community.mp3" length="35648206" type="audio/mpeg" />
    <link>https://solifewantsyoudead.com/jezz-chung</link>
    <itunes:image href="https://storage.buzzsprout.com/oczflg0h6i0g8bjydi4y8dloxu76?.jpg" />
    <itunes:author>Nora Logan</itunes:author>
    <guid isPermaLink="false">Buzzsprout-15574110</guid>
    <pubDate>Tue, 13 Aug 2024 08:00:00 -0400</pubDate>
    <podcast:transcript url="https://www.buzzsprout.com/2091579/15574110/transcript" type="text/html" />
    <itunes:duration>2964</itunes:duration>
    <itunes:keywords>audhd, neurodivergence, autistic, collective liberation, art, writer, performer, facilitation, This Way to Change, poetry, prose, practices, self-discovery, dreams, timeline, artistic pursuits</itunes:keywords>
    <itunes:season>2</itunes:season>
    <itunes:episode>3</itunes:episode>
    <itunes:episodeType>full</itunes:episodeType>
    <itunes:explicit>false</itunes:explicit>
  </item>
  <item>
    <itunes:title>Chris Tartaro on Facing Mortality Twice, Creativity and Balancing Parenting with Illness</itunes:title>
    <title>Chris Tartaro on Facing Mortality Twice, Creativity and Balancing Parenting with Illness</title>
    <itunes:summary><![CDATA[In this episode of So Life Wants You Dead, Nora sits down with Chris Tartaro. Chris Tartaro is a television director from Queens, NY, who currently works on the Tonight Show Starring Jimmy Fallon. He is a father of 3 and a husband of 1. He is also half of “blazrdog” [pronounced Blazer Dog] Their music can be found on all streaming platforms. For more info head to blazrdog.com.  Chris has faced significant health challenges, including a Hodgkin's Disease diagnosis at age 16 and a benign brain ...]]></itunes:summary>
    <description><![CDATA[<p>In this episode of So Life Wants You Dead, Nora sits down with Chris Tartaro. Chris Tartaro is a television director from Queens, NY, who currently works on the Tonight Show Starring Jimmy Fallon. He is a father of 3 and a husband of 1.<br/>He is also half of “blazrdog” [pronounced Blazer Dog] Their music can be found on all streaming platforms. For more info head to <a href='http://blazrdog.com/'>blazrdog.com</a>.<br/><br/>Chris has faced significant health challenges, including a Hodgkin&apos;s Disease diagnosis at age 16 and a benign brain tumor (meningioma) at age 40. In this episode, we discuss his experience with these diagnoses, how music is a guiding force in his life, and how he balances parenthood with illness. Chris shares his perspective on the emotional and practical aspects of his medical journey, the impactful role of creativity in his recovery, and how he navigates life and work post-illness. </p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p>01:54 Chris&apos;s Brain Tumor Diagnosis</p><p>03:38 Hospital Experience and Surgery</p><p>07:43 Reflections on Past Illness: Hodgkin&apos;s Disease</p><p>19:19 Impact of Illness on Personal Life and Career</p><p>24:37 Adjusting to Life Post-Surgery</p><p>31:25 Embracing Sobriety</p><p>32:08 Parenting Through Illness</p><p>33:03 Facing Mortality and Love Bombing</p><p>36:46 Creative Outlets During Recovery</p><p>39:15 Music as a Lifeline</p><p>47:09 The Impact of Illness on Creativity<br/><br/><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></description>
    <content:encoded><![CDATA[<p>In this episode of So Life Wants You Dead, Nora sits down with Chris Tartaro. Chris Tartaro is a television director from Queens, NY, who currently works on the Tonight Show Starring Jimmy Fallon. He is a father of 3 and a husband of 1.<br/>He is also half of “blazrdog” [pronounced Blazer Dog] Their music can be found on all streaming platforms. For more info head to <a href='http://blazrdog.com/'>blazrdog.com</a>.<br/><br/>Chris has faced significant health challenges, including a Hodgkin&apos;s Disease diagnosis at age 16 and a benign brain tumor (meningioma) at age 40. In this episode, we discuss his experience with these diagnoses, how music is a guiding force in his life, and how he balances parenthood with illness. Chris shares his perspective on the emotional and practical aspects of his medical journey, the impactful role of creativity in his recovery, and how he navigates life and work post-illness. </p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p>01:54 Chris&apos;s Brain Tumor Diagnosis</p><p>03:38 Hospital Experience and Surgery</p><p>07:43 Reflections on Past Illness: Hodgkin&apos;s Disease</p><p>19:19 Impact of Illness on Personal Life and Career</p><p>24:37 Adjusting to Life Post-Surgery</p><p>31:25 Embracing Sobriety</p><p>32:08 Parenting Through Illness</p><p>33:03 Facing Mortality and Love Bombing</p><p>36:46 Creative Outlets During Recovery</p><p>39:15 Music as a Lifeline</p><p>47:09 The Impact of Illness on Creativity<br/><br/><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></content:encoded>
