Visiting a Loved One in Memory Care: Emotions, Adjustments, and Finding Joy

Ken  shares what he has learned from five years of visiting his wife, Shana, in memory care, focusing on the emotions and common circumstances families face. He describes stages from the difficult move-in period—emotional shock, learning to live apart, guilt, shifting from full-time caregiver to advocate, and figuring out visit frequency—to finding a sustainable rhythm and shortening visits as Shanna tires more easily. He discusses getting involved with staff, residents, and activities, adjusting holidays and outings as Shanna’s tolerance declines, and creating meaningful traditions like their anniversary dinner and storytelling with music. Ken emphasizes accepting constant change, letting go of expectations and what’s out of control, adapting to Shana’s physical decline, and choosing interpretations that preserve joy in small moments.

• 00:00 Visiting Memory Care Fears 
• 00:27 Episode Setup and Purpose
• 02:19 Stage One Move In Shock
• 07:50 Guilt and Visit Anxiety
• 10:10 Building Support and Community
• 11:49 Months Six to Twelve Rhythm
• 15:19 Boredom to Finding Joy
• 19:41 Holidays and Traditions
• 22:48 Why Visits Still Matter
• 24:15 Later Years New Limitations
• 28:25 Preparing for the End
• 30:47 Lessons and Final Story

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Checking In After a Break: Grief, Support, and Shanna’s Ongoing Alzheimer’s Journey

Host Ken Cardita returns to the Surviving Alzheimer’s Podcast after several months away to explain his absence and share personal updates from his 13-year caregiving journey with his wife, Shanna. 

He describes ongoing grief and sadness over the past few months, beginning with Shanna’s roommate passing away shortly before Thanksgiving and continuing through the holidays and into New Year’s after the death of a longtime friend’s wife who had dementia. 

Ken shares that Shanna’s condition shows increasing neurological symptoms,greater fatigue, and a slower recognition of him.

 Ken also updates listeners on his ongoing Surviving Alzheimer’s support group (third Monday nights at 7:00 PM Mountain Standard Time in Arizona) and his one-on-one coaching with people early in their caregiving journey, emphasizing lessons about thoughts, mood, and what can and can’t be controlled. 

He reflects that even coaches need support, recommits to self-care and finding joy, and shares plans to shape the podcast in 2026 by incorporating more coaching training and posting more frequently, while encouraging caregivers to take care of themselves, be patient, and share the podcast with others.

00:00 Welcome to the Surviving Alzheimer’s Podcast (Ken & Shanna’s journey)
00:43 It’s Been a Few Months: Why I’ve Been Away
01:20 Holiday Grief Begins: Shanna’s Roommate Passes
03:17 New Year Heaviness: Losing a Friend & Remembering the Early Days
04:33 Bright Spots: Support Group + 1-on-1 Coaching Updates
06:32 Taking Stock in 2026: Shanna’s Decline & New Neurological Symptoms
08:29 Medication Changes, New Room, and a Sweet New Routine Together
10:51 Speaking From the Heart: Self-Care, Finding Joy, and Podcast Plans for 2026

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Understanding Suffering in Alzheimer's Disease: A Caregiver's Perspective

In episode 47 of the Surviving Alzheimer's Podcast, host Ken Cardina delves into the topic of suffering, specifically examining whether or not his wife Shanna, who has Alzheimer's, is suffering. Drawing from a poignant conversation with his daughter, Ken explores both emotional and mental aspects of suffering in the context of Alzheimer's caregiving. He provides detailed insights into the various stages of Shanna's journey, their shift to memory care, and the differences in her well-being in two different facilities. Ken offers practical advice for caregivers on managing their own and their loved ones' emotional well-being, discussing concepts like fact vs. interpretation, the impact of belief systems, and the significance of positive responses to repeated questions. The episode also features a listener comment from Flo Garinger, highlighting the podcast's ongoing impact.

00:00 A Heartfelt Conversation with My Daughter
01:08 Introduction to the Podcast
01:53 Defining Suffering
02:28 Listener Comment and Feedback
03:32 Understanding Suffering in Alzheimer's
08:05 Reflecting on Shanna's Diagnosis
21:24 The Role of Memory Care Facilities
29:18 Dealing with Repeated Questions
30:29 Conclusion and Final Thoughts

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Overcoming Guilt and Cherishing Moments: A Caregiver's Summer Reflections

Ken  shares heartfelt experiences from his summer, including celebrating his 45th wedding anniversary with his wife Shanna, who is battling Alzheimer's, Shanna's 65th birthday with her family, and a long overdue extended family vacation. Ken reflects on the emotional journey of transitioning from full-time caregiving to balancing family life, overcoming survivor's guilt, and finding joy amid challenges. He emphasizes the importance of addressing caregiver guilt, seeking support, and staying connected with family. Ken also shares how becoming a life coach has allowed him to help others navigate similar struggles, urging listeners to find the balance between responsibilities and self-care.

00:00 Episode Overview

01:16 Celebrating 45 Years of Marriage

09:23 Shanna's 65th Birthday Celebration

11:12 Family Vacation to Mission Beach

18:12 Planning a Cruise Vacation

20:52 Reflections and Moving Forward

22:42 Encouragement for Caregivers

24:54 Conclusion and Podcast Mission

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Changes - Turn and Face the Strange

In this episode of the Surviving Alzheimer's Podcast, host Ken reflects on nine years of retirement and his experiences as the primary caregiver for his wife, Shanna, who has Alzheimer's disease. Ken shares the challenges they faced after his retirement in 2016, including moving to a new house and adjusting to Shanna's cognitive decline. He discusses the emotional rollercoaster of caregiving, the importance of compassion, and how he learned to meet Shanna's needs without relying on logic and reasoning. Ken also emphasizes the healing power of time, faith, and community support. This episode aims to provide insight and encouragement for caregivers navigating their own journeys.

00:00 Reflecting on Nine Years of Retirement
00:47 Introduction to the Surviving Alzheimer's Podcast
01:27 Early Caregiving Challenges and Retirement
04:16 Downsizing and Moving Challenges
06:49 Adjusting to New Realities
10:07 Lessons Learned and Personal Growth
17:30 Embracing Emotions and Finding Peace
20:36 Conclusion and Final Thoughts

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EP 44 Advocating for Your Loved One 

 Ken shares his story of advocating for his wife Shanna, who has been living with Alzheimer's disease. Ken details the timeline of when he took over her medical and financial decisions, highlighting important moments like setting up power of attorney, adjusting to challenges during the COVID-19 pandemic, and navigating complex medical situations. He recounts specific instances of Shanna's health issues, such as her struggle with a tight quadricep and  restless leg syndrome, and how these were managed through medication adjustments and homeopathic solutions. The episode underscores the importance of being proactive, working closely with medical professionals, and trusting one's instincts in managing the care of a loved one with dementia.

