Fri, 11 Sep 2026 11:40:56 -0400 https://www.everyday-cf.com/ en-us © 2026 Uncommon Lungs: Perspectives From the CF Community yes de355275-a474-53bf-894a-12d500d8aaec Everyday CF by Vertex Pharmaceuticals episodic false Everyone’s experience with cystic fibrosis (CF) is unique. Listen along as different individuals in the community share their diverse perspectives on how CF impacts day-to-day life, and get useful information to help empower you in your own journey.

]]> Buzzsprout (https://www.buzzsprout.com) Everyday CF by Vertex Pharmaceuticals https://storage.buzzsprout.com/p1qxz2cd9c6a2yxm58otvyvvadum?.jpg https://www.everyday-cf.com/ Finding Purpose Through Diagnosis Kristina thought she had the answers, until a diagnosis at 40 brought more questions to the surface. What began as a search for clarity around persistent symptoms became a turning point that redefined her health and her place in the world. In this episode, Kristina shares what it was like to receive a cystic fibrosis (CF) diagnosis as an adult, how grief and gratitude shaped her first years post-diagnosis, and why finding community can make all the difference. Drawing from her background in healthcare and her deep commitment to advocacy, Kristina is building bridges for others walking a similar path. Her story is a testament to resilience, reinvention, and the truth that it’s never too late to begin again.

]]> Kristina thought she had the answers, until a diagnosis at 40 brought more questions to the surface. What began as a search for clarity around persistent symptoms became a turning point that redefined her health and her place in the world. In this episode, Kristina shares what it was like to receive a cystic fibrosis (CF) diagnosis as an adult, how grief and gratitude shaped her first years post-diagnosis, and why finding community can make all the difference. Drawing from her background in healthcare and her deep commitment to advocacy, Kristina is building bridges for others walking a similar path. Her story is a testament to resilience, reinvention, and the truth that it’s never too late to begin again.

]]> Everyday CF by Vertex Pharmaceuticals Buzzsprout-17860399 Wed, 17 Sep 2025 10:00:00 -0400 2047 5 3 full false Redefining Strength Diagnosed with cystic fibrosis at 18, Ivan brings a powerful story of resilience, identity, and transformation. In this episode, Ivan opens up about the emotional and physical challenges of navigating CF in early adulthood and the discipline it took to reclaim his health and mindset. Now studying exercise science and working in tech sales, he channels his passion for fitness, family, and advocacy into a life of intention. Through grief, growth, and grit, Ivan is redefining what it means to thrive with a chronic illness and why visibility in the CF community matters more than ever.

]]> Diagnosed with cystic fibrosis at 18, Ivan brings a powerful story of resilience, identity, and transformation. In this episode, Ivan opens up about the emotional and physical challenges of navigating CF in early adulthood and the discipline it took to reclaim his health and mindset. Now studying exercise science and working in tech sales, he channels his passion for fitness, family, and advocacy into a life of intention. Through grief, growth, and grit, Ivan is redefining what it means to thrive with a chronic illness and why visibility in the CF community matters more than ever.

]]> Everyday CF by Vertex Pharmaceuticals Buzzsprout-17619567 Wed, 20 Aug 2025 13:00:00 -0400 1406 5 2 full false Traditions Through Transitions Maggie, a proud member of the Latino community and business owner, opens up about her experience as a caregiver to her adult daughter with CF. Balancing the demands of caregiving with her love of cooking, family traditions, and entrepreneurship, Maggie shares how her cultural roots and resilience help her navigate life's toughest transitions.

]]> Maggie, a proud member of the Latino community and business owner, opens up about her experience as a caregiver to her adult daughter with CF. Balancing the demands of caregiving with her love of cooking, family traditions, and entrepreneurship, Maggie shares how her cultural roots and resilience help her navigate life's toughest transitions.

]]> Everyday CF by Vertex Pharmaceuticals Buzzsprout-16725558 Mon, 03 Mar 2025 12:00:00 -0500 2047 5 1 full false Supporting Every Breath Tune in for a bonus episode with Carissa! She's back, and this time, she's diving even deeper into very relatable topics about caregiving for a loved one with CF. This time, she’ll cover vulnerability, navigating your child’s dating and love life, and tackling negative self-talk as a caregiver.

]]> Tune in for a bonus episode with Carissa! She's back, and this time, she's diving even deeper into very relatable topics about caregiving for a loved one with CF. This time, she’ll cover vulnerability, navigating your child’s dating and love life, and tackling negative self-talk as a caregiver.