    <enclosure url="https://www.buzzsprout.com/2091579/episodes/15541919-chris-tartaro-on-facing-mortality-twice-creativity-and-balancing-parenting-with-illness.mp3" length="44380962" type="audio/mpeg" />
    <itunes:image href="https://storage.buzzsprout.com/atgus38vvby2ku084stb0dgsxyg8?.jpg" />
    <itunes:author>Nora Logan</itunes:author>
    <guid isPermaLink="false">Buzzsprout-15541919</guid>
    <pubDate>Tue, 06 Aug 2024 17:00:00 -0400</pubDate>
    <podcast:transcript url="https://www.buzzsprout.com/2091579/15541919/transcript" type="text/html" />
    <podcast:soundbite startTime="0.0" duration="30.0" />
    <itunes:duration>3692</itunes:duration>
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    <itunes:season>2</itunes:season>
    <itunes:episode>2</itunes:episode>
    <itunes:episodeType>full</itunes:episodeType>
    <itunes:explicit>false</itunes:explicit>
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  <item>
    <itunes:title>Disability Pride Month: Live from Soho House with Kendall Ciesemier</itunes:title>
    <title>Disability Pride Month: Live from Soho House with Kendall Ciesemier</title>
    <itunes:summary><![CDATA[In this episode, we talk to Kendall Ciesemier, a writer, producer, reporter, and health and disability advocate. Nora celebrated the launch event of So, Life Wants You Dead during Disability Pride Month last July when we recorded this conversation. We're so excited to launch our second season with this conversation.   Kendall discusses her experience with liver transplant, navigating disability disclosure, and the societal stigmas associated with the term 'disability.' Both Nora and Kend...]]></itunes:summary>
    <description><![CDATA[<p>In this episode, we talk to Kendall Ciesemier, a writer, producer, reporter, and health and disability advocate. Nora celebrated the launch event of So, Life Wants You Dead during Disability Pride Month last July when we recorded this conversation. We&apos;re so excited to launch our second season with this conversation. <br/><br/>Kendall discusses her experience with liver transplant, navigating disability disclosure, and the societal stigmas associated with the term &apos;disability.&apos; Both Nora and Kendall share personal stories about their health experiences, the empowerment found in disability identity, and the importance of community engagement. We touch on the challenges of navigating systemic ableism, the value of visibility, and the need for deeper cultural understanding and legislative change to support disabled individuals.</p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal<br/><br/>00:00 Introduction to &apos;So, Life Wants You Dead&apos;</p><p>00:36 Meet Kendall Ciesemier: Writer, Producer, and Advocate</p><p>00:53 Celebrating Disability Pride Month</p><p>02:17 Kendall&apos;s Story and Advocacy</p><p>04:51 Navigating Disability Disclosure</p><p>07:10 Empowerment Through Disability Identity</p><p>15:02 Kendall&apos;s Early Advocacy Work</p><p>17:58 Challenges and Community in Disability</p><p>20:03 The Stigma and Reality of Disability</p><p>29:05 Connecting Mental Health and Disability Rights</p><p>32:39 Workplace Accommodations and Advocacy</p><p>36:08 Media Representation of Disabilities</p><p>41:30 Organ Transplant System Issues</p><p>43:28 Remembering Tonya Ingram</p><p>45:07 Disability Pride Month Reflections</p><p>50:48 Personal Experiences with Disclosure</p><p>56:19 Audience Q&amp;A</p><p>59:57 Closing Remarks and Gratitude</p><p><a href='https://www.kendallciesemier.com/'>Kendall&apos;s Website</a><br/><a href='https://www.instagram.com/kendallciesemier/'>Kendall&apos;s Instagram</a></p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></description>