00:00 Introduction: Advocating for a Loved One with Dementia

01:12 Ken's Personal Journey: Legal Preparations and Early Challenges

02:23 Navigating Medical Care During the COVID-19 Pandemic

04:34 The Mystery of Shanna's Leaning and Muscle Issues

09:11 Discovering Restless Leg Syndrome and Medication Adjustments

13:36 The Importance of Advocacy and Personalized Care

15:58 Conclusion: Lessons Learned and Final Thoughts

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EP 43 Wondering Aloud - Lessons from Loss

Ken discusses coping strategies amid the loss of three fellow residents, reassures caregivers on managing personal guilt, and emphasizes the importance of supporting others. He offers practical advice on self-care, finding joy, and using diverse activities to break monotony. The episode aims to educate and inspire caregivers to balance their responsibilities while finding personal relief and fulfillment.

00:00 Introduction: Overwhelmed by Caregiving
01:15 Shanna's Restless Leg Syndrome Update
02:00 Coping with Loss in the Caregiving Community
08:37 Finding Comfort in Shared Experiences
10:09 Balancing Caregiving and Self-Care
14:18 Practical Tips for Caregivers
15:58 Conclusion: Finding Relief and Support

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Returning After a Break: Holiday Lessons and New Directions for 2025

In this episode of the Surviving Alzheimer's Podcast, host Ken Cardina returns after a three-month break to provide updates on his personal journey with his wife Shanna, who has Alzheimer's. Ken shares heartfelt moments of appreciation, his holiday experiences, the introduction of a wheelchair due to Shanna's mobility challenges, and their ongoing battle with Restless Leg Syndrome. He also hints at future plans for the podcast, including potential new content and classes tailored for caregivers. It's an episode filled with reflections, lessons learned, and new beginnings aimed at supporting those affected by Alzheimer's.

00:00 Introduction and Listener Appreciation
00:57 Podcast Update and Future Plans
03:06 Holiday Reflections and Lessons Learned
08:19 Shanna's Health and Mobility Challenges
12:54 Future Directions for the Podcast
15:53 Closing Remarks and Gratitude

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The Transformative Power of a Smile in Alzheimer's Care

In this episode of the Surviving Alzheimer's Podcast, host Ken Cardita discusses the profound impact a simple smile can have on individuals with Alzheimer's, drawing from his experiences with his wife, Shanna, and other residents at her care facility. Ken shares touching stories of connecting with non-responsive residents through smiles and the joy it brings to them and their families. He emphasizes the importance of caregivers and loved ones using smiles to comfort and uplift those with dementia, reflecting on his personal journey to becoming a habitual smiler despite his New York upbringing. Ken encourages listeners to embrace the power of a smile to foster love and happiness in their caregiving roles.

00:00 The Power of a Smile
01:15 Reflecting on the Journey
02:37 Smiles in the Late Stages of Dementia
04:15 Connecting with Residents
06:51 Cherished Memories and Loss
12:04 Shanna's Radiant Smile
13:06 The Impact of Smiling
13:49 Personal Transformation Through Smiling
15:04 Invitation to Smile and Conclusion

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Five Lessons Learned from My Caregiving Journey

In this episode, inspired by a listener's comment, Ken shares five crucial lessons he wishes he knew when he started his caregiving journey. These lessons include: stopping the urge to correct the loved one, letting go of guilt, recognizing that current struggles won't last forever, prioritizing self-care, and embracing your loved one's reality. Ken emphasizes the importance of finding joy in what the loved one can still do and cherishing those moments.

00:00 Introduction and Personal Reflection
01:30 Listener Comment and Episode Inspiration
02:08 Number 1 : Stop Correcting
04:23 Number 2 : Let Go of Guilt
06:29 Number 3 : This Too Shall Pass
09:01 Number 4 : Self-Care is Essential
11:38  Number 5 : Live in Their World
16:54 Conclusion and Final Thoughts

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Finding Hope Amidst Grief

In this 39th episode of the Surviving Alzheimer's Podcast, host Ken Cardita reflects on a challenging year and a poignant two-year anniversary of the podcast coinciding with his 44th wedding anniversary to his wife, Shanna. 

Ken candidly shares his experiences dealing with sadness and grief, the impact of stepping back from full-time caregiving, and the emotional toll of watching his wife’s decline. He discusses the importance of maintaining connections, recounts a heartwarming celebration of their anniversary, and encourages listeners to find hope and cherish what remains of their loved ones.


01:40 Podcast Anniversary and Personal Reflections
02:20 Dealing with Sadness and Grief
03:45 Support Group Insights
06:32 Anniversary Celebration with Shanna
08:47 Struggling with Emotions and Finding Hope
13:35 Cherishing Moments and Looking Forward
19:45 Conclusion and Future Plans

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Encouraging and Maintaining Friendships Amidst Alzheimer's Progression

Ken  discusses the difficulties and importance of maintaining social connections for loved ones with dementia. Drawing from his own experiences with his wife, Shanna, Ken offers practical advice on easing the discomfort friends may feel and strategies to encourage continued visits. 

The episode also highlights the emotional impact of visits and provides tips for making these interactions meaningful. Ken shares a heartwarming story about reconnecting with an old friend and underscores the significance of being open about the diagnosis to help reduce awkwardness. Listeners are encouraged to think of someone to invite for a visit and to use the provided strategies to support their loved ones.

00:00 Introduction: The Isolation of Dementia
00:44 Welcome to the Surviving Alzheimer's Podcast
01:48 Listener Review: A Shared Journey
02:54 Understanding the Awkwardness
03:54 Being Open About the Diagnosis
06:28 Supporting Social Interactions
10:15 Encouraging Friends to Visit
12:51 Writing a Letter to Friends
17:22 Final Thoughts and Encouragement
18:20 Conclusion and Mission Statement

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Reflecting on Three Years of Memory Care: Lessons and Growth

Ken reflects on the three-year anniversary of moving his wife, Shanna, into memory care. Ken shares journal entries from his early caregiving days, detailing the emotional challenges, his journey toward understanding and coping, and the essential lessons learned. 

He emphasizes the importance of not letting Alzheimer's define life, validating feelings, seeking help, and finding joy amidst the difficulties. Ken encourages listeners to embrace the joyful moments left and to seek support in their caregiving journey.

00:00 Welcome to the Surviving Alzheimer's Podcast
00:41 Reflecting on Three Years of Memory Care
01:25 Discovering Old Journals
04:05 First Journal Entry: May 30th, 2018
07:08 Lessons Learned from Early Caregiving
08:47 Second Journal Entry: June 1st, 2018
12:47 Third Journal Entry: October 2018
14:04 The Journey of Becoming a Better Caregiver
18:51 The Importance of Seeking Help
21:05 Final Thoughts and Invitation to Find Joy

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Navigating Challenges in Memory Care: Ken's Journey with Shanna

Ken shares his personal experiences dealing with his wife Shanna's increasingly challenging behaviors due to Alzheimer's disease. He recounts the struggles faced while Shanna was in a memory care facility, including incidents with staff and other residents that led to stress and fear of Shanna being kicked out.
 