]]> Everyday CF by Vertex Pharmaceuticals Buzzsprout-16054447 Tue, 05 Nov 2024 14:00:00 -0500 2510 4 2 bonus false Learning How to Cope Raising a little one with cystic fibrosis (CF) is complicated. Carissa gets vulnerable about how she copes through the hardships of caregiving, revels in the joys of being a mother to a child with CF, and makes space for both things to be true at once.

]]> Raising a little one with cystic fibrosis (CF) is complicated. Carissa gets vulnerable about how she copes through the hardships of caregiving, revels in the joys of being a mother to a child with CF, and makes space for both things to be true at once.

]]> Everyday CF by Vertex Pharmaceuticals Buzzsprout-16054413 Tue, 05 Nov 2024 14:00:00 -0500 2263 4 1 full false Finding a Flow That Fits You Get to know opera singer, yoga teacher, community leader, and entrepreneur Katie as she explains the unique experiences that led her to where she is today and shares how she incorporates mindfulness and joy into her routine on a daily basis.

]]> Get to know opera singer, yoga teacher, community leader, and entrepreneur Katie as she explains the unique experiences that led her to where she is today and shares how she incorporates mindfulness and joy into her routine on a daily basis.

]]> Everyday CF by Vertex Pharmaceuticals Buzzsprout-14774325 Tue, 26 Mar 2024 17:00:00 -0400 1609 3 4 full false Take a Mindful Moment Find a quiet space and follow along with this relaxing mindfulness meditation led by yoga teacher, Katie Malik.

]]> Find a quiet space and follow along with this relaxing mindfulness meditation led by yoga teacher, Katie Malik.

]]> Everyday CF by Vertex Pharmaceuticals Buzzsprout-14774300 Tue, 26 Mar 2024 17:00:00 -0400 608 3 3 full false Embracing Your Personal Journey with CF From leaving Guatemala with her family in search of crucial CF care to getting her masters and becoming a bilingual speech-language pathologist, Maria shares how her positive outlook and strong support system helped her stay true to herself every step of the way.

]]> From leaving Guatemala with her family in search of crucial CF care to getting her masters and becoming a bilingual speech-language pathologist, Maria shares how her positive outlook and strong support system helped her stay true to herself every step of the way.

]]> Everyday CF by Vertex Pharmaceuticals Buzzsprout-14058328 Wed, 29 Nov 2023 15:00:00 -0500 1374 3 2 full false Reflecting on Past Conversations Reminisce on highlights from previous podcast episodes and get some hints about future episode topics with host, Julia Rae.

]]> Reminisce on highlights from previous podcast episodes and get some hints about future episode topics with host, Julia Rae.

]]> Everyday CF by Vertex Pharmaceuticals Buzzsprout-13810511 Thu, 19 Oct 2023 14:00:00 -0400 387 3 1 bonus false Facing Finances Caregiver, Magen, gets real about the financial challenges she has faced as a parent of twins with CF and social worker, Amanda, gives advice about making difficult life decisions and finding financial assistance.

]]> Caregiver, Magen, gets real about the financial challenges she has faced as a parent of twins with CF and social worker, Amanda, gives advice about making difficult life decisions and finding financial assistance.

]]> Buzzsprout-11223420 Tue, 13 Sep 2022 09:00:00 -0400 1670 2 2 full false Building Body Awareness Belle talks through her relationship with her body and how her experience as a student athlete has affected that relationship. Dietitian, Molly, provides a few methods for listening to your body and making sure it’s getting the nutrition it needs.

]]> Belle talks through her relationship with her body and how her experience as a student athlete has affected that relationship. Dietitian, Molly, provides a few methods for listening to your body and making sure it’s getting the nutrition it needs.

]]> Buzzsprout-11197208 Mon, 29 Aug 2022 10:00:00 -0400 1886 2 1 full false Coming Of Age Stories A conversation between Julia Rae & Tara.

]]> A conversation between Julia Rae & Tara.

]]> Everyday CF by Vertex Pharmaceuticals Buzzsprout-8908029 Thu, 22 Jul 2021 18:00:00 -0400 1268 1 3 full false Caregiver Experiences A conversation between Julia Rae, Jen, & Michael.

]]> A conversation between Julia Rae, Jen, & Michael.

]]> Everyday CF by Vertex Pharmaceuticals Buzzsprout-8906150 Thu, 22 Jul 2021 12:00:00 -0400 1435 1 2 full false Staying On Track & Making Time For Hobbies A conversation between Julia Rae & Grace.

]]> A conversation between Julia Rae & Grace.

]]> Everyday CF by Vertex Pharmaceuticals Buzzsprout-8906114 Thu, 22 Jul 2021 12:00:00 -0400 1141 1 1 full false