    <content:encoded><![CDATA[<p>In this episode, we talk to Kendall Ciesemier, a writer, producer, reporter, and health and disability advocate. Nora celebrated the launch event of So, Life Wants You Dead during Disability Pride Month last July when we recorded this conversation. We&apos;re so excited to launch our second season with this conversation. <br/><br/>Kendall discusses her experience with liver transplant, navigating disability disclosure, and the societal stigmas associated with the term &apos;disability.&apos; Both Nora and Kendall share personal stories about their health experiences, the empowerment found in disability identity, and the importance of community engagement. We touch on the challenges of navigating systemic ableism, the value of visibility, and the need for deeper cultural understanding and legislative change to support disabled individuals.</p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal<br/><br/>00:00 Introduction to &apos;So, Life Wants You Dead&apos;</p><p>00:36 Meet Kendall Ciesemier: Writer, Producer, and Advocate</p><p>00:53 Celebrating Disability Pride Month</p><p>02:17 Kendall&apos;s Story and Advocacy</p><p>04:51 Navigating Disability Disclosure</p><p>07:10 Empowerment Through Disability Identity</p><p>15:02 Kendall&apos;s Early Advocacy Work</p><p>17:58 Challenges and Community in Disability</p><p>20:03 The Stigma and Reality of Disability</p><p>29:05 Connecting Mental Health and Disability Rights</p><p>32:39 Workplace Accommodations and Advocacy</p><p>36:08 Media Representation of Disabilities</p><p>41:30 Organ Transplant System Issues</p><p>43:28 Remembering Tonya Ingram</p><p>45:07 Disability Pride Month Reflections</p><p>50:48 Personal Experiences with Disclosure</p><p>56:19 Audience Q&amp;A</p><p>59:57 Closing Remarks and Gratitude</p><p><a href='https://www.kendallciesemier.com/'>Kendall&apos;s Website</a><br/><a href='https://www.instagram.com/kendallciesemier/'>Kendall&apos;s Instagram</a></p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></content:encoded>
    <enclosure url="https://www.buzzsprout.com/2091579/episodes/15468487-disability-pride-month-live-from-soho-house-with-kendall-ciesemier.mp3" length="43930299" type="audio/mpeg" />
    <itunes:image href="https://storage.buzzsprout.com/48ch3bbjtqr9cc8glq86k8o2lthj?.jpg" />
    <itunes:author>Nora Logan</itunes:author>
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    <pubDate>Tue, 30 Jul 2024 13:00:00 -0400</pubDate>
    <podcast:transcript url="https://www.buzzsprout.com/2091579/15468487/transcript" type="text/html" />
    <itunes:duration>3657</itunes:duration>
    <itunes:keywords></itunes:keywords>
    <itunes:season>2</itunes:season>
    <itunes:episode>1</itunes:episode>
    <itunes:episodeType>full</itunes:episodeType>
    <itunes:explicit>false</itunes:explicit>
  </item>
  <item>
    <itunes:title>Ronaé Fagon On Navigating a Medical System Not Set Up to Cater to a Mystery Illness</itunes:title>
    <title>Ronaé Fagon On Navigating a Medical System Not Set Up to Cater to a Mystery Illness</title>
    <itunes:summary><![CDATA[In this episode, we talk to Ronaé Fagon, a sustainability thought leader, illustrator, fashion designer, and co-founder of the sustainable e-commerce platform SlowCo. We talk about Ronaé’s experience living with a mystery chronic illness for which she’s yet to receive a diagnosis, how grinding at a demanding job contributed to burning out in 2018, and what it’s like to navigate the medical system when you don’t have a diagnosis.  Artwork by Ronaé Fagon; Music by Milo Segal Follow us on s...]]></itunes:summary>
    <description><![CDATA[<p>In this episode, we talk to <a href='https://ronaefagon.substack.com/'>Ronaé Fagon</a>, a sustainability thought leader, illustrator, fashion designer, and co-founder of the sustainable e-commerce platform SlowCo. We talk about Ronaé’s experience living with a mystery chronic illness for which she’s yet to receive a diagnosis, how grinding at a demanding job contributed to burning out in 2018, and what it’s like to navigate the medical system when you don’t have a diagnosis. </p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></description>
    <content:encoded><![CDATA[<p>In this episode, we talk to <a href='https://ronaefagon.substack.com/'>Ronaé Fagon</a>, a sustainability thought leader, illustrator, fashion designer, and co-founder of the sustainable e-commerce platform SlowCo. We talk about Ronaé’s experience living with a mystery chronic illness for which she’s yet to receive a diagnosis, how grinding at a demanding job contributed to burning out in 2018, and what it’s like to navigate the medical system when you don’t have a diagnosis. </p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></content:encoded>