Ken also discusses how unresolved issues from Shanna's past resurfaced during her disease progression and the pivotal moments that led to her eventual move to a more compassionate facility. This episode emphasizes the importance of advocating for loved ones and finding the right care environment.

00:00 Introduction: Recognizing New Behaviors
00:35 Welcome to the Surviving Alzheimer's Podcast
02:00 Shanna's Background and Early Challenges
03:44 The Struggles at Home
07:04 Transition to Memory Care
10:01 Incidents with Caregivers
15:31 Shana's Struggles with Mean Girls
16:42 Management Changes and New Challenges
18:54 Fears of Eviction and Confrontation
20:47 The Critical Meeting
23:17 Negotiating Shanna's Care
24:27 Finding a New Home for Shana
25:45 Adjusting to the New Facility
27:33 Reflections and Advice for Caregivers

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Embracing Healing: Finding Joy Amidst Alzheimer's Journey

Ken shares an introspective look into his personal healing journey as he navigates life with his wife Shanna, who has Alzheimer's disease.
 
Ken discusses the challenges of feeling stuck in his healing process and the impact of family interactions on his emotional well-being. 

Through poignant anecdotes, including a friend's loss and family gatherings, Ken explores the importance of allowing oneself to heal, even before the final goodbye.
 
He emphasizes the need to focus on joy and peace, suggesting that healing can happen with or without the complete closure. The episode serves as an encouragement for listeners to reflect on their own healing journeys and to reconnect with loved ones despite the pain and challenges they face.

00:00 Introduction to My Healing Journey
01:20 Reflecting on Recent Experiences
04:04 Family Gatherings and Personal Realizations
08:54 The Power of Healing and Connection
14:20 Faith and Healing
20:43 Concluding Thoughts and Invitation

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Handling Repeated Questions: Strategies for Caregivers

Ken addresses the common challenge of dealing with loved ones' repeated questions, based on his 13-year experience caregiving for his wife Shanna. He explains why these questions occur, the emotional triggers for caregivers, and offers strategies for responding empathetically. 

Ken also shares end-of-year reflections and milestones of the podcast, which is listened to in 21 countries and ranks in the top 50 percent of Buzzsprout's hosted podcasts. Listeners are encouraged to download a free guide on managing repeated questions from his website.

00:00 Introduction: Understanding Repeated Questions
02:01 Podcast Overview and Year-End Reflections
03:48 Why Do Loved Ones Ask Repeated Questions?
07:05 Understanding and Managing Triggers
10:29 Reprogramming Your Response to Triggers
12:39 Practical Tips for Caregivers
18:44 Free Guide and Final Thoughts
21:49 Conclusion and Future Episodes

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Overcoming Caregiver Burnout: Accepting Help and Finding Peace

Ken discusses the challenges of caregiving, the myth of doing it all alone, and the importance of accepting help to avoid caregiver burnout. 

He recounts his own experiences of stubbornness and guilt, and how finally accepting assistance from family, friends, and professional caregivers transformed his ability to care for Shanna and himself. Ken also provides practical resources, such as support groups and helpful websites, for caregivers feeling trapped by their circumstances. The episode aims to inspire caregivers to find joy and peace despite the hardships of dementia care.

00:00 Introduction: The Caregiver's Dilemma
00:46 Welcome to the Surviving Alzheimer's Podcast
01:23 Episode Overview and Listener Feedback
04:06 A Personal Story of Stubbornness and Acceptance
07:34 The Realization: Caregiving Requires a Team
09:03 Stages of Alzheimer's: A Caregiver's Journey
11:13 Seeking Help: Overcoming Stubbornness
12:38 Transitioning to Memory Care
18:39 Lessons Learned and Gratitude
24:58 Free Resources and Support
26:57 The Importance of Community and Connection
30:20 Closing Thoughts and Appreciation

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Reconnecting with a Loved One: A Caregiver's Journey

Ken  shares his deeply personal journey of staying connected with his wife, Shanna, who is battling Alzheimer's disease. 

Ken recounts the emotional challenges, key realizations, and profound experiences that have helped him see beyond the disease and reconnect with Shanna's true spirit. 

Through this narrative, Ken offers hope and inspiration to other caregivers facing similar struggles, emphasizing the importance of faith, perspective, and love in navigating the difficult journey of Alzheimer's.

00:00 Introduction: Reflecting on Loved Ones
00:44 Welcome to the Surviving Alzheimer's Podcast
01:29 A Personal Journey: Struggles and Decisions
03:10 Facing Emotional Challenges
04:59 Journal Snippets: A Glimpse into the Past
09:57 Understanding the Spirit and the Body
16:32 Realizations and Healing
20:22 Reconnecting with Shanna
25:02 Cherished Moments and Reflections
31:45 Encouragement and Conclusion

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Reflecting on Our First Year: Insights and Announcements

In this milestone episode of the Surviving Alzheimer's Podcast, host Ken Cardita reflects on the past year, sharing personal insights and the positive impact the podcast has had. 

Ken discusses his journey with his wife Shanna, who has Alzheimer's, and how he has found peace and joy amidst the challenges. He also introduces future initiatives including the monthly Coach's Corner webinars, a new support group for listeners, and upcoming educational materials designed to assist caregivers. Ken invites listeners to offer feedback and stay connected through various platforms.

00:00 Reflecting on One Year of the Surviving Alzheimer's Podcast
01:35 The Healing Power of Sharing Our Story
04:23 Lessons Learned Over the Past Year
08:20 Introducing the Coach's Corner Webinar
10:03 Upcoming Support Group for Podcast Listeners
11:47 Becoming a Faith-Based Life Coach
12:57 New Educational Materials for Caregivers
14:15 Final Thoughts and Gratitude

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Managing and Preventing Wandering in Dementia Patients - Our Experiences

Ken  discusses the common issue of wandering among dementia patients, sharing personal experiences and practical tips to manage and reduce the risks. 

He gives insights into identifying early signs of wandering, preparing the home, utilizing tools like GPS trackers and medical alert bracelets, and relying on community support. The episode includes listener feedback and personal anecdotes, emphasizing the importance of staying calm and adapting strategies for each unique situation.

00:00 Introduction: The Fear of Wandering
00:49 Welcome to the Surviving Alzheimer's Podcast
01:30 Understanding Wandering in Dementia
02:07 Listener's Story: Finding Support
03:47 Recognizing the Signs of Wandering
05:37 Reducing the Risk of Wandering
08:14 Personal Stories: Shanna's Wandering Incidents
13:09 Preventive Measures and Safety Tips
23:53 Responding to Wandering Incidents
27:26 Conclusion and Final Thoughts

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Healing our Triggers: The Parable of the Pool

Ken Cardita shares a heartfelt story called 'The Parable of the Pool.' Ken recounts his journey of caring for his wife, Shanna, who was diagnosed with Alzheimer's in 2017. Despite initial resistance, Ken decides to build a pool for Shanna, honoring a promise he made 30 years ago. 

Throughout the episode, he illustrates how untreated triggers can cause emotional damage and emphasizes the importance of prioritizing a loved one’s desires over personal fears and logic. Ken also discusses the emotional ups and downs they faced, how the pool became a source of joy and connection, and the lessons he learned about addressing triggers and reprogramming negative emotions. He concludes by announcing upcoming training materials and coaching opportunities to help others in similar situations find peace and healing.

00:00 Introduction: Overcoming Emotional Triggers
00:36 Welcome to the Surviving Alzheimer's Podcast
02:46 Listener Comment: A Shared Journey
03:49 Background: The Parable of the Pool
09:02 The Pool Dilemma: A Source of Frustration
13:39 Decision to Build the Pool
17:51 Building the Pool: A Gift of Love
19:25 Cherished Memories and Lessons Learned
25:50 The Pool After Shanna's Move to Memory Care
28:20 Final Reflections and Moving Forward
31:12 Upcoming Resources and Closing Remarks

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Understanding One-Way Conversations in Dementia: Communicating Beyond Words

Ken shares how he has adapted to communicating with his non-verbal wife, Shanna, who has Alzheimer's disease. 

Ken discusses the different stages of Shanna's verbal decline and reveals how he has learned to read her body language and facial expressions to maintain a deep connection. 

Through personal anecdotes and lessons learned over a 12-year journey, Ken aims to provide hope and practical advice for caregivers of loved ones with dementia. The episode emphasizes the importance of staying connected beyond words, using a spiritual or higher power as guidance, and not letting the disease define the relationship.

00:00 Introduction: Struggling to Communicate
00:37 Welcome to the Surviving Alzheimer's Podcast
01:13 Mastering One-Way Conversations
02:50 Listener Comment and Appreciation
03:54 Understanding Alzheimer's Impact on Communication
07:03 Shanna's Journey: A Timeline
10:45 Adapting to Non-Verbal Communication
13:07 The Sixth Sense of Communication
16:15 Reflecting on the Journey
18:57 Final Thoughts and Encouragement

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The Transformative Power of Music in Alzheimer's Care

Ken discusses the transformative and restorative power of music in Alzheimer's care, drawing from his 12-year journey with his wife Shanna. Ken shares personal anecdotes about how music has helped him and Shanna stay connected, even amidst her battle with dementia. 

He highlights the impact of music therapy, background music in care facilities, and shares tips on using music to create a peaceful environment and lasting memories. The episode also features listener comments and insights on the benefits of integrating music into caregiving routines.

00:00 Introduction: Easing Frustration and Reliving Memories
01:04 Episode 27: The Miracle of Music
01:56 Listener's Comment: A Touching Review
02:56 The Power of Music in Dementia Care
03:09 Personal Stories: Music in Our Lives
04:26 Transformative Power of Music
06:01 Music in Memory Care Centers
11:41 Creating Musical Memories at Home
12:45 Special Songs and Lasting Memories
14:54 A Song for Shanna
16:07 Music's Role in Memory Care
16:51 Dancing Through the Years
18:16 Music Therapy Sessions
19:59 Playing Together
22:18 Special Moments with Music
23:27 Using Music to Connect
24:42 Practical Tips for Music Use
26:14 Invitation to Share Experiences
26:43 Upcoming Episodes and Farewell

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The Power of Support: Lessons from Joining a Caregiver Group

Ken discusses the profound impact of participating in a caregiver support group. Drawing from his own experiences over two years with the 'Men Who Care' group, Ken shares the initial reluctance, the transformative first meetings, and the ongoing support and education he received. 

He talks about overcoming emotional and logistical barriers to joining a support group, the benefits of engaging both in-person and online groups, and the importance of shared experiences in navigating the caregiving journey. This episode aims to inspire caregivers to seek out support groups to alleviate feelings of isolation and gain valuable insights and support.

00:00 Introduction: The Value of Support Groups
01:00 Personal Journey: Joining a Support Group
02:05 Listener Feedback and Group Dynamics
03:39 Overcoming Barriers to Joining a Support Group
07:24 The Men Who Care Support Group
11:29 The Impact of Support Groups
16:38 Encouragement to Join a Support Group
20:03 Conclusion and Call to Action
21:26 Final Thoughts and How to Support the Podcast

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Family Visits and Lessons Learned

Ken recounts a recent visit from his wife Shanna's four sisters. Ken shares heartwarming stories, valuable lessons, and personal insights from this experience. He highlights the importance of family support, setting proper expectations, and being flexible during visits. 

Additionally, Ken discusses the emotional journey and the significance of cherishing precious moments with loved ones. This episode is dedicated to Shanna's sisters, showcasing their unwavering love and support despite the challenges of Alzheimer's disease.

00:00 Introduction: Family Visits and Concerns
00:55 Episode 25: Family Support and Love
01:34 Listener Comment and Dedication
02:19 Shana's Family Background
03:27 Initial Reactions and Support
04:11 Visits and Respite Care
05:30 A Special Trip to Bakersfield
07:09 Recent Visit: Planning and Concerns
09:32 The Visit Begins: Challenges and Adjustments
15:16 A Breakthrough Moment
17:51 Final Day and Lessons Learned
24:42 Conclusion and Final Thoughts
25:46 Closing Remarks and Call to Action

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Conquering Fear in the Face of Alzheimer's: A Caregiver's Journey

Ken opens up about his journey through feelings of fear, worry, and depression triggered by his wife Shanna's recent physical decline due to Alzheimer's disease. He recounts his experiences, strategies for coping, and the powerful lessons he's learned. 

Ken shares personal anecdotes, journal entries, and heartfelt reflections, offering a candid glimpse into the emotional toll of caregiving and the path to finding joy and acceptance amidst the challenges. This episode aims to provide support and encouragement to other caregivers facing similar fears.

00:00 Introduction and Personal Experience
00:33 Podcast Overview and Purpose
01:10 Dealing with Fear and Depression
02:48 Listener Comment and Appreciation
03:36 Shanna's Alzheimer's Journey
05:23 Physical Decline and Caregiving Challenges
08:08 Recent Changes and Coping Strategies
16:48 A Startling Incident at Church
17:14 Shanna's Increasing Unsteadiness
18:33 A Turning Point: Acceptance Begins
19:50 A Scary Collapse on St. Patrick's Day
22:56 Facing the Reality of Decline
24:22 Overcoming Fear with Faith
27:05 Adapting to New Realities
29:02 Finding Joy Amidst Challenges
31:25 Conclusion and Reflections

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Facing Fear in Alzheimer's Caregiving: Understanding and Overcoming Fight and Flight Fears

Ken Cardita delves into the complexities of caregiving fears, focusing on the fight and flight types of fear associated with Alzheimer's caregiving. Ken shares personal experiences and strategies for managing these fears, highlighting how underlying fear often manifests as anger and discussing ways to differentiate and handle these emotional responses. The episode includes stories from Ken's journey with his wife, Shanna, and emphasizes the importance of addressing fears actively to find peace and joy in caregiving.