    <enclosure url="https://www.buzzsprout.com/2091579/episodes/12104542-ronae-fagon-on-navigating-a-medical-system-not-set-up-to-cater-to-a-mystery-illness.mp3" length="34842428" type="audio/mpeg" />
    <itunes:image href="https://storage.buzzsprout.com/jz3kcbumfkxdmkrja63pob5zysiu?.jpg" />
    <itunes:author>Nora Logan</itunes:author>
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    <pubDate>Tue, 24 Jan 2023 00:00:00 -0500</pubDate>
    <podcast:transcript url="https://www.buzzsprout.com/2091579/12104542/transcript" type="text/html" />
    <podcast:transcript url="https://www.buzzsprout.com/2091579/12104542/transcript.json" type="application/json" />
    <podcast:transcript url="https://www.buzzsprout.com/2091579/12104542/transcript.srt" type="application/x-subrip" />
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    <itunes:duration>2900</itunes:duration>
    <itunes:keywords></itunes:keywords>
    <itunes:season>1</itunes:season>
    <itunes:episode>7</itunes:episode>
    <itunes:episodeType>full</itunes:episodeType>
    <itunes:explicit>false</itunes:explicit>
  </item>
  <item>
    <itunes:title>Claudia Walder on Shame, Community + Finding New Ground after Disability</itunes:title>
    <title>Claudia Walder on Shame, Community + Finding New Ground after Disability</title>
    <itunes:summary><![CDATA[In this episode, Nora talks to Claudia Rose Walder, a London-based editor and creative director working within the realms of styling, image direction and journalism. She is also a disability activist, model and the founder of Ablezine, a magazine dedicated to disabled and chronically ill communities, young people and creatives. We talk about Claudia’s experience living with Myalgic Encephalomyelitis, the difficulty of finding appropriate care, her creative outlets and what led her to create A...]]></itunes:summary>
    <description><![CDATA[<p>In this episode, Nora talks to Claudia Rose Walder, a London-based editor and creative director working within the realms of styling, image direction and journalism. She is also a disability activist, model and the founder of Ablezine, a magazine dedicated to disabled and chronically ill communities, young people and creatives. We talk about Claudia’s experience living with Myalgic Encephalomyelitis, the difficulty of finding appropriate care, her creative outlets and what led her to create Ablezine.</p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></description>
    <content:encoded><![CDATA[<p>In this episode, Nora talks to Claudia Rose Walder, a London-based editor and creative director working within the realms of styling, image direction and journalism. She is also a disability activist, model and the founder of Ablezine, a magazine dedicated to disabled and chronically ill communities, young people and creatives. We talk about Claudia’s experience living with Myalgic Encephalomyelitis, the difficulty of finding appropriate care, her creative outlets and what led her to create Ablezine.</p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></content:encoded>
    <enclosure url="https://www.buzzsprout.com/2091579/episodes/12056546-claudia-walder-on-shame-community-finding-new-ground-after-disability.mp3" length="48470163" type="audio/mpeg" />
    <itunes:image href="https://storage.buzzsprout.com/hvyh8tje6o8zhiwzghi53iwl59gh?.jpg" />
    <itunes:author>Nora Logan</itunes:author>
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    <pubDate>Tue, 17 Jan 2023 00:00:00 -0500</pubDate>
    <podcast:transcript url="https://www.buzzsprout.com/2091579/12056546/transcript" type="text/html" />
    <podcast:transcript url="https://www.buzzsprout.com/2091579/12056546/transcript.json" type="application/json" />
    <podcast:transcript url="https://www.buzzsprout.com/2091579/12056546/transcript.srt" type="application/x-subrip" />
    <podcast:transcript url="https://www.buzzsprout.com/2091579/12056546/transcript.vtt" type="text/vtt" />
    <itunes:duration>4032</itunes:duration>
    <itunes:keywords></itunes:keywords>
    <itunes:season>1</itunes:season>
    <itunes:episode>6</itunes:episode>
    <itunes:episodeType>full</itunes:episodeType>
    <itunes:explicit>false</itunes:explicit>
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  <item>
    <itunes:title>Playwright Matilda Ibini on Humour and Writing Your Way Through</itunes:title>
    <title>Playwright Matilda Ibini on Humour and Writing Your Way Through</title>
    <itunes:summary><![CDATA[In this episode, Nora talks to Matilda Ibini. Matilda is a Nigerian Londoner and an award-winning bionic, Queer playwright and screenwriter with Limb Girdle Muscular Dystrophy. Their work often centres women, disabled people, Queer people and the Black British experience seen through a magical realist lens.   Today we talk about their work as a playwright and screenwriter, what it was like to grow up with Limb Girdle Muscular Dystrophy, the 90s and finding Black role models in girl bands, the...]]></itunes:summary>
    <description><![CDATA[<p>In this episode, Nora talks to Matilda Ibini. Matilda is a Nigerian Londoner and an award-winning bionic, Queer playwright and screenwriter with Limb Girdle Muscular Dystrophy. Their work often centres women, disabled people, Queer people and the Black British experience seen through a magical realist lens. <br/><br/>Today we talk about their work as a playwright and screenwriter, what it was like to grow up with Limb Girdle Muscular Dystrophy, the 90s and finding Black role models in girl bands, the Sugababes, Matilda&apos;s creative process and their play on BBC Sounds, Little Miss Burden.<br/><br/>You can listen to Little Miss Burden <a href='https://www.bbc.co.uk/programmes/m0011cgt'>here. </a><br/>You can find Matilda&apos;s website<a href='https://matildaibini.com/'> here. </a><br/><br/>Here is a link to donate to <a href='https://cash.app/$Tonyaingramfund'>Tonya Ingram&apos;s memorial fund.</a><br/>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></description>
    <content:encoded><![CDATA[<p>In this episode, Nora talks to Matilda Ibini. Matilda is a Nigerian Londoner and an award-winning bionic, Queer playwright and screenwriter with Limb Girdle Muscular Dystrophy. Their work often centres women, disabled people, Queer people and the Black British experience seen through a magical realist lens. <br/><br/>Today we talk about their work as a playwright and screenwriter, what it was like to grow up with Limb Girdle Muscular Dystrophy, the 90s and finding Black role models in girl bands, the Sugababes, Matilda&apos;s creative process and their play on BBC Sounds, Little Miss Burden.<br/><br/>You can listen to Little Miss Burden <a href='https://www.bbc.co.uk/programmes/m0011cgt'>here. </a><br/>You can find Matilda&apos;s website<a href='https://matildaibini.com/'> here. </a><br/><br/>Here is a link to donate to <a href='https://cash.app/$Tonyaingramfund'>Tonya Ingram&apos;s memorial fund.</a><br/>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></content:encoded>
    <enclosure url="https://www.buzzsprout.com/2091579/episodes/12005385-playwright-matilda-ibini-on-humour-and-writing-your-way-through.mp3" length="46143756" type="audio/mpeg" />
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    <itunes:author></itunes:author>
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    <pubDate>Tue, 10 Jan 2023 00:00:00 -0500</pubDate>
    <podcast:transcript url="https://www.buzzsprout.com/2091579/12005385/transcript" type="text/html" />
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    <itunes:duration>3838</itunes:duration>
    <itunes:keywords>patient interviews, limb girdle muscular dystrophhy, theatre, disability, art, illness, trauma, mental health,</itunes:keywords>
    <itunes:season>1</itunes:season>
    <itunes:episode>5</itunes:episode>
    <itunes:episodeType>full</itunes:episodeType>
    <itunes:explicit>false</itunes:explicit>
  </item>
  <item>
    <itunes:title>Alexa Wilding on Caregiving, Minor-Major Characters in Your Story &amp; Two Cancer Diagnoses in One Family</itunes:title>
    <title>Alexa Wilding on Caregiving, Minor-Major Characters in Your Story &amp; Two Cancer Diagnoses in One Family</title>
    <itunes:summary><![CDATA[In this episode, Nora talks to Alexa Wilding, a writer, musician, and mother of two whose cancer and caregiving experience has both built community and informed her creative life. We talk about what it’s like to be a caregiver and mother of twins, dubbed on her Instagram #twinmagic, her own breast cancer experience, her writing practice and what it means to reframe resilience.   We talk about the book Between Two Kingdoms by Suleika Jaouad, the writer Kate Bowler and US Poet Laureate Joy Harj...]]></itunes:summary>