00:00 Introduction: Understanding Anger and Fear
00:18 Welcome to the Surviving Alzheimer's Podcast
00:48 Episode 23: Exploring Fear in Caregiving
01:41 Listener's Comment and Support Group Insights
02:33 Recap of Previous Episode: Types of Fear
03:35 Fight Fear vs. Anger: Recognizing the Signs
04:38 Examples of Fight Fear in Caregiving
06:02 Flee Fear: When Caregivers Feel Overwhelmed
07:39 Personal Experiences with Fear and Medication
11:30 Fear of Being Forgotten by a Loved One
15:14 Dealing with Major Declines in Loved Ones
18:31 Facing Fear: The Story of Shanna and Dixie
24:51 Conclusion: Embracing Action Over Fear
25:59 Closing Remarks and How to Support the Podcast

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Facing Fear as a Dementia Caregiver: Overcoming Anxiety and Finding Peace

Ken delves into the different types of fear experienced by caregivers of loved ones with dementia. Using his 12-year journey with his wife Shanna as an example, he discusses the common sources and reactions to fear, including fight, freeze, faint, and flight responses.

Ken shares personal anecdotes of Shanna wandering off and the proactive steps he took to ensure her safety. He also reflects on the broader fears experienced during the COVID-19 pandemic and offers insights on reframing perspectives and finding peace by managing fears effectively. 

Ken emphasizes the importance of living in the present and not letting fear steal joy. The episode aims to educate and inspire caregivers to face their fears head on.

00:00 Introduction: Finding Joy Amidst Fear
00:33 Welcome to the Surviving Alzheimer's Podcast
01:10 Exploring Different Types of Fear
01:51 Listener's Comment and Personal Reflections
03:26 Understanding Fear: Definitions and Types
04:08 Fight and Freezing Fear
05:34 Faint and Flight Fear
07:11 Personal Stories: Dealing with Wandering
19:31 The Impact of COVID-19 on Caregiving
23:45 Overcoming Fear and Finding Peace
27:59 Conclusion and Call to Action

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Prioritizing Self-Care for Alzheimer's Caregivers

In episode 21 of the Surviving Alzheimer's podcast, host Ken Cardita addresses the challenges caregivers face when neglecting their own self-care. 

Ken shares personal experiences from his 12-year journey caring for his wife Shanna, offering practical advice to help caregivers find time for themselves. He highlights the importance of self-care to maintain energy and mental stamina, exposes common myths and lies caregivers tell themselves, and discusses solutions for overcoming these barriers. Ken also reads a listener comment, shares journal entries, and provides actionable steps for integrating self-care into daily life. The episode encourages caregivers to identify activities that bring a sense of accomplishment and pleasure, emphasizing consistency and small changes.

00:00 Introduction: The Struggles of Self-Care
00:31 Welcome to the Surviving Alzheimer's Podcast
01:03 Episode Overview: Taking Better Care of Yourself
01:54 Listener Feedback and Personal Reflections
02:42 Understanding the Importance of Self-Care
04:10 Overcoming Guilt and Planning Self-Care
07:01 Practical Steps for Self-Care
13:39 Personal Experiences and Reflections
15:11 Cherished Memories and Music Therapy
16:06 Challenges of Alzheimer's Communication
16:54 Journal Entries: Navigating Daily Struggles
20:12 Finding Solutions and Coping Mechanisms
20:56 Positive Moments and Reflections
24:35 Dealing with Separation Anxiety
26:39 Balancing Caregiving and Personal Needs
29:26 Podcast Growth and Future Plans

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Understanding and Managing Caregiver Burnout

Ken explores the heavy toll that caregiving can take on individuals tending to loved ones with Alzheimer's or related dementias. With 57% of family caregivers providing care for four or more years and 40% experiencing depression, the physical and emotional impacts are significant. 

Host Ken shares alarming statistics from the CDC and the American Psychological Association, emphasizing the importance of caregivers maintaining their health. 

The episode details 10 symptoms of caregiver stress, such as denial, anger, social withdrawal, and depression, and discusses practical strategies for mitigating this stress. Stories from Ken's personal experience offer insights into coping mechanisms and underscore the importance of self-care, asking for help, and finding community support. 

00:00 Introduction to Caregiver Burnout
02:13 Alarming Statistics on Caregiving
03:37 The Effects of Caregiving on Health
06:04 10 Symptoms of Caregiver Stress
09:40 Personal Stories and Coping Strategies
18:20 The Importance of Self-Care for Caregivers
20:17 Sharing Responsibilities and Seeking Help
21:21 Effective Relaxation Techniques
24:12 The Power of Physical Activity
25:51 Finding Time for Yourself
26:45 Becoming an Educated Caregiver
29:45 Legal and Financial Planning
31:06 Community Resources and Support
33:29 Managing Stress: Practical Steps
37:53 Final Thoughts and Next Steps

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Reflecting on 2022: Lessons and Insights from the Journey Down Dementia Road

In this final episode of 2022, Ken reflects on the past year of his and his wife Shanna's 12-year journey with Alzheimer's. He shares personal anecdotes and key lessons learned from their experiences and deep discussions with friends who are also navigating similar paths.

Ken introduces a model that breaks down the roles of a caregiver into three categories: pre-existing relationship role, primary caregiver role, and advocate role. He emphasizes the importance of adapting these roles for personal growth and emotional balance. 

Ken also explains his motivation behind starting the podcast and highlights the principles guiding it. As he looks forward to the new year, he invites listeners to reflect on their own journeys and roles as caregivers.

01:03 Reflecting on the Past Year
01:33 Insights from Conversations with Friends
02:28 Listener's Comment and Keith's Contribution
06:05 The Origin of the Podcast
07:32 The Surviving Alzheimer's Manifesto
12:18 Roles and Responsibilities of Caregivers
19:08 Personal Reflections and Changes
23:59 Looking Forward to the New Year

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A Second Home, A Second Family: Finding Comfort and Community in Memory Care

Ken shares their emotional journey of moving his wife, Shanna, to a memory care facility. Initially filled with anxiety and worry, the experience eventually became comforting as both Shanna and Ken adapted to their new environment. 

Over time, the memory care facility transformed into a second home and a new family for them. The episode also highlights listener feedback, the challenges and adjustments faced during the transition, the development of new friendships and support networks with other residents and staff, and the host's reflections on finding hope and joy in their journey. The host encourages listeners to find gratitude and humor in their caregiving experiences.

00:00 Introduction to Episode 18
01:01 The Decision to Move to Memory Care
02:38 Listener Comment and Reflection
03:54 First Memory Care Experience
06:24 Transition to the New Facility
07:48 Adjusting to the New Normal
09:38 Building a Second Family
12:26 Lessons Learned and Reflections
14:35 Challenges and Emotional Struggles
17:41 Finding Comfort and Connection
28:17 Fun and Social Activities
29:48 Closing Thoughts and Gratitude

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Finding Joy and Gratitude Amidst the Challenges of Alzheimer's

The episode focuses on finding peace and joy during the holiday season despite the challenges posed by the disease. Ken shares his unique anti-depression plans for Thanksgiving, reflecting on their success and the lessons learned about the power of giving thanks and doing things differently.
 
Listener feedback, heartfelt reflections, and the significance of gratitude in coping with the challenges of Alzheimer's are also explored. Additionally, the host encourages listeners to keep a gratitude journal to transform their outlook and share the podcast with others who might benefit.


00:48 Challenges of the Holiday Season
01:51 Listener Comment and Reflections
05:01 Thanksgiving Anti-Depression Plan
07:10 A Special Thanksgiving Celebration
12:37 A New Tradition for Thanksgiving
16:37 Reflecting on Thanksgiving with Heavy Thoughts
17:21 A Simple Thanksgiving Meal
18:10 Black Friday: A Day for Myself
18:38 Weekend Visits and Emotional Challenges
19:31 Realizations and Emotional Breakdown
21:38 Lessons from Thanksgiving
25:13 The Power of Gratitude
29:16 Spreading Joy and Love
31:08 Invitation to Practice Gratitude
31:59 Final Thoughts and Farewell

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Navigating Holidays with Alzheimer’s: Finding Joy and Managing Emotions
Ken discusses the emotional challenges and practical adjustments required during the holiday season when caring for a loved one with Alzheimer's. 

Sharing personal experiences from his journey with his wife, Shanna, over the past 12 years, Ken offers tips and advice for managing holiday stress and creating new memories. He also emphasizes the importance of self-reflection, flexibility, and not setting unrealistic expectations. 

Listener comments and the significance of open family communication are highlighted to improve the holiday experience for both caregivers and their loved ones.

00:57 Navigating the Holiday Season with Alzheimer's
02:05 Listener Feedback and Encouragement
03:02 Challenges and Emotions During the Holidays
06:14 Tips for Early Stages of Alzheimer's
09:39 Managing Mid-Stage Alzheimer's During Holidays
14:24 Handling Late-Stage Alzheimer's and Holiday Decisions
17:41 Reflecting on Last Year's Decisions
18:09 Christmas with Shannon
18:58 Thanksgiving Plans for This Year
21:39 Flexible Holiday Planning
22:51 Dealing with Changes and Challenges
23:48 Self-Reflection and Realizations
30:07 Creating New Experiences
30:40 Advice for the Holiday Season
32:09 Upcoming Episode and Gratitude

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The Power of Connection: Rediscovering Joy Amidst Alzheimer's Challenges

Ken shares his journey and lessons learned from over 12 years with his wife, Shanna, who has Alzheimer's disease. He recounts a touching visit from Shanna's long-term friends, Judy and Wanda, and highlights the emotional connections that remain despite the disease. 

Through personal anecdotes, Ken explores the evolution of their communication and the importance of staying connected to loved ones. He emphasizes the resilience of Shanna's spirit and offers insights into finding joy, patience, and support while navigating Alzheimer's. 

Ken also invites listeners to suggest future topics for the podcast and previews the next episode, focusing on handling the holiday season's challenges.

00:48 The Biggest Lesson Learned
01:48 Listener Comment and Background
02:58 A Heartwarming Visit from Old Friends
10:15 Reflections on Communication and Connection
15:28 Shanna's Loving Nature
18:09 Lessons and Gratitude
20:21 Closing Thoughts and Future Topics

Link to Nobody Knows Your Story Podcast where Ken tells his life story

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Finding Hope and Support in the Journey through Dementia

In this episode, the host reflects on his journey and experiences over the last decade, specifically focusing on the challenges and emotional toll of being a caregiver to his wife, Shanna, who has Alzheimer's. 

He shares his past despair and recent uplifting moments, including the profound realization of acceptance and the invaluable support from a group called 'Men Who Care.' He emphasizes the emotional benefits of support groups, both online and in-person, while providing insights and lessons learned. The host hopes his story can inspire and assist others facing similar challenges.

00:00 Introduction and Backstory Recap
01:30 Greatest Gifts and Blessings
01:59 Support Group Comments and Reflections
03:02 Personal Struggles and Epiphanies
06:29 Emotional Rollercoaster and Coping Mechanisms
11:17 Rediscovering Love and Acceptance
15:55 The Power of Support Groups
24:46 Conclusion and Future Insights

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Embracing Change: Ken and Shanna's Journey with Alzheimer's

In this episode Ken shares the heartfelt story of moving his wife Shanna to a new memory care facility, recounting their eight-month journey of adjusting to the transition. 

He delves into the emotional challenges and victories they experienced, from finding the right place with a caring and competent staff to overcoming the grief and sadness associated with Alzheimer's disease.
 
He highlights the lessons learned, the importance of trusting caregivers, and the profound moments of joy and connection amidst the struggle. The episode concludes with reflections on their journey and a promise for future episodes focusing on specific topics and ongoing lessons.

01:01 Moving to a New Memory Care Facility
01:16 Building Trust in the New Facility
01:30 Tender Mercies and Joy in the New Facility
01:50 Listener Comment and Reflections
02:50 Finding the New Facility: E G
09:08 The Decision to Move Shanna
12:45 Transitioning Shanna to the New Facility
19:08 First Days at the New Facility
21:24 Adjusting to the New Facility
22:58 Staff and Care Differences
25:36 Building New Relationships
27:28 Celebrating Special Moments
29:57 Emotional Challenges and Lessons
33:30 Physical Decline and Caregiving
35:46 Finding Joy and Gratitude
42:07 Conclusion and Future Episodes

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Memory Care: Lessons and Challenges from Our Journey

In this episode , host Ken shares his and his wife Shanna's experiences during the 11 months they spent transitioning Shanna into her first memory care facility. Ken discusses the initial expectations and realities of the memory care environment, the importance of dedicated caregivers, and the frequent turnover that impacted Shanna's care. 

He also shares personal stories of their emotional journey, including moments of guilt, support, and finding a second family among the caregivers and residents. 

The episode ends with the decision to move Shanna to a new facility and hints at promising changes. Ken encourages listener interaction and support for the podcast as he prepares to share more about their ongoing Alzheimer’s journey.

00:54 Recap of Previous Episode and Overview of Current Episode
01:42 Listener Comment and Response
02:24 Initial Experiences with Memory Care Facility
03:04 Challenges and Realizations in Memory Care
05:41 Caregiver Dynamics and Facility Observations
12:05 Building Relationships and Adjusting Expectations
14:26 A Tender Mercy and Emotional Breakthrough
19:39 A Compassionate Visit
20:16 The Physical Toll of Stress
20:45 Letting Go of Full Time Caregiving
21:42 Intimidating the Care Staff
23:52 Adjusting Visitation Schedules
25:46 Management Changes and Their Impact
31:47 Handling Behavioral Issues
35:19 Deciding to Move
36:35 Conclusion and Next Steps

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The Hardest Transition: Moving a Loved One to Memory Care 

In this heartfelt and emotional episode, the host reflects on the difficult decision to move his wife, Shanna, to a memory care facility 18 months ago.

I will tell the story of the hardest thing I've ever done. That is moving my best friend and wife to a Memory Care Facility. I discuss the anxious week before this happened, the actual moving day and how we were able to move her without any problems. I also talked about the weeks that followed and how I dealt with all the emotions that came up as we began this new chapter of our life together, living apart for the first time in over 40 years.

I discuss some of the things that I was inspired to do during this very emotional time that I believe were instrumental in allowing us to survive this experience and eventually learn to thrive in this new chapter of our lives. I will discuss how important it was to have family support and faith in my conviction that this was the right thing for us to do at this time.

00:00 Introduction to the Hardest Decision
01:47 Reader's Heartfelt Comment
03:05 Preparing for the Move
03:45 Emotional Reflections and Journal Entries
06:58 Final Preparations and Family Support
08:07 The Last Weekend Together
11:02 Easter Sunday: The Last Day at Home
13:01 The Day of the Move
16:56 Family Support and Initial Adjustments
18:05 Navigating Memory Care Facilities
19:31 Emotional Challenges and Coping
21:05 First Visit and Emotional Reunion
24:07 Ongoing Struggles and Reflections
25:56 Adapting and Finding Joy
29:42 Concluding Thoughts and Future Episodes

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Facing the Decision: A Journey Through Alzheimer's Care Transitions

In this episode of the Surviving Alzheimer's Podcast, host Ken Cardita delves into the heart-wrenching decision to move his wife, Shanna, to a long-term memory care facility after 12 years of battling Alzheimer's. Ken recounts the emotional stages leading up to the move, sharing journal entries detailing Shanna's rapid decline, wandering incidents, and the challenges of caregiving. He also discusses seeking guidance from family, caregivers, and healthcare professionals. Listeners learn about key considerations for memory care decisions and the emotional toll it takes on families, offering insights and support for those on similar journeys.


00:50 Deciding on Long-Term Memory Care
01:33 Listener Feedback and Reflections
03:00 Shanna's First Wandering Incident
06:33 Emotional Struggles and Realizations
12:31 Considering Long-Term Care Options
13:22 Consultation with Dr. P
16:45 Facing the Transition
18:07 Seeking Guidance and Support
18:53 Making the Decision
21:05 Finding the Right Place
24:02 Preparing for the Move
26:24 Emotional Reflections
31:35 Looking Ahead

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Advanced Alzheimer's: Lessons Learned in Caregiving

In this episode, Ken reflects on a listener's comment before delving into their personal journey of caregiving for their wife, Shanna, who transitioned from moderate to advanced Alzheimer's between late 2019 and early 2020. The host shares observations and experiences from their journals, describes the symptoms and daily challenges of advanced Alzheimer's, and offers practical advice and insights on effective caregiving approaches, such as the power of music and the importance of validating the patient's altered reality. The Ken emphasizes the significance of incremental changes, self-compassion, and seeking support to manage caregiver burnout. Throughout the episode, he highlights the crucial role of faith and community support in surviving these challenging times.

00:00 Listener's Heartfelt Review
00:32 Reflecting on Early Alzheimer's Stages
01:36 Transition to Advanced Alzheimer's
02:01 Symptoms of Late-Stage Alzheimer's
02:57 Coping with Advanced Alzheimer's
06:33 The Power of Music and Gentle Touch
09:29 The Importance of Journaling
12:00 Lessons Learned in Caregiving
14:59 Reflecting on a Challenging Day
18:36 Handling Altered Realities and Hallucinations
21:58 Lessons Learned in Caregiving
23:22 The Power of Perspective
26:50 Small Changes, Big Differences
27:56 Finding Strength and Support
29:02 Final Thoughts and Encouragement

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Leading Your Caregiving Team: Insights and Experiences

In this episode, the Ken draws an analogy between the role of a football quarterback and that of a primary caregiver in managing the needs of a loved one with dementia. He provides an overview of the different aspects involved in leading a caregiving team, sharing personal experiences of assembling 'Team Shanna'—a support network comprising medical professionals, financial and legal advisors, friends, family, and caregivers.

The episode also includes a poignant story about a friend's sudden need to assemble a caregiving team for his wife while dealing with his own serious health issues. Listener comments and appreciation are acknowledged, and the episode concludes with advice on accepting help, discussing caregiver burnout, and encouraging listeners to share their own experiences.

00:00 Introduction: The Caregiver as a Quarterback
01:25 Building Team Shanna: Medical and Emotional Support
02:25 Listener Shoutout and Podcast Interaction
03:43 Medical Journey: Finding the Right Care
07:20 Financial and Legal Support for Caregiving
07:58 The Role of Professional Caregivers
09:32 Emotional and Spiritual Support Network
12:07 A Friend's Story: Caregiving and Personal Health
21:36 Lessons Learned and Final Thoughts

Link to post a comment on this episode 

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Moderate Stage of Alzheimer's: A Caregiver's Journey

In this episode of the Surviving Alzheimer’s podcast, host Ken Cardita shares his experiences and lessons learned while caring for his wife Shanna at home during the moderate stage of Alzheimer's. Ken discusses various challenges encountered, such as increased memory loss, language difficulties, and handling unexpected outbursts. He highlights the importance of adapting as a caregiver, the value of physical activity, and the impact of maintaining social connections. Ken also reflects on personal growth achieved through journaling and mentoring. Listener feedback and upcoming topics are also covered.

00:00 Introduction and Purpose
00:28 Podcast Overview and Listener Feedback
00:59 Moderate Stage Alzheimer's: Personal Experiences
04:28 Challenges and Coping Strategies
15:02 Journal Reflections and Personal Growth
22:58 Conclusion and Future Episodes

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EP 6  I have Grieved 100 Losses ..

Thoughts on Grief, Guilt, and Ambiguous Loss as a Dementia Caregiver

In this episode of the Surviving Alzheimer’s podcast, host Ken Cardita shares his personal journey of caregiving for his wife Shanna, who has Alzheimer's. Ken delves into the complex emotions of grief, guilt, and ambiguous loss that caregivers often face. By reflecting on his own experiences, he provides insights and strategies on how to manage these emotions healthily. Ken emphasizes the importance of seeking support and maintaining a perspective that focuses on the quality of time spent with loved ones. He also highlights how accepting and understanding ambiguous loss can help in finding peace amidst the challenges of caregiving.

00:00 Introduction and Personal Reflections
00:44 Today's Episode: Grief, Guilt, and Ambiguous Loss
01:25 Understanding and Managing Grief
07:49 Dealing with Guilt as a Caregiver
21:04 Ambiguous Loss: A Unique Caregiving Challenge
27:03 Conclusion and Final Thoughts
28:48 Next Week's Episode and Closing Remarks

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Navigating Diagnosis and Acceptance: A Journey through Moderate Alzheimer's

In this episode of the Surviving Alzheimer's podcast, host Ken Cardita delves into 2016, a pivotal year in his 12-year journey with his wife Shanna's Alzheimer's. Ken shares the challenges of undiagnosed moderate Alzheimer's, the life upheaval from early retirement, and the financial planning that shaped his transition to a full-time caregiver. He recounts the stress and realizations during their downsizing move, and details Shanna's cognitive assessments leading to her official Alzheimer's diagnosis. Ken offers insights on embracing caregiving, fostering acceptance, and the profound lessons learned through their experiences. He highlights the importance of community support, both from family and friends, and encourages listeners to share the podcast to help others on their own dementia journeys.

00:00 Introduction and Recap
00:59 The Diagnosis Journey Begins
01:42 Life Changes and Financial Planning
03:34 Downsizing and Moving Challenges
07:44 Medical Evaluations and Diagnosis
12:56 Coping with the Diagnosis
16:45 Sharing the News with Family and Friends
20:01 Lessons Learned as a Caregiver
24:44 Final Thoughts and Next Episode Preview

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Navigating Early Stage Alzheimer's: Personal Reflections and Advice

In this episode of the Surviving Alzheimer's podcast, host Ken Cardita delves into his personal experiences during the early stages of his wife Shanna's Alzheimer's diagnosis. Ken recounts the emotional challenges and adjustments needed to manage caregiving duties effectively. He discusses common symptoms such as repeated questioning, short-term memory loss, and poor judgment, and shares coping strategies and lessons learned. The episode emphasizes the importance of patience, adaptability, and seeking support for caregivers while navigating the complexities of Alzheimer's disease.

00:00 Introduction and Welcome
00:54 Understanding the Journey
02:15 Early Stages of Alzheimer's
04:30 Challenges and Adjustments
08:24 Social Interactions and Coping
16:06 Dealing with Anger and Fear
21:02 Seeking Support and Self-Care
23:51 Conclusion and Next Steps

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Navigating Denial and Driving: A Caregiver's Journey

In this episode of the Surviving Alzheimer's podcast, host Ken Cardita recounts his personal experiences dealing with denial and the challenges of getting his wife, Shanna, to stop driving once it was no longer safe for her to drive. He shares valuable insights and resources for caregivers, emphasizing the importance of overcoming denial, being proactive, and finding support. Ken also offers practical tips on how to handle the sensitive issue of driving with a loved one who has Alzheimer's, as well as highlighting the role of denial as a coping mechanism.

00:00 Introduction and Host Welcome
00:40 Episode Overview: Dealing with Denial
01:20 Personal Journey: Early Signs and Diagnosis
04:03 Understanding Denial in Dementia
09:31 Shanna's Driving Struggles
17:34 Caregiver Tips and Resources
23:07 Recap and Closing Thoughts
24:34 Next Episode Preview and Final Remarks

Online Resources that were helpful  for Ken early on
                   o   www.alz.org – The Alzheimer’s Association
                   o   www.TeepaSnow.com     - Teepa Snow – A positive approach to care
                   o   www.CareBlazers.com  -  Dr. Natale Edmunds careblazer program and facebook group

30k dl and upcoming webinar

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Surviving Alzheimer's: Reflections on Early Signs and Coping Strategies

In this episode of the Surviving Alzheimer's podcast, host Ken Cardita shares his journey alongside his wife, Shanna, who has been battling Alzheimer's disease. He reflects on their early life together, identifying initial signs of cognitive decline, and the crucial lessons learned during their journey. The podcast delves into the importance of selecting the right medical support, dealing with emotional triggers and caregiver challenges, and highlights the role of faith and open communication in their continued resilience. Ken also emphasizes the value of hindsight and offers advice for those starting their caregiving journey.

00:00 Introduction to the Surviving Alzheimer's Podcast
00:32 Early Signs and Reflections
01:00 Life Before Alzheimer's
03:06 Challenges and Changes in the 1990s
04:23 The 2000s: Family and Personal Growth
10:10 Early Cognitive Struggles
13:00 The First Neurologist Visit
17:17 Lessons Learned and Advice
23:17 Emotional Journey and Faith
25:27 Conclusion and Next Steps

30k dl and upcoming webinar

Get the FREE Guide to Responding to Repeated Questions   

Visit the  Surviving Alzheimer's Podcast Website (survalz.com)  
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Visit  the Podcast Facebook page

In this  first episode I will give you some of background information and introduce you to the people that this podcast is about. I'll also introduce you to how we have survived Alzheimer's disease so far.

It's my hope that you'll be able to connect with us, thus, be able to relate your experiences to ours in doing this. I hope that you can learn from our experiences.

Why did I decide to do this podcast? It's about you. I wanted to help you in dealing with your loved one's dementia. I've learned a lot of things along the way here. A lot of it was the hard way, and I hope that some of the things that I've picked up along the way may be of use to you.

About a year and a half ago, when I finally decided to move Shanna to a memory care facility after I couldn't take care of her anymore, I had done it for four years, 24 /7. I decided to get some grief counseling. I took grief counseling sessions for about nine months. And one of the things that she taught me was that as we help other people with the things that we have struggled with, we heal.

And I have learned that along the way, I've dealt with caregiver burnout, we survived the COVID pandemic together. The decision to put her in memory care was probably the hardest thing I've ever done. And then once she was there after almost a year, I made another tough decision to move her to a better facility. And that turned out really good. But watching my wife go through all of the stages of the disease and all of the challenges that it brought, both of us was a very interesting experience. 

This disease has brought my wife and I closer than ever together in the last four or five years. Tremendous things have changed all for the better, even while we're struggling with the disease. And this is our story. My hope is in telling our story, it'll be helpful to you, and you'll be able to face your own challenges with a degree of hope and be able to find peace. Like I have found. 

So how does one survive alzheimer's? As you probably know, Alzheimer's is a fatal disease, but what do I mean by surviving it? Well, I looked up in the dictionary what the word survival means, and some of the things that I really liked was it means to remain or to continue in existence.

How do I continue to live as I watch the person I love the most in my life slowly fade away? How do I get along or remain healthy, happy and unaffected in spite of some circumstances? That's another definition of survive. That's what I mean by surviving Alzheimer's I will tell you how my wife has dealt with this in episodes to come and how I dealt with it.

Well, thanks for listening and be sure to follow the surviving Alzheimer's podcast. The surviving. Alzheimer's. Podcast is brought to you by Ascending Minds, LLC.

Link to “The Surviving Alzheimer’s Podcast” Facebook page.
 

30k dl and upcoming webinar

Get the FREE Guide to Responding to Repeated Questions   

Visit the  Surviving Alzheimer's Podcast Website (survalz.com)  
     to Register for the Support Group, Newsletter and more ...

Visit  the Podcast Facebook page