    <description><![CDATA[<p>In this episode, Nora talks to <a href='https://www.alexawilding.com/'>Alexa Wilding</a>, a writer, musician, and mother of two whose cancer and caregiving experience has both built community and informed her creative life. We talk about what it’s like to be a caregiver and mother of twins, dubbed on her Instagram #twinmagic, her own breast cancer experience, her writing practice and what it means to reframe resilience. <br/><br/>We talk about the book <a href='https://www.goodreads.com/book/show/50743767-between-two-kingdoms'>Between Two Kingdoms by Suleika Jaouad</a>, the writer Kate Bowler and US Poet Laureate Joy Harjo. </p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p><p><br/></p>]]></description>
    <content:encoded><![CDATA[<p>In this episode, Nora talks to <a href='https://www.alexawilding.com/'>Alexa Wilding</a>, a writer, musician, and mother of two whose cancer and caregiving experience has both built community and informed her creative life. We talk about what it’s like to be a caregiver and mother of twins, dubbed on her Instagram #twinmagic, her own breast cancer experience, her writing practice and what it means to reframe resilience. <br/><br/>We talk about the book <a href='https://www.goodreads.com/book/show/50743767-between-two-kingdoms'>Between Two Kingdoms by Suleika Jaouad</a>, the writer Kate Bowler and US Poet Laureate Joy Harjo. </p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p><p><br/></p>]]></content:encoded>
    <enclosure url="https://www.buzzsprout.com/2091579/episodes/11975673-alexa-wilding-on-caregiving-minor-major-characters-in-your-story-two-cancer-diagnoses-in-one-family.mp3" length="59251211" type="audio/mpeg" />
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    <pubDate>Tue, 03 Jan 2023 23:00:00 -0500</pubDate>
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    <itunes:duration>4930</itunes:duration>
    <itunes:keywords></itunes:keywords>
    <itunes:season>1</itunes:season>
    <itunes:episode>4</itunes:episode>
    <itunes:episodeType>full</itunes:episodeType>
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  <item>
    <itunes:title>Charlie Fitz On Using Art to Reclaim the Medical Narrative </itunes:title>
    <title>Charlie Fitz On Using Art to Reclaim the Medical Narrative </title>
    <itunes:summary><![CDATA[In this episode, we talk to Charlie Fitz. Charlie is a UK-based sick and disabled artist, arts practitioner, writer, co-director of the remote artist studio TRIAD³ c.i.c and medical humanities postgraduate at Birkbeck, where she is a recipient of the Wellcome Trust studentship.   Since becoming sick, Fitz has turned to her art practice as a meditative process, a form of disability activism, and as a means to understand and reclaim her experiences of illness and trauma.   In today’s ...]]></itunes:summary>
    <description><![CDATA[<p>In this episode, we talk to Charlie Fitz. Charlie is a UK-based sick and disabled artist, arts practitioner, writer, co-director of the remote artist studio <a href='https://www.triad.org.uk/'>TRIAD³ c.i.c </a>and medical humanities postgraduate at Birkbeck, where she is a recipient of the Wellcome Trust studentship. <br/><br/>Since becoming sick, Fitz has turned to her art practice as a meditative process, a form of disability activism, and as a means to understand and reclaim her experiences of illness and trauma. <br/><br/>In today’s episode, we talk about Charlie’s experience with Ehlers-Danlos syndrome, her time in the hospital, and having to outsource care and fundraise for surgery. We also discuss mental health, interdependence, collective care and her art practice. </p><p><b>Content warning: </b>We talk about death and suicide in this episode. If you or a loved one is experiencing suicidal ideation or needs support, please reach out. Help is here for you.<br/><br/><a href='https://www.instagram.com/charliejlfitz/'>Charlie&apos;s Instagram</a><br/><a href='https://www.sickofbeingpatient.com/'>Charlie&apos;s Website</a></p><p><br/><b>Resources: </b></p><p><b>UK:  </b><a href='https://www.samaritans.org/'><b>Samaritans</b></a><b>: Call: 116 123 free </b></p><p><a href='https://www.spuk.org.uk/'><b>National Suicide Prevention Helpline</b></a><b> at 0800 689 5652 </b></p><p><b>USA: </b><a href='https://988lifeline.org/'><b>The National Suicide Prevention Lifeline</b></a><b> is: 988 </b></p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p>]]></description>
    <content:encoded><![CDATA[<p>In this episode, we talk to Charlie Fitz. Charlie is a UK-based sick and disabled artist, arts practitioner, writer, co-director of the remote artist studio <a href='https://www.triad.org.uk/'>TRIAD³ c.i.c </a>and medical humanities postgraduate at Birkbeck, where she is a recipient of the Wellcome Trust studentship. <br/><br/>Since becoming sick, Fitz has turned to her art practice as a meditative process, a form of disability activism, and as a means to understand and reclaim her experiences of illness and trauma. <br/><br/>In today’s episode, we talk about Charlie’s experience with Ehlers-Danlos syndrome, her time in the hospital, and having to outsource care and fundraise for surgery. We also discuss mental health, interdependence, collective care and her art practice. </p><p><b>Content warning: </b>We talk about death and suicide in this episode. If you or a loved one is experiencing suicidal ideation or needs support, please reach out. Help is here for you.<br/><br/><a href='https://www.instagram.com/charliejlfitz/'>Charlie&apos;s Instagram</a><br/><a href='https://www.sickofbeingpatient.com/'>Charlie&apos;s Website</a></p><p><br/><b>Resources: </b></p><p><b>UK:  </b><a href='https://www.samaritans.org/'><b>Samaritans</b></a><b>: Call: 116 123 free </b></p><p><a href='https://www.spuk.org.uk/'><b>National Suicide Prevention Helpline</b></a><b> at 0800 689 5652 </b></p><p><b>USA: </b><a href='https://988lifeline.org/'><b>The National Suicide Prevention Lifeline</b></a><b> is: 988 </b></p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p>]]></content:encoded>
    <enclosure url="https://www.buzzsprout.com/2091579/episodes/11900804-charlie-fitz-on-using-art-to-reclaim-the-medical-narrative.mp3" length="52898907" type="audio/mpeg" />
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    <itunes:author>Nora Logan</itunes:author>
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    <pubDate>Tue, 20 Dec 2022 00:00:00 -0500</pubDate>
    <podcast:transcript url="https://www.buzzsprout.com/2091579/11900804/transcript" type="text/html" />
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    <itunes:duration>4401</itunes:duration>
    <itunes:keywords>Ehlers-Danlos Syndrome, illness, artist, patient interviews, trauma, disability</itunes:keywords>
    <itunes:season>1</itunes:season>
    <itunes:episode>3</itunes:episode>
    <itunes:episodeType>full</itunes:episodeType>
    <itunes:explicit>true</itunes:explicit>
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  <item>
    <itunes:title>Poet Tonya Ingram on Navigating the Organ Donor System</itunes:title>
    <title>Poet Tonya Ingram on Navigating the Organ Donor System</title>
    <itunes:summary><![CDATA[In this episode, we talk to Tonya Ingram, a poet and mental health advocate living with Lupus. During our conversation, we discuss Tonya’s experience being on the kidney transplant waiting list, the darker side of the organ transplant process and OPOs, her poetry practice, and choosing to blossom — despite the conditions of the soil. Artwork by Ronaé Fagon; Music by Milo Segal Follow us on socials: Instagram Tiktok Youtube Sign up for our newsletter here.  ]]></itunes:summary>
    <description><![CDATA[<p>In this episode, we talk to Tonya Ingram, a poet and mental health advocate living with Lupus. During our conversation, we discuss Tonya’s experience being on the kidney transplant waiting list, the darker side of the organ transplant process and OPOs, her poetry practice, and choosing to blossom — despite the conditions of the soil.</p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></description>
    <content:encoded><![CDATA[<p>In this episode, we talk to Tonya Ingram, a poet and mental health advocate living with Lupus. During our conversation, we discuss Tonya’s experience being on the kidney transplant waiting list, the darker side of the organ transplant process and OPOs, her poetry practice, and choosing to blossom — despite the conditions of the soil.</p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></content:encoded>
    <enclosure url="https://www.buzzsprout.com/2091579/episodes/11848381-poet-tonya-ingram-on-navigating-the-organ-donor-system.mp3" length="30952134" type="audio/mpeg" />
    <link>https://solifewantsyoudead.com/</link>
    <itunes:image href="https://storage.buzzsprout.com/exx56hgr1qixlvwuohe1e6mjt4zg?.jpg" />
    <itunes:author>Nora Logan</itunes:author>
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    <pubDate>Tue, 13 Dec 2022 00:00:00 -0500</pubDate>
    <podcast:transcript url="https://www.buzzsprout.com/2091579/11848381/transcript" type="text/html" />
    <podcast:transcript url="https://www.buzzsprout.com/2091579/11848381/transcript.json" type="application/json" />
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    <itunes:duration>2573</itunes:duration>
    <itunes:keywords>patient interviews, kidney transplant lupus, poetry, disability, art, illness, trauma, healing, rest, chronic condition, organ transplant, organ transplant waiting list, organ donor</itunes:keywords>
    <itunes:season>1</itunes:season>
    <itunes:episode>2</itunes:episode>
    <itunes:episodeType>full</itunes:episodeType>
    <itunes:explicit>true</itunes:explicit>
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  <item>
    <itunes:title>Nora’s Story of Liver Failure, Reimagining Dreams and the &#39;Why&#39; of So, Life Wants You Dead</itunes:title>
    <title>Nora’s Story of Liver Failure, Reimagining Dreams and the &#39;Why&#39; of So, Life Wants You Dead</title>
    <itunes:summary><![CDATA[In this episode, Nora talks about her illness, what happened when she went into liver failure, and her subsequent liver transplant surgery. Speaking to her friend and former colleague Christine Cestaro, she talks about why she wanted to start So, Life Wants You Dead, the power of community, and what this show is all about. Artwork by Ronaé Fagon; Music by Milo Segal Follow us on socials: Instagram Tiktok Youtube Sign up for our newsletter here.  ]]></itunes:summary>
    <description><![CDATA[<p>In this episode, Nora talks about her illness, what happened when she went into liver failure, and her subsequent liver transplant surgery. Speaking to her friend and former colleague Christine Cestaro, she talks about why she wanted to start So, Life Wants You Dead, the power of community, and what this show is all about.</p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></description>
    <content:encoded><![CDATA[<p>In this episode, Nora talks about her illness, what happened when she went into liver failure, and her subsequent liver transplant surgery. Speaking to her friend and former colleague Christine Cestaro, she talks about why she wanted to start So, Life Wants You Dead, the power of community, and what this show is all about.</p><p>Artwork by <a href='https://www.instagram.com/ronaesfagon/'>Ronaé Fagon</a>; Music by Milo Segal</p><p><b>Follow us on socials:</b></p><p><a href='https://www.instagram.com/solifewantsyoudead/'><b>Instagram</b></a></p><p><a href='https://www.tiktok.com/@solifewantsyoudead'><b>Tiktok</b></a></p><p><a href='https://www.youtube.com/@solifewantsyoudead'><b>Youtube</b></a></p><p><a href='https://twilight-voice-86598.myflodesk.com/je446cv9ca'><b>Sign up for our newsletter here. </b></a></p>]]></content:encoded>
    <enclosure url="https://www.buzzsprout.com/2091579/episodes/11782924-nora-s-story-of-liver-failure-reimagining-dreams-and-the-why-of-so-life-wants-you-dead.mp3" length="51870680" type="audio/mpeg" />
    <link>https://solifewantsyoudead.com/episodes</link>
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    <itunes:author>Nora</itunes:author>
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    <pubDate>Sun, 04 Dec 2022 00:00:00 -0500</pubDate>
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    <podcast:soundbite startTime="2666.0" duration="58.5" />
    <itunes:duration>4316</itunes:duration>
    <itunes:keywords>patient interviews, liver transplant, experience of illness, disability, art, illness, trauma, healing, patient community, death, chronic condition, organ transplant, organ transplant waiting list</itunes:keywords>
    <itunes:season>1</itunes:season>
    <itunes:episode>1</itunes:episode>
    <itunes:episodeType>full</itunes:episodeType>